😬 Feeding Tube Pain & New Nutrition Goals! 💪 (8/28/17)
Рет қаралды 31,894
7 жыл бұрынPHOTOSENSITIVITY WARNING - Flashing lights from 13:14 to 14:43
MY PATREON PAGE - / chronicallyjaquie
NEW TO CHRONICALLY JAQUIE? START HERE!
- All About My Chronic Illnesses - • Video
- All About Harlow - • All About Harlow! 🐶
- All About My Port - • All About My Port! ♌
- All About My Infusions - • All About My Infusions! 💦
- Judd and Jaq Relationship Q&A Vlog - • Valentine's Day Relati...
--- Skip to 7:03 in the Vlog to watch the Relationship Q&A section!
- “New Here” Playlist - • New to Chronically Jaq...
YESTERDAY’S VLOG - • Getting Wheelchair Tip...
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--- I wear the mask due to my Angioedema and Immunodeficiency, it filters allergens and germs. Learn more in my “All About My Chronic Illnesses” video!
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My Patron Executive Producers: Danielle Smythers, Karen Ratcliff, Jaime Heiner, Elizabeth Smith & Phillip Casey!
@kimleahb6635 7 жыл бұрын
Aw at the very end with the "I said it" "I said it louder" and you're smiling and Judd's lying with Harlow, I think that's a really precious every day moment that easily brings a smile to a face x
@hayleenewton6813 7 жыл бұрын
I love how much happier you look with Judd around. Even when you're exhausted, your eyes sparkle :)
@cathyjeudevine447 7 жыл бұрын
I am so glad you had Judd, y'all look so good together and he helps out a lot. You make every day worth it even on your bad days. You go girl! 👍 You inspire so many people, even me some days I want to give up but have to push on a fight. I will use to push my myself and then I made me worst.
@dinahakim7114 7 жыл бұрын
If I can find someone like Judd he's a great husband you guts are both awesome
@supertoutine2539 7 жыл бұрын
Hi! I've been watching your vlogs for a couple weeks now and I've been looking forward to them every day, also, I'm not affected by any chronic illnesses but I love your vlogs, I found them completely randomly and they have taught me a lot about chronic illnesses, which to be honest I know nothing about. Thanks for being funny and always staying optimistic, thanks for teaching us! Lots of live from France!
@kingsnotdead 7 жыл бұрын
Although I am not diagnosed with any Chronic Illnesses, I do suffer from Mental Illnesses like ADHD, Bipolar Depression, Anxiety, and OCD. These videos always make me smile like the "I said it!" and "I said it louder!" at the end was funny. Thank you Jaquie for making these daily videos. They're very informational, I always get excited when I get the notification you posted! Have a great day.
@lynnrose7562 7 жыл бұрын
Being currently disabled, you have been a great inspiration for me. Thank you. I am glad that things are going better for you.
@wt0416 7 жыл бұрын
You seem much better and refreshed. Yippi!! We get to see Judd!! Hippo really loves that helicopter. Judd is really well controlling that remote. Great job Judd!!
@ifeelnakey 7 жыл бұрын
Love Judds look of concern in the car when you're out of breath. Adorable.... he looooooves you 😍
@rae1957tn 7 жыл бұрын
I have 2 heating pads one for the living room and one for the bedroom same reason bending over to plug and unplug. We do what we think we can't do. Glad to see Judd
@chelli1997 7 жыл бұрын
You seemed so happy today, I love seeing your happy bubbly self so much!
@LongDistanceLovin 7 жыл бұрын
Its amazing how gentle Harlow is with bringing the helicopter back to you guys! If my dog tried to pick something up I feel like they'd crunch it and ruin it :P She's so careful! I love it.
@ShelbyAsInCar1969 7 жыл бұрын
Thanks for sharing! For a time I had a feeding tube, I don't anymore I struggle with systemic lupus, immune deficiency, congestive heart failure and chronic kidney disease I have a port, I get benlysta and ivig once a month via my port, I enjoy your blogs, helps to know we are not alone in suffering at the same time I wish none of us where sick!😏
@agarcia3986 7 жыл бұрын
Harlow is so impressed with Judd's toy 😂 Thanks for putting a smile on my face!
@FBIMOUS377 7 жыл бұрын
Wow 77k subscribers already! I remember when I first began watching, I've noticed the rise in views and subscribers as time has passed. It's just awesome!
