My wife is in a nursing home in WI. She is in what they call 'comfort care' now. It sounds somewhat like palliative care. Thanks for the explanation. I had to sign something saying the nurses would keep her comfortable but not take her to the Emergency Department so it not quite like what you described as palliative care but sounds similar.

How does one not be afraid to die?

My mom is in Hospice Care at home. The nurses are wonderful. The siblings are taking care of my mom and dad 24/7. My question is why isn't there a way to give a dementia patient medicine such as Ativan through a patch on the skin? My mom fights and will not take her medicine. It's been 12 weeks of my siblings spending 70 hours a week there. My dad had a widow-maker situation and he's not strong or allowed to take care of her. These are two people that have been married 65 years and taught all of their children how to love. My dad spends every minute sitting next to my mom and he's there for everything he can do. My sister went and bought a king-size bed thinking that they could use more space. Now, when they peak in the room, you couldn't put a piece of paper between my parents. My dad just whispers loving things to her while she sleeps. I know how it is to take care of an incontinent person because, my husband had been in a coma and I brought him home and I did all of the hospice care. They found out he had cancer when he woke up. I only slept for 3 hours a night for 6 months. I was seeing lots of pretty colors and hallucinating. I don't regret a minute of taking care of him for two-and-a-half years. I know my dad just wants my mom to be at home but, he knows that my siblings are burning out. Back to the question, is there a way to administer her Seroquel at night or Ativan during the day without her feeling like she's being attacked and fighting back? If not, I think they should develop a patch for sedatives so you could just put it on their skin when you're rubbing their back and they wouldn't know. Thank you for taking away the fear around dying. My husband went into the kitchen on his birthday and I went in after him. He was on his knees and I laid him on the floor and I looked into his eyes and I said, I love you. He mouthed, I love... and, he died with my hands on his chest. It was a gift because, I was with him when he took his last breath. I know that everything is going to be okay. 💕 Thank you for what you do and for all of the heart and compassion that you put into it. You deserve a handsome man who loves you. 😊

I've recently followed your channel. I'm from the other side of the globe and all I can say is that nearing death phenomenon are all identical whichever part of the world you're in. As for "visioning" I had one experience with my dying godmother when it was more than just visioning that she experienced. She even WENT with the ghost out for a romantic dinner, before returning to her body in the deathbed. It was her dead husband who had come to ask her out for a date. She spoke about it after returning to her body. A few days later she passed.

You say that Hospice mostly involves caregiving by a person's family. What is done if the person doesn't have family who can (or are willing to) care for them?

You are an amazing person!

Wishing you peace and the love of family in the coming days...

@@hotfootsue Awww, how kind, thank you so very much.

So sorry for your loss

You may be able to receive grief counseling should you need that for up to a year. Check with your hospice provider. Sincere condolences on your loss. Been there, you will get through it.

@@tracyzabelle Thank you Tracy❤

Yes. This video should go to the top of KZfaq it's such a public service. Doctors avoid discussing these subjects and most of all educating patients on these subjects. They get a couple of lectures on it in medical school and they are back to aggressive diagnosis and treatment. It's just another symptom in our sick American healthcare system.

So what is it called when and RN comes to the house twice a week and the family does the same thing all other days

In Utah when my mom asked for palliative care for my MS stepfather, the nurse was very rude and threatened on the second visit that if my mom did not do everything she said that she had the power to take him out of the house and put him in a facility that would take my mom's house away to pay for his needs. She had to immediately end the service because if this nurse went through with her threats my mom would be homeless. A lot of corruption in Utah. Not sure if this is often in other States. But my family members in Maine have been treated extremely well. They went above and beyond in their care. so I'm impressed with the state of Maine

I am praying for you I don't know if you know Jesus as your savior and Lord but if you don't please read John 3:16 in the Bible I know Jesus is my Lord and Savior and he is giving me such peace through all the hard times of life

@@carmelahearle957 Was it Mormon corruption?

Me too! Age64

I am a born again Christian.

My husband had a home nurse for about 6 months to take care of his picc and draw blood every week. He had his picc out in February, and they still contact each other about twice a month. His nurse had a first baby while we were working on our home, they exchange photos and they know if one needs the other, they’ll be there. Shout out to the home nurses, you’d make more money in the hospital, but you care for people in their home, accept unneeded supplies as care changes and donate them to people without insurance and homeless shelters. Y’all the real folk. Love you and appreciate you.

