Hopeless and Turned Away by Doctors to Intense Workouts - John's Recovery | CHRONIC FATIGUE SYNDROME
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8 ай бұрын📈Learn how we're helping people recover from CFS, Long Covid, Fibromyalgia, Dysautonomia, and other Nervous System Health Disorders: www.cfsrecovery.co/apply?el=r...
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PDF RESOURCES
RECOVERY FREEDOM FRAMEWORK - WHAT AN IDEAL DAY OF RECOVERING LOOKS LIKE ⬇️
www.cfsrecovery.co/freedom-fr...
BRAIN RETRAINING GUIDE FOR CHRONIC PAIN ⬇️
www.cfsrecovery.co/pain?el=re...
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You Are Just One Mindshift Away From Living Life Without Chronic Pain and Fatigue
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue
DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.
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Imaginary Love by INOSSI / inossi
Creative Commons - Attribution 3.0 Unported - CC BY 3.0
Free Download / Stream: bit.ly/imaginary-love
Music promoted by Audio Library • Imaginary Love -
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@cfsrecovery 8 ай бұрын
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@Joesaraiva0523 8 ай бұрын
Do you have information or a video on weak shaky limbs ? For example, a squat position, or leaning over or just making a simple bicep muscle flex. This symptom is just not going away and as a 32 year old man makes me so weak mentally.
@brittney3156 6 ай бұрын
Thank you for being honest and thank you for not censoring! So many people are experiencing this and the medical community should care.
@cfsrecovery 6 ай бұрын
Absolutely! Honest conversations are vital for understanding and addressing shared experiences. Your voice matters, and the more awareness, the better! 💙
@Valentin-sz3wd 8 ай бұрын
"It's part of getting old !". Really puts the supposed sagacity of our doctors into perspective.
@cfsrecovery 8 ай бұрын
Indeed, attributing health issues to aging without proper evaluation can be frustrating. It's important to advocate for your own health and seek second opinions if needed. Your well-being matters at every age! 🌟👨⚕️
@lindseyweber4599 8 ай бұрын
OMG I went to the same long covid clinic at Northwestern and all they did was scare me! So not helpful. They made me worse with the fear. Congratulations on your recovery! I’m glad you found real help.
@johnframe1117 8 ай бұрын
No way! probably saw the same docs I did. Hope you are doing well in your recovery
@t2tmedia933 8 ай бұрын
@@johnframe1117how about full time job experience
@rigoelliot115 6 ай бұрын
Same here. I had one visit with Neurology in May and it was useless. Made me feel more hopeless.
@cfsrecovery 5 ай бұрын
Thank you so much! 😊❤️
@helenw8019 8 ай бұрын
Hi John, thanks for talking about your bad experience with the vaccine as well as your long covid. I too was badly affected by the vaccine and it gave me symptoms that are very similar to long covid. Your interview gave me some hope so thank you.
@johnframe1117 8 ай бұрын
Absolutely. It needs to be talked about more.
@mariegracebrabandt8028 7 ай бұрын
Same here. I will never get a vaccine again.
@denisebraisby4251 24 күн бұрын
This is exactly like my experience with the vaccine and then worsening after covid and im still managing to work but very symptomatic. Great to see he recovered. Gives me hope
@cfsrecovery 17 күн бұрын
Amazing! You got this! 💪
@chellerenee12 3 ай бұрын
You guys are such a blessing 😇 thank you so much
@cfsrecovery 3 ай бұрын
Wow! We appreciate this amazing feedback 😊❤️
@mariegracebrabandt8028 7 ай бұрын
Wow John thanks for sharing your experience with vaccines and covid. The vaccines made me so so sick and I got covid 3 times any way. I will never take a vacine again. I'm glad you're doing so much better. You give us all hope. 🎉 also covid helped me find Miguel 🎉 Doctors say some of the stupidest things. Years of this for me.
@cfsrecovery 6 ай бұрын
It's great that you found a source of support and information that resonates with you! Each person's experience with vaccines and illnesses can vary, and it's important to make decisions based on your unique circumstances.
@tomsmith5936 8 ай бұрын
Awesome work buddy, you're doing great, I've had a really similar journey and I'm pretty close along side you in recovery. Thanks Miguel for doing your thing and sharing people's progress. 🤟
@cfsrecovery 8 ай бұрын
Thank you for the kind words! It's wonderful to hear about your progress too. Let's keep moving forward together! 🙌😊
@emilycole6453 8 ай бұрын
❤Thank you for sharing your story John. & thx for your honesty regarding your experience with the vax too. I’m so happy for you - back to living life with an awesome appreciation for it!❤
@cfsrecovery 8 ай бұрын
Thank you 🙌❤️
@ezza1236 8 ай бұрын
Why does the vaccine do this ? How come it can cause long Covid
@KisutoJP Ай бұрын
Incredible. Beat for beat my exact experience. Luckily I found a naturopathic doctor that's helped me navigate all of this....
@cfsrecovery Ай бұрын
Good for you 😁
@KisutoJP Ай бұрын
@@cfsrecovery Thank you! I still need help with the exercise portion of the recovery. I plan on joining the program soon!
@rigoelliot115 6 ай бұрын
It is crazy to here my exact experience.
@cfsrecovery 6 ай бұрын
Yes! May I ask what symptoms you may be struggling with ATM?