@quinniehalee 7 жыл бұрын
I get that pain every time I grow out of a feeding tube. It could be too short of a length.
@ChronicallyJaquie 7 жыл бұрын
Does it kind of feel like something is pushing from the inside? I also get a sharp pain to the left. :/ We talked about possibly trying a bigger size, but at the same time it seems to fit really well. Gosh, it is so hard to know!
@quinniehalee 7 жыл бұрын
Chronically Jaquie that's the funny thing, mine always seems to be a perfect size! But yes I get pain above my feeding tube sight but it feels like it's coming from inside, not my stoma. Usually when that happens I call my clinic and get it changed. After getting it changed, it's sore for a few days, but feels immediately better!
@ChronicallyJaquie 7 жыл бұрын
Thanks for the info! I will talk to my doc more about this when I see him next :)
@monicabieber6 7 жыл бұрын
Dear Jaquie, I want to say thank you so much, from the bottom of my heart, for posting daily vlogs and staying strong. I've been battling with depression and anxiety for about 6 years now. It's a rollercoaster ride to say the least. Sometimes it seems like my mental health is back to normal when all of a sudden I'm back to feeling worthless and my mind starts racing with suicidal thoughts. This year has been such a struggle for me and something happened recently that made it all seem so hopeless. At that moment, I found your channel. Watching you stay positive no matter what comes your way amazed me. How could someone with so many illnesses that limit their everyday life stay so positive? How do you find the will to live? And through your videos I see why. You have an amazing group of people that love and support you, life is too precious to give up on, and God never gives us battles that we can't handle. Thank you Jaquie, for giving me the strength to want to live life even through the hardships. I know that my mental illnesses are NOTHING compared to your physical ones. That's why your perseverance for living life makes me appreciate and not take for granted all the things that I can do that you don't get a chance to do on a daily basis. Even then on horrible days like the ones you just had, you find something positive to focus on to help you carry on. Now I'm confident that when a bad day comes, instead of crying and feeling like a failure, I'll get to say that I got through it and celebrate all the victories of that day no matter how small they are. I'll be praying for you and thank God for people like you on this earth 💕 Sending love and prayers from Texas ❤️
@ChronicallyJaquie 7 жыл бұрын
First off, I pray you are doing well in Texas. Secondly, thank you so much for your kind words and support! A huge part of my mission is to help others feel empowered in their own battles.
@monicabieber6 7 жыл бұрын
Thanks Jaquie, for everything
@susano7587 7 жыл бұрын
God bless you Monica Coronado. Praying for you.
@monicabieber6 7 жыл бұрын
Thank you, your prayers are a blessing :)
@LILlissi 7 жыл бұрын
Ahhh today I saw a BRIGHT PINK fluffy blanket in a shop and I thought of you :) you're great, and I enjoy joining you on your adventure
@dragonqueen3515 7 жыл бұрын
you are looking and acting so much more energetic (when you arn't in pain) I'm so glad to see you getting a bit of a break and I wish you a smooth road to your goal rates!
@thiccynikkyyee4339 7 жыл бұрын
Even when it hurts we all love to see your smiling even if your not all the time
@nush13 7 жыл бұрын
My friends dog loves the helicopter. Whenever she hears the noise she runs downstairs and grabs it out of the air!
@emi3084 7 жыл бұрын
I pray for you❤️❤️ you are a trooper
@vindelanda 7 жыл бұрын
Your positive attitude and honesty are so infectious! I can't stop watching your vlogs. I've learned so much about chronic illnesses I hadn't even heard of before you! Your mission to educate and spirit of adventure is very inspirational to me. Thank you!
@kelsiwasherelol 7 жыл бұрын
YOU'RE ALMOST AT 77,000 SUBSCRIBERS !!!! LIKE 6 PEOPLE AWAY !!! I'M SO EXICTED FOR YOU !!!! I have been following you for a while :) you have helped me with my Diagnosis of postural orthostatic Taychcardia syndrome and Mast Cell activation syndrome. Thank you for spreading awareness :)
@tinamoore281 7 жыл бұрын
I just wanted to say, I've never commented on anything before but I wanted you to know that I am so glad I found you. I also have chronic pain. Chronic migraine, Chiari Malformation which causes headaches and fibromyalgia. Those are the big ones anyway. You make me feel not so alone. I've always thought that chronic is a very lonely place. You make it not so much. Thank you!