@hollyhowes8517 well I am glad I had nursing experience my Grand mother owned her home but what ever you get fro the goverment they want you to be indigent ok so I kept her at home and cared for her 24/7 plus a lot of paper work to qualify my aunt same thing they wanted her to use up the equity in her home so no thanks

I am on palliative care to help with my pain control from my cancer and reactions to medications. My palliative nurse and home visiting nurse feel I should go on hospice. I live alone and at 76 try to do the best I can to maintain my house. They say Medicare will not pay for help to stay in my home. I also would have to pay to stay in an assisted living if I went that way. If I stay on palliative care I need Part D drug plan to help cover all my meds but if I go on hospice I do not need a drug plan as all meds are provided under hospice? I find it hard to know the best way to spend out my days. At least my home is paid for.

@@gvet47 May the Lord bless & keep you safe & your mind well. My Mom came to live with me when my Pop went home to Jesus in June. She has several issues & dementia. She just turned 77 & after 60 yrs of marriage, she was just going fast. I promised Pop, she's coming home to live with us. While I know the past several months has been a rollercoaster ride of emotions. Yes, selling (hope) the home. But she too is on Hospice Care & it's been a blessing. Was also for Pop. That the family was by his side, he was able to stay home. So, to answer your question, NO Medicare will not "pay" for you to have in home nurse staff. That is big dollars & places as Visiting Angels. They come in do housework, cook, clean, wash. I had a great experience when I cared for my best girlfriend's dad. We had a month wait to get him into an Assisted Living Facility. He was late stage Parkinsons & having seizures. Now if you are in Hospice Care now, you should qualify to get into one of the facilities they use. But you will be in a room with another woman or man. No co-ed dorms. Shared. So, you do not get the "full" apartment type rooming/home as in Assisted Living. That is the only downfall. No absolute privacy. Yes, you need to keep your Part D. Mainly if you're on any heart/thyroid, diabetes, so on meds. Those they will send to the pharmacy of your choice. But the pain meds they do cover in Hospice. Now, the downside is that they can only fill these pain meds for 2 weeks at a time. They do have cna's that can come out a few times a week to assist with bathing. Praying for you.

I know a 100 year old woman who still lives independently and doesn't even require readers! No reading glasses, it is insane. She is healthy, no meds, bright, alert, engaged, and independent. Everyone is different, thankfully.

No, no, no. There are so many people aged 90+ that you cannot possibly have them all getting care based solely on their age. They must first have a grave illness. My grandmother and 2 of her children died in their 90s, without illnesses, their own beds. That's the way it should be. .

Hi

How are you doing?

Hi

Stage 4 metastatic breast cancer here, I had Stage 3 in 2019.. still doing treatment, I wish there was a cure, I'll pray for you..❤

My mom has stage 4 bone cancer radiation has helped with the pain but hasn't shrank the tumor but hasn't gotten bigger. She going have a nurse help her in home she starts chemo next week but what upsets me is that they're going to give her a non pill version first which the pill version I heard it is a lot better. I just want my mom to have an extra 5 years. Her pain has been up and down just pray for my mom please

Nan is correct. Chronic pain patients have been treated horribly and denied pain relief via opiod analgesics since 2016 when the CDC guidelines for opiod perscribing written by anti opiod zealots PROP who have ties to addiction clinics and made money from the government money grab suing the pharmaceutical companies. We , along with doctors are being falsely accused of the reason for the addiction problem which was Never over perscribing but Fentanyl and Heroin thats flooding our country. Even the DEA knows that the war on drugs can not be won . Its the lack of hope , no jobs , housing etc that is the real cause of addiction. Most chronic pain patients can not get even basic help let alone a doctor to care for them . If abandoned by their doctor its almost impossible to get another doctor to take them as a patient who needs opiods. Our dea is persecuting doctors for perscribing saying they are perscribing outside the usual manner despite No guidelines for perscribing. Its time to get the government out of medical care and the DEA to stand down until Congress can start investigating them . Don't expect your pain to be treated in a compassionate manner anymore. Amputations and mastectomies are given Tylenol now and the suffering is unbelievable. All over the country this is happening. Even children with terminal illnesses are being denied opiods because their doctors are terrified of the government and the DEA witch hunt. God help us all

They can't get it through their heads that the reason for the crisis is people taking them illegally to get high,NOT people -especially older-who legitimately need it for pain,causing millions to suffer needlessly.We went through this in the 1980s and 90s until finally the giving of medical pain relief was alliwed,only for them to crack down again.

