Yes! I thought I was the only one. I have struggled with it ever since I could remember, and thought I was overreacting. Every time I go above ground, it makes my POTS moody. I get lightheaded, dizzy, blurry vision, lost of balance, nauseous, and brain fog. I have fallen at college. Hotel rooms, two store homes, clinics, malls, and hospitals are super hard places. Flying on an airplane is like torture for my heart. Salt, water, and electrolytes do not help unfortunately, but a wheelchair has helped. It makes it easier to go above ground level without the “side effects” being so bad. After my feeding tube placement last month, my parents purchased a shower chair for me. It has helped with the blood pooling, tiredness, weakness, dizziness, and lightheadedness from taking showers. Thank you for your videos. They are super helpful and reliable

Those Christmas lights are amazing!!

POTS and the stairs! Ugh! My favorite place to pass out!

Hi Kenna! I have POTS, and yes going up stairs or any incline is a major trigger for POTS! I live in a two-story home, and whenever I go up the stairs my heart rate goes high and I get shaky and dizzy for a bit. And I feel you on the showering, too, although for me that’s gotten way better since I started intaking a huge amount of sodium eat day, per doctor’s orders. Thanks for sharing your routine!

Raising your arms activates your pots because your heart has to work hard to pump the blood to them bc they are further away. Soaking your piercing in a cup of salt for 5-10 minutes 1-2 times a day helped me a lot. Use non iodized sea salt. 1/8 cup of salt in 4 oz of water or 1/4 cup in an 8 oz cup.

I love videos like this! They remind me (as someone with executive dysfunction) to actually keep a night routine.

I got my gj tube today, got diagnosed with gastroparesis last week. I really enjoy watching your videos your actually my favorite to watch on TikTok and yt!

Love this!!!! :)

Those lights were amazing! I never dry my hair for the same reason. Your cats are so cute.

Super helpful, tube feeds are in sight. I picked up the wedge pillow..my daughter is currently sleeping on a homemade wedge..TY ♥️🙏🏽

My mom is a dental hygienist and my uncles are both dentists, and I have TMJ and trigeminal neuralgia because of my EDS. They say hot compresses alternating with cold packs help with the soreness and pain, and if you can I would recommend getting fitted for a night guard!

I just wanted to say you inspired me to add “read 20 books” to my 2023 resolutions. I would love a book review/recommendation video of all the books you read this year😊 and yess omg showering with POTS is a struggle!! My legs will even turn purple sometimes. I feel like the stairs thing is more about the physical exertion than the elevation, bc once I am upstairs it subsides

I LOVE PHO SO MUCH!! im so glad you’re able to eat it! and omg yes going upstairs makes me sooo lightheaded. what also sucks is getting lightheaded makes me even more nauseous which sucks on a really bad stomach day. and im also glad im not the only person who turns very red after a shower. showers suck the life out of me cuz of my pots and i walk out of them looking like a lobster lmao. thank you for showing us your night routine, i always enjoy watching them :) ❤

😂Joesph when you said about not seeing the shower. I just love him. He makes me lol every video. About the blow drying your hair. I been married 15 years now and my hubby started doing mine. He loves doing it and I love being spoiled. I got to where I wouldn’t wash my hair because it never dries and blowing it dry was too much. About the salt packets, I turn red after shower or most tiring activities. Never did the salt packet thing. Interesting! See…you teach us what to ask our docs and show us we are not alone. It might be normal for some of us. Yay!

What a great video to help others know what it’s like to have all these things. About the POTS thing. I still can not climb up and even happens when driving sometimes. I always yell at others to get away from the edge. LOL it’s only me feeling it. I lived in Colorado and was always hyperventilating and had such horrible virtigo. So we moved out of state. That Christmas house omg! Where was that?

Those lights are amazing. I could spend hours looking at them. Your tree looks really pretty. Thank you for showing us how a feeding tube works. I found it really useful. After you had your tube were you shown a video on how to set it up etc or did the nurses show you? For me, I would need something like this. Also, how do you cope with a feeding tube if you suffer from insomnia? I hate having Gastroparesis, it’s awful. I have a bad migraine at the moment because I managed some gravy yesterday & then ate a couple of pieces of fudge a few hours later & also had a few Haribos. I definitely can’t do little & often. I’ve bought some pigs in blankets for Christmas Day & I’m hoping I’ll be ok afterwards.