@ChronicallyJaquie 7 жыл бұрын
Welcome! So happy my story can help you
@cathyjeudevine447 7 жыл бұрын
So cute Harlow playing 🚁 with Judd. lol
@matuhtuh87 7 жыл бұрын
Hey! what makes me feel better through problems and rough times is when i think. I am fighting a battle but others are fighting wars.
@FunsizedStyle 7 жыл бұрын
I'm so happy that for you that you had such a great appointment! :) Btw..seeing Harlow follow the helicopter made me smile so much!
@misipigirl_7781 7 жыл бұрын
So wonderful that you got a good report and you are just glowing with happiness. God's taking care of ya! 😉🙌🏼
@chemicalnations9952 7 жыл бұрын
It's so great to see you so smiley! Best of luck on your journey! 💙
@outdoor_indica 7 жыл бұрын
That 70s show! LolGlad to see you having a great day jaquie😁
@keshetsilver8660 7 жыл бұрын
I truly know that you and your family including Harlow have the biggest hearts 💕
@buckeyehockey1979 6 жыл бұрын
Harlow was keeping a close eye on that helicopter, lol. I love that you can laugh at yourself and sometimes the issues your illness brings. I had to learn that myself. I will loose grip on something but with my fibro it doesn't always go down. Sometimes stuff just randomly flys across the room, lol. I would just look at my coworkers and say "don't mind me, just throwing stuff at you again" and laugh it off.
@jameskennedy9655 7 жыл бұрын
Hi Jacquie +Judd, really nice to see you doing so well with your new feeding tube. Love you guys. Jim and Julie:)
@hollybronwyn8176 7 жыл бұрын
Oh, Jaquie, I can relate ... I have a heating pad in three rooms of my home. use them everyday. REALLY hope this new organic food works for you!! ... sounds like a great option. Hug to Hippo. :) what a beautiful soul she is. BTW, goldens have all that beautiful downy soft fur under their outer coat, so if exposed to water, they still stay pretty warm underneath it all. :) All she really wanted was a bite of yummy seafood. ;)
@MsShutupndance 7 жыл бұрын
So glad that things are moving forward for you Jaquie. And Judd, you are a ninja with that helicopter for sure😹
@mandm2054 7 жыл бұрын
Hey Jaquie, thank you for sharing the name of your new formula. I've been looking for an organic one myself. Love & Light, Beauitiful
@pamickeygg 7 жыл бұрын
Thanks so much for your photosensitivity warnings. Flashing lights give me seizures. I have found that closing one eye helps but sometimes I don't do it soon enough so your warnings are a big help.
@andrewkim7700 7 жыл бұрын
i'm rooting for you Jaquie!
@mollie._.a5766 7 жыл бұрын
I think that it is very nice and respectful that you put a photosensitivity warning in the beginning of the description.
@ChronicallyJaquie 7 жыл бұрын
It's super important, I know a lot of my viewers have conditions that can be made worse by lights (:
@DeeDeeHeShe 7 жыл бұрын
You are a georgous inspiration to a depressed Missouri woman. Thank you!
@mackenziekahrhoff7332 7 жыл бұрын
That heating pad is AMAZING! Be warned- you'll never want to go back to your old one :)
@Rachmewalker 7 жыл бұрын
So happy your appt went well! Harlow is too cute with the helicopter :)
@camcam794 7 жыл бұрын
I love that heat pad. I have the same one! It gets so warm
@thewheellife9826 7 жыл бұрын
I had a Golden Retriever growing up. We took her to a local pond several times and she would go up to her chest and turn around and come back out. At first, she was a puppy so we thought she would get used to it. Nope! Never did! lol
@404jessnotfound6 7 жыл бұрын
What a fun day, glad to hear the great news! You should totally get an elephant rain coat that's pink or one for Harlow 😂 that'd be so cute!
@Kikiviewsvids 7 жыл бұрын
Jaquie, u will for sure reach your goal. God got you!!
@scottishgirl1100 7 жыл бұрын
As someone else who has a ton of chronic disabilities/ diseases that make my normal daily life more difficult you are an inspiration. Just to name a few ADHD, dyslexia, migraines, IBS, celiac, asthma. they suck but they are who i am.
@CameronTurner 7 жыл бұрын
love the new painting!
@Trekkifulshay 7 жыл бұрын
My daughter switched formulas and she's tolerating it and can have a much higher rate. She also takes the antibiotic 3 times a day to help with her motility. Hope the transition goes well for you.
