I wish I had been diagnosed at your age!! You must be such an inspiration to those your age with AS. When I was finally correctly diagnosed 26 years ago, the damage had already been done and my spine was fused. You keep doing what you're doing and keep us posted on your progress!!

Same as what Amy T said about the cracking. My physio said similar when I asked about my neck cracking, he said it’ll start to get uncomfortable and painful when you can’t crack it when you feel you need to and years later I know what he ment. So glad your AS is holding back as much as it is. I personally changed over to Cosyntex last year and it has been wonderful for me! I was doing so so on the 1 injection, but still have some pain in my feet and lower back, so the rheumatologist got an increase to 2 injections once a month and I’ve never looked back. I’m so so lucky. Trouble for me is all the damage that’d happened before diagnosis. Nice to here you’re still here in OZ! I’m from below Melbourne in the country and love it out here. It’s a beautiful country with so much to see in 1 country! Hope you keep enjoying yourself and I hope you get even more better too! 💖

thank you for this. Im 31 and finally diagnosed after 8 years and GPs and physios just saying everybody has low back pain and suggesting panadol. Seriously they have no idea of the pain severity of this disease and now it all makes sense and I am truely believed. Ive just started Maloxicam hope it helps me.

Hi Izze! I just found your channel last night while randomly searching youtube for how to help my SpA (I'm having a killer flare right now and am in outrageous pain!). You'd think that after....what is it, 19 years now? that I'd be an expert at managing them, but I'm not. It's still a challenge every time. But at least I'm looking for new things to learn and try now! Anyway, I'm glad I did chance upon your videos, because you are full of light and an inspiration to all, and I encourage you to keep on what you're doing. Also a model patient -- excellent work! 🙂 You're much more organized and compliant than I ever was :-D. I have a lot in common with you-- I was for a long time a distance runner .... then one day my back hurt quite badly, couldn't even stand-- crawled into my parents room, went to the GP, did some physio, took NSAIDs, muscle relaxants...pain wasn't getting better......thought it would be better by now, still there, maybe even worse?..go back to the GP.... random fevers and GI issues...... special diets and exercise programs that didn't work.... sleep disturbances because of severe pain... dot dot dot dot dot... you know how the story goes. In my case it was 10 years later that I received my diagnosis, but only because I had florid Crohns already by that point, with ulcers everywhere from my esophagus to my ileum when they double scoped me, and they put two and two together with the IBP (inflammatory back pain), and the proper kind of MRI that showed my "shiny corner sign" (T2 hyperintensities indicating edema in the anterior corners of the vertebral bodies), which is basically pathognomonic for this condition, despite that I'm HLA-B27 negative actually, and finally got me on the right meds. phew! That was all one sentence? I totally cheated. (I take Humira +/- sulfasalazine. well, when I first got diagnosed I was on a buttload of steroids too because I was like... about to die, my gut was bleeding from everywhere lol, but now I'm only on those). I also have an asymmetric arthritis, like you. Right now it's my right side that's affected worse. It's been about 3 years now like this. For like 7 years or more prior to that, it was my left. I'm 35 now. I've had pain since the age of 17... well really more like 14, but 17 is when it started to be continuous and impact my life significantly, and diagnosed at 27. Anyway, I could go on, but what I actually just wanted to comment on was in response to your question about cracking and "crunchiness" of spine with certain movements..... So, I agree with what's below. I think it's air just being let out of your joint spaces. The crunchiness I feel is related to my ligaments and connective tissues being "dry", like really poorly vascularized or something, and improves with cardiovascular exercise, massage or hot epsom salt baths, or even certain foods which are supposed to "nourish" the bones and ligaments, like papaya! My theory is that when you are momentarily swollen/ edematous and in a flare, then the inflammation calms down and the fluid gets reabsorbed, you're left with potential spaces in your joints that suck in air to fill up the space the fluid used to be in, then you move and twist and let the air out and it makes a cracking sound. This is just a theory, of which I get a lot when I'm in a flare lounging around contemplating how to save my spine along with deeper philosophical issues..... like the meaning of life, the why's and how's and..... why's.I don't think it's bone tho ( syndesmophytes) making the sound or anything. I know it's loud and scary, and it freaks me out too. I notice this a lot when I do take NSAIDs (which I do not take regularly bc of my crohns and I'm not supposed to at all actually :-D bad patient). I also notice it with dramatic changes in weather - either temperature drop or humidity fluctuations. Sometimes pressure builds up in my spine and pain gets worse right before it rains, and then once it starts raining I feel much better. Also sometimes when it warms up too fast I feel bad too. (I live in chicago. Have you ever heard what they say about Chicago weather?) Also altitude / air pressure affect me a lot. I do not do well in up in mountains!! sea level is where it's at. I just need to go live on a beach somewhere, basically :-). Wouldn't you agree? Yay, cheers. stay connected. Best, Amanda

Would you ever consider doing a live stream with your subscribers as you’re an inspiration to more people than you know!

Heyahh, only recently been diagnosed with AS, however I may have had this fun disease for 2 years... I'm in Melbourne, so maybe its the Australian medication that causes the cracks to continue? I experience a lot of cracking and snapping in my spine; It's actually to the point where I feel like a glow stick! Ahaaha, I had previously spoken to my rheumatologist about it, she didn't seem too worried about it all. Been loving the videos and updates, really helped me get through the early stages of diagnosis so thankyou! Sending love xx

Hope you get well , I have AS too 🫶🏻 I do hear crackling sound too

Girl you are great to watch. Love your personality and positivity. :)

Great update thanks. Without a doubt daily exercise and stretching helps a huge amount. I also get cracking in my spine only a few times a week, but I actually usually find I feel better after it's cracked. Also I listened to a great podcast, episode 61 - Plant Proof Podcast on how much diet can help with reducing inflammation naturally. Since having AS I've really tried to stick to a wholefoods plant based diet, and actually haven't needed my prescribed medication since Nov last year. I currently only Ibroprofine a few nights a week to help me sleep. No doubt diet, excercise and stress control has helped me so much more. Keep up the vids, it's great to see your progress.

