I keep trying to explain to my family that I’m not crazy, I just have had such a difficult time remembering things since my brain injury three years ago. I feel like I am losing my mind sometimes because I am capable of forgetting something if I don’t write it down or put it in my phone right away within a matter of a few seconds, it’s hard. I wish there was support groups for brain injury patients so I wouldn’t feel so alone.
@MsAnecdota5 жыл бұрын
You are not alone! there are support groups world wide : www.headinjury.com/linktbisup.htm good luck!
@jaxiebeat98024 жыл бұрын
You are not alone! There are so many people who go through this due to their brain injury. It's frustrating but you're doing the right things by writing things down or putting the information into your phone. Having a brain injury is like having an untrustworthy assistant who can't keep track of the important things so it's better to just do it yourself by making notes, whether on paper or on your phone.
@hopeforthefuture11552 жыл бұрын
I'm sorry your going through this, I understand what your going through to a point, I hope we all get the healing we need.
@hoodpriestessphilosophy76692 жыл бұрын
I triple check everything. I'm paranoid af.
@Hailstonepie2 жыл бұрын
You are not alone. Im here too, where ever this is x
@simonrogers34347 ай бұрын
Hello I am Simon. I am a Severe TBI Survivor as of 12-12-2019. I got hit by a car as a pedestrian. I just viewed this memory TBI video and do forget things of simplicity usually at work of forgetting what i go into the office for or even forgetting where i placed the work keys and losing them. With that major anxiety occurs for me. I do the sticky notes as reminders. My supervisor and friend (2 different people) at work has given me examples of things ive done in the past but i forget. Post TBI memory loss occurs. I have subscribed to your channel for the brain injury videos i will watch. 🎉
@aarongarcia1101 Жыл бұрын
TBI survivor of 4 years now, things with my memory and outlook are getting worse, its so frightening and difficult to carry on each day with no memory of the day (or hours) before. I really appreciate this and sharing, and it helps.
@samanthastuart460710 ай бұрын
It's so hard, people can't understand what it's like to have no idea what you did earlier that morning
@mattkang62996 жыл бұрын
Thank you. In my life it is hard to find people who understand
@wendy858464 жыл бұрын
Yes it is they dont!! as much as i try to explain no one understands.
@itsmehawk70765 жыл бұрын
I have learned that repetition has helped me. If I am told something to remember, I may try to repeat it to myself maybe three times. It is also very helpful writing thing down. Especially if it is a todo list!
@donnaedwards35155 жыл бұрын
Thank you for making a video I can share! The feelings of isolation are overwhelming and sometimes it really takes that friend who KEEPS texting, KEEPS calling, KEEPS encouraging to help us move forward in recovery. Social connections are listed as one of the top needs for successful recovery. We are often too exhausted or overwhelmed to answer ... perhaps for days... and naturally by then, we've COMPLETELY forgotten about any text or message received! I hope your recovery has continued to progress! Cyber Hugs from a fellow survivor!
@Hailstonepie2 жыл бұрын
Thats me. I do get fed up with people telling me thats not so bad everyone forgets things. They do not understand the extent.
@KelliCullum-ow2rv2 ай бұрын
Thank you. I forget every day. TBI is an unseen severe disability. Thank you for speaking up.
@hepburndesign8 жыл бұрын
Thank you! I am going use this to help explain me to my daughter. I have had a brain injury for over 30 years. Everyone gets mad at me for forgetting. I get mad at myself for forgetting words in the middle of a conversation. I actually made it through Nursing school, but my brain won't let me pronounce medications right and I feel stupid. I look forward to hearing more from you and thanks again!
@achaidez15476 жыл бұрын
I do that lol sometimes I'll switch one word for another completely random word. It's better than stuttering.
@MsAnecdota5 жыл бұрын
this has happened to me too!, in the worst most unexpected situations, where the words just are not there to be reacalled. I just tell people that I know it, but can't pronounce it right, or write them down for them, or just simply confirm I know what they are talking about but that right now can't recall the exact term. or just ask them to say it for me ... plainly... and it is not easy to ask the obvious, but most people are gracious and won't think twice on enriching the conversation.
@mightyobserver12 Жыл бұрын
Oh my God this is how I feel. I forget names of people I know. Forgetting terms. I got a huge bump in a concrete. I did not check up on myseLf.
@russellzaimi9738 Жыл бұрын
It may potentially be a dyslexic issue caused by a head injury or TBI.
