They definitely NEED TO ADD THE NEWBORN SCREENING NATIONWIDE!!!

Emmett’s Army here! Thanks everyone for watching. Emmett is stable and doing well all things considered. More updates coming soon on his KZfaq!

I couldn't stop crying watching the amount of medications, machines and doctor Emmett needs, and baby Lucy's parents broke my heart, we need to do more, every single child is worthy, prayers, and please continue the fight. Maybe a sign up petition wold help?! Stay strong.

Emmett is a beautiful little boy! They need to screen for this. Period. No excuses. Prayers to him and his family. Dr. Paul is doing a great job taking care of him. I hope the rest of his days are good ones and he is comfortable. He is an angel 🙏❤

31 weeks pregnant with number 6. I immediately did a little research to ensure my state includes Krabbe in it's newborn screening. I'm relieved to see that it does!

A great reminder to keep Emmett and his family in prayer and to keep believing that he will continue living happy days 🙏

“Parents are just emotional “ How the hell could you not be? I never heard of this disease before this video and am crying right now. If you aren’t emotional to some degree you aren’t human. If you are a parent of a child dealing with this you aren’t fit to be a parent if it doesn’t make you emotional!

Yes, from womb to tomb, ALL human beings are valuable! I hope Oregon will pass this bill!

I’ve been watching sweet Emmett and his families channel. I’m so happy you continue to support them.

“I’ve seen my daughter smile once” that broke my heart. I’ll always wonder why some people go through this. Then im just born healthy with zero wrong with me. Watching this stuff makes you realize health is a blessing that’s taken for granted too often.

Wow, my heart goes out to the families affected by this disease. I have a 18 month old nephew that I am watching grow before my eyes. Thank you for sharing this God willing not another child goes undiagnosed in Oregon and the US as whole.

Good God this is heart-wrenching to watch and see this poor child having his life taken away by this horrid disease, his poor parents and family has to be devastated.

That sweet baby boy, I feel so sad for him and his family . I can’t imagine how hard that must be 🙏🏻

I think about Tori Brackbill who died from this... She died before her 2nd birthday... she would have been 7 today..... Testing at birth is a must worldwide...

Thank you for this video. I knew at least 2 children with Krabbe (special needs care and SPED bus driver). Its not as rare as what skeptics want us to think. Sharing.

Oh I would be so angry finding out this could have been prevented. Heart breaking. He’s a beautiful little boy. God be with you on your journey with Emmett’s. 🙏🙏🙏

i can't stop crying. This poor baby. Prayers going up for him and all affected.

He’s five! He shouldn’t have to deal with it, the state should be screening

I have seen Emmet on your show before, Dr. Paul. That sweet boy has a special place in my heart. No child should have to endure Krabbe. It’s mind blowing that some states still haven’t come onboard with adding it to the neonate screening. Sending lots of love to the Monaco family, as well as thoughts and prayers for Krabbe to finally be added to the newborn screening in Oregon.

My heart breaks for these families :(

My heart is broken. I am just so sad right now. But Thank you doctor. You're one of the good ones. Bless you. 🙏

Emmett, what a beautiful boy you are! I am so grateful for this video. I’m going to share now to educate others. Thank Dr for caring for him.

We love you EMMETT, all the way in Georgia❤

Thank you for giving us this update! I’ve thought about this family for so long

Thank you for sharing his story. If it wasn't for you sharing his story, many of us wouldn't even know about this horrible disease and we wouldn't know to ask for the testing. I hope a cure is found soon and this little soldier Emmet can be cured. Breaks my heart seeing this strong babe like this. No child should have to go through anything like this. Thankfully he was born into the best family with the best parents. ❤️ ETA: I just saw Lucy's story, I'm in absolute tears over this. She's such a beautiful sweet little girl. Her parents are so strong. Keep using your voices mommies and daddies! You are speaking for those who cannot speak for themselves! 😥💔

I’ve been following Emmetts story since first seeing him here on your channel. His mother is awesome and it makes me so angry that this disease is not screened in EVERY state!!! Why would they not. I pray for Emmetts life to be full of love and his family and other effected by this terribly sad disease for peace of mind.

