I would love for the kids to meet someone with an invisible chronic disease like moderate/severe Crohns disease. I'm in my 30's and look perfectly healthy but am very sick on the inside. Treatment for Crohn's Disease suppresses immune system so if a cashier or anyone at the grocery store has a cold or anything worse, I will get it and it will make me very sick and take me twice as long to recover. A flu puts me in hospital. It's extremely hard when I look perfectly healthy but I'm very sick, some people, friends and even family dont believe me because they cant see it.

Please pin a comment (such as mine) clarifying that the girl in the camo jacket was vaccinated and directing viewers to read the captions. Thank you.

Q B I understand! Got my Dx for Crohn’s just before I turned 16, 30 years ago. People, including family has complained I was faking being sick the day after I came home from hospital! You wouldn’t know I was ill unless I was in the middle of a flare and was stuck out! In the last 15 years other illnesses have popped up. I thought I hurt then! 💔

@@merangel3988 yep, I make the half joke that once you get one auto-immune disease, 'you gotta catch'em all". 😅😥

Meet a person that stutters

True, and she is really pretty though.

@@Yeemoeder she is 😌

@@sarahcgkk a kid once said 'are you wearing makeup?' because my cheeks were red. It was because I get red when I exercise, but thanks, I guess.

I knew Im not pretty at all when i heard "I don't like you " from a kid who saw me for the first time. Later I was devastated.

i was wondering why she was sooo pretty

Winter Pheonix she is!!

Honestly she is an amazing person and is beautiful!

She's honestly very beautiful

She is

That right she is very pretty

😭😭😭😭😭

That was really heavy. I can't imagine what her parents are going through.

yeah I was be so scared,I'm crying poor thing

Yes.

I'm sorry for her parents..

She looks like my art teacher

Alex Thomas i don't think anyone asked at all

@@orsemcore right back at u

JDestroy i asked

Yeah.

Yeah, I have one of the disorders that she listed (EDS). It’s really sad to learn that you won’t ever be able to have kids, especially when you’re only 13 years old, in my case :(

I’m so sorry :(

@@victoriaryle5321 im so sorry about that..

Victoria Ryle I’m so sorry sweetheart ❤️

Victoria Ryle honey i have eds too and depending on which subtype you have, you can have kids, there are just some more precautions ❤️

How do we get in touch with these celebs? any star power seeing this. Shes so upbeat, even though.

Kamiel Moodley dms

@@kamielmoodley3689 Twitter?

👌

@@kamielmoodley3689 There should be a place to petition this girl on Ellens website...That's how Oprah is at least.

Unfortunately, Drs. Are lazy and want the easiest explanation. I have dysautonomia and was misdiagnosed for many years, so what could have been easily treated has disabled me.

@@michele5695 oh no, sorry 🙏🏽 ❤️❤️

Emma Wolfe those are facts it’s sad that doctors deal with having to tell people their gonna die everyday this girl deserves a sit down with Ellen also Emma ur pretty just like this girl saying that out of my Heart for u and for her please don’t take life for granted be thankful

true but before i got diagnosed with anxiety they tried to tell me i had diseases that caused my anxiety symptoms so it was the opposite for me

People can get too anxious it’s up to the point they feel sick or they end up getting sick. The brain controls the whole body.

where does this news come from?

@@Reproductions93 Mutual friends.

And I apologize I heard it was in December when I responded too many people that's what somebody told me and I'm sorry to say that I was wrong but I feel very badly for her parents in my heart truly goes out to them and I know Julia is in heaven no longer in pain or sickness

This girl in the video

She didn't make it to 24, did she?

Yea, I thought so too. 😑

haahhahaahahha

@Brianna Andreacci i

Molly Smith lol

@@Molly-eo2rd is it okay if i laugh :(((

Lyn B Yeah, true!