@Diana-jk7is Жыл бұрын
Omg i just CANNOT thankyou enough. I sugfered a TBI 16 Yrs ago friday 13th July 2007. As a reult of a hit n run accident, where i was the pedestrian!. I feel like a child again.. my memory is largely effected, my hightened sensations have been so problematic. I can not listen to more than one person talking at once fo instance is a huge one. I get really agitated and frustrated with myself and then i appear rude. Nobody seems to believe me any time i would mention my TBI 😥 People seem to think im just "making it up" and often hear esp from certain ppl, just "get over it" " theres nothing wrong with you" 😭😭😭😭 i wish 🤐 believe me 🥺🙄😔 thankyou so much, this way i could show my partner this video and now i think he understands me alot more, from the bottom of my heart HUGE THANKYOU TO YOU FOR THIS VID!!!! 😘😘😘😘
@amoresrichard3 жыл бұрын
Thank You! Car accident 2 months ago - TBI older Veteran with PTSD and other things, WoW what a change. I lose it while having a simple talk, I just forgot what we were talking about. Write it down is a must to keep track of things to do. I think this is going to be a long term thing for me. Once again Thank You for the smile you put on my face while I watched your video. Words of wisdom from a smart person!
@kriscarter3764 Жыл бұрын
I completely understand what you're saying. I struggle with short term memory loss a lot. One minute I'll remember then a few seconds go by and I don't remember anymore. It's that bad. My short term memory loss is due to a mild concussion I had in an auto accident. The air bag cover hit me in the forehead. I can clock in at work and then a second go by and I won't even remember if I clocked in or not. Sometimes I can get the milk out of the fridge, then start to put it in the cabinet. It really does suck not being able to remember things. Feels like my memory has gotten a lot worse over the years.
@positivegradient7 жыл бұрын
4 years after my brain injury, I simply can't let go of feelings of sadness and loss. I feel like I was done in by life for no reason. It's mostly because I have forgotten quite a lot of things that made me, me. I mean I feel like I have lost about 30-40% of my personality, maybe more. I have become kind of a limited person mentally. I used to have a vivid imagination. Now I just have enough mind to exist. I feel sub-human. I am not depressed at all in the conventional sense. I know because I have been depressed before my injury. I am just like not part of human society anymore, not capable of doing things that most people do every day. Life is becoming more and more difficult to justify, there is hardly any reason for me to carry on.
@lucimessenger13372 жыл бұрын
Every day your brain will improve a tiny bit hang on in there and keep going because you matter .i always think there was a reason I survived when things get tough. However I completely understand your thoughts I miss the before tbi brain too
@positivegradient2 жыл бұрын
@@lucimessenger1337 Hi, thanks for your note :) It's been 5 years since this comment, and I am better now - I have a job, have interests, and am mentally and emotionally more stable than before. All because of the support of my parents and friends, sticking to my strength, which is studying physics and maths (I am a physics teacher), and being very judicious about who I socialise with.
@lucimessenger13372 жыл бұрын
@@positivegradient I teach too but can’t yet handle the amount of planning required full time, so have to take the journey back a little slower because these days I end up in tears over things that I would have just got done before, organising, planning , focusing are hard teaching say double maths litterally floors me currently.
@positivegradient2 жыл бұрын
@@lucimessenger1337 yeah, the sudden change can be harsh. be sure to always be gentle with yourself, and rely on a few empathetic family members or friends who genuinely care about you. also, spending time with nature can be a real blessing.
@angelacurtis7922 Жыл бұрын
I truely understand. I hate getting up to deal with daily tasks, so I understand. Reading all these comments is so helpful as I know I'm not alone or crazy or lazy. I been a RN nurse since 1995. I was rear ended while at a red light. I was getting paralyzed Had fusion neck and shoulder surgery. Life down hill since. My bills are 2-300$ more than my social security income. My kids help. Reading the bible and praying everyday helps me to feel I'm productive in somthing. I hate feeling like I'm living a nightmare I can't wake up from. So I'm accepting and adapting to my life changes and realize I'm not alone as I read so many similiar comments. We have to explaine to family and friends the inside brain illness is worse than visible injuries, and ask that they try to bear and understand the new me. Feeling like a Dr. Jeckle Mr. Hyde when uncontrolled feelings become uprooted with little control. Little is known about concussions/ brain injuries, but watching the movie concussion with Will Smith may help others understand how real and serious it is to live with these feelings we aware of but have to control. Not let it control you.
@janaye7iverson8 жыл бұрын
Hi I am Janaye, I also had a brain injury and it is so hard. You totally hit the nail on the head with what you said. I've never known anyone that understood. Would be so cool if we could talk. My service dog has a channel too, to bring awareness on service dogs and the things he can do.
@vincentbradley20566 жыл бұрын
Forgetting where I put stuff is a huge problem for me following my brain injury.. I use a number of lists and notes but sometimes forget to look at them. At four years I am forcing myself to do food shopping without a list and unless I am interrupted it works. I also ask myself what I had on my last meal or yesterday. I am learning to pull the memory out by tying relationships or associations. Just today I forgot an important event which was remembered in a conversation with a cashier at Wall Mart. Conversations with others really help.
