If they had taken ME patients serious from the get-go, much more would have been known by now and Long Covid could have been avoided, or at least be treatable.

As an ME patient, it feels so good to be validated. Thank you all, for your willingness to engage, listen and learn. And teach!

Wow, this surely made me tear up...8 years with ME, post sepsis...I've been in that black hole of despair, crawling my way out, and also so incredibly angry for the lack of understanding in the medical community. I'm just dumbfounded that doctors can be so ignorant, truly! This doctor gives me so much hope though, and his humility heals❤

I’m Almost 3 yrs in with my LC. I’ve literally stopped seeing doctors because of the gaslighting. 🥺 Thank you so much for this refreshing video. I wish, Hope & pray that more and more doctors will learn and understand what you did. THANK YOU! ❤️

I want to send a personal thank you to all of the doctors working to find a cure for these health issues. Please know that there are many people appreciative of your work!!

I was vaccine injured in July of 2021 after one shot of Pfizer. I am better than I was but still struggling to try and recover. The symptoms are identical to what is discussed here. I have had blood clots (still on thinners), dysautonomia, neurological issues, vision issues, vestibular issues, small fiber neuropathy, Autoimmune issues etc. Luckily I have doctors trying to help, but both vaccine injured and LC need to be more widely acknowledged.

I really wish we had a biomarker for ME/CFS. I was diagnosed with lyme-disease after two years of ongoing symptoms. I had a positive lyme test. Believe me, I carry that positive test paper to every doctor I see because you can not deny the positive test.

I have tears welling up in my eyes listening to you speak to what has plagued me since the summer of 2020. When will any treatment plans be affordable and accessible for someone in the low income bracket like me? 😢

A doctor with humility what a guy! There’s some hope

The world needs more doctors like Wes Ely, amazing guy! Thanks for giving us in the long Covid community hope ..

Until now ME/CFS has been a permanent disability with no hope! When the world was agonizing over C*VID death rates and folks were arguing about masks, restrictions, etc., I noted in comments that the real tragedy would be the 30% + who would never fully recover. (The 30% number was suggested earlier, dropped to something like 10% and recently has been raised back to around 30%.) Unless medical research finds some cures, a lot of suffering people will have damaged lives until they are released by death!

My goodness, I just started full body weeping when the doctor said not to give up. Its so hard not to want to be unalive. My life is gone.

Message at the end to us long haulers instantly made me cry. Wish I had a doctor like him. While it is no treatment, just feeling heard, and validated - hearing a doctor say he wants to learn from his patient, filled me with so many great emotions for a change. Also, I could say many things about the way so many people across the globe have been forgotten way before Covid, I’m just glad that Long Covid is really bringing it to the forefront so there is finally some hope for them too. Thank you for this video.

Thank you!!! At last ME/CFS is being recognised as something REAL and horrible. You have no idea how much it means to me.

Love this man. Such amazing energy, clear, passionate, compassionate, authentic, transparent, dedicated, humble, smart. Great guy to have on your team!

Thank you SO much for this interview with Dr Ely. I am suffering from long Covid with chronic inner ear inflammation. This causes a host of issues. Steroids helped immensely! Made me feel normal. But it’s not a long term plan. I’m searching for a solution. I’m grateful for Dr Ely’s passionate focus. It’s so needed.

Fantastic interview! I love this doctor, he is very candid and has so much compassion. Great to hear him acknowledge the neglect of ME/CFS and his thirst to learn more. I wish he was my doctor, we need to clone him!

Thankyou dr Wes, that’s the best message I’ve heard from any dr in 2.5 years, doesn’t solve any of it, but a promise to listen, apply some science, be interested & learn to help otherwise will over time pay dividends

That last message for us long haulers made me cry. You validated us in a way I never been validated yet with 2 years of dr visits, ER Visits and specialist. I’m sure I’m not the only one in comment section that’s has cried after every dr visit and been told god awful things. I’m a strong mom and wife and this isn’t easy to not be able to take care of your family not let alone trying to keep a job. I’m grateful to know at least one doctor is out there fighting and wanting to understand. I needed to this video more then you know and extremely jealous of your patients! I thank you from the bottom of my heart for this short video that gave me a little hope.

