Hello Cayla, I am cordially impressed about the content of this Video because everything you addressed in the video is the exact copy of my personal situation. I have been living with with very advanced RP since my birth. But, I used to see things better during daytime in the past. I had no problem of differentiating colors in bright light and reading smaller Font prints including news papers by using the very narrow centeral vision i had before 2017. After 2017, everything turned to old history for me because my RP rapidly progressed and right now all i can see is just a foggy and snow colored space around me. The good thing happened to me after this rapid progression, I became a good friend with using my Cane and realized that the Cane is not just a mobility device but it is a good means of communication device and really help other people around you to be cautious before i bumbing to them. Even some are really happy to offer help and guide in the right way. Thus, everybody please be encouraged to use canes in public to minimize the stress that originating from runing in to obstacles on our ways.

Hey Cayla, very well said! I feel like this was a great description of retinitis pigmentosa and its progression. Great video, so nice to see you again! Matt

Oh boy, can I relate. In April 2016, at the beginning of my vision deterioration, I went from 20/40 to 20/80 and thought how much that sucked. However, now that I have settled at 20/400, I wish that I could see 20/80. That would be a real treat. And I also get how you say making things bigger does it make them better. Blurry letters are blurry letters

Fellow RP-er (Leber’s Amaurosis) here! I, too, was born with 20/200 vision but mine doesn’t seem to have deteriorated as rapidly as yours. It did start, owever, going downhill more quickly at about my early 20s. I now can still read print at about 7x/8x normal size with very high contrast. My vision is also quite dim now and my colors are off.

Hello dear friend it’s Jon My vision is blurry now so I use my cane and my glasses don’t work anymore. I’ll be praying for us all my friends on here 😊

You know what you're not the only one and stories sometimes people I can lose a lot of vision and sometimes you have to be there before the mission tonight and then you have like something for the mission and I have it's nice to be thankful for the vision that we have some considered illegally blind

Hello dear friend it’s Jon I’m sorry with my heart go’s out to you. My vision has gotten worse to.

Hi cayla, i am also suffering from Retinitis Pigmentosa from the age of 15. I am 27 now, and have 70 percent vision. I can relate to everything that you are taking about. I hope we get a cure soon. Take care God Bless

HEY CAYLA!! IT IS ALWAYS A PLEASURE TO SEE YOU, EVEN THOUGH IT IS NOT THE BEST. AND YOU HAVE SUCH A SWEET VOICE THAT MAKES IT EASY TO KNOW THAT IT IS YOU AND I ENJOY YOUR VOICE. I CAN DEFINITELY RELATE TO YOU IN ALL THAT YOU SAID. THE ONLY DIFFERENCE IN MY SITUATION WOULD BE THAT I COULD SEE MAYBE A LITTLE BETTER WHEN I WAS YOUNGER. BUT SINCE TURNING 40 AND NOW I AM 42, MY VISION HAS DECREASED ALMOST EVERY BIRTHDAY I HAVE IN SOME WAY OR ANOTHER. LIKE YOU SAID, THE FOG CONTINUES TO GET THICKER AND THICKER UNTIL YOU CAN'T SEE WHAT IS IN FRONT OF YOU. I TOO HAVE THE SAME PROBLEM WITH PICTURES TODAY LIKE YOU HAVE. I HAVE TO HAVE SOMEONE TELL ME WHAT IT IS A PICTURE OF OR WHAT IT IS. COLORS HAVE ALWAYS BEEN A TROUBLE SPOT FOR ME. BLUES, BLACKS, BROWNS, AND DARK COLORS ARE REALLY A PAIN IN THE BUTT!!!! LOL!!! IF I HAD TO DESCRIBE MY VISION, IT IS LIKE LOOKING THROUGH ONE EYE. MY LEFT EYE IS COMPLETELY GONE AND MY BRAIN HAS SHUT IT DOWN. SO I ONLY CAN SEE THROUGH MY RIGHT EYE, WHICH CONTINUES TO GET WORSE EVERY BIRTHDAY I HAVE AND THE FOG IS GETTING THICKER AND THICKER. I THINK YOU DID A AWESOME JOB DESCRIBING YOUR VISION FROM BEFORE AND NOW!! GREAT JOB HUN AND I DEFINITELY CAN RELATE TO ALL YOU SAID AND GOING THROUGH. THANK YOU FOR ANOTHER WONDERFUL VIDEO AND ALWAYS LOOKING FORWARD TO YOUR NEXT ONE. WISHING YOU ALL THE BEST IN ALL THAT YOU DO!!! SENDING YOU LOTS OF LOVE AND A GREAT BIG HUG.