@angelaroberts70035 жыл бұрын
I had a alot of memory loss after my brain injury. The tbi excerbated all my senses making everything hard to do because it made everything need me to put more effort which made me take more time to do things that made me, me. I still get overloaded and overstimulated. I cant handle being on busy roads or even driving no more than 30 miles an hour or having someone else drive no more than 30 miles an hour. It's hard to want to even talk to people or move my fingers to text or even hold a conversation. I cant stand people talking loud or being around lots of people. Even 1 or 2 can be very hard at times. I'm completely a different person after my fall. I was introverted before but I'm severely introverted now and people think I want them to leave me alone or to not talk or help me but they dont understand how a traumatic brain injury can affect you. I would have to say that we take advantage of our brain and its filters because I even feel how the light can feel like its burning me but it ends up drying my skin out severely at times and makes me itchy. I literally changed everything I do even the foods I eat to help me cope better and live healthier than I have ever have in my life due to this tbi. Having a video that talks about how a person feels with a tbi inside themselves, would be helpful to have to help someone understand us better.😊
@jennyhughes44743 жыл бұрын
Everyone says write notes, I did from the START because I had almost NO short-term memory so I had to write down what I needed to go and get and carry the note as I went to a room to find it; before that I'd see I needed something (thinking through treacle: SO slow) and go to get it then forget what I went to get, go back to where I was and oh: I need to go get X, so off I'd go again... repeat... sometimes (before I realised I had to write & take notes with me) I'd go and do this many times, over & over, it's terrible. Now, 15 years later, I'm really struggling with so many tasks of daily living; my lists get longer & longer and I can't keep up, it's like running up the DOWN escalator. I'm DROWNING in notes, all over kitchen walls & on worktop, on floors and 1/3 of the sofa. I HATE living like this & in chaos and waste so much time/energy trying to look for things (and this hurts my back & neck BAD), so now I often don't even try to search - I've lived in this place for a year (too many moves, not my choice) and I can't unpack lots of things because I can't organise storage of find/buy the right things and I can't clean because there's too much mess and it hurts too much and I'm already exhausted with trying to wash myself (so cold in shower-room) and hand-wash my clothes/towels/bedding (no washing machine) and try to prepare food and eat properly - I've got swallowing problems+. I've needed help for ages but apparently I'm not injured/disabled enough to get social security disability money and I lost my job and my home. DOCTORS (the NHS in England) injured me then they lied, denied anything had gone wrong, covered-up & falsified my medical records, they even neglected ALL my serious injuries including brain, throat, neck & vision damage because, they claimed, "nothing went wrong" - they only cared about themselves and THEIR jobs/careers/reputations/wages, not my basic need to know and for my immediate for urgent healthcare. After brain injury we need fast & correct diagnosis and fast & correct rehab - too many of us are fobbed-off with 'mental health' diagnoses = which CAUSES mental ill-health. Unless I pay attention and really notice that I've locked the door etc then I don't know if I did it or not so I have to go and check. I try to remember to notice (& remember) when I do things/tasks, but I too-often forget I have to do this = STILL after 15 years. So many hidden difficulties when our brains don't work as they did and we don't realise how vital our memory (of many different kinds) is until BAM after an accident = ONE DAY it's gone, wiped out. All the best to you.
@bh1013675 жыл бұрын
I get it, I am so tired of explaining my action to friends and loved ones and then being told not to define myself by my injury. They cant understand the depression and forgetfullness and then tell me medication is not the answer. I am tired of lying home in bed for days on end struggling to get out of bed and not caring if i take a shower or eat. Had my injury in 2006 and blead out my ear brain fluid and blood. I am now facing a felony charge in Montana for things I did when my wife had an affair , divorced me, and remarried a month later. and cant recall doing anything I was accused of. What sucks is she is a Parole Officer where I am being charged. always fealt i was being set up by her because she wanted a way out when she realized my brain injury would not go away and she wasnt ready to be my nurse. That sucked hearing that out of her mouth. Thanks for your post and it gives me hope a young lady like you is speaking out. I bottle the crap up and then killed the pain with drugs and alcohol which was very stupid.
@jamesr5741 Жыл бұрын
I'm very sorry to hear that, I hope wherever you are your doing OK these days. It takes an awful person to take advantage of us people with a Brain Injury.
@mozzaarmpit90963 жыл бұрын
I fell down a vertical 7m bank on my bike. Have a tbi all my other breaks and injuries are healed and It’s been a year. It’s like your imprisoned in my head get very tired can’t think laterally. Get overwhelmed with tasks that used to be easy. Not allowed to drive at present. Constantly jumpy withfight or flight mode. Have constant cicada noise in my head with super sensitive hearing. Feel crazy hope it improves.
