It is hard for me to go on these channels. I am living through three generations of Huntington's Disease. I buried my Father in law, his daughter (my wife) my eldest daughter, and are at present caring for two more of my children with this illness. I am 72, should I live another 5 years I will have buried 3 of my 4 children. Only one daughter was negative. All children took the test and have produced no offspring to carry this gene further. Our line will die when my last two, in advanced stages, die. It has affected the "chosen one" so much that she has difficulty in watching her siblings deteriorate. There are no winners. My sole pupose in life is to see this through to the end. Not a journey for the faint hearted. I was stabbed twice, had one burn my home to the ground etc etc. Most know what it entails. The answer is fogiveness. And unconditional love. He burnt the home down, I had it rebuilt and brought him home. They suffer so much. It truly is the Devil's own disease. Thankfully there is a light on the horizon and in the near future they will have the cure, if not, the pathway to manage this illness. Bless you all.

I've watched your video ten times and cry every time the negative results are given to you. Three of my four kids weren't so lucky. My oldest, a son , gene positive, committed suicide in 2019. My oldest daughter refuses to get tested, but obviously has HD.And my youngest daughter tested positive, and has survived two suicide attempts. We need a cure and soon.

Without the slightest embellishment, everyone who lives with the spectre of this disease is a hero.

Someone needed to hug that woman after she found out she her test results!

At 35, I was in denial about HD. Till one day I decided I could no longer live with the uncertainty. All my siblings felt the same. One by one we were tested at Guy's Hospital, London. Out of seven of us, my brother was the only one who tested positive. We knew. He'd been showing signs for a while. He lived a good life. He has two IVF children, two grandchildren and a full life till he was fifty and now at fifty nine, at stage four, lives in a wonderful care place, where he is loved and cared for. He's happy. His world is different to ours, but he's ok. ❤❤

Mandy may your life be full of joy...and love and a dozen children!!!....Your video brings back memories for me...As a 5 yo I was placed in care due to my mother being ill .When I was a boy of 12 , I was told my mother had died of HD a year earlier.....I didn,t know what HD was....this is such a cruel disease....families are fragmented...so much pain and fear....When I was in my early 30,s I was contacted by some lovely caring folk from HD Australia who asked me what I knew about HD....and that of my mother,s 4 children my sister and 2 brothers were stricken with HD....I had not seen them/no memory of them as we were separated and placed in care...names changed etc.....This came as a shock....I was informed that a test was available.....the HD support folk were so very caring.....After counselling I opted for the test.....the walk down the corridor to receive the results was the longest walk in my life.....I remember the lovely HD support person Iris and the very kind and humble Psychiatrist Dr Marshall bringing their chairs closer to mine....and when they said the results indicate you are not at risk of inheriting HD...I burst into tears...hugged Iris and picked up Dr Marshall in a bear hug....he is a slim man...and I am 120kg and 186cm tall and I was shaking and crying inconsolably and laughing.....Mandy I fully understand your emotions.....Emotions bottled up for years....avoiding relationships....debating in your mind whether to have children....how to plan your life....not wanting to be a burden.....I feel so very grateful...but also feel survivors guilt.....To all the folks out there touched by HD I wish you all the very best....and pray that treatment for HD shall allow all to have a quality of life....filled with love, best wishes Marcus in Australia

I was tested at 28, I tested negative...Most of my family are gone because of HD, I am relieved for you, and thanks for sharing :)

I worked in a day hospital for people with Huntington's or early onset dementia, after leaving school. It was the best thing I did. These people were so brave! And all walks of life - a university lecturer with Alzheimer's, a former model with Huntington's - these diseases do not discriminate. But they all lived such full life's in spite of their diagnoses. I'm so glad I had the privilege of working with these people. I was a selfish brat in high school who felt the world owed me something. I'm glad to say the experience changed me, I just wish we could change the outcome for those affected by HD.

I actually got so involved I raised my fists in the air and started pumping them up and down and yelling "YES! YES!" when Mandy found out the prognosis. Awesome! I have a 31yr old son and a 23yr old daughter who are both in the 50/50 group. Their mother is in late 2nd stage/early 3rd stage HD. Their grandmother, Aunt and great-grandmother all died of HD. It is a horrible, despicable, cruel disease. LET'S GET A CURE NOW!!!

I destroyed a big piece of my life because I didn't test me. But when I finally was tested i didn't have it. But I am happy for every day now. I hope you have a wonderful life. Love from Sweden.