I want to thank you so much for all your work you are doing. I am M.E./CFS sufferer for the past 6 years. I have cried listening to professor Wes Ely as we have never been taken seriously by the medical profession. I have to do exactas he said half everything that I think I can do and half what energy I think I have and still make a mistake’s. I am looking forward to you upcoming videos.

3 years in we have more people working on long covid reasearch, but for now we haven't seen any big breaktrough.

Listening to this doctor being so honest, positive and really willing to help us LC and ME/CFS sufferers brought tears to my eyes. He is a rarity in the medical community. We've been gas lighted so much. Here's to hoping we get at least some definite medication for LC and CFS. 🙏

Wish every Dr / politician could recite that type of acknowledgment & apology 😍😍

Yeahhh, today I will do the dishes and dinner and maby check on my plants....😅😊 But I would love to vaccum, put things away, go out, sit on the balcony, put my clothes in the closet, clean the floors and take a shower 🚿😢 well there's a new day tomorrow....😊

I've had pretty severe ME/CFS for 15 years. A stellate ganglion block has been the most impactful thing to help me! I can now exercise and leave my home! It resets your autonomic nervous system and has given me some of my life back

If only all Doctors were like this Dr - Not all hero's wear capes springs to mind. I loved when he said - Make a list of the things you want to do today and half it,followed by - How much rest you need today and double it ❤Thank you sooooo much, once again for all your hard work and commitment to the LC community Gez - Speaking of hero's - You're certainly one of mine 🙏

Thanks Gez much appreciated as ever. As somebody who was diagnose decades ago with ME/CFS after devastating infections and who now has Long Covid I had to learn over years of experimenting on myself to live a 'new normal' this phrase is often used after major bereavement and of course learning to live with this new self involves grieving the old one. I have always felt shame at having an illness called ME when people presume it is something to do with aspects of your personality. You feel like shouting it's not 'me' it's a real thing. I often think there couldn't be a worse name for it. Anyway sending you all my best it was a wonderful video thank you very much.

Dose anyone else grow tired of getting some improvement form a treatment, having the doctor be all prideful, then three or four months later be back where you started and the doctor doesn't believe you?

There is a pattern I have found, and finally convinced a doctor to take seriously. When I am taking helpful supplements I feel better, when I am not taking them I feel worse. All of the supplements are 1) anti-inflammatory 2) anti clotting 3) blood vessel dilator. What if we do some proper A/B testing. I take everything that is effective, and do blood tests for auto/immune markers, and blood flow, possibly cognitive test. Then I stop everything for 2 weeks, and do the same tests again. We ignore the "normal" range on the blood test database and see what actually changes. I think most of us now realize that "normal" means not dead or about to die.

Thanks Gez, and Asad. Really like Wes, he’s so positive.

It's too bad there aren't more doctors as passionate and humble as Dr. Ely. It might require Dr. House A.I. to assess our full medical history and symptoms to come up with individual solutions for us all.

Acute covid June 2020 Medically retired Microclots found in my blood Triple anticoagulant Tx March 2023 No matter what treatment and how effective… the long and short of it … is that conserving your energy output by pacing yourself and allowing your batteries to build up and maintain reserves is quintessential to any recovery It is a really a mindset shift and very difficult for me when my default setting is loud busy and in your face. Still crashing 3 years into long covid. Slow learner 😵‍💫

Gez I think I’m most grateful for you. You’ve been the earliest and clearest voice, and in the US it’s taken absurdly long because once one side took a stance, the other side felt obligated to throw in even harder on everything perceived to be the opposite. And now, none can admit error, ever. So I’ve kept coming back to your info because you’re one of the few making sense.

So wonderful to see part two of this interview. Thankyou so much for keeping us in touch with research, approaches, etc. I loved your book and recommend it to every Dr I see. Your spot on commentary shows that you truly understand the soul sucking thing that Long Covid is. Take care!