Pro Vaxxers be shaking

@Lyn B how do you know that she never had it lol

Lainie Picklesimer bro she said she doesn’t go, but only for shots

@Taeyong nope i would know im her sister

I had a doctor tell me my asthma and mild ruptured esophagus was anxiety. I was coughing up blood. So yeah that's pretty accurate lol

I had a dr that had to rule out anxiety for my GI conditions. Yes anxiety exacerbates them, as anxiety does this for a lot of things besides GI issues, but it's not the root cause of them just because they're milder when I'm not extremely anxious. Like I have mild GAD and my counselor didn't feel it was necessary to send me to a psychiatrist for medications as I can control most of it by talking through it and explaining I can't do xyz at the moment because of it. Sometimes I can do it 30 minutes later, sometimes it's 30 days later.

@@chesterhurley8289 you a rupture esphagus and coughing up blood and the docyor didn't do anything?

Or if you have a diagnosed disability that affects your whole body any complaint you have is sometime automatically attributed to that one diagnosis. But like with Julia, you can most definitely have more than one diagnosis, even if they’re somewhat connected.

school nurses would be like: i c e

She's right. But it's still very sad.

she meant there are no dumb questions because the boy said "this is a dumb question"

Manal Qureshi That's exactly what they were talking about

thats not what the original comment was implying

Colosious Composter Uhm, are you sure you we’re watching this? The young boy said “okay, this is a dumb question--“ she spit, and replied “no dumb questions”

RioTT s a m e.

When ??

Adinda Prabowo 3:33

Marshay Madden Why did you put a tired/bored/sleepy emoji?

aSean aSean its a snot/crying emoji

Jenny Othelia It’s a snot, but not a crying emoji

She died :(

:(

She passed like a month ago :/

@@jessicaeliza8290 how do you know?

@@kitkatbar1476 someone said it

@@jessicaeliza8290 on what?

@@kitkatbar1476 look her name up

Or the group of kids they hang around

Cookie Monster yh but those kids are “bad” because of *their* parents education. No one is born a bad person

kids r so great before adults ruin them

naf it's not lik that....With age mind also changes you hate what u used to love n lov wat u used to hate

@@srbhsngh796 yes because you are ALSO strongly influenced by many people around you.

Me too 😣

😂

🤣🤣

Omg I’ve never gotten so many likes

I stopped swallowing after she said it😭😭😭😭😂😭😭😭

do u know her instagram?

Incorrect she didn’t die in Dec, she died in April.

"Sweetheart"....? Did you know her personally?

@@HipBeeWitch Is it required to know someone in real life to call them sweetheart??

@@coochiedestroyer5_ Umm... yes? Obviously.

2:54 & 7:03 ~so cute:(~

And the fact that she hesitated saying that, knowing it’s unkind, makes it even better.

@@TolumniaMC and then decided to be truthful and honest eventually..

Mochi _26 *they’re

I don't think staring is unkind. I have lots of big scars on my arms and I let people have a look if they want. They can't help it anyways, it's human nature to want to take a closer look at unusual sights and I don't think trying to suppress that helps anybody. I even feel some people are more comfortable around me after they got the chance to give in to the urge.

And the fact that she cant do anything or even have kids 😪 and at such a young age that she has a chance if dying 😔

yes 😢😢 by 😪😪 putting 😨 emojis ☹️☹️ you can emphasize 🥵🙁your pity 😭😭😤😠🤪

Anyone with physical or mental illnesses has to make dark jokes to cope it's a cruel and sad world

It's unfortunate to think about, but we live life to the fullest the best we can!

With Ehlers Danlos Syndrome, a lot of the conditions are common comorbidities. So POTS and MCAS are pretty much an almost everyone with EDS gets as well. (Source: me, who has EDS)

She said she only go's for shots

One of her parents is a doctor, and she says she goes for shots.

no dumb questions*

@@robertvenegas6330 yea

u mean "no dumb questions"

I love how open this channel is

F

stan wekimeki I have EDS, POTS and mass activation and some others. Yeh I don’t remember them but i think it’s mostly bc I try not to think about it. Like sure I gotta a tube in my chest and stomach but I don’t really want to let it affect me

I have a lot but I just wanna got block it out

Amanda Newman Exactly, I have EDS too and most of us have a handful of comorbid conditions. I have suspected POTS, adrenal insufficiency, IBS, vocal chord dysfunction, PCOS... that’s all stemming from EDS! It really sucks.

