Diagnosed with MGUS 16 years ago. Health issues all of the time. Polymyalgia Rheumatica/Giant Cell Arteritis. Age 68, non- smoker, no alcohol. Not obese. Not diabetic. CKD, with MGRS, a new and distinct diagnosis for MGUS/MM. MGRS (Monoclonal Gammopathy of Renal Significance). Just on the edge of having MM. Diagnosed with kidney and bone biopsy. Chemotherapy begins as soon as blood test for cryoglobulin comes back. MGUS can be harmless with no symptoms. For me, it has been a nightmare for 16 years. Can't begin to tell you how many doctors told me I was just "deconditioned", and needed more exercise. Have Anemia of Chronic Disease for at least 10 years. MGUS is not always a simple blood "quirk". MGUS is a serious medical condition and like the doctor states, deserves more preventative attention.

Recently diagnosed with mgus. This is one of the best videos I've seen 👏

I have MGUS, I’m excited that they are looking at treating before it progresses. I believe some types have poor prognosis so it would be nice to start with those.

I suppose it'd help if I understood what the big names meant, but one thing that listening to all this has done for me, is increase in me a trust that most doctors really *do want us well! I'm waiting on my myeloma scan result and thought I'd check out things related, whilst waiting.

I have low protein MGUS but slightly elevated Kappa FLC and K/L ratio & B2M, neutrophils, monocytes & WBC. I am a member of the PROMISE study. A brother had MM, a sister had ALL mutated to AML. I am trying to find out when a bone marrow biopsy is indicated, but my general oncologist says not until its become full blown MM according to serum values! I want to know my baseline at least. Should I get a 2nd opinion?

I have smoldering MM. I have had a fracture and have anemia.

My husband has MGUS and I am watching him wasting aware he has so much bone pain and other health problems prostrate problems incontinence and heart problems