How Motor Neurone Disease patients’ voices are being digitally preserved - BBC News

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BBC News

BBC News

Күн бұрын

Technology is being used to bank the voices of people living with Motor Neurone Disease (MND), so it can be reproduced digitally if they lose it.
The degenerative condition, which gradually takes away movement, can take away someone’s use of their voice.
Interactive storybook I Will Always Be Me has been developed by Intel and Dell to convey the effects of MND, written in the first person.
Intel Human and AI Research lab director Lama Nachman said: “For someone who has been diagnosed with this every minute counts.”
This film is from Click - the BBC’s weekly technology show.
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Пікірлер: 48
@roseenglish7923
@roseenglish7923 Жыл бұрын
My husband died of MND 18 years ago, there were little aids then, so I am delighted about this new speech technology. I see the gentleman has an advanced wheelchair too. His two girls are doing an excellent job. Good Luck and strength to the Family.
@ALT-vz3jn
@ALT-vz3jn Жыл бұрын
That’s just wonderful. A great example of tech being used for good. ❤
@A1Loveislife
@A1Loveislife Жыл бұрын
Hi
@curryking1
@curryking1 Жыл бұрын
my best friend with centronuclear myopathy died early this year in april 2022, he was a very lovable and affable man and had the most friendly and unique voice, i could talk to him for days for both his humour and his kindness as well, thanks for this video, i still have video clips and audio clips of us playing videogames together where i can hear his voice among our other friends online, cheers to all and best wishes to all my family has been donating to food banks every year for many years, and last year and i will continue every year i have donated now also to funds for people with especially motor disabilities of all kinds, and it is in memory of my best friend always
@kasturipillay6626
@kasturipillay6626 Жыл бұрын
Amazing, some consolation for those in this situation.. God bless you. 🙏
@davidgalbraith694
@davidgalbraith694 Жыл бұрын
Lost my dad to this 10 years ago and the saddest thing I often think of is I can't remember what he sounded like, like properly sounded like before he got ill and I can't get the voice he had at the end from my memory
@horsemanofwar86wawahwoowah36
@horsemanofwar86wawahwoowah36 Жыл бұрын
Happy holidays everyone and hope you all have amazing health! It's great to see this happening.
@A1Loveislife
@A1Loveislife Жыл бұрын
kzfaq.info/get/bejne/aZl-gJeDltbZcYU.html
@A1Loveislife
@A1Loveislife Жыл бұрын
Hi
@juniorroselynroselyn3277
@juniorroselynroselyn3277 Жыл бұрын
Not with Biden lies !
@valafitzpatrick899
@valafitzpatrick899 Жыл бұрын
Remarkable. We have a man in Australia who has this nasty M N D. He was a bit of a star on the Football field. Each year now there is a Prime match which raises Millions of Dollars literally on that day & raises awareness. He is fairly advances but struggles to go on each year. He is not mobile but is driven to go on for his family & for the thousands of fans that urge him on. Sadly I think it's coming to the time where he will be feeling terribly the constraints of M N D. I think that it is one of the most hideous & frightening thing. I'm praying 🙏🏼 for your guest today & all those that are suffering with this.
@A1Loveislife
@A1Loveislife Жыл бұрын
Hi
@wasongabeatrice
@wasongabeatrice 8 ай бұрын
Even here in Kenya. We have a football star who has it
@VietnamTravelGuide.
@VietnamTravelGuide. Жыл бұрын
This is amazing and very hopeful
@mikenixon2401
@mikenixon2401 Жыл бұрын