Tbh it gets confusing when doctors start contradicting each other. Like she mentioned, a lot see anxiety as the #1 excuse.

@@heidibullock1853 Why are they thinking at the start that it's "just" anxiety anyway? What are the early symptoms besides I assume, feeling weakness (which can be a lot of things anyway, not just emotional stuff)? Anyway, that's very lazy of the doctors to assume anxiety. Anxiety is a serious issue and needs treatment/environmental changes, etc. but such assumptions by doctors even today are used as an excuse to do nothing medically about it because the doctors aren't sure. If they can't find a cause they need to dig deeper for rarer diseases 1st and then treat the anxiety if that's what it truly is.

IS SHE DEAD?!?!

@@leedancesataldc5094 yes unfortunately

Disabled people don't want your pity or to be inspiration porn. We're just people.

Just dm'ed this to Ellen but she'll probably never see this

Omg yess

YESHHHHHH

They need to put a clip on Twitter so Ellen will see!!!

Good idea

199th like :3

Signed

#TheEllenShow

#TheEllenShow

#TheEllenShow

Stina Ruiz ***her???

@@mak593 what?????????

Stina Ruiz idk, did u mean girl or boy

Yeah that was a girl 😂

OKAY SORRY everyone.. Jesus.

Rachel Johnson I know. I have a lot of allergies and the doctor said it was just anxiety. Three years later and in the hospital that doctor should be fired.

IKR like I was saying that my knees are weak and bend backward all the time because she. They bend forward I fall and he was like probably anxiety (this was a substitute my real doc was on vacay) and I was like bish how

People told me my stomach problems were anxiety for years. It’s true, I’m a very anxious person. But that wasn’t anxiety, that was microscopic colitis. Not serious, but still would have rather people look into my symptoms to help me alleviate them instead of being told to take deep breaths

Especially when you're a woman.

"hysteria"

Willow•솜틀• Probably because one of her parents is a doctor. I know one who never had to go to doctor and pay one because they own a clinic.

She said she only go's for shots

It’s ok to a anti vax☺️

@@3strandchords423 *N* *O*

@@3strandchords423 huh?

also probably cuz her lungs are failing

@@Heedy770 yeah

Bro it’s because her lungs collApsed

@@laceyharless5203 Ikkk I'm no doctor but it really sounds like her throat is dry cause there is no kind of liquid

emma ward yeah its probably a mix of everything ya know

@@sehasapathirana5828 too late, my heart has already fallen down to hell.

*Too

it’s the same as all their videos

I actually just saw a video where she has met Ellen.

SHE MET HER IM SO HAPPY

What are you doing here?

She recently meet Ellen on FaceTime, and got to see her in person as well. Ellen also let her FaceTime some of her favorite singers too.

@@amandab.1580 yeah its beautiful, but the comment section is closed, I hate that

I was born with my condition/ chronic illnesses so I feel for her going through the loss of her quality of life. But I have an idea of what she is going through.

Lol my life

@@gwinea3476 stay strong 💞

It is very hard, there is a grieving process the same as losing a loved one. My body started seriously giving up in my early mid 20s and i was forced to stop doing the things i loved. Im lucky in that I never wanted kids because i now will never get the chance. I suffer with similar issues as this person but not as severe and its unlikely to shorten my life, but its a life of constant pain and fatigue that never goes away, and the more i try to do, every day things people take for granted (going shopping, cleaning, even taking a shower), makes it all worse.

@@FaenumVena you sound like me. It's definitely a grieving process. It's good that she's able to get counseling. I probably should look into it too. It's crazy the little things you miss being able to do - like you said showering. I miss being able to clean, too. So freaking difficult to see a mess and have to leave it be because I just don't have the energy for it. I've definitely cried over all the things that I've lost, still have more to go I'm sure.

YESSSSS~

#hihoellen other people started to tweet this for her so yea.

hannah logan YASSS THATS AWESOME THX FOR THE UPDATE

Try to send Ellen this youtube link :). I Tried, but I am awful at technology. see my comment above for Ellen's website!