@kaneowen96716 жыл бұрын
May 5th, cannot remember what year. I suffered a severe head injury after a motorcycle accident. The impact was enough to split my helmet in half. I went over the bars of the bike and slammed my face forward into the road. The effect was so hard that I was unconscious, the only thing I really remember enough was seeing my girlfriend at the hospital ready to take me home. I never had any X-rays or scans of my head.To this day, I ask the same questions, I am losing everything, I've ridden on the wrong side of the road at times because I just have forgotten what to do on the roads. It's just so annoying not being able to remember things.
@cadin20203 жыл бұрын
Hi Christabelle, I just saw your KZfaq film for the first time and I guess it’s been a long time coming but there’s been a long time gone. My severe TBI occurred in July 1987 and after that I had on memory started coming back about a month in the hospital till I forced my way out two months after in the hospital because that was my way at the time but I do want to add was I ever warned against it. I finally got my papers from the hospital back then this past year and it said I definitely head post traumatic amnesia which for some reason didn’t ring a bell when I first read it but it makes perfect sense today. Even with small accomplishments in the last three decades I still do wonder where to go from here because as you probably know as well life becomes more challenging as the years roll on but that amnesia somehow never fully goes away and it just doesn’t keep up with the pace of life‘s demands. I hope this transcription from voice to print went OK it often has some major terrible glitches but I’ve talked as clear as I can and I am hoping that the message gets through clearly for further enlightenment on my part because it seems right now I am grabbing in every which direction I can. Thank you and I would appreciate any input from you and I am so glad I saw your video it was refreshing.
@recyclednew Жыл бұрын
At the beginning of this ordeal I had fluctuating abilities to read and write. I would write notes for myself and then later be unable to understand what I wrote. At times I thought I was writing normally but then later it was a bunch of nonsense that nobody could figure out! I have come a long way and I don’t have as many episodes of this but sometimes it still happens. Verbal communication is often difficult to process. I can hear people talking to me but I struggle to comprehend what they’re saying. And the fatigue! At the beginning I was just sleeping most of the time. I felt like I was in a coma. I think because of sleeping so much and not being fully awake often I started confusing reality with my dreams. For a while I wasn’t sure what was real. I had hallucinations sometimes. I couldn’t remember anything even only a few minutes after being told. Like someone would say put your shoes on we have to leave for your appointment. I’d put one shoe on and then I wasn’t sure if I was putting my shoes on or taking them off. I had to ask what am I doing. Then in the car I’d ask several times where we were going. I also cried a lot! I felt so overwhelmed and so guilty because I could see everyone was upset and frustrated with me. I got to a point where I just stayed quiet and tried to figure out what was going on because I felt like nobody wanted to deal with me anymore. Even now that I’ve recovered a lot I spend a lot of time alone and rarely have meaningful connections with people. I often have trouble with verbal communication but I’ve gained the ability to write again so I have written so much but nobody feels like reading so it’s like I’m trapped in a world where I’m speaking/writing an unknown language. And I know it’s been hard on everyone but I often feel like nobody really considers how overwhelming it’s been on me! In a sense it’s like I died and was replaced with a clone that didn’t get much of my memories and has to relearn everything. Also at the beginning I didn’t have appropriate emotional responses to many things and I feel like that upset everyone and I feel like I’m still being judged by the times that I didn’t respond appropriately. Or quickly enough. I need time to process and sometimes need things repeated still. It’s exhausting! I just wish people could understand that I’m not trying to be difficult or make it hard on them and I really just need a little more patience and kindness so we can figure this out together.
@hannahanana2000 Жыл бұрын
Almost 16 years that I'm suffering on it after a motorcycle accident. I was on my kindergarten year when I'd been having a large scar on my face cause of the accident. As of now, everytime important happens, I wrote it on my notebook or cellphone cause after 2 days or onward I can't remember exactly what I'm doing, whose with me and other details. My siblings and parents talked about our childhood but to that, I want to go outside or somewhere else cause I wanna cry cause I can't remember and say anything about my past. That's why until now, I want to be alone cause nobody understands my situation. Please pray for me.
@lucimessenger13372 жыл бұрын
Attach an emotion to it and it is easier to remember
@D31avid9 жыл бұрын
I had a closed head injury 18 years ago, and ever since that point I have struggled with forgetfulness. I have trouble remembering where I parked may car when I go into work. The strategy I use for that is to always park in the same spot or park in the front so I will see it first thing. This strategy does not work when you go shopping. I look for landmarks and I write those in my small notebook I carry with me or I take a picture of my car next to a distinct landmark. Forgetting things, I wish I could say gets better, but it doesn't. The trick is for all of us to keep inventing ways to compensate. I enjoyed this video and the others you have. It is really great to hear from someone who knows the struggles we encounter.