Yeah I understand cuz I have no vision so okay I understand or to be willingly behind

I really enjoyed this video. You and I have completely different eye diseases yet we are so relatable and so many ways. I have optic nerve atrophied and a disease called LHON. My eyeballs are perfectly healthy as well as my retinas. But still we have a lot of similar complaints when it comes to our vision loss. I cannot stand the color yellow any longer. When I first start losing my visual yellow was my go-to even when I came to eyeglasses for reflections and light sensitivity. But then I started to notice I could not see caution signs. I would constantly trip over the 3 ft tall ones they have it grocery stores. I would bump in a little kids that were wearing yellow. I just started to realize my brain did not want to notice yellow any longer. Then it started without the colors like blue and green. Or purple and brown or red and brown red and purple etc. I have currently a lime green toothbrush my son has a blue and my wife has a purple and I still have a hard time distinguishing the difference. There's only gotten worse with time. my vision was seem stable however I've noticed my color vision getting worse and worse. My go to is white on black. Contrast for me is everything with my vision loss. It's nice to know that all of us even though we have different eye diseases all in the end are still the same. We all deal with a lot of the same issues. You did a fantastic job explaining yourself I could not have done any better than this. Bravo

Love your videos! I can relate to a lot of what you talk about. I was Legally Blind, and now Totally Blind. Yes, Legally Blind is way easier. Don’t get me wrong...it is all really hard to adapt to. I use tiny safety pins in the seams of my clothes to identify colors. I.e., Outer Right Shoulder means Black, Inner Right Shoulder means White, Inner Left Shoulder means Blue, etc. And, I have my closet organized by color with those plastic divider things separating them. Hope You Have an Awesome Day!! :-) xx

I love your clear method of explaining What is so difficult to describe! you have a gift of speaking ! Thank you! BTW, I am 67 and just now reaching the stages of inability to read . I am hoping you have or planning to have a video on how you still accomplish things you love but in a different way. Good job!!

You sound like me w my vision I'm the same w fonts too I have permanent optic nerve damage in both eyes from brain durgeries when I was younger

Hi so i am also legally blind. I have retinopathy of prematurity and my sight goes down each year. I am happy to have found someone i can relate to who is a girl also. :)

I think you did a great job at describing. I have some of these characteristics so far with my RP too. Mine is just maybe progressing a little slower. I will be 28 in April. Really enjoy your channel. You are beautiful!💜

Hi! I can definitely relate with what you said,although I still have relatively good central vision ,of course I lost my peripheral vision. i can still walk without help of a cane or another person ,but I have a lot of problems due to lack of peripheral vision, the thing is that I stubbornly want to at least look like my vision is completely healthy and for that reason I do not care for myself and others as much as I would actually need. many times I hit or even knocked down person walking in my direction,a few weeks ago I knocked down a woman riding a bicycle, luckily nothing serious happened to her! I know I need to be a lot more careful, but , I am in a hurry all the time and that is not good. I wish you all the best! :)

I don’t have RP, but my eye disease (diabetic retinopathy) is atypical and mimics it. I definitely can relate to not being able to tell the blue and green Uno cards! The yellow ones give me a hard time too. My boyfriend (who does have RP) has Braille Uno cards, but we used them so much, the Braille got pressed down. The irritating part about vision loss is people don’t understand that many eye conditions are degenerative.

Hello! I also have RP. I used to live in Southwest Virginia, but I moved to Las Vegas last year by myself. I needed to make a Brave and Bold move on my own, but that's another story. My vision has gotten a lot worse over the last decade and I was declared legally blind in 2004. One day there will be absolute hope for us, but in the meantime, I don't know what will happen, but I am going to take some alternate steps by sitting with Mother Ayahuasca this Christmas and see what comes of it. People like you are an inspiration!

Hi Kayla, this was an excellent video describing how you could see in the past compared to what you say now. I can relate to this at all levels. Particularly, people who have known me all of my life and at this point, that has been a long time because I am 61. But, I have people who have known me and still think that my vision should be 20/200 and they are startled when I explain that it has deteriorated over my many decades. I have had people question me about that as if it is just unbelievable or virtually impossible to have such a deterioration over time. Are usually laugh and explain that at age 15, I could do multiple back handsprings down the street and I can’t do that anymore either. LOL. I think after I say that, they get it. I truly have had to explain this concept many times over the past 10 to 15 years. Anyway, your descriptions and explanations are excellent and I relate to them so much. Thanks, Beverly

I am 21 years old and yet I feel old. I have seen many good and evil things in this world and yet here I am period

Wow, you really put it in perspective for me how different RP can be for people. Compared to you, I'm practically fully sighted, even though I can't drive anymore.

