Yes I saw thanks so much Zoe!! :D xx

Hey, I have POTs too, and I've thought about starting a business from my bed before but I never really know how to go about it... do you have any tips? also I'm gonna go check out Wildest Dreams Book Box as it sounds so awesome! I'm proud of you, and it's wonderful that you have something so amazing to talk about and have a business for.

@@infinitelithium Hi, fellow PoTsie! I worked on the idea first; it was more of a pipe dream at the time. How I wanted it to look. The audience. The price. I started advertising months before to get a platform. I started off with low numbers so that if it flopped, I wouldn't lose too much. I was already a book blogger and booktuber, so I already had contacts in the publishing world. And thank you so much, that's so lovely of you to say 💙 My Twitter is @zcollins1994 and my Insta is @zoecollins1994 if you wanted to talk more about it x

I admire your courage, the courage u had to force out of yourself to persevere thru. Well done. I also have POTS, maat cell activation, dysautonomia (body can't regulate blood pressure, heart rate basic normal levels of blood sugar, etc), cervical instability Chiari malformation, ehlers danlos syndrome both hypermobile and classical, a connective tissue disorder that is reosonibke for over 50 serious symptoms. Gastroparesis, leaky gut syndrome, IBS, two stroke by 34 & now I'm recovering from surgery, day three. I am in so much pain I want to claw my own eyes out and can't take painkillers either. My point is, this messes w ur mental so badly, that you just are not the same after you're done. I'm so done w surgery! And I bet u are too!

okay not to be creepy but I recognized your first name and story and so I know that's your @voldymorts on Instagram and I just wanted to say that life changes fast and it is terrfying and beautiful and I've been watching your recovery in your captions (I've had some major surgery and continued mental health stuffffff in the last year too so I Get It to some degree) and just remember that facing life is hard as hell and you're hecking winning at it by just being alive

Heather Thompson this is a wonderful concept, thank you for sharing!! That really helps and takes a lot of pressure off of people, I am sure :)

Student mental health nurse how do like giving risperdal consta injection to female patient in buttocks every two weeks. Does student mental health nurse laugh and smile on there face when they received injection so female patient can stop PMS, sexual function, orgram function.

Heather Thompson that’s a great way of thinking about it

I love this so much! Thank you 😊

Shaye Eller pure truth !!

WOW, thank you so much for posting this! I'm going through steroid treatment as well as chemo to suppress my immune system. I've been doing the chemo off and on for years but have been having to do it seriously to fight for my lungs for almost 2 years now. "Chemo" is a strong word that I avoided for a while but I sort of learned to embrace but that is a whole other story. Just to shorten it, they use it as chemo and I have the same reaction to cancer patients using it and it's been the best way for me to be able to quickly tell people around me what's going on. I've got mixed connective tissue and the lung part I'm fighting right now is interstitial lung disease from the auto immune collection I have. It got really bad over the summer and that is why I'm on steroids now. I hadn't been on steroids for I think 7 years and when I went off them all that while ago I said the only way I would go back on them would be if I had morphine and was hospitalized (I thought I was going to have a stroke). I had it via IV with the chemo over the summer and someone botched the order and gave me a giant dose and I'm still trying to figure out what happened. The blurred vision side effect made me go legally blind temporarily. That was the worst side effect probably. I'm on a lower dose (that I was supposed to be on earlier) and I'm still having blurred vision so I'm actually surprised I have been able to type this much. I'm just waiting for my eyes to give out! Sorry, I'm just rambling about myself and not getting to why I wanted to thank you, lol! That kind of feels like a thing in our community, though, doesn't it? We have to explain our condition to each other so the other one knows we're in the same club or something. It was not an easy decision for me to do steroids again or even chemo. When I went off chemo the last time before I started coughing up blood two years ago, I said I was never going to try another kind again and was going to take life as it came to me. It was a quality of life decision. But then my nephew was born in between. Now I'm fighting for him, too. I wasn't sure about trying steroids again, but I had literally just had a conversation where I flat out refused when he told me he is going to be a big brother. I took it as a sign and did a 180 and had another talk with my rheumatologist. One of the biggest things that helped me make the decision was one of my doctors saying, "Nobody wants to take steroids." I don't know, just having him be real like that and showing how it isn't hard just for me but for other people, too, did something. Maybe I wasn't as much of a wimp as I thought I was for reacting so badly to them? And this doctor has one of the worst bedside manners of all the specialists I see, lol! I kind of put up with him because he's the only specialist in his field I can really go to. Anyway, I've been having a really awful day with everything and then this video popped up and then your comment was there (remember my eyes, lol!) and everything was so perfect! I'm not alone!!! And that is another thing about this community: we get excited to not be alone but then I go and feel bad because I don't want other people to have to go through what I'm going through, lol! I am so sorry for everything you went through and that part about your friend really got to me. I have made friends through my whole journey (I'm in my early 30s and have medical issues my whole life but started figuring out the auto immune part as a teenager) but there comes a time when I just can't keep it up. I know they get it and the good friends are the ones that won't drop me when I can't be a good friend, but it hurts me so much to be such a horrible friend. I'm terrified that when I have to "check out" and take care of myself for however long that is, something is going to happen to one of my friends. I haven't been as close but I have known people who have died and I feel bad enough about that already. I know I can't live my life wondering "what if?" but just thinking of those I lost and have so many regrets for not trying harder to stay in touch. Something I did want to also comment on is the "being brave" part. I totally get what you and Hannah are saying and have some of the same reactions. Back to the chemo part (there was a reason I wanted to get that in there earlier!), I was watching wig videos here on KZfaq earlier and a couple times I would comment on a video or another person's comment and right away people would say, "You are brave!!!" I kind of froze and didn't know how to react. I kind of thought, "You just know I'm on chemo, you don't know anything about me . . . " Not like I took it as an insult or anything, I was just kind of confused. I thought about it a lot (we have too much time with our thoughts, lol!) and I kind of wonder if some of it is trying to build us up? Well, obviously, I'm pretty sure they do mean it as a compliment of some kind. But I heard about the law of attraction and I was wondering if there was something like that going on. If we hear we are brave enough, we will feel brave and when we are having troubles we will remember that and be inspired? So I've got a couple weeks left on this steroid course and I could be panicking and wondering how I'm going to get through it, but then if I had been told I was brave enough and it was so positively reinforced, maybe my mind will go to that positive place more often? I'm sorry, I'm not sure if that makes any sense, lol! It's actually my first time trying to write it out and my eyes are all messed up by now so I'm having trouble even seeing what I'm typing. But I'm feeling like I'm getting power from the "you are brave!"s? Sorry if this is just one huge mess and I hope I was able to connect it back to your original comment! Thank you so much for writing this and for all the people who upvoted it so I could see it right away! And thank you of course to Hannah for making this video in the first place