@agoogleuser39182 жыл бұрын
The memory problem is very frustrating 😕. It is more frustrating for others than for me, but it is getting much worse, and the dystonia, Parkinsonism and other movement disorders are progressing..
@crazyc994 жыл бұрын
I had Mercedes airbags blow up and hit me in the head while I was working on the damn car and I COMPLETELY AGREE WITH YOU 100% ... forgetting is so annoying and it's really getting under my skin and upsetting and workmans comp is lagging and dragging on and on ... it's been about 2 months and they still haven't APPROVED my neurologist recommendation! So frustrating
@KNSHN5 ай бұрын
I was hit by a car when I was 7, I’m 25 now and I’m just now realizing my injuries might be more mental than physical. Forgetting things, impaired reasoning, etc. I feel fine physically but mentally I find it difficult to even keep a conversation going.
@jaxiebeat98024 жыл бұрын
It's very frustrating when you have family and friends who don't understand. They've told that my forgetfulness is due to getting older and I'm sure some of it is but not all of it. I can tell when it's my brain injury because it's different from regular forgetfulness but it's impossible to explain that to others who haven't been through this. I'm coming up on four years since my last head injury, the first one was when I was a teenager. Both injuries were due to falling backwards on ice. If there is something I need to remember, I make sure to write it down because I know I can't trust myself to remember. There have been times when my husband tells me something and 5 minutes later, it's like he never told it to me. A trick for remembering passwords is, get an old fashioned address book and write down all the websites/emails you have passwords for in the address book. My address book has been a life safer for my brain, especially when I'm fatigued.
@angelinagatti75315 жыл бұрын
I do forget things a lot too.
@RoadRunnergarage85702 жыл бұрын
I'll walk into a room then forget why I walked into the room....
@maurer_media7 жыл бұрын
Do you're telling yourself and beating yourself up thinking "Stop using this as a crutch"? I hate telling people time and time again, I'm brain injured...2 years feels like too long.
@marilyn.g Жыл бұрын
After my concussion with amnesia I can't remember people or their faces if I barely talked to or saw, ex my brothers gf, my 10 month old nephew, other ppl in school. And everyone is mad at me. They think I'm faking it or something. I can't even remember how to get to school or back home, I always have to use my GPS because I forget where I am.
@DMcCratic2 ай бұрын
"I don't remember" and "I forgot" feel like the biggest cop outs for me. They are 100% true and accurate but I can't even guess how many times I utter those words in a day. I compose emails and texts and forget to send them which, again, sounds like a dumb excuse. I honestly don't know why I don't hit the "send" button, I just didn't even though I wanted to and often believe that I did. I regularly go to dinner with old friends from high school and I hate it. It's over stimulating and exhausting because I do care and want to participate but I can't seem to filter all of the conversations happening at once. Additionally, they tell stories that I was a part of that I have absolutely no memory of. I can't tell if they're messing with me (not out of malice, it's just what we do with each other) or if they're true. Sometimes I think "that sounds like something I might have said/done" and other times it is completely unbelievable. I miss me.
@astrangerwhocares7 ай бұрын
crying watching this adhd was severe prior to head injury two years since and ive recovered 80-90% from what was majoryly wrong with my speech and movement etc but still struggling so much and nobody sees it 😢
@angelinagatti75315 жыл бұрын
I also text myself things then I don't open it until I need too.
@abigailbrennan70702 жыл бұрын
Dry erase board on the fridge!!! And the kid chore charts. + post it notes by things they have been lifesavers for me!
@samsmom4007 жыл бұрын
I subscribed. in have just learned that I have to put everything in the exact same place. i am trying to remember not to ever put something down just for a moment. could you do a video about friends and family always saying .... you remembered!!!! you are getting better!!!! or ... I have memory problems too ...yet they have a two jobs. go to school full time. make straight A. ..... oh and please do not forget the ones who are going to pray it away ... and it am healed. I promise they would not
@JustCaring7 ай бұрын
I hope you can still see this message ☺️ I relate a lot with you thanks for putting in words what my injured brain don’t kind of assimilate. I kind of feel easy to emotionally disconnect of some people beside other things I have to remind myself my mind works differently for the contrary to researching I’ve done I can analyze things very well and see other perspectives most of the time. I don’t believe people can actually tell I’ve had a brain injury- my frontal left lobe has been affected I lost the eye sight and sense of smell, my body has all it’s functions and I perform at work above expectations
@TheFarrierphil9 жыл бұрын
I have a notebook for lists that I depend on daily. PIN numbers I always forget them when paying at tills so I write them on my wrist. And car keys, oh I hate them, they are never where you've put them, it seems! Great vid, TY!