That was a wonderful video. Refreshing to hear. Thanks to all 3 of you.

Wow! That makes me very hopeful. I and millions like me needed that. Thank you all for this.

This dr does give hope and I appreciate his humility and honesty.

God bless your thinking and wisdom and courage. Thank you !

Thank you Dr. Ely! I really feel encouraged ❤I have had a vaccine illness for 3 years now. I’ve tried so many medications and supplements to no avail. My brother developed ME/CFS a year before covid hit.

Thank you so much Dr for acknowledging the individual and acknowledging your actions from the past and your new attitude to medicine going forward.

Amazing video! I finished your book recently and it has a lot of useful information. I am excited to consult my doctor about potential treatments. LC has turned my life upside down and I am so grateful that people like you are putting together resources to help people. Thank you :)

Thank you, and thank you for your passion to fight for us all. This is giving me hope.

It’s truly amazing that the medical community isn’t grappling with an entity that has thousands of U.S. patents on it. They need to wrap themselves around that fact & start forcing the use of science and their fragmented dysfunctional “professions” for the well-being of all human beings, currently being used as a means of generating wealth through a “medical industry”. Really they need to get their profession out from under the grip of finance, immediately!

Gez, I read your book a few weeks ago and loved it! It is so thorough and organized. I felt that it helped me organize in my mind everything that I already knew about LC and I use it as a guide now when I get confused again

1:52 think about how much I want to do today and cut that in half. Last I checked halfway to the bathroom didn't quite cut it. 2:03 think about how much rest I need and double it... I need to test about 16 hours out of the day... Good talk. 😐

1 use AI to record permanently patients description of symptoms. 2 run symptoms thru AI data sets. 3 allow Dr to make informed decisions based on data collected and screened thru AI. If not satisfied take case to other Dr to re review data collected thru the AI..

Really appreciate the validation of what many of us have been going through. Hope hasn't kept me going though. Hope has become a very toxic factor in my mind whenever doctor gaslight the condition. I understand where people are coming from when they portray hope as a stronghold. We've all been there, I guess. But it becomes a retraumatizating experience when hope contributes to more disappointment. I surrendered. Having given up also gives me some comfort and relief, accepting my own situation indefinitely. It doesn't mean that I stopped trying. Life might be less exciting without hope but less excitement is also beneficial with ME/CFS. Excitement requires energy I'd rather invest in tangible goals and activities.

First of all…thank you Gez for being a champion for all of us suffering from LC. I’ve learned so much from you and your guests. You have afforded me some hope and made me realize I need to change certain aspects of my life in order to function with what is my new normal. There is no answer presently and I have accepted that, it’s just going to take time. I just wish they could come up with an answer to LC as quickly as they did a vaccine.

Great interview! Excellent questions, clarifying and inspiring answers. Looking forward to the interview with Dr. Iwasaki!

Amazing, love this interview! Yay Dr Wes Ely! I’m reading his book!!!

This is so encouraging to hear. I have suffered with ME/CFS since 1994. Apart from the debilitating symptoms, one of the hardest things has been having the one disease that cannot be proven by a blood test and that most people roll their eyes at. Going forward I think PEM - Post Exertion Malaise is a much better name for it as it better conveys how the disease affects sufferers. Some days I can walk 200 metres and I ache for days after like I've run a marathon. The thing that makes this disease hard for non-sufferers to believe is that somedays I can walk 200 metres and be fine after. Easy for people to then think it must be depression, anxiety or some other psychological affliction. I don't judge them - I would probably think likewise if I did not suffer from the disease. I always say that you never really understand this disease unless you have it yourself.

Dr. Wes gets it, plain and simple.

STANDING OVATION DR. ELY ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤ You are saying everything I've been saying for the last five years 🙏🙏🙏🙏🙏🙏🙏🙏

Really enjoyed this and the length was perfect for my long covid brain!

Thank you so much. I seriously need some advanced help with this.