Thank you for reporting this in awareness.
@frangibb7026
@frangibb7026 Жыл бұрын
It's very important as that's your character, your personality, YOU! for your family xxx
@dreamwalker2267
@dreamwalker2267 Жыл бұрын
Really great confidence.......
@PlanetImo
@PlanetImo Жыл бұрын
Absolutely amazing. I'm so glad this has been developed. x
@kimberleypex
@kimberleypex Жыл бұрын
A L S . In the Netherlands 🇳🇱. I am ALWAYS thinking ; HOW does an illness begins , what are the triggers ?
@djackson006
@djackson006 Жыл бұрын
Toxins in the environment. Dr Paul alan cox and Guam. Toxic algae in the local waters, cycad trees roots sucking up toxins, flying foxes eating cycad fruit, ppl eating the foxes. Foxes died out, als/mnd etc stopped. L-serine therapy to slow. Last I heard.
@MF-ty2zn
@MF-ty2zn Жыл бұрын
They don't know what causes it. Coukd be an auroimmune disease. It begins with shaking in a limb. Stephen Hawking had it and unusually lived for decades. Most people die from it within 5 years.
@davidmacias3121
@davidmacias3121 Жыл бұрын
😢that’s sad 😔
@user-he2gl7gm7r
@user-he2gl7gm7r Жыл бұрын
Ευχαριστούμε!!!Ο Χριστός μαζί μας!!!+++🛐☦️🙋👏🇬🇷🤍🌹💒👍
@PastorVicenteBatista
@PastorVicenteBatista Жыл бұрын
Hello friends, i wish the best for everyone! Have a great weekend
@kimberleypex
@kimberleypex Жыл бұрын
Thanks. You too 💥💥💥
@PastorVicenteBatista
@PastorVicenteBatista Жыл бұрын
@@kimberleypex Thank you friend
@Jordan-pf9ws
@Jordan-pf9ws Жыл бұрын
What's the cost? Also is it a one time cost of on going? If the person can't pay they lose their voice again. People with these issues have a much higher tendency of being lower income or have of medical Bill's that drain their income ect.
@8eg
@8eg Жыл бұрын
Ok
@MDSamim-ny5ph
@MDSamim-ny5ph Жыл бұрын
Plz help fact medichin mnd treatment
@saqibali45
@saqibali45 Жыл бұрын
Hmmm 💓
@SorminaESar
@SorminaESar Жыл бұрын
It's so amazing. God had change disease to be blessing
@auro1986
@auro1986 Жыл бұрын
bbc, give them the cure
@asmith9140
@asmith9140 Жыл бұрын
Great wonderful news nice for the kids later maybe all parents should record their voice for the kids you just never do know
@ninemoonplanet
@ninemoonplanet Жыл бұрын
Mom died from this disease a decade ago. Oh how I wish I had a way to hear her again. 🥲 There's still no effective treatment for it, but at least now families can still listen to the voices. It's a brutal way to die. Still haunts me.
@Sharma-Bilaal
@Sharma-Bilaal Жыл бұрын
I will always be me that is what the VOA say
@ayubaalim2201
@ayubaalim2201 Жыл бұрын
I Have My Uncle Who Have This.
@corneliusmotronea23
@corneliusmotronea23 Жыл бұрын
that's because they didn't see others of their relatives in need some died some died in the cemetery from liver diseases or other stone diseases where or deposited the rest were from his cancer donation!
@QwadLuzr
@QwadLuzr Жыл бұрын
STOP HIDING THE TWITTER FILES
@chrisleon27
@chrisleon27 Жыл бұрын
Reserved pronunciation
@maje9448
@maje9448 Жыл бұрын
Forthermore
@BLUEMAGASONIC
@BLUEMAGASONIC Жыл бұрын
Don't care children are dying of strep a that needs to be delt with other then this
@sarahmaxwell3839
@sarahmaxwell3839 2 ай бұрын
This came up as a memory for me. This is me, my dad and my sister in the video. The fact you’d write this comment is DISGUSTING. You are a vile human being.
@U2Piligrim
@U2Piligrim Жыл бұрын
🤎
@Andyhandz
@Andyhandz Жыл бұрын
This is what BBC news cover instead of the Elon musk twitter dump. LMAO
@dumbassloser
@dumbassloser Жыл бұрын
An hour of reading. That's awesome. I wonder how expensive the hardware is if one does lose their speech.
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