Thank you for giving me the strength to conquer my fears. Watching your video was so true to how I've felt for so many years. From my early teens this horrible disease has been thrust into our lives. My father so influential to me, started to change with mental and physical personalities and was eventually diagnosed, along with his sister, in 1991 at the age of 45. Me , mom and 2 other siblings saw dad change from been a super racing hero to a dad who beyond his control diminished rapidly in 12 years not being able to feed or dress himself. This horrible disease took my dad's spirit and eventually his life. Unfortunately being a 50/50 disease it's now taken over again in my 2 sisters. It just feels like it won't go away. But watching this video, after more than 30 years of not knowing , has finally given me the strength to conquer a result. And after the longest month of my life, I was given a result that my genes repeated 17 and 20 times and I would not develop Huntington's. After 30 years of pure fear has turned into elation and I THANK YOU from the bottom of my heart giving me the courage. I just want to let anyone going through this to know there is a chance of good news when everything seems so stacked up against you

Watching this 11 years into the future and knowing there is still no cure breaks my heart

My test was positive too but my repeats are low. I have just really started seeing extreme changes in my memory and reading comprehension. Plus my anger becomes explosive. ❤️

I got tested because I have dealt with the mental torment for years and always knew it. I am gene positive and will fight every battle of the day.

wow, that's extremely touching...the moment she finds out is just undescribable

OMG I burst out crying with her. The most raw and real video I have ever seen on KZfaq.

thank you for sharing this, brings back those feelings I had when I received my results 21 years ago which still feels like yesterday. My emotions that day identical to yours and I just wish everyone else going forward gets the same negative result x

iv been living with HD in my family since 1987 when my nan passed with it i also lost my mum my brother and my uncle to it and as i write this comment my nephew is in the middle stages of it . its a horrendous condition to live with for the HD sufferer and its not much better for the family who dont have it as effects everyone close to them . i have been tested and i dont have it myself but i ensured i was test before i started my family because if i had been diagnosed with HD and there was a 50/50 chance of me passing it on id have never started a family! god bless anyone who is suffering HD in one way or another weather your a family member or a carer to the patient you are all angels with a heart gold

Imagine knowing its a coin toss and you land on the right side. I hope she went on to have all the kids she ever wanted and has a beautiful, wonderful life.

I am so happy for you that you will never have to go through the pain of having that devastating disease. And I hope that you live a long, full and happy life. All my best wishes for you and your family.

I cried with you when you received your negative diagnosis for HD. THANK GOD.

Very powerful video- HD runs in my family. I have epilepsy and sometimes I start feeling sorry for myself, but I do not have HD and when I see what my Aunt has to endure, I count my blessings. In the end we all have to love the things we do have, the people, the family, and each day we get to live

The relief she felt must be unbelieveable!

Watching this just brings me to tears. Everything you said is how I feel right now and have for the last few years. I still have not been tested but think about it every day. Thanks for sharing your story.

Sitting here crying 😭 The 3 weeks I had to wait for the test results were cruel. Thankfully I won’t get it either!!! 💙

Hi Mandy, Thanks for your video, my dad may have Huntingtons, will find out soon, if he has I am going to get tested, I have a son with Duchenne Muscular Dystrophy which is another terrible genetic disease and I am praying that he does not also have this too. You are so so brave, and I really hope you have a wonderful life! Andy

If a person in a family has it all family members before they have children should be tested! Stop peoples suffering from that strange horrible disease, it's so unfair and heartbreaking

Thank you for being so brave, for looking the most excruciating thing every human has to face head on. My husband has not been tested and it eats at him every day as he ages. His dad, 2 uncles, and grandfather all died by 43. He’s 36. People (including his mother) seem to not think IVF is necessary, but seeing this and your agony (like his) ensures me that I will do whatever it takes to have a healthy baby. God bless and your dad for sure is watching over you, telling you he loves you over and over...

Very emotional video, I am ecstatic for you! I too tested negative but my sister was not. She is living with HD and so is my dad. I have a sister with 4 children that has not been tested. Prayers for a miracle to stop this brutal disease. Prayers for all who are touched by HD. Again, so happy for you. It was torture to make the decision to be tested and unbearable waiting. It took 12 days for my results to come back. I also would like to share that If you have siblings and someone is positive it is really hard to be happy that you are negative. I have survivors guilt and found it almost impossible to tell her I was negative. I am so happy for my children as they have been very affected watching my dad and now sister fight this ugly disease. God bless you all.....

I got my blood drawn 2 days ago. Waiting 3-4 weeks to know the results. Wish everyone best of luck. Take care. -San Francisco, California

I was tested not long after my mom was diagnosed. My results were negative.. my brother was not so lucky. What a horrible disease. I live with a lot of survivors guilt. Why them and not me? Watching her suffer for years was painful. Cherish every second of your life. Especially if your happy and healthy. Don’t take life and love for granted.