Thank you so much for sharing sweet Emmett's journey and informing us of this horrible, treatable condition. I will help spread the word ❤

The fact that its fatal and causes a lot of suffering should be enough to screen for it.

This is really well made. I really appreciate all the efforts that went into making this video. I hope that you all will win to make this important screening added to the list not just in Origon but also more worldwide. Every life is important! My fingers are crossed and I will pray that this important test will soon be added. My heart goes out to all of the kid's who are living with this and their family and friends.

I have a whole bunch of disabilities and I agreed 👍about being respectful. I love your show.

What a sweet little boy Emmet is.

You are such an awesome care provider. I appreciate your channel and the type of educating and enlightening your doing for certain conditions. Please continue to educate people.

It is SO heart breaking to know what Emmett's entire family and he himself are going through. I completely lost it when the they said that authorities are of the opinion that " Parents are Too emotional". I mean... Really!!! It is their child whose life is at stake. !! Krabbe diseases screening should be made compulsory in all countries. Thoughts and prayers for Emmett and his family 🙏

I've never heard of this condition before. Thank you for shedding light on this very important topic.

God bless you, Dr Paul.

God bless this family and Emmett! Amen🙏🏻

All children are valuable.... Pass this bill God love you emmett and your family ♥️♥️♥️♥️♥️♥️🙏🙏🙏

Thankyou for your bravery and for sharing. I will be praying for your family

Thank you. Glad your back❤️

Thank you for posting this.

what a brave little boy and such amazing caring parents

May god bless you EmmettArmy

I just want to cry my eyes out because my heart is so broken for this these babies and their family. I am praying for them 😭😭🙏🏽

This breaks my heart. He is precious. His parents are angels on Earth.

Here to support you and all you do!!! ❤️🙏🏻❤️🙏🏻❤️🙏🏻❤️

This breaks my heart

This made me cry, my prayers go to Emmett.

These parents are so strong!! God bless that precious child and his family to give them the strength and energy

Emmotts dad has a voice that is soothing yet on this topic has a hint of anger...which shows you can get your point with a soft voice

omg.... that 'character' reveal at the end!! I almost started crying. PLEASE WAKE UP OREGON!!!

Our blessings and prayers are with you and your family.

This video is truly heartbreaking. I’m so sorry these families and children around the area and world.

Emmett's story is how i found you. I thank you everyday for your help

Every child is a gift from God and deserves to live. Psalms 127:3

Thank you for the education

Sending prayers and hugs to his family🙏🙏🙏

May God bless you 🙏 for ever and ever and your son

I cried on this one. And baby Lucy who is only 6 months old and never gonna walk or say her first words crushed me. Oregon needs to pass the bill for that screen

I watched your previous video about Emmett and it was heartbreaking. It’s even more devastating knowing that this could be prevented. God bless his family and every sick child 🙏🏻

Overwhelmingly emotional. I don't know what's worse - the states that don't screen for diseases like this, or the people who don't care about such misfortunes.

Omg emmet u keep batteling boy hope you stay happy and stable Hope your magically get better 😪🤧 xxx

Beautiful children brave parents ! No parent should be alone and their voices should be heard ! 💫

we love you dr.paul

God bless you !

I live in Pennsylvania and as of November 25, 2020 screening for Krabbe was added to the list for newborns. Thank you now former govenor Tom Wolf for signing this bill into law.

It is ridiculous that you have had to fight this long to get this on the list! My every prayer to you that you are successful!

Wow. What an amazing family. What an amazing boy.

God bless Emmett army if you see this please pray for Emmett and comment we are the Emmett army.

God be with you pal.

Prayers for the family

So sad my heart goes to those family. My god grant them quick recovery 🥲

EMMETT WE ARE HEREEEEEEE HOPE YOU GET BETTER.

heart breaking indeed. caused tears in my eyes.