This video brought back a lot of memories. I used to be so frustrated with my vision issues I actually wanted to be legally blind. I have low vision, but I have been told I am close to legally blind. This video made me realize how grateful I am to have the blurry vision I do have. I learned a lot about what it’s like to see with RP, which helps me be able to understand my friend, who is losing his vision to RP, much better. My one question I have about RP is does the act of losing your sight hurt?

I can relate.. I got diagnosed with RP two months back. From last year my vision has changed so much. With in one year span of time, my vision has detoriated. I have ghost images and shadowing in the letters. I could see someone walking up to me but I can't recognise him or her. I have peripheral vision loss. Even though my central vision is very good but I have lost the clarity in the vision. I don't know what will happen from here and when I will have complete vision loss but we shld keep fighting.

Could definitely relate to this. While I can still see color well I won’t be surprised if I start losing some of that as my RP progresses. One thing I’ve noticed over the years is the vision in my right eye decreasing faster. At this point I can’t see much detail in my right eye so it’s kind of just going along for the ride. I sometimes forget about it until I happen to close my left eye and notice how poor the vision is from that eye. Oh and assistive technology for the win lol. I’m gradually making that shift to using voiceOver for everything. I’m not there just yet but I’m realizing how used to it I’m getting. Zoom is awesome but I prefer having something read back to me while I’m not even glancing at the phone.

I to have a RP and I can relate to everything you said. I am at the point where I can’t read or see photos so I definitely get when you said you get mad that they send you photos without a caption because that happens to me all the time.

Hey cayla I'm from Mumbai, India. I taking stem cell therapy from India and I feel improvement in my vision in 3 months.

Cayla you are beautiful inside and out, and inspiring.

Hey Cayla good job with the videos , I also have RP . I agree there is a lot of senceless people out there who ask really stupid questions lol . I think everyone has to be more educated on vision loss and how ppl have diff stages of vision .

Thank you for this video. I have Stargardt’s disease which is also a progressive condition and have experienced vision lost in my 68 years quite a bit also. I am also a teacher or a visually impaired students. Your description is very helpful to understand what others may go through with our PE. Thank you very much!

Kayla I'm 21 and I feel all even though I lucky on

You are a wonderful person and friend

SOoo many acquaintances want me to recognize them after seeing them just 2 or 3 times and get upset when I can't tell who they are! Please just tell me who you are.

I don't have RP, I have another thing. My current degree of vision is like your vision during your teens. A key difference is, I can see in the dark. I get more light into my eyes because my retinas are open. Summer days are a nightmare. I use my magnifier glass for everything and screens have to touch my face. I have no idea how people recognise faces.

God bless you for sharing!

Can you please make a video on depth perception

Hi Miss Cayla i have also RP i only know it a month ago my left eye is 0 and my right have 10 percent. I use corrective lens.The doctor said i just to take vitamins rich in A to not make it worser

My right eye is 20/200 w corrective lenses

I hope you will keep posting more videos.

There are peaople who have seen 20/20 or better who are around 20/200 and would completely disagree that 20/200 is wonderful vision. I understand from your view point it is much better to what you are seeeing these days. :/

well, i have the same eye problem. it is retinitis pigmentosa sine pigmento. i dont know, but it is so bad. im just scared that i will be really blind. damn... you know, its nice to see you.- Aldo

You’re encouraging me to open my KZfaq channel.

I was like that I have RP and I couldn't really see out of my left eye it was like looking through a curtain. I found out that I had a severe cataract as well on that eye. I had it removed and after over 10 years of not seeing much out of that eye I can see again. The cataract was so dense probably from straining my eyes so much. My field of vision is about 17 percent but at least now it's clear.

Hello, my girlfriend has the same case. Your eyes and how it move, it seems like you still have a good vision. May I ask, why do you wear eye glasses?

Jesus will heal you.. I will pray for you..

What app so u use to read everything on your phone?

Cayla I Definitely know what you mean 😊👋

My eyes are starting to get worse going through alot of changes scary

My condition is Bali fetal syndrome so I do not have Orapi sad

Can that's not old you're young you know and then I want you're motivating me to do videos Blind thank you for motivating me I love you you're young you aren't we 27 and that's you because I am 19 years old only 20 next year

Have you ever had depth perception? If so, do you still have depth perception?

sounds like my vision

27 sounds old???? Lol!!! I am almost twice your age so I wish I could be so “old”! 🤣

Can I add you on Facebook?