@ChronicallyJaquie 7 жыл бұрын
That is wonderful to hear!
@Alkeidmejordiffentmabnss 7 жыл бұрын
Sending you tons of love from Venezuela
@kimberlyschultz1565 6 жыл бұрын
I am in a lot of pain at my GJ TUBE site. I was really concerned but after seeing your insight I feel good it's not a major problem and hopefully just like you I'm getting used to it. I just had it place 3 weeks ago, I hope it gets better.
@kampover 7 жыл бұрын
Harlow during watching the helicopter was like: Intruder! Intruder! And then: Look humans, I got it, you're safe. So funny! :D
@phoenixmoon5580 7 жыл бұрын
+Chronically Jaquie When you braved the rain and referred to it as 'braving the elements', it reminded me of when I was young and couldn't say a certain word and would say 'elements' instead. I thought that you could swop it over, strangely, (I have an infection at a my worst time of year during a bad relapse of most of my conditions, and a really really bad relapse of a main one!). The word I couldn't say is something that you like, and therefore would be both a good fit for you, and might also bring some brightness/positivity something that you are less keen on. So, when you see rain or weather you dislike, you are: "braving the elephants!".
@danielleagajanian4182 7 жыл бұрын
HI!!!JAQUIE & NICE TO SEE YOU JUDD ACTUALLY BOTH OF YOU HI!!! TO HARLOW TOO Y'ALL HAVE A BIG STORM THERE BE SAFE & CAREFUL GBY FROM DANIELLE AGAJANIAN & DENISE
@imfreetobeme8 7 жыл бұрын
Great vlog...I hope you get some relief soon.
@SparrowSage 7 жыл бұрын
Hope you find a way to not be in pain, your amazing!
@valdis7215 7 жыл бұрын
I have that same heating pad! It's my favorite!
@tilliesaylor6314 7 жыл бұрын
Jaquie go to your video- Service dog makes hilarious mistake, You got 1 million views on that video! Congrats!
@teresabowden6165 7 жыл бұрын
I'm so glad you are feeling better. You look better too. We can tell when you are not feeling to good. Harlow does so well with his commands. Judd you are vert goid flying that helicopter. Love you vlogs
@tangalalynnbuchholz5479 7 жыл бұрын
Please keep up the good work. Stay safe and stress doesn't work. I would love to have a pup too. But that is wishful thinking for me right. Prayers..hugs...love
@sophiehart8043 7 жыл бұрын
I love watching your vidoes because I can relate to you and I don't feel so alone thankyou so much 💓
@kattieanderson5809 7 жыл бұрын
I have no doubts that you will reach your goals! :)
@caraelisabethr 7 жыл бұрын
If your looking for really comfy shirts and long sleeves merona at target is really nice and soft! 😊
@analarson2920 7 жыл бұрын
Sorry about your pain to the left. Totally understand the cell phone charger dilemma we always keep checking to try and charge the other phone too. Actually on mussels, besides being yummy, they are really good for you especially from a good source. Praying really hard for you Kate Farms to be okay, also praying for your dietitian to be okay too, usually insurance pays for it if you doctor supports you for your needs. I am grateful for all your helps too, and thank you so much for sharing, it keeps me to double check myself and my kids and we talk more about nutrition and how our gut/microbiome works and helps our immune system and moods. I think I will get a helicopter too to teach our pup to leave the flying things that are not balls or frisbees. It's good to play! Hope the heavy rains did not affect you Floridians.Blessings!
@bri2uty 7 жыл бұрын
Woah I've been at this restaurant! One time I stayed at a place that's like 2 miles.... north? But yeah. That place is awesome :)
@endog 7 жыл бұрын
im so happy u can eat more now food is awesome!
@jayfingerson7043 6 жыл бұрын
idk why but some one needs to draw jaquie a judd as finn and jake and harlow as lady rainacorn
@amandababiera6231 7 жыл бұрын
Hey u inspire me so much I love you so much
@DScritchy 7 жыл бұрын
Jaquie, have you ever tried corn/rice bags for your pain? You heat them in the microwave and they hold the heat well. I usually prefer them over heating bags (especially when I have a bad stomach) because they have a good bit of weight so they stay where you put them and you don't need to press them against the sore bit. You can also go to sleep with them bc they slowly cool down, unlike a heating pad. They're less helpful if it's your back that bothers you unless you can lay on your stomach but it's aces for neck and shoulder pain (or cramps or nausea). PS: I prefer corn bags... they smell a bit like popcorn when heated and it's kind of comforting. PPS: I'm sure you could find them on Etsy if you were interested.
