Today we decided to adventure around Seattle and had a ton of fun! If you've never been to Seattle Childrens Museum- it's a must! Mason had so much fun!
Thank you guys for being here- it's amazing to know we aren't alone in this journey!
🔗 Jada's podcast she's loving right now: ‪@GirlsGoneBible‬
Hey! If we're meeting for the first time- We are the Bafus family, and we are starting this KZfaq channel to give hope, document our journey, and to shine light on duchenne muscular dystrophy. Mason was recently infused with Elevidys.
What's Elevidys? Elevidys is a gene therapy from Sarepta. It's the first gene therapy FDA approved for pediatric patients (4-5 years old) with Duchenne muscular dystrophy.HUGE THANK YOU to Sarepta (Elevidys) and Seattle Children's Hospital!!!
For our first 7 days, we will be posting one video a day, documenting Mason's $3.2 million, once in a lifetime gene therapy.
We are typically private people, just like you, but this disease has forced us more into the public, and that's ok. We've learned that this is not a disease that anyone can fight alone. So we decided to take to KZfaq to help spread the message and raise awareness of this rare disease.
You can follow us here on KZfaq and on Instagram ‪@BafusFamily‬
#duchenne #duchennemusculardystrophy #dmd