What is it really like to live with a condition like neurofibromatosis?
This video provides a window into a world that most people are unaware exists and is difficult to explain.
In partnership with Alexion, this video provides a small insight into life with NF1 and the ongoing burden of disease for both Grayson and his family.
The Children's Tumour Foundation is the only patient advocacy and support services for children, adults and their families in Australia. To learn more about us or the condition, go to www.ctf.org.au or follow us @ctfaustralia on Facebook and Instagram.