I am so happy for you. This is a terrible disease. My daughter just past away in January after a 15 year battle with Juvenile Huntington's Disease. I pray every day for a cure for this disease and families will no longer suffer from the turmoil and heartbreak that it brings into their lives.

WOW! I decided a year ago to get tested, Im going to ucsf next week. Very emotional and relatable! Also very inspiring! Thank you!

My wife might have it, fingers cross for my beautiful wife doesn't. I love my wife very very much and I 'll take care until my wife dies in my arms. My wife cried when I said that. Seven years together and many many more. A cure will be around the corner.

I have a friend whose family has been ravaged by this horrific disease! So happy that you won't have to experience it yourself. It's sad enough that you've had to see your family suffer. 🌺

My mom has HD too at a very rising final steps now, it's hard to know that she never told anyone and never wanted to get me and my brother tested, we raised up living in horror, and my mom hasn't never been a mom, I wish I had her, wish I could forgive, say it all was the disease. But it hurts to know how you were treated, well now my brother got the test, and his was positive, so that means that he tries to live his life now as he wants to, and I hope he is happy, I'm turning 19 in 14 days and I hope that after my 2 year old education I will be more okay to take the test too, and hope to get a life with my fiance without thinking of eding up like that. My sister in law told my fiance that if he wasn't ready for what could happen to me if I was tested positive, then he should walk out the door, and that is long time ago now. I hope to give my future kids a future and a life knowing they're parents love them, give them a life that I did not get. To all you out there, good luck, cause this is the only thing I think is worse than cancer. I hope you all understand my story, aand write me if you want to know more. I would never give my kids a life with HD, and even if I have it, then they need to know that no matter what happens, then I'll always love them, and Jonas as well! Louise

Mandy dad was looking after her to make sure she didn't developed huntington disease. Im glad that her results turn out negative

The loud music in this video overpowered it and took away from it. But I cried happy tears on the results!

I’ve almost cried after watching your video from Thailand . So happy for u and I’ certainly sure that whoever has had got through the period of this kind of this situation would feel the same. Wishing u a delightful future.

I am so very happy for you!!! I had goose pimples when she said you wouldn’t get that horrid disease!!

I agree with swstryker. I'm still crying happy tears for you. I just wanted to see one of these videos where the person being tested doesn't have this stupid disease. I just wanted to see someone sort of beat it. I am so happy for you, even though I don't know you. I wanted to jump up and down.

I just watched your video. I am so happy for you. My ex husband died this past January from Huntingtons disease. I worry about our son every single day

Oh, man. I just started bawling when it was negative. Thank you, universe.

I'm overwhelmingly happy for you. May God help those not so fortunate.

I'm unbelieveably happy for you

Definitely cried at the end and I don't cry easily. Thanks for sharing your personal, moving and difficult story. Wishing you all the best in the next chapter of your HD free life =).

was balling to this video wow your so lucky! i hope i myself turn out negative later in life

SOBBING, so relieved for you ❤️

Oh thank you for posting this. I'm going threw the same thing right now! Everything that was said about every twist and twerk it just could be the beginning! I'm the only child my mom is 54 and in the last stage of HD. I'm 29, and want children when I was 14 I said when i turn 18 I'm going to go get tested, but never did. It hits really early in my family my two cousins are 26 and are really showing signs. I show nothing, but you never know. Thank you again for sharing this video. RIP Merrill family

Thank you for sharing your story with us. God bless you

This is the 2nd time I've watched this video the first time I cried like a baby which I'm sure will happen again but I just wanted to say that this video was so well produced that you feel what she feels, the emotion is so raw it captures the feelings one would have with the agonizing wait for the results of the blood test. I couldn't imagine the psychological trauma she went through.

My sincere condolences to you and your family. Have a high school friend whose husband had Huntington’s disease. I don’t even know if they understood any of it. The genetic thing or whatever. They had five children together. The children are now having their own children. I do not see it ending well. It breaks my heart for all of them.

So happy for you!!!

hey mandy. I am so sorry for you and the loss of your father. I really hope that you test negative. I hope that you can get through this very tough time. I believe that you will with the love and support of your family. All my best wishes for you and your family.

Excellent! Thank you and congrats!

Lovely Mandy, I am so happy for you, I started bawling. Would love to see an update on your life.

her rationale for running is so on point.......one can shut the world out for a while.....hope you are still with us

I'm so happy for you! Live with Joy!

All those years of worrying all came out whenever she heard the negative result 💜

Pure joy. I cried like a baby.

I'm so happy for you, my mother was lucky that she the oldest of 11 didn't have this gene, my uncle just died with HD 2 days ago and it just makes you think about how we are so lucky in our family but I hurt so much for people who have to go through this horrible disease, you are brave 💜

Tears of complete Joy🌼

❤️so happy for you.