@ChronicallyJaquie 7 жыл бұрын
Thank you for the info! I have not tried them but will look into it! (:
@alliewilson1907 7 жыл бұрын
I was going to comment about this the other day because I use those for my neck and lower back pain and I enjoy them a lot. But I did think, mine starts to get cooler after about 5-10 minutes. Maybe not cool but not as hot as I want it. And that would mean more trips to the kitchen, which might be difficult for Jaquie.
@DScritchy 7 жыл бұрын
Allie Wilson; Are you using rice or corn bags? I've always had corn bags (grampa liked to feed the squirrels with cobs of field corn skewered on huge nails driven up into the branches of a tree. When he passed we found sacks and sacks in his garage and my aunt started making the corn bags) and I think they may hold heat better. I found you really need to heat them well to start with, like almost too hot (if I really need it to last I'll heat my large one for at least 7 minutes on high) then you can put it over clothes or a blanket to tone down the heat. As it cools you can move it closer to your skin. Mine last for a good 3-4 hours that way. It may not last forever but it's much safer to sleep or nap with than an electric pad which can potentially cause burns.
@DScritchy 7 жыл бұрын
Chronically Jaquie; You're so welcome. So happy your new tube is working out so well! And ooh! Forgot to mention. If you try them make sure to get one with a removable cover for washings! Better for your allergies.
@chasetonga 7 жыл бұрын
I had one with wheat in it. We called it the "warm thing".
@maddiecarl423 7 жыл бұрын
i love harlow so much!!💕😚😭
@jot1809 6 жыл бұрын
I know this is months late (but I've just found your KZfaq videos, and am plowing my way through all of them, trying to catch up!!), but I've had GJ feeding tubes twice now, so I would like to share the info I've learnt from both times (I've got one in currently) with you in case it might help. The abdominal pain you're experiencing is something I feel quite often too, and my mom (who is a doctor) told me that it is probably muscular. You have to remember that even though it is only a small incision, its still cutting through muscle and organs, and therefore any movement will tug at the wound. Unfortunately there isn't much that helps with the pain, though I try to stretch my torso as often as possible to alleviate any tension in my stomach muscles. You've probably learnt all about this by now, but I thought that it wouldn't hurt any to inform you anyway. Also, about venting? You're doing it right, as far as I know. I vent whenever bile or stomach acid builds up, or when I can feel that things aren't "going down" well.
@soof9727 7 жыл бұрын
You are so inspirational to me
@dinahakim7114 7 жыл бұрын
Ouch that looks like it hurts
@19SaraJane 7 жыл бұрын
Have you considered surgical options for your GP? I had a pylorplasty/plyormyotomy (they are the same thing) done endoscopically up here at cleveland Clinic. It has completely changed my nutrition status for the better! I can eat so much more than I could before and get so many fewer symptoms.
@ChronicallyJaquie 7 жыл бұрын
We have not, but that is so wonderful it has worked for you! (:
@debyselever7168 7 жыл бұрын
Wow only 7? Lol early squad where ya at😝😝
@nettemarie8073 7 жыл бұрын
Harlow: *grabs the helicopter and walks off* Dis is mine now.
@3534MilanDrive 7 жыл бұрын
Awe, you seem like you feel better.
@claireelizabethblake8911 7 жыл бұрын
Wet Harlow is so cute and that painting is so pretty!! 💜
@stacyspigsandcrittersstacy8910 7 жыл бұрын
my heart goes out to you may God bless you and cure you
@anahidkassabian4471 7 жыл бұрын
Have you considered using wheat bags instead of heating pads, or maybe along with them? The downside is that they need reheating more often, but the upside is that they mould to your body, so they're super soothing. I haven't tried it, but maybe you can put the heating pad behind the wheat bag so that they don't need reheating...
@elizabeth30273 6 жыл бұрын
I love your raincoat. I have been looking for one. Do you remember where you got it?
@daisythecrazy3815 7 жыл бұрын
I believe in you you've got this gal(: tell Harlow I say hi!