I wish all doctors were like him! He such a stark contrast to London hospital doctors that killed my mother as i walked in on them! God bless you

BIG thanks again Gez!

Had covid and 2 weeks later started with arrythmia. Drs, family, friends all push for an ablation. I've resisted since it doesn't seem to cure the underlying issue. Stage 3 for microclots. Glad to hear drs are starting to "listen" some more. Need them to also "think."

Thank you so much. I appreciate what all of y’all are doing, this long COVID is not so much fun

I wish these researchers would get on Facebook at look at the groups set up for long covid as we constantly talk about our symptoms and what we are taking and trying! If researchers could connect the dots! Why are we all low in vitD b12 have vertigo and digestive issues chronic fatigue .. research said covid shedding was in our organs especially gut! Why do many of us have MCAS !

If I did half of what I wanted to do on any day I’d wind up in hospital 🤣

Great series of films, thanks Gez - Wes' work is very interesting and I have high hopes for the Baricitinib trial. I'm likely an activated immune system or dysautonomic long hauler, as described by Wes. Alongside the various supplements & drugs suggested by practitioners on the channel, I've recently had extremely positive results from following a keto-esque diet, intermittent fasting & cold showers. Through trial & error, it's clear that the diet (etc) is only alleviating my symptoms and not addressing the underlying cause; however, I would recommend trying it to anyone who thinks they might be a similar type of long hauler.

Now that’s a doctor. I will not abandon you I will maybe send you to different people. I will be honest with you, but I won’t abandon you.❤🙏

Thanks again Gez, will be interesting to see your discussions with Akiko and if there were any updates on their Paxlovid trials.

I love your approach, you are a true doctor. Other doctors should have the same approach and the patients would feel like they are truly cared for. God bless you. LC is new but that should not give the most doctors the excuse to brush off the patients through their ignorance, arrogance and dismissal. It's not only a lack of knowledge in most cases of these doctors , but it is their lack of simple human approach to help. Patients are not there for them as a walking number with the $ sign only,

Praying 🙏 for answers and help...

I have been dealing with Long Covid since 2020. I am SURE I didn’t get as sick as I was expected to because I started doing Terry Wahls autoimmune diet more strictly from January 1st 2020, after my son told me about Covid and about the usual Chinese health system (via his Chinese friends in China). I know I’m somewhat better than I was but still my SOB is erratic, my thinking and memory is erratic, I require an absurd amount of sleep all of which which has killed my ability to work!! I slept 11 hours last night! Who wants an RN with iffy critical thinking skills, who desperately needs a nap in the afternoon and and gets SOB when stressed, or if rushing?! That is No Good in a code, and not so great with grandkids when they’re little daredevils!! How do I explain to a 3 year old if he scares me, I get SOB!? Trust me, it doesn’t impress 6 year olds either!! Hearing someone in healthcare actually gets it though? Believes us!!!? But how long will it take to educate OUR providers, who have to buck their healthcare systems for them to be able to Act? That’s the most infuriating part-I know mine listens to me, but IH hogties them.

I am 2-year post covid with all of these symptoms. It is encouraging to see Dr's like this stepping out of the Big Pharma line and speaking the truth. How do I get in your trials?

I wish that my doc possessed your ideas and compassion!

Once again thanks so much Gez....I’m going to bring up that drug at my next (2nd) long Covid clinic appt:)

Thank you!

It's both up and down. He doesn't have answers it appears.

Thank you Dr Ely🫶🏼🫶🏼

27 yrs ME / CFS AND much worsened since MILD COVID INFECTION. NOW - I FEEL like I have dementia, HORRIFIC POTS , DYSAUTONOMIA,. HYPOVOLEMIA 59% of a normal blood volume! HELP PLEASE

Can anyone please recommend a primary care doctor that takes ME/CFS (dysautonomia and long COVID ) seriously in the San Francisco Bay Area / South Bay Peninsula. And a specialists I’ve been referred to Stanford but am dismissed by my current primary care doctor there (a DO), as well as one at PAMF. I’m near San Jose and Palo Alto and have a PPO insurance plan. Thank you!!