Wow what a heart wrenching story . That kind of pressure is terrifying . To have a 50% chance of getting one of the most terrible diseases in the world .

I am not that emotional person but I got little teary after the negative announce of the result .I can partially feel her relief of being normal .

Thank you so much God for Mandy's health!

Why do we need to share in this pain? I KNOW how much pain is in the world. I need to be in the light. God bless you ❤️🙏🏻 This is what gratitude looks like, friends!

I wish i was that lucky :( my test was positive..

I am praising God for your Great News.🙏🏼

My mom and grandma died of Huntington's. My mom died at 26 I was only 10 at the time. I didn't get to live with my mom very long only when I was really young. My mom didn't even get to see her mom because my grandma died when my mom was two weeks old. I have 3 younger siblings that can have a chance at getting it too. I'm getting tested on October 7th, in Mason City. I really hope it's negative but I really don't think it will be. I have a few symptoms already. I have lose of balance, starting to have speech problems, and weakness in my arms and hands. I'm not going to have kids if it is positive because I don't want my kids to end up without a mom. I also don't want them to have a chance at getting the disease.

Thank god im so happy for you ❤️❤️❤️🌸🙏🏽

Neither mother or husband jumped up and cuddled her .......how strange........she must have felt elated but alone

I’d take the risk of finding out. I think if I had it I’d make sure to live to the fullest and cherish every moment and if I didn’t have it it would 100% put my mind to rest and would still make me appreciate moments in life. Also, if I had I had it I would want to know before deciding whether or not to have children

Thank you God, for sparing this young woman.

Her dad must be looking down at her, so so happy to see this

Wow what a relief that must have been

I do believe that even though I did not contract it, I would not have biological kids.It is such a horrible disease .

that fear that the disease may start anytime and questioning if that event is the beginning of it all,that is the worst thing, and then the wondering of whether you want to be tested and know... Even if I were to test negative it would not make me any less worried because my sister or older brother my carry the gene inside them. I would in a way feel selfish in being happy with a negative test result.

OMG. That’s amazing news.❤

Her husband just sits there while she is hysterical. Weird.

What a terrible devastating disease this is.I pray to God a cure will be found.

Omg balled my eyes out

May god be with Mandy.

so happy for you sweetie

May God heal all of Yuh

Thank God I test negative for the genetic tests.

Thank you God 🙏🏼

Life is precious.

I just found this video. I have lived this nightmare through my fiance (now deceased) whose first wife died of the disease. Oldest child had it from about age 10. He passed at age 44. I saw the devistation of the disease on that family. Horrible. Having children without testing is holding a loaded gun to your child's head. This disease can be almost eradicated in 2 generations with testing, which has been a available for 30 years or so. Emotional, but it is a selfish act not to do it, which, by the way might be some of the first signs of impairment.

I was diagnosed at 50 but after 16 yeAr i feel like I am dying every day I go throug Many relatives. Have died forward. I think as I get older there are fewer and fewer relatives left. Right now I am going through. The pandemic makes me feel bad but mybrelatives are dead

I also just found out about a woman whose mother and brother died of the disease. I had talked to in earnest about 23 years ago about being tested. Lost track of her. I just discovered she married and had 2 children. Now she has it. Horrible that she passed it on, even when she said she would get tested before she had children. She joined the military at 17. Her letters home started making less sense. She could not pass a test for advancement. Dad (now deceased from diabetes) was pretty sure she had it. He watched his wife, one son and in-laws go through it. What I am seeing in these vids, and by personal experience, is that the ones who end up with it are the ones who will not test. Intuition perhaps, or is denial in very early stages part of the disease. Judgement is one of the first things to go. So sad for the test.

Don't understand why her mother didn't jump up to hug her when she got her negative results??

The song where the lady start singing about the stars in the sky is beautiful. Please someone tell me the name of the song. Thanks

Do you make better decisions with more information or less?

I think I reacted happier for her when they said her result than her husband did.

Why is the reaction of everybody as if it was positive.?

does anyone know how much it costs to be tested for this disease? Is it covered by insurance?

Yay!!!!

Wish I was lucky you everyone though I didn't have it but I new had a feeling I did I got test a few mouth back now I didn't cry when I got told or that weird but I cry later that night I got a little boy I just feel bad he got to go though everything I when though with my mum :'(

when i choose to get tested and see if i got it from my mom, the day i was going to get the results i woke up just with this deep gutting feeling like i already know how its going to end, that i would test positive and i had this feeling all day till i was in the room with my counselor i had to get accepted for the test, and the doctor told me it was positive and as soon as i heard that it went away and i just went into a mode where everything was a blur except my thoughts on being positive with this disease and what it would be like after seeing my mother struggle with it.