@happyhippofinds7210 6 жыл бұрын
My boyfriend and me do this at restaurants. He eats and I get a drink and nibble a little. People always ask why I like to go out to eat and not eat. I enjoy company and they shouldnt have to starve because I cant eat
@TheNailgirl12345 7 жыл бұрын
With my feeding tube, I've had pain there before and it ended up being the balloon that's keeping the tube in place rubbing against my stomach, so it caused an ulcer. I had to put carafate in the g port and let it sit there for a little to help it. Carafate is something that coats the stomach. But hopefully it'll get better!
@ChronicallyJaquie 7 жыл бұрын
Good to know! Thanks for the info!
@jessicasullivan7559 7 жыл бұрын
Hi Jaquie! I've really enjoyed watching your vlogs! Normally I wouldn't comment but I'm just a little concerned about you adding erythromycin into your medical plan. What you and your doctor decide is obviously your business but I just wanted to mention that I'm a doctor of Audiology student and therefore I'm pretty familiar with drugs that can be potentially harmful and damaging to your hearing and/or vestibular systems. Erythromycin is an ototoxic drug that can cause decreased hearing as well as tinnitus (ringing in the ears). It shouldn't be too much of a problem if the use of the drug is short term but it's something that you should certainly be aware of and monitor if you do choose to peruse that route. I hope all is well during your adventures! - Jess
@janetatum8966 7 жыл бұрын
Jacquie, what kind of bras do you like that are gentle and don't bother sensory and pain symptoms? Or are pasties the solution? Jw, if you don't mind...I have some of the same chronic illness issues as yourself.
@patriciaison8451 6 жыл бұрын
Love your vlogs I was wondering about your roomba does it get stuck on the furniture
@Nyp0it 7 жыл бұрын
I wish I was as pretty as you! You look much healthier then earlier in your videos!
@sidneydowns3893 7 жыл бұрын
Ylime Is a cat I agree x1000000!
@katielizz 7 жыл бұрын
Hey girl! Do you feel run down more around the beginning of your cycles? I'm new to your channel, trying to catch up. I'm showing symptoms of POTS, and my symptoms are always so much worse around then. Love your channel. Sending positive healthy vibes your way from flooded Houston.
@zv3000 7 жыл бұрын
Of course she loved the rain ! :P labs love water !
@marti4203 7 жыл бұрын
Harlow is actually a golden retriever. (:
@KylxT 7 жыл бұрын
I'm just wondering and would like to ask you something. What would happen to the remaining nutrition cans if you have a lot on hand but have switched to the new nutrition formula?
@tinyGiraffasaurus 6 жыл бұрын
harlow is so cute! idk why i watch all these youtube videos that make me want things that i can't have :c lol
@CancerKicker98 7 жыл бұрын
I hope you get to only have morning feeds too! 😄
@rebeccacooley4674 7 жыл бұрын
Jaquie. Can you make a play list for the captioned videos?
@ChronicallyJaquie 7 жыл бұрын
The captioned ones are marked with CC at the bottom and I am close to my goal of being able to caption all my videos :)
@rebeccacooley4674 7 жыл бұрын
Chronically Jaquie thank you so much. Have a beautiful day!
@charlottestandage2765 9 ай бұрын
Miss Jacquie so much. I do wonder how Judd and Harlo are doing. I hope they are doing well.
@JF-dn9fp 7 жыл бұрын
Hey 😊 I've been following you recently, and I don't know if you mentionned this before but I have a question: Can you drive (with someone/alone) ? Or is it too dangerous ? Love your videos btw 😁♡
@meghan177 7 жыл бұрын
Crabby bill's is great!
@kaitlynmuller7693 7 жыл бұрын
I will pray for you !!! Gods at work!!!
@juileammeraal8134 7 жыл бұрын
I just wanted to tell you all that I love you both :-)
@kristencastilleja6714 7 жыл бұрын
Hi I have several illness. I have Cerebral Palsy and hydrocephalus and Turner syndrome and Gastroparesis ( I think I spelled that right). Do you know of any cooking books that will help me be able to eat more. My husband is trying to look for some. My cerebral palsy which is a muscle disorder and has to do with my brain, their are days when I'm in so much pain that I can't even use my walker. It sucks. My hydrocephalus which water on the brain which I have VP shunt that drains the water for my brain and keeps me alive and sometimes that hurts as well. I have a cat who was trained like a service dog and she can sense when my legs are gonna give out cuz my CP and she can sense when I am have a asthma attack. I love her. Seeing you push your pain to get things done really motivate me to keep trying and pushing forward. So thank you so much for the vblog.
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