I think Dr Wes has listened to SickBoi by Ren. (When he says he's in reform and is listening to his patients)

We need Ampligen NOW. That’s the best potential to help most immediately for the most amount of people…not sure why more aren’t talking abt it…

what do to with chronich flu like feeling? soar throat, head pain ect? will this trail cure that?

What a wonderful doctor! I wonder if they are also working with kids with long covid?

I've had long COVID since 2022. I've been doing okay for the past year at my new normal, but I recently had surgery and experienced refractory hypotension during and after surgery. My BP was really, really low (80's over 30's) and not responding to medication or fluids. I've never had a problem with anesthesia before and was wondering if long COVID (damage to the vagas nerve?) could somehow be responsible what happened in the OR. I need another surgery in 2 months and I don't want a repeat of what happened. Has anyone been through or heard of something similar and know what the surgery team did to manage the risk?

There is No new normal. I am making an appointment with an end of life doctor. 40+ months of torturous hell. And I am a tough minded person. How long do we hold on? Thanks for your apology, that means a lot. But I just don’t know how much longer I can hold on. We were gaslit for so long, now 2 years behind because of this. How do we approach doctors who want nothing to do with us? I really though the medical community would have had our backs instead of calling us liars. Now my teenage son is not going to have a mother. I’ve had to go that deep inside myself and find peace that he will be ok. There’s nothing to hold on to. But again…. Thank you for your change of heart. I will share this video.

I’ve been searching in Google the role of serotonin, and it has a role in sticky blood and other things such as energy levels. Maybe, depression in long covid patients can be because the body adapts to that new reality. I got to that conclusion by looking at my own case: I have micro clots and clearly, I’m depressed, anxious, etc. I’ve been watching some of your videos and I could say that, in people with long covid and sticky blood, it would be TOTALLY normal if serotonin levels decrease, because it would be the only way to keep the person alive, and the body is not dumb: it’s not going to produce more of something that can cause a problem. Serotonin helps to have clotting/coagulation. If there is already blood clotting because of the spike protein, the body could find a way to adapt to that, by decreasing serotonin and preventing more blood clots. The problem? Depression, anxiety, psychosis, and other… And I could also say that Type A personalities would in MY theory adapt “better” to Long Covid, whereas Type B personalities could be at more risk of dying due to blood clots because they wouldn’t adapt as well, UNLESS their bodies do a lot of work adapting, and they become more stressed and anxious than they were before, by decreasing serotonin levels. Sorry for my English, not my first language.

Hi Doc. Thank you so much for every thing you are doing to try to help us. I'm 73. And I have been ill for 41 years. I had a hysterectomy at 32. Then I got Epstein Barr virus. I never recovered. 8 years ago I had surgery for breast cancer. The side effects of the radiotherapy left me with Fibromyalgia. I read about a vegan diet being really healthy. So for 3 years I started juicing, smoothie and proteins shakes. I lost two stone in a few months. I was seeing a gastroenteroligist . He said I have a bad case of IBS, and would have to live with it. I have seen so many Doctors and alternative practitioners over the years. Spent my life's savings, and got no where. My GI Doctor sent me for a CT scan and a pet Scan. They now tell me I have lesions on my lungs. My lung specialist says it looks like cancer, that may be coming from my breast again. I said I can't go through any more treatment. Then two days after my hospital visit, my husband and I went down with Covid. That's 18 months ago. We are still ill. About a year ago I went back to eating meat, fish , chicken and eggs. A few veggies and mostly no fruit. Since Covid I can't eat so many of the foods I did before. I still can't put on weight. I have been reading every thing I can about long Covid, and the link with mast cell activation. Four years ago we told my GI Doctor that every thing that goes into my stomach makes me ill. Food, drugs and supplements. There are a very few supplements that are clean which I take. I take antihistamine, h1 and h2 blockers. I have done 12 tov15 hours a day fasting. I'm hungry all the time, so I have to keep eating, but I can't put weight on. I don't know what happened when I went Vegan. But I think I have had Mast for 41 years since the Epstien Barr virus. No one knows what to do with me. I have been treated for Candida, but don't get any better. I have had many rounds of antibiotics for sibo. I have been told it may be leaky gut, mould toxins. Oxcilates, and so on. I feel every day I'm going to die. And to top it up. A few weeks ago we got Covid again. What now . We do need treatment yesterday. My GP is good, but doesn't know what to do with me, as all the drugs for mast only makes me worse. I have even tried CBD oil, low dose Neltrexon. But every thing makes me worse. My hair is falling out, the have skin problems. And my guts are in hell. I looking to see a functional doctor. But I'm not sure what good that will do. Do you have any answeres. God Bless you with all you do.