Omg let's share this on twitter so that Ellen can she her

Is she dead now omg

@@belleangel8612 yes, she died in April. Rip🙏😞

YES.

Yes. Love a bit of exploiting dying weans for views

@@ewanw5654 what

Ewan H No... she said she *wanted* to meet Ellen

@@ewanw5654 she wanted to meet ellen 🤦‍♀️

#TheEllenShow

#theEllenShow

#TheEllenShow

#TheEllenShow

#TheEllenShow

Yes. Though she's terminal, while Shane isn't.

I thought the same thing😭

Dude I thought she said “not even for shots” and then I felt like an awkward silence lol

And that's why she's never seen a doctor 😉

@@gabriela-yl8bx good one

She would use essential oils duhhh

She’s Vi god won’t help you.

@@lokislittlesister1737 you are sick

Bianca Regano why? Because god isn’t real

everyone has different beliefs

@@shxllua but that wasnt a comment that needed to be said

Ikr? If I had a terminal illness I would rather not have anyone tell me. Just let me die when I die.

Been Thinking that’s my biggest fear I rather die without knowing

I agree. Although I've heard some people say that it's freeing and I can see why. If I knew I had only a few years to live I'd stop working and look for a way to spend those days not worrying about anything but what's on my bucket list. But that would not be me, I wouldn't find it freeing since I fear being unable to move, being unable to remember my past, stuff like that. I cherish my freedom and my memories. I'd rather be able to think I'll have a nice long life (even if it'll likely not be as long as I'd like it) and never worry about what comes after.

What's funny is that that's life for 100% of humanity. We think only terminally ill people have to deal with that, which probably makes it even worse for them. We're ALL going to die. You might die before they do.

IKR I have that feeling everyday why thought if u was her I would need that therapy to svrvive poor girl

Prob kinda simular to it. Has for sure a lot of proteins in it.

Not even just normal milk, breast milk

I havent even gotten to that part and i was already laughing at the comment

Jade Rivera someone else said something!! Thank you!!

Righy

She said just for shots. Meaning she was never sick enough for a Dr. I've never had to bring my son yet except for school physicals

Literally everyone in the comments section is talking about

No,she said after only for shots

Like they said. Medical scientists are working on a cure so it's possible there will be a cure in the future.

Antoine Louis King I know😭and then the little kids are sAad about it

It made me sad too, except that there is a lot that we can do to prolong her life that has already been done. If it weren't for the oxygen and TPN she would already be dead, and if it weren't for the central line she couldn't get the TPN, and if it weren't for the NG tube and wheelchair she would have a much lower quality of life. I agree that there is more room to grow and would love to cure some of those conditions, but we need to also focus on making sure that the treatments we do have are being made available to all the people that need them (which it currently isn't).

@@LeonidasSthlm the important thing to remember tho is that every disease has scientists behind it trying to work on it. Mito is at the bottom of the list thought because it is so rare. Conditions like cancer and Alzheimers get more funding and attention because they are much more common. It's very possible for all diseases cures won't come for a very long time. The only reason I say all this is so people see that these foundations need donations and awareness, and people don't think a cure is just around the corner.

Not funny, sorry

@@lyy4227 right...

@@lyy4227 You say not funny, but I have mitochondrial disease just like the teen in the video and think this is hilarious. Able-bodied people are so careful about everything. But if you've ever met someone who have chronic illness, you soon learn that we can have a pretty dark sense of humor. Lol. Yeah, I'll probably die before the age of 25, but that's just how it works for us. my other friends who have mito and I make jokes about dying all the time. Laughing about it makes us feel better about our fates. It normalizes it. My friend: *coughs* Me: "You okay?" Friend: "Yeah, just dying a little faster than normal" LOL

Chronically Catholic oh I never knew that, I just thought that making jokes about someone dying is rude

@@mikaelacash3791 omg 😂😂😂 that is hilerious but still kinda sad i wish you all the best ❤

❤

She’s 19 so I think prom is out of the question now

Don't ruin it. The girl will see this video. I think she doesn't want another sad think on her memories to paradise

Elissavet Argiriou that doesn’t mean it fits bc the vibe was different and the music was way more happy and carefree than the message sent

Bro i thought the same thing... If anything i think its a bit disrespectful but idk

Elexis Ankrom ik i was dying when she said that🤣🤣

That was so cute!!