@markbruner2679 Жыл бұрын
I had a TBI from a tree falling on me. No…. I wasn’t working on it. It happened while working with a tree company and I never heard a thing because I was wearing PPI ( personal protective equipment). I remember things that happened as a child like it was yesterday… but it definitely affected my short term memory. It has also affected me in other ways including having bouts of depression. That’s it in a nutshell….. and it’s good to share with others who have dealt with this. Amen
@pzbrain776 жыл бұрын
i can really relate to what you are going through...I have had a T.B.I since 11 and it is dramatically hard to remember things simple things to not so simple things..i try to do things as soon as i think of them and still i find myself running around in circle even after years of practice. i feel that we are also forgot about because not being able to remember is just a small part of what T>B.I members suffer and i have tried to build a career fixing the fight in my head and i think im ready to help bring awareness about it. because it is very hard to live with one...thank-you for your bravery to get on film to speak on this..thanks because i know it was hard as fu-k......phonke
@johnforde85922 жыл бұрын
Your so Empathetic ,Nice & Beautiful. I wish you all the best
@murph5290 Жыл бұрын
I take a really deep breath when I tell people about my memory problems if they respond with 'oh I forget things as well.' These people need a serious slap.
@steveooooo44234 жыл бұрын
You are so helpful and I really appreciate you so do I wish you was my neighbour 🌈 ❤️ xx
@marilyn.g Жыл бұрын
I have memory loss after my concussion in December 2022. And I'm currently in school, and I struggle everytime I take a test, because I cannot remember what I learned even if I study for hours and hours and days. I'm a computer science major so idk what to do anymore
@donschofield48493 жыл бұрын
Thank you, Your not alone. I have to completely change My way of life! seeing it was so so hard. 4 head concoctions , and spinal injuries in 6 places. Always been The Victim!. things at my age? I have to put my phone on the charger, so know where it is! tools? must be put away ASAP! & Double Check Things; Mechanically Still Brilliant. Thank God!!!
@lucimessenger13372 жыл бұрын
The side of my fridge is my working memory full of post it notes!and forgetting words, and lack of frustration tolerance and frustration with the before tbi me capabilities verses now! And overload very very easily and randomly cry and visual and audio input is just sensory overload on repeat ! The joys of living with a faulty brain .
@tomato0100103 жыл бұрын
I also have a brain injury. I forget things VEERRRYYY quickly. I'm not lazy, I just forget to do things. And before you tell me to just write things down, I've also tried that and failed many-many-many times. Like I'd know that there's something important happening at that time, I'd write down that time to remember it and then I wouldn't even see the paper that I wrote it on. I once tried writing things on my phone to remember them and I still forgot them. I think I forget the things I write on my phone faster. So, to help this forgetting-thing, I use a pen and write important-stuff on my palm or a piece of paper that I see constantly
@tomato0100103 жыл бұрын
And I make little dots on my hand to know what day of the week it is. My dad told me that it's very interesting that I do remember things from before the brain-thing. And also that he's noticed that I create connections between things to remember them. Like buying a cookie-jar some day. He'd ask me what we bought. I'd start trying to remember that, then I'd see cookies and I'd remember that we bought a cookie-jar
@debblackmore74604 жыл бұрын
Dont beat yourself up I used to forget alot hypoxia if you forget not worth remembering sending love from headway Nottingham UK keep going keep positive x
@johnbarrella46798 жыл бұрын
Organization needs to become part of your life now. Not only the normal organization, but the organization that takes into account the "extent" of your head injury. I was put in cognitive remediation classes many years back. There I became aware of a symptom which I had never associated with my head injuries...yet it was a "huge" symptom to understand. DISTRACTIBILITY. Anyone's chart of their head injury will not have this symptom on them unless they enter cognitive remediation classes. It will manifest itself very early and become part of your cognitive chart. "Distractibility" is when you are doing something and become distracted with something else. Post head injury becomes tremendously important. When you say forgetting things that falls into the short term memory loss category. But you can only point that out if you input that memory into your brain. Many head injured people are not able to input that memory into their brain...therefore the true culprit here is "distractibility". They were too distracted to input something into your brain so you cannot retrieve something you never put there. You need to learn how to make the distinction. It's really not that hard once you understand it. It takes a while to understand it...John...aka. Nino...
@michaellane82967 жыл бұрын
John Barrella. i cant Orginize nothing.i actualy rhought it was just me.