As a disabled person I think a good replacement phrase is 'i really admire the way you are handling this'

Dainty Brighton GIRL I feel you. I always said I'd never take prednisone (I saw it basically ruin my grandfather's health) but when the doctor says, "Take this or you'll die" that conviction disappears pretty fast. The friend I lost was the kind who was there for me no matter what - but because I was so sick in the months before she had her accident, I didn't see her as much as I normally would have and that hurts. I hope you see an upswing soon! I also have connective tissue problems and I know that can have its own issues outside of autoimmune stuff.

Shaye Eller I had to screenshot this. I struggle with mental illness so it’s different but similar at the same time, thank you for these words💜

Totally. My response when anything like that happens to me is to stay in bed and watch a lot of TV. I exercise of course but running a 5K? I can't even imagine.

I’ve been doing it for 7 years!! I love it!

Aaaw congrats!! That’s an amazing accomplishment!

@@hannahwitton omg you replied. aaah. Been watching your channel waaay before your stoma. Always loved your energy and content

Jesse Clark stay strong it’s tuff, I had those 3 surgeries in 2006 , for my Uc, mine was severe.. but my life is much better now . I’m not sick all the time any more

Yeah I didn’t even intend for the diary to be used in this way. I’ve kept a daily/5 year diary for 7 years now!!

Also thank you for sharing the fact that there id mental health problems that come with living with a disability and it’s something that I feel medical professionals need to realise more when it comes to post op recovery as no one even picked up my anxiety when I was 16 and I went through a really tough time trying to fight it alone. Like you say, bravery is a choice, I could have given in to my anxiety and let it stop me going to 6th form and Uni. But although it was a huge thing for me to carry on. I did and I am proud of myself for that ☺️

It's short for manicure-pedicure so essentially getting your fingernails and toenails painted all in one go.

It might be my least favorite word. I don't know why but it really grosses me out.

Woah that really does sound like a soap opera. Hope you’re alright x

@@hannahwitton Doing better now, thank u!😊 I think the problem is that no one prepares us for bad luck in life. Parents and teachers teach us that life depends on studies, career etc. As if everything will be a consequence of good choices and hard work. No one prepares u for the possibility that illness could influence your career, that u might not be able to get pregnant and have the family u wanted. Just simply that life happens and bad luck could come your way. Maybe it's just me but I totally got a shock waking up from teletubbieland. I'm convinced things would have been easier if I was prepared better for real life with the downs included. That's why I find channels like yours so important 👏

Did you happen to take a strong antibiotic some months before being diagnosed with Crohn's?

We’re definitely not alone! You got this!!

@@hannahwitton yessss thank you💖

live the best life, i wish you all the best.