So glad I found your channel! I was diagnosed a few months ago and I was wondering if the cracking of my bones/joints was to do with fusing or AS... ITS LOUD and its not just my spine popping.. My knees to it a lot and my shoulders/collar bones do a lot. I have 3 kids and I'm trying to find what will help me enough to be able to keep up with my family. I used to do 5k's with my mom every chance we got, I love kayaking/hiking but right now I've been hurting worse and cant do as much. Prayers for you from Alabama!

My joints and spine are cracking too and I as well feel some kind of relief after cracking them lol. I have been cracking finger joints since high school but have noticed though that with every year my body cracks more and more. I am 28 and have been diagnosed with AS half a year ago. Currently I am not on any medication yet, but my reuma is offering me sulfasalazine, which I will most probably begin taking in the coming months. For now I am adjusting my life style, pushing myself to do more exercise. I am a bit afraid to start this kind of serious meds for now. Good thing at least I don't smoke and my weight is in check.

I’ve had AS for about 2.5yrs, diagnosed 18months ago. I relate to your story, I’d also had some awful times not being able to properly walk and being housebound one weekend too. I take Etoricoxib which has been amazing. I’ve also not had any issue with back cracking... only when I visit my chiropractor!

Well done Izz, keep it up!

You can reverse your Ankylosing Spondylitis by changing your diet which involve stop eating gluten foods like wheat, rye, barley, stop eating grains like rice, corn, oath, stop eating night shades like pepper, white, red or yellow potatoe (you can eat sweet potatoe), stop eating vegetable oils, peanut, stop eating fried foods. stop eating processed foods, stop eating white sugar, stop eating pasta, bread, dairy (milk), eggs, chicken. You can make smoothies like blending green vegetables like kale, spinach, cucumber, you can also cook vegetables, eat a lot of vegetables, eat coconut, avocardo, eat home prepared/made whole foods like sweet potatoes, yams and beans. You can also do exercise like walking, cycling.

I'd love to be to be able to twist as much as you could to get your back to crack! My physio told me once that if your joints crack freely on their own then its normally okay as its probably just the gas escaped. But if you are worried you should always ask your gp, specialist and physio. So good to hear about the medical connection between here and the UK so you can get some treatment options. I was wondering if you were still traveling a lot and how long your supplies would last. I've only ever gone away 3 weeks at a time. I'm glad you seem to be doing okay, all things being considered. ☺

I don't want to live anymore spondylitis ended my life

How weird I've just had my MRI appointment through the post today and this is what is suspected, I've had pain for years and it got worse last 3 years but ignored because my daughter has 22q11.2 deletion syndrome and that had to take priority. I decided to take charge of my pain and now attend the gym daily and excercise helps me so much better than anything I've taken literally I start excercising in pain and by the time my workout has finished the pain is completely manageable its daily tho and if I don't excercise I feel like stone can't say I've got as yet but I'm so proud of myself to of got to the point I'm at now

It's $5,000/month here in the states!

i am also experiencing cracking in my lower back many times or everyday if i twist or any move and also in my neck...

I’m a international student in Australia i have ankylosing spondylitis How much it will cost for me do you know? Please reply 🙏

I don't have AS but psoriatic arthritis with sacroiliitis and my SI joints tend to crack a lot. Especially when I feel more pain or after standing/walking for a very long period of time. Normally the clicking alleviates my pain but sometimes it does nothing. All my other joints that are affected click loads too. So i guess it is just part and parcel of having an inflammatory arthritis..?

I pop all over like that! Lol my boys think it's gross. I am new to all of this but am learning. I am wondering if it's inflammation built up around our spine? The more I more and pop it out, the better I feel??? Not sure?? I am on no meds. At all either..quit all pain meds. A year ago. Treating with food and supplements/ herbs.

Which treatment drs suggest pls show me please.i am from india.iam ankolosing spondylitis from fifteen years ago.pls help me.

Cracks are not involved in SA axiale...

I heard it yes. My back doesn't pop cause I can't move enough. Keep moving and stop smoking... Oh wait.. thats for me. 😖 I started my symtoms in mid 20's, worked as a welder and owned my own buisness. Played volleyball 4 nights a week. The pain continued to get worse over the years but went into rapid acceleration when I got bitten by a tick. I thought I had contracted lyme disease. Joint pain, fatigue, fogginess and the list goes on. Long story short. After a diagnosis of psoratic arthritis, heart attack, kidney failure, diabetes sleep apnea, in that order and about a year separation between each. I now have been diagnosed with AS. #livinTheDream. But I'm unable to work and denied disability 4 times now. That is because my Dr's for 18 yrs. have said "their is nothing wrong with you except 10 buldging and herniated disks, I have buldging disks too" #livin......well you know. I dont want to discourage you young lady but just expressing myself to others who understand what it (can) be like and hopefully you will never go down this path. As long as you quit smoking and keep exercising.... 😉 I was 42 with many yrs. of damage before starting biologics. I pray you have a healthy life and keep the good spirits.

I m 36 recently from MRI doctor diagnosed Ankylosing Spondylitis..but i m fit and dont have any pain anywhere...m i suffering from AS

I am so much frustrated. I barely can sleep at night.

Stop eating gluten.seriously

You have not spondilite ankilozante...you have no shame? May have any deseas but not spondilite ankilozante!! Keep make advertise at travell but not SA ankilosante!!