@Am-ej3hs 8 ай бұрын
Thank you for all the information!! Brings hope hearing these wonderful stories!! would like to know if super high sensitivity in the ears is also because of the nerves system? I feel the constant electric feeling in body and head and ears. My ears tremble a lot by specific noise. I feel them trembling and popping. Hopefully you know something about it
@johnframe1117 8 ай бұрын
It can be - I've heard many people talk about tinnitus. The nervous system can cause so many symptoms and they can rotate. But once you understand its just your nervous system needing to be regulated, establishing the sense of safety will help your pain learn to stop sending the symptoms (with consistency over time). Miguel's program really helped me a ton with the support and guidance, and I'd say the #1 book to read is Alan Gordon's book "The Way Out" for even more material. And Raelan Agle. From everything I've learned over the last 2.5 years, chronic pain and CFS (and long covid, chronic lyme) are all the same, they are driven by the brain stuck in fight or flight!
@sublimestudi000 8 ай бұрын
same age, similar set of symptoms, was previously very physically fit. Saw a similar set of specialists in NYC and the long-covid clinics at NYU and Mount Sinai in NYC. thanks for sharing your story. my rheumatologist told me the moderna vax gave me celiac disease. i got myocarditis from moderna
@cfsrecovery 8 ай бұрын
You're very welcome! Remember, everyone's journey is unique. Stay strong! 💪😊
@clemensh6214 3 ай бұрын
Try Carnivore or the Ketogenic diet for a few weeks
@user-nc7zy3er2z 8 ай бұрын
Great video John. Happy to see youre doing well. I was a triathlon athlete before i got hit with CFS. Slowly recovering. Did you ever have issues with reaching lactic threshold quickly during your journey ? Cheers
@johnframe1117 8 ай бұрын
I'm really more into weightlifting than endurance stuff so I'm not sure. I did notice that when I was very deconditioned, i felt the lactic threshold way too soon even after climbing stairs out of the subway when taking public transit. But that is no longer an issue as I've been working out again.
@theantiqueactionfigure 4 ай бұрын
My biggest heartbreak with cfs has been my loss of ability to exercise. Went from a fifty year old man who could do 30 one arm pushups to bedridden overnight.
@cfsrecovery 3 ай бұрын
How long have you been experiencing this?
@majahorvat7294 8 ай бұрын
Thanks for this interview. It is good to know that also people diagnosed with Lyme do get better : )
@johnframe1117 8 ай бұрын
It's all the same - just a disregulated nervous system!
@majahorvat7294 8 ай бұрын
I guess that is a good thing.
@majahorvat7294 8 ай бұрын
Which co-infections were you diagnosed with?
@johnframe1117 8 ай бұрын
@@majahorvat7294 you mean like what strain of lyme? I honestly can't remember. I'm not a doctor, but I can tell you it caught my attention after seeing how many people go down the same path of thinking they found the answer as Lyme, getting put on antibiotics for months, and it not working. I'm not saying it won't work for you, but when I heard it from Raelan Agle I came to accept that this whole long covid thing is really a mind body syndrome.
@cfsrecovery 8 ай бұрын
Absolutely! 😊🙌
@GarTiernanMusicOfficial 8 ай бұрын
Any idea how that guy is doing now ? Enjoying these videos and story’s
@johnframe1117 8 ай бұрын
I'm doing well - just keeping at it with consistency and over time your capacity increases and symptoms go away with your response. it's all about your response to the symptoms that will take the fear away and get your amygdala to calm the f#$@ down. I stopped taking zyrtec entirely which made things a little more intense, but that's the last piece to my recovery and know that i'll get to 100% in a matter of months.
@TheOtherJCBroadcast 8 ай бұрын
It’s nice to have a testimony from a man who likes to do man stuff and is now able to get back to it. This condition makes one feel like a real p$$y , very emasculating. So when you see this it’s encouraging.
@goldmund5593 8 ай бұрын
Hey John, thank you for that testimonial! How is your cardio capacity? Can you do things like hiking or running again?
@johnframe1117 8 ай бұрын
Of course! It's a little cringey watching myself LOL but was in an adjustment period during this so need to give myself some grace. I'm not doing any cardio yet because I love weight lifting, but I know it will be in the weekly routine soon. I'm currently lifting 3x a week and am off the zyrtec entirely. it takes work but once you see the progress happen you believe you will get back to 100% over time
@TheOtherJCBroadcast 8 ай бұрын
Nothing to cringe about here man, it was a really good interview and you represented your experience well from the viewer side. Well spoken.
@Ericstroman100 8 ай бұрын
Its really funny how people can Look so healthy but still be sick
@cfsrecovery 8 ай бұрын
That is true
@AristotelisMakris 6 ай бұрын
My biggest thing ist that when I am in a ap I get these really dark thoughts. I can Handel the symptoms in these periods but the dark thought are challenging. Any advise on that ?
@cfsrecovery 6 ай бұрын
You're exactly right, those are adjustment periods. It sounds like you already have an idea that they're adjustment periods. The symptom flare-ups are completely normal and expected, so there's no reason to get frustrated if it's all part of the recalibration process of the nervous system. Just like how your muscles would get sore after a workout, you will feel symptoms during an adjustment period after increasing the stimulus placed on the body.
@ezza1236 8 ай бұрын
Hey Miquel long time I’m finding the Sertraline I’m taking is helping me so much in my rocevory. Thank you for sharing you’re honesty about taking it too, it’s helping me feel less pressure
@cfsrecovery 8 ай бұрын
Good for you! 😊
@mariusskrupskis2042 8 ай бұрын
Yes, may doctor told me the same "well you are not that young anymore" im 33, the funniest part that the next week i told the same to her as a half joke and she denied it " no. you are still young" :DDD Even tho she admitted that she does not know what to do with me, i would love that doctors would admit this much more, and the help to search for solutions. Now most of doctors just pretend to know what they are doing.. :\
@cfsrecovery 5 ай бұрын
You're right! 👍
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