People with severe chronic pain in the past were prescribed opioids because we had already tried everything else. In my case, it was eleven long years of trying everything under the sun. Opioids were the only thing that helped. I was far from pain free, but they took enough of the edge off that I could function again. Tragically, because of changes in regulations, doctors won't prescribe opioids for those who need them most. Statistically speaking, people with chronic pain, especially seniors, do NOT abuse meds. But now we are the collateral damage of the "opioid crisis." The real crisis is leaving those in severe pain who never abused meds to suffer in excruciating pain. Sadly, many have taken their own lives and turned to street drugs since doctors can/will no longer help them. This is a huge crisis effecting so many people. (Julie, you are absolutely wonderful! I have learned so much from your posts. Thank you for all that you do.)

Well said ✊

I fell off a roof and landed in a sitting position on a blacktop drive. Had back and neck surgeries plus 63 epidural spinal injections, four quadrants of the nerves burned, nothing helped I was still in chronic pain. Went to pain management was taking 4-6 Vicodin per day as prescribed which helped me to function. Tried other meds, they didn't work. I NEVER once did I abuse my prescription!!! When first lady Michelle Obama got into the White House, my life changed as well as everyone in the U.S.A. who suffered with severe chronic pain. My pain management doctor told me the federal government (Michelle) is cracking down on opioids and I have to cut you off! Has any of you EVER read about someone dying from Vicodin??Now people are dying from fentanyl, I'm sure our open boarders have nothing to do with it!! Liberals have destroyed this once great Nation!!! I pray God will make us all whole again with no pain. 🙏

Kathy!!!! Thank youuuuu so much!!! Exactly!!! Thank you for being here and supporting - I'm going LIVE tonight at 6pm (pst)- just fyi

My husband was on hospice and it was awful for him and for me. Having said that, I would welcome hospice if I or my family needed it. I.m in a different state now and hopefully will be much better.

@margaretberling2101 I'm so sorry you had an awful experience! That can be traumatizing! 🫂

This is so important because it prepares each of us for the day we have to make the inevitable decision. We have to be REAL about this and stop pussyfooting. Fear is not an option, preparedness is. ❤Thank you so much for sharing your experience. ❤

Especially if it is service related like Agent Orange.

It’s called the Pact Act. Dad diagnosed with Parkinson’s Dementia from Agent Orange during Vietnam service. Trouble is I moved him from a different state where I have to get VA benefits transferred. This seems to be time consuming to set up a new PCP.

It’s called the Pact Act. Dad diagnosed with Parkinson’s Dementia from Agent Orange during Vietnam service. Trouble is I moved him from a different state where I have to get VA benefits transferred. This seems to be time consuming to set up a new PCP.

I lost a daughter to cancer at age 33, five years later and another daughter just finished her journey and survived. But during this, Dr. Annette Bozworth (internal Dr) has a KZfaq channel talked about how she cured her life threatening cancer without chemo, and radiation, etc. She also has a book about it and how she did it. It seems we can cure most or all cancers, diabetes, dementia, fibromyalgia, etc. It's worth a try to watch her videos as well. To everyone who suffers lots of pain , cancer etc. I know there is a solution without meds.

Many thanks you are truly a sweetheart for taking the time to explain &educate those who maybe are going through tough times .

I figured that the hospitalist is there mainly to sign orders. I've had similar experiences .

The hospitalist there to get you out as soon as possible to save them money.

My 101 year old friend with kidney stones and congestive heart failure and diabetes with great sensitivity to most drugs has had this hospital and doctor/specialist frustration over this past year. Very frustrating especially as she is still very mentally sharp and on top of her conditions. Often the doctors or nurses don't listen to her because of her age and don't pay attention to the fact she is lucid and sharp.

❤Well said!

I think Doctors and nurses can push this without much knowledge of the program .

How did your grandfather have this for years when this type of cancer is a very fast growing tumor and very short life expectancy im confused

@@kimtillman5683 I'm not sure. It might've been a different type but that's what he was diagnosed with, and what is on his death certificate.

Hi

How are you?

Hi

How are you doing?

❤so sorry this happened to you. You did your best. Your mom knows you did.❤

I’m so sorry you and your family had to go through that. Our healthcare system in the US is so broken.

I'm confused.If the family does everything,and you can't get medical care in hospice besides.how is that any different than keeping your loved one at home?

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How are you doing?

💕💕💕💕

You were a blessing to our family. We followed your advice, and it really helped us get through the tough times. Sadly, he passed away peacefully. TY again.

Praying for you and your mom