I loved this Video. Unfortunately I wasn’t informed of this disease. Thank you for this video 🙏🏻🙌🏻

I am so sorry Emmett and Lucy☮️💖🙏

thank you for this video

I’m am very so sorry that almost made me cry 😢

This brought tears yes all children are important

I feel so bad for that kid my kids have gone through a lot but I wish him the best of luck

God bless little Emmet and his family

Keep doing good Doc!

Praying for your family Emmet and lucy!!

Breaks my heart…. Poor baby 🙏 best wishes to him and his family

God bless this little kiddo 🥺🙏❤️

My heart and prayers go out to all. Add this to the testing on newborn screening. Please add it . It's the right thing to do.

God please 🙏help these little angels

Heartbreaking. Strong family’s. ❤️

I have muscular dystrophy and soon as people see me they get shocked and start giving me sympathy and telling me how brave and strong I am and how sorry they are but I always tell them u dont need to be I'm really happy with how I am theres people out there who are far worse then me who are true warriors not me and they would kill to be in my shoes and after seeing this brave strong boy and all the medication hes on its heart breaking and u should always be greatful for the position ur in as their is always someone way worse off so always be greatful and thankful may God bless these kids

Absolutely more reasons for me to keep pursuing my goal of becoming a pediatrician myself. As this video goes around we all need to push Oregon whether we live there or not to get things done immediately and stop playing around.

It's truly sad plz be grateful.

God bless you Emmett and your amazing family!!!! one day when I come up on some money I WILL DONATE to the cure of Krabbe disease, and donate to those families in need to help with their financial burdens. God does have a place in Heaven for children that pass away, I believe it in my soul! They will be watched over and loved until mommy and daddy come home to see them again. Thank you for sharing your sweet angel baby Emmet's story!!! It makes me feel so fortunate and blessed that I have three healthy children. Emmet will forever hold a place in my heart, and I will always pray for him and his family. God bless you Emmet with abundant blessings for eternity !!!

I watched him with his mommy. You're such a wonderful pediatrician

Emmett’s story really touched my heart. My daughter was born into a life of nonstop surgeries and medical diagnosis from the age of 1-14. She just turned 14 on March 15, 2023. She was born with her eyes crossed, had to have her 1st surgery at one. She met all milestones but by the age of 3 she started regressing. She was than diagnosed with Autism level 5 with OCD. By her 6th birthday her eyes needed another surgery and she was losing eyesight. Than we noticed her back was growing into a strange curvature and she had sever pain. Scoliosis S Shaped, her spine was growing in her heart and right lung. 13 spinal fusion surgery. She also had her tonsils and Adenoids removed, due to being overly large and infection after infection. There’s so much more, I use to cry holding her as she cried in pain. (Chronic Pain Syndrome) I still do. She’s now 14, legally blind, autistic, CPS, back and leg pain so bad she screams. But hearing your story made me realize there’s kids that are sicker than my daughter. I am so sorry your going through this. My son was born with cerebral palsy on his left side, so I understand in away what your going through. God Bless you and Emmett, I will pray for your family.

Bless his heart

This so heartbreaking poor baby 😢😭

Thankfully a family like Emmett’s convinced the state of Pennsylvania to add newborn screening for Kramer several years ago. It should be screened for in every state!

This is heartbreaking...I'm crying

i thought this was just another video, but it was more than just another one. this video was a meticulously crafted video on awareness on krabbe to stand up to the higher ups

Wow! I've worked in hospitals and haven't seen an adult go through what this poor boy goes through on a daily basis. God bless his entire family and anyone that goes through Krabbe.

Shared this video on my facebook timeline. Not sure how much good it will do, but I'm hopeful I'll have educated at least one person within the next 24 hours. I'm in Wisconsin and am unsure if we have this as part of the newborn screening, but if we don't here, we absolutely should.