I am a post-COVID/post-Pfizer vax ‘Long COVID sufferer over 12 months, living in Australia. I have spent $1000’s on specialists, recognising I have been paying to be gaslighted in treatment by members a conservative, risk adverse and reputationally protective model of treatment. I am curious of any resources, community groups, treatment centres that offer some light at the end of the tunnel for me within Australia/Australasia. My symptoms are sudden L.Ear hearing loss, fog, tiredness, vertigo, bi-lateral tinnitus. I have given up work as a Psychologist for most of the last year. Returning to part time work now but feel less than adequate cf. my previous self in the role. Any sage advice welcome. Thankyou

How can I find a Dr. Like Dr.Ely near me?

Dr. Ely, if I take my wife to Vanderbilt from Eastern North Carolina, should we go to the Mt. Juliett, Brentwood, or Vanderbilt Medical Center for evaluation?

Def need treatment for "guidelines paralysis" Doctors can't be doctors anymore. What is that going to look like in future?

I became disabled in 2016 after getting a hospital acquired superbug. Chronic pain, muscle stiffness, pots, tinnitus, migraines, shortness of breath, coat hanger pain and fuzzy brain. 2 years later my teen son came down with pots after a stomach bug. We are suffering. We need a cure or something that really helps

I live in Ireland and the doctors here still don't believe in Long Covid. I just gave up trying to get help. I'm better than I was, but still sleep on and off through out the day, and can't do much. Have a few other ongoing symptoms, but just thank my lucky starts that I'm retired and have the luxury of not doing much.

If we know that a vast proportion of the population have a circadian entrainment that's markedly dysregulated, inadequate in full deep sleep, low in magnesium, selenium, iodine, vitamin D, and omega three poly-unsaturated fatty acids, are disconnected from a normal pattern of magnetic field exposure, would it be useful to address these while we are waiting for some of the more specific targeted strategies for treating virus related condition?

what about lung/breathing problems caused by the C Virus?

Gez, any studies so far on 2020 long haulers unvaxxed still having symptoms vs those who took vax, number of doses etc? I feel there has to be divisions between those who have vax damage as opposed to those who developed LC purely from infection. It all seems to be overlapping and intertwined and ought to be separated out..lol..does that make sense..(it's still early😜)

If anything, what has been found to give some relief?

What happened to the low dose naltrexone and an antiviral? I just heard someone say that absolutely worked!

What is the trial ?

Hi, I’m a nurse with long Covid. Symptoms include cognitive issues - short term memory loss, fibrosis in lungs and still on oxygen at night - two years out, and peripheral neuropathy- which seems to be my biggest issue on a daily basis right now. I have not been able to tolerate the medications for neuropathy, just wondering if anyone else has this problem. Thx

Gez, have you tried paxlovid yet? If so, how many days?

Have you considered intermittent fasting? Nattokinase? How about bromac (Bromelain & N-Acetylcysteine)? Dare I say IVM?

What is the arthritis drug he mentioned, I could not understand it?

Hey Gez. Any word on how the JAK- inhibitor trial is progressing? I think they had clinical trial sites at Vanderbilt and Yale New Haven. This seems like a promising solution and already receiving FDA approval is huge ( although for other indications). In your experience, do you think it bears real promise?