@pzbrain776 жыл бұрын
its funny how regular people always try to say that ohh i do the same thing think the same way ..i say no no bullsit
@WDBsirLocksight Жыл бұрын
I've had many opinions. I first hit my head on a rock in the mountains. As closed head injury and 15yrs ago not much could be done. I went through weird experiences: seizure-like episodes; time travel; photophobia; reality-bending deja vue; and head pain. Doctors didn't see anything so they refused send me for a workup. I ended up getting a retroactive MCDD/ASD/LD (ADHD dx as a child), OCD, cPTSD and on the side figured out have a genetic d/o and hormonal d/o. I tried a young dementia group and loved the support group but when they found out I wasn't diagnosed and w ASD they kicked me out. I use to frequent DailyStrength by ShareCare now which had numerous support forums.
@michelesoto59195 жыл бұрын
I used my calendar and use alerts to remind me to do things. I also have a hard time now with the concept of time! Sometimes I try to not listen to messages so the alert is still on my phone.
@achaidez15476 жыл бұрын
I can't spend too much time looking for something. That'll fuck my day up
@lololol246 Жыл бұрын
I would reccommend finding ways to increase your memory, there are many ways
@Wheeled_Fighter Жыл бұрын
I needed to call my doctor back the next week and schedule new appointments. I forgot, it was 2 months later when I remembered I needed to do something with doctor appointments. I have to set reminders on my calendar to alert me I need to something about …. Also forgetting to clean the cat boxes, I can not smell them so I have do a visual. I could smell them before I hit my head now they smell like everything else. Odorless!
@kylebailey54710 ай бұрын
Yo thank you for this lil video ❤
@leslymazon45659 жыл бұрын
Hi, I am sorry to hear that you forget things. I had a friend who suffered/suffers from memory loss after a head injury. Will he ever get better? He is 29. As for remembering things for u, u should keep making little side notes everywhere or keep a journal!! :) a dairy/daily journal should help u.
@usamarafieck17154 жыл бұрын
Journal helps me a lot.
@Runoffplugs9 ай бұрын
I be doing mostly everything you saying 😢❤but like shill be overcoming I be cursing arguing with my self when I forget by saying I’m dumb or would’ve been better if I was dead I wanna over come those feelings but I see this for life now 😢
@danhughes36266 жыл бұрын
Oh my God I know how you feel. crazy... can you message. the tbi Is different for all of us.. but it all feels the same to me.. I guess knowing there is someone like me. But I would not want anyone to to through this anyone
@jacobrodricson1554 Жыл бұрын
After being hit by truck in an intersection 20 years ago and dealing with right temporal frontal lobe injury the down time, losing normal emotions and healing and recovery , making sense of the world around you and having to try to fit in just to hold down a job. You come to realize people don't care they can't comprehend it. Your right and people who have suffered these injuries should support each other in their struggles because no one else understands thanks for your vidioes
@snehilmamgain91603 ай бұрын
My surgeon has said that won't recover fully throughout my life and the maximum m memory that I will re attain will be 60 - 70%
@johnbarrella46798 жыл бұрын
Awareness of the extent of the injury and its compensation techniques of taking notes...
@JohnSaylock-ec4cd10 ай бұрын
I never want sympathy, only some understanding. Please remember I don't have an auto pilot. I fly manually which takes everything iv got to keep her in the air.
@tntchitwood7 жыл бұрын
I feel like I am the only one going through this, but I guess I'm not. My wife is very supportive, but I can't explain what's going on to her.
@vincentbradley20566 жыл бұрын
None of my children understand what I am going through either.
@gopherbar3 жыл бұрын
After a car accident last September I now forget things a short time after someone tells me something, my short term memory is now really bad. I forget words half way through a conversation with anyone, don’t know why but I’m going for tests
@snehilmamgain9160 Жыл бұрын
In my case...I m not able to remember things that has happened to me after my brain injury.... Otherwise things that occured before that is clear cut in my brain....and they still are
@usamarafieck17154 жыл бұрын
I can't stare to hard at the phone or I get a seizure because of my tbi.
@juryrecitalmay13592 жыл бұрын
Because the brain is 50% dedicated to vision vision therapy has helped me a lot sometimes it gets worse and then better
@everythingisvibration9 ай бұрын
A LIFETIME of this will Drive You INSANE...... as for loosing stuff everything I have has its own place. Forgetting what your talking about Mid-Sentence... Very Embarrassing... I am 45 & been dealing with this since I was 16 ........ If its Important Write It Down,,, Don’t really have any suggestions for help ???
@pantyflash4 жыл бұрын
Like, even though your brain is hosed, you're absolutely gorgeous. You go, girl!
@easterbuny22264 жыл бұрын
The problem is how do you know these things did not happen before anyway . There are people that do these things that did not have one of these things ?
@snehilmamgain9160 Жыл бұрын
Now i dont even remember what I are last night....
