I been diagnosed with Myasthenia Gravis since the beginning of 2020. I had weak eye lids, drooping eyes, weak arms and legs. Chewing was difficult, walking was difficult and hold my neck upright was exhausting. I had every symptom except breathing issues. I was given many PLEX plasmapheresis exchanges and 2 rituximab infusions then more recently had my thymus removed. I had a centimeter of thymoma growth on my thymus. My symptoms are not as bad as they were but I still have slight fatigue. I was told it takes awhile for remission to happen after a thymectomy so I’m waiting and hoping for that but for now I’m better than I was. The only medication I take is Mestinon and routine Rituximab infusions and plasmapheresis exchange’s. Since the removal of my thymus I only take one 60mg pill of Mestinon a day.

I found this very interesting, well presented and useful, thank you. :)

I was diagnosed with MG in USMC in 1969. I have, over the years, been treated off/on with mestinon. I have bad stomach cramps/diarrhea and ridiculous over salivation among the other less significant side effects of mestinon. The result is that I stop taking it. Now, in this video, I heard something about being prescribed something to help with those. I need to get more info on those meds that are effective. Does anyone know what that is? I’m also on Bipap, and have been for about 6-8 months. I’m passing this link on to my pulmonary dr. And my cardiologist (at VA).

Wait…on the slide show. EDS was mentioned as part of the symptom masking issue. However this wasn’t discussed. Are you referring to Ehlers Danlos?

Hi doc I have MG sometimes I have dropping eyelids just I ask doc If my eyelids dropping what can I do doc? Because this time very hard to go to ospital I am taking mestinon , prednisolone,imuran please doc I need your advice