Cutest thing ever

Theres a robotic brace that moves you if you are disabled but it is over 100,000 dollars. Which sucks becuase we disableds have to pay so Much money just to be human

I also do have a genetic problem for my leg uhm it’s called valgus but on my knee so basically I have dislocated knee

With genetic diseases that have no cure and are lethal it's the only right thing/responsible way to think, unfortunately. Knowing you're condemned to a very short life because of your genetics has to be one of the most difficult things to deal with, especially compounded with the inability to do things that come easy to most other people - including people with other kinds of disabilities (people who are paralyzed waist down can still ride horses with special seats, etc.). I wouldn't want to have a kid knowing they'd likely have to go through what I did if I had such a disease. Plus, pregnancy would probably put a huge strain on her already failing body. And the baby may likely not get the ideal nutrients - I don't think bagged liquid nutrients are the perfect replacement for real food in a balanced diet. I've heard it's hard to stay strong on nutrient IV bags.

I have all of those conditions except mitochondrial disease.. I passed them to all three of my Spawn. Watching them deal with the symptoms is heartbreaking, but at least they don't have to wait 50 years for a diagnosis..

I have multiple genetic disorders (Ehlers Danlos Syndrome, POTS, MCAS) and mental health disorders that I have because they run in my family so I don't feel like it would be fair to give those to my children. Luckily, I'm a lesbian so there's a second person who can carry a child in the relationship, AND i want to adopt :')

She has been vaccinated, says so herself. "I've never been to the doctor, only got like shots" (in the subtitles). It's a bit confusing, but she just wants to say that she's never been to a doctor due to illness.

anti vaxx mommy

Oh lawd

@@jaydensickle9695 Read the f**king captions as the respondent above said.

@@Ihdc1 Do you have to swear at everyone to get your point across? Grow up.

yeah

Same

Who's Ellen?

@@theresa5059 Ellen Degeneres, her show has been inviting a lot of inspiring person and people around the world. She supports all of kind activities, gives student money to pay their loan, surprise people with gift, and many other thing. In 2016, she received medal of freedom from President Obama. She inspire bunch of people to not give up on their recent condition. #cmiiw

@@theresa5059 Ellen DeGeneres (TheEllenShow)

Same

Same

Same (except mines not deadly just life long)

same

same!

Katia Tannus I was surprised that it came in at 14/15. That means it could happen to anyone at any time, and I think that was the scariest part of the video to me.

Amanda Lawrence 😂😂😂

She meant there are no dumb questions.

🤣🤣

Starree?

I closed my eyes and took a deep breath i really didnt want to laugh but now i can know other people did im slightly relieved but still kinda annoyed w myself no offense

This video really puts things into perspective for some people

Exactly what i thought 😭 why do the worst things happen to the nicest people 😭 😭

She really has a beautiful way about her. Just a really nice aura. I wish nothing but the best for her!

Me too she’s such a gorgeous girl and so pure god love her

@@newname5205 Which flowers do you think someone would rather pick? The beautiful ones, or the misshapen or wilted ones? If you answered the beautiful ones, you just answered your own question. Also, people who suffered a lot in their life tend to be the nicest people, despite how cynical their outlook on life may be.

Me too but I don’t want her to suffer either :(

Paula Latorre happy birthday

Happy birthday Paula Latorre!

Dylynn Moore THANK YOUU!! 🤗

i have a cool name! THANK YOUU!!!🤗

Dylynn Moore HAPPY LATE BIRTHDAY!!

Her parents have probably taught her to give people compliments as a social formality. And she probably couldn't think of anything that wasn't medical related or sounded somewhat mean. In my lifetime, I've had people awkwardly tell me that I have cute feet or kind eyes for the same reasons. I'll tell them I like their dress, and they look me up and down trying to figure out a reciprocal compliment but only see crutches and a service dog, so they talk about my feet, my hair, or my face. Every. Single. Time. The polar ends of our bodies are the least likely to have a physical health problem that they could accidentally insult us over. And many times, physically disabled people don't have on trendy clothes to compliment...we wear what is comfortable and easy to put on/take off, like sweatpants or leggings.