@shafiuddin45643 жыл бұрын
Thanks for the information ma'am
@guppygould7 жыл бұрын
I'm 5 years post severe tbi now and the names of people I just met is the biggest one! :(
@BrianBayer3 жыл бұрын
Eh, I just found ur video, and I am constantly forgetting and losing things, after a tbi in ‘09. It has gotten better, I tell myself, but without the helps, like u mention in the video, I’m a mess. Well, can be. I try to force my mind to work, until I start getting tired. But idk I’m there all the time, at that slippery moment. So yeah, my notebooks are great, but only as long as I read them lol
@juryrecitalmay13592 жыл бұрын
Vision therapy has helped w my fatigue not my memory a lot.
@3ksbeterthen16 жыл бұрын
I get in my car and not sure where I’m going. I’ve very late for lots of meetings and appointments. I get confident with my memory and then get very frustrated I can’t find my post it notes. And I would like to hear you cover anxiety and depression if you haven’t already I’m new to your channel
@michaellane82967 жыл бұрын
I Easily forget' Concintrating" i didnt know my mom and Dad! Speaking was hard" vertigo and Seiezures that was hard. I get lost. " crying when you get emotional' Tai Chi. meditation - telling some one something you just told them.
@julietspalding23392 жыл бұрын
i’ve been avoiding that this is so hard for me. in 2017 was spared by god but my concussion was so bad i couldnt and still can’t remember the entire day till i was leaving the hospital :(.
@michealbmillzlynnmass49285 жыл бұрын
I have huge chunks of time in my life completely blank. Its only blank when people give details of the blank periods of time. I am clueless to their descriptions. Other than that I don't know what I don't remember if I don't remember. Multiple concussions are really bad
@nickvelasquez22602 жыл бұрын
Are you a tbi survivor yourself?
@jeanclaudevantom6925 жыл бұрын
ive had 2 very bad car accidents and the most recent one less than a year ago i know has taken my short term memory... i forget names of people i just met.. i beg people to text me times and places... its frustrating
@GhostHunterWV4 жыл бұрын
Me and you as a couple would be an absolute mess....lol! Me: Remind me to mail out the bills tomorrow k? You: Sure I'll put it on a sticky note. Next day.......Me: What was I supposed to do today hun? You: I don't remember but it's on a sticky note but I can't remember where I put it. On the real, I can't remember ANYTHING anymore due to a Coal Mining Accident this past March. Its completely turned my life upside down!
@snehilmamgain9160 Жыл бұрын
Even after 17 yrs I m not able to open my right eye fully.... Also I m not able 2 travel....
@sivenesharunachalam Жыл бұрын
Thabks. I had one
@sivenesharunachalam Жыл бұрын
I keep diary n list it down
@TheSophiaQuestor3 жыл бұрын
mmm that forgetting where you put stuff - I learned to just actually put it in the first place i look when i go to find it.
@TheSophiaQuestor3 жыл бұрын
i noticed i was following same route in my search
@paulleaner69694 жыл бұрын
Do you have a headache after major T.B.I? My pain is the barrier that makes memory recelection almost impossible in a opoid crises, thanks local V A. clinic!
@gousseca5 ай бұрын
Does it have medicine for it
@faisalbi13303 жыл бұрын
Hi so this problem never be same as before?
@faisalbi13303 жыл бұрын
Memory problem is permanent?
@bensmith7212 Жыл бұрын
Chrissy baby u right
@VikramSingh-lh3oy7 жыл бұрын
Hi, my brother in law met an accident after that he had head injury (internal). It is now 24 days after surgery, still he is unable to remember anything. No past memory, can not remember names, can not recognize his parents. I mean nothing, no memory. But yes he had etiquette, he knows how to talk, eat and dress. We are worried how long it will take to get his memory back. As per surgeon, it is left brain injury so will take time. How Long..................
@nothingletitgo33053 жыл бұрын
Hello please give me reply my friends also suffering from same situation how much time he takes to regain memory
@rahmaprastasari1732 жыл бұрын
Hows yoyr brother condition now? Let me now the progress? Thank yoy
@VikramSingh-lh3oy2 жыл бұрын
One year in our condition
@VikramSingh-lh3oy2 жыл бұрын
@@rahmaprastasari173 he recovered after one year but all together he is a different personality his behaviour has changed and now he has little childish nature. But yes he understand everything and is independent. He drive vechile, work and help others in their work. We are happy for him. He got married and has one year old daughter. Yes he is still on medicine from day one and as per doctor we can only decrease the dose but we can not stop it for now. Also suggested healthy food.
@rahmaprastasari1732 жыл бұрын
@@VikramSingh-lh3oy very happy to hear that.. 🙏thank you for the response
@youremysunshine17902 жыл бұрын
Bless your heart
@AndrewB221 Жыл бұрын
I smashed my prefrontal cortex and lobe and GABA receptors and everything, almost never talked again and couldn’t walk or stand up or anything, I was incapacitated entirely and comatose for 2 1/2 weeks