Yes walking anywhere does that and it definitely get worse when I go up stairs.

Hey Kenna, that house was awesome. Thank you for sharing! Yes, I have noticed that when there’s elevation changes, I get lightheaded and dizzy. Once at a concert I thought the floor was moving (best way I can describe it) and the whole thing was going to collapse. Turns out I was the only one who felt that, lol. Thank you for sharing the products you use. I’m going to get them and give them a try. I had a piercing that wouldn’t heal and I ended up doing a warm sea salt soak 1x a day for 10-15 minutes (however long I could tolerate the head tilt), along with the saline spray cleans 2x a day…never turned the earring. It helped it so much and my piercing finally healed. It may work for you. Good luck!

Thank you!! I gave my friends and family your stickers in their holiday cards this year!!! Big hit!! Do you ever do any formal exercise or it;s too challenging? Also I am wondering if you'd ever do or know any content about eating disorders in the tube feeding community. Happy holidays,

❤️❤️❤️❤️

i havre somthing simialer to pots if i run or climb up the stairs to fast i feel like im going to faint as well as i get super dizzy

Yeah, showers are a workout but I have kind of system now. So I have a shower chair in the tub, but you can also get shower stools as well. And I always make sure to have a drink with salt or electrolytes in before I go in the shower. I also have a grab bar on the side of my tub as well for safety. Oh and sometimes after I shower I either break out into a hot or cold sweat, so I always make sure there’s a glass of ice water or an ice pack on my bedside table and a heating pad/electric blanket. Oh and if my legs get really red like yours do, I wear compression socks to bed. Haven’t found a brand if compression socks I like yet, anyone have suggestions? But yeah, POTS suck and I totally understand your thing with the stairs too.

Hi! I have POTS and yes, for me going up a floor in a lift like if I am at a shopping centre makes me feel really light headed and faint-y… 😅

Hi Kenna 🤗, I to have POTS and I've been noticing lately as the weather here in Perth heats uo ( between 30 and 40 degrees Celsius) my POTS has a field day, as my husband Laurence and daughter Jennifer Kember refers to it). WOW !!!!!! 😲😁😂 look at all those amazing orders you got, and in so little time. You are doing amazingly beautiful AWESOME and wonderful things in peoples lives. I love love LOVE watching your vlogs, they cheer me up no end, especially on the really hard days. I also think it is SUPER CUTE (as Joseph) would say that he pops in and out of your vlogs. He has now turned it into a game for me, instead of Where's Wally we have Where's Joseph. Does any body else play that game? Or think it's super sweet that he just pops in?. And or course all the lovely things he does for you, you really are a match made in heaven. Just like Laurence and I, who met when we 14yrs old and married at 20yrs old and recently had our 27th wedding anniversary seriously where does all the time go. I'm so sorry this is a longer comment, but I really do think of you as a friend. Not just someone behind the camera. Oh oh ! Laurences jaw used to pop out all the time when we were younger and he used to visit the Chiropractor. Not saying you have to do tat, your body is yours. Anywho I'd better go now and get some housework done or I'll be here all day. Sending both Joseph and yourself LOTS OF LOVE Hugs and prayers. And Merry Christmas to you both. Love from Karalyn Laurette from Perth Western Australia 🌲🌲🌻🥀🌾🌷🐈🐱🐨🐝🐞🦋🌹🎁🎁🎁🎁🎄🎁🎁🎁🎁🎊🎉🎍 P.S Do you and Joseph have a P.O Box number? Asmy daughter who has special needs and myself would dearly love to send you both something.

Hi Im Nicholas and I have the same gi issue its so bad same problems with my doctors same test no result i cant do this anymore my wife and 4 little children see me suffer everyday i dont have it in me to continue this please what surgery did you get done to help you please let me know thanks

I currently have an abcess around one of my tubes so I'm going to try out your tube care and see if it help. I use the barrier wipe for my picc line but never thought about putting it around my stomas.

Can you go swimming or will water get in the stoma around your tube?

Wait none of my piercings heal either 😂😂 gotta love hEDS

Salam, I am from Morocco, I am married, I have a child, I have intestinal paralysis, I visited more than one doctor and I did not find it. I have lost a lot of weight. My psyche has always been destroyed. I always feel full and heavy and vomit.