Especially on a channel where kids try new and exciting foods.

@stay weird or die normal wait so you believe In God and reincarnation? What religion do you follow my dude I'm genuinely curious

very cmolty ikr im christian and i’m confused af

@@vek5027 stay weird has no clue what he's on about. God is 3 in 1. Jesus=he God=he(but not human) holy spirit=it/representation.

Yes! People there be like -> 7:04

Why exactly?

@@acaustic .y ,. Yes

Tofi because that’s her dream (she said it at the end of the vidéo)

Peachy Wave sTOP🤣

😂😂💀💀💀💀

Do likes make you feel good? Weird lol

my humour has decreased to an all time low

I don't think that you should pity her. If I were sick with an incurable illness the last thing I would want from anyone is pity

Wish you the best♥

Happens to a lot of different issues. It’s also often very hard to know which one is the starter and what you already have when they are so many.

I feel the exact same way!! I've been hoping they'd do one of these to help bring awareness to conditions like EDS ad mitochondrial disease. My medical conditions have taken so much from me, and there's so much misunderstanding about them, so I am very very happy they did this

So Mitochondrial Disease is actually the catalyst for the vast amount of her severe systems and organ failure. There is a huge difference in terms of severity.. unless you have a bad case of Vascular EDS. The vast majority of those with EDS have a normal lifespan.. Julia is active in the Mito community and we both have the same mutation and disease progression. (i use an electric wheelchair, use oxygen and am on TPN with a small amount of tube feeding, just got out of a 4 month hospitalization) Almost all the young girls who have Mitochondrial disease get diagnosed with Ehlers-Danlos Syndrome at some point in their diagnostic process.Most specialists agree that it's mainly because very early in their disease progression Mitochondrial Disease can resemble a very severe case of EDS and the hyper awarness of the disease and it's loose diagnostic criteria has gotten by the medical sphere over the last 5 years. I was diagnosed with Ehlers Danlos syndrome type 3 after I had a stroke 4 years ago. I was active in the EDS community Though on average I was extremly sick in comparison to the average EDS patient, people in the community would se me as a "Look how bad my EDS could get". It's heartbreaking to be honest. Many members of my mother family died before they even finshed grade school. As I started going from organ dysfunction to organ failure (theres a huge difference there, It became increasingly clear that the likelyhood that it was exclusivly EDS was low. Testing brought back the results of Mitochondrial Disease I couldnt believe that it wasnt pure EDS. At that point my disease progressed heavily and while there is no straight forward treatment, focusing on pallative care and agressive treatment during surgery, ICU stays, nutrition, and sepsis can make a difference in how far those events are progressing your disease. For many Mito patients dont get that treatment until it's too late and you cant get that function back. As much as being undiagnosed sucks, We can't even do proper research to figure out why true EDS 3 patients have the illness (when all the others have a recognized genetic basis.)or to look for treatment. It's unfair to *everyone*in the community to have such an undefined illness. People who mainly have dysautonomia and hypermobility shouldnt have to think the could die from type 3 EDS, and it's' just as unfair for the patients that have such severe symptoms and get fixated on this stuff. I usually know 2-4 people who die of mito each month. a figurehead for how severe EDS could hypothetically be. Its heart breaking seeing people who have so much freedom and ability to focusing on those things (It's not their fault its an illness community thing). I PSA-if you get rapid progression of your illness or have significant muscle weakness (not fatigue or deconditioning) talk about it with your geneticist.

i have EDS and it’s so frustrating to bring it up to my doctors and 3/4 of them admit they don’t even know what it is..

#TheEllenShow

#TheEllenShow

#TheEllenShow

#TheEllenShow

#TheEllenShow

Can I get 1000 Subs with no videos? -_-

@@kitoffour5783 stfu kid you don't even know how to spell it

XD

Can I get 1000 Subs with no videos? I’m in for dark humor, but only funny dark humor