I Had Chemo To Treat My Aggressive MS: Lemtrada Year 1

  Рет қаралды 11,111

Isobel Thomas

Isobel Thomas

6 жыл бұрын

WATCH MY 2ND YEAR HERE: • Lemtrada Year 2 | MS A...
Hello everyone,
This has been by far my longest video to edit.... think I had over 2 hours of footage to rifle through.
But yeah I've been in 2 minds about uploading this video as I look awful and know I was feeling awful and so posting that to the internet hasn't been easy but so far I have been transparant and very open about my journey and this is part of it!
Lemtrada video: • What is MS??????? + Le...
More on Lemtrada: www.mssociety.org.uk/what-is-...
Follow my instagram: izzy_ms?hl=en

Пікірлер: 57
@aculosophyacupuncturestudi4025
@aculosophyacupuncturestudi4025 6 жыл бұрын
Thank you for sharing your story!
@fieldsofomagh
@fieldsofomagh 6 жыл бұрын
Hi there Izzy, great to hear from you again. May God bless and keep you and all those who suffer from this condition.
@ShathaHunter
@ShathaHunter 6 жыл бұрын
Hi Izzy, thank you so much for uploading your videos. Just seeing another person in a similar situation being so upbeat through it all helps immensely. I hope you're doing well.
@SupraguyCRT
@SupraguyCRT 6 жыл бұрын
Hi Izzy!! Thank you so much for sharing your story with us! You've been incredibly helpful.
@LoLo-cv8cp
@LoLo-cv8cp 5 жыл бұрын
Thank you for posting this. After a downhill battle with my Ms this year, I was moved on to tecfidera previously from Copaxone and they've just taking me off the tec, planning to put me on tysabri. Went to the MS Clinic yesterday and my wonderful neurologist has decided along with me that lemtrada is the best course of action for me. Just waiting for bloodwork to come back and I'll be getting signed up for my first round of treatment.
@pamelar6062
@pamelar6062 6 жыл бұрын
You are beautiful inside and out. My niece was just diagnosed at 48 with this form of MS, and I have been trying to get some information. You are so candid and honest. We all have different journeys. Thank you for being so vulnerable to share your story to help others. A true angel.
@sarahevans6954
@sarahevans6954 4 жыл бұрын
Thank you for your transparency. This is very helpful with my choices.
@chalebrandie
@chalebrandie 5 жыл бұрын
Thanks for the upload!
@shelly7269
@shelly7269 6 жыл бұрын
I also wanted to say thank you for sharing this, I realized most people don't talk about their experiences with ms meds so it was difficult when the neurologist told me to research them and choose one, especially when they all are known to have some form of nasty side effects. I appreciate it!
@abotello8320
@abotello8320 6 жыл бұрын
You are such a beautiful person inside and out, thank you for helping me feel like I'm not alone ☺
@IzzyMS
@IzzyMS 6 жыл бұрын
thank you :)
@danilom3166
@danilom3166 3 жыл бұрын
Thank you so much for these videos.
@markbrown5117
@markbrown5117 5 жыл бұрын
Continued and great success and blessings to you.
@rubeusred4337
@rubeusred4337 6 жыл бұрын
Even with a rash you are quite beautiful and insightful. You're so uplifting I like watching your video because it keeps people strong. I was diagnosed with Multiple Sclerosis back in December so it's hard, but you make things great : )
@davegoodridge8352
@davegoodridge8352 6 жыл бұрын
Thank you for sharing your story.
@jaimemarie2711
@jaimemarie2711 6 жыл бұрын
Your so inspiring thank u for the videos they are helping a lot of people
@shelly7269
@shelly7269 6 жыл бұрын
I didn't respond to the steroid infusions and now my acne is so severe! Your videos help me a lot! Thank you for sharing!
@sarahwakefield6420
@sarahwakefield6420 6 жыл бұрын
I've had my first dose of lemtrada and due my second in November. Can't notice any difference atm still feel rubbish hope things get better ☺ ♡ coping with life being a single mum we can do it !!!
@alexfiore754
@alexfiore754 6 жыл бұрын
Thank you for sharing you’re amazing
@angiebeanful
@angiebeanful 6 жыл бұрын
i have to have an mri im sooo scared i keep getting excruiatingly painful optic neuritus in my right eye i get numbness onset suddenly in my left leg now and again i have chronic fatigue to the point all i want to do is sleep mood swings irritability depression anxiety which has been going on many years the eye thing has only started this year i have chronic back pain and get cramps in my stomach and legs and feet all of a sudden your such a brave young lady im 39 will be 40 this year my mum had a stroke and died at 44 my dad a heart attack my grandad a stroke my grandma heart failure god bless u going through all of this and thankyou for helping make me and many other people aware your so brave xx
@mahaftouni1
@mahaftouni1 6 жыл бұрын
Omg thankss befor one week i did the mri and the lp test it was really hard!!! It’s probably ms so it’s the beginning
@2500gamma
@2500gamma 6 жыл бұрын
Brilliant video - I admire you for uploading it :)
@mattz5275
@mattz5275 6 жыл бұрын
The BEST DMT out there PERIOD! I'm 6 months post round 1 feeling great. Keep up the great work
@ldjt6184
@ldjt6184 6 жыл бұрын
What are your symptoms? How old were you when you got the first round?
@QBlackDeathQ
@QBlackDeathQ 6 жыл бұрын
@19:21 was a nice cheerful surprise for you I bet. I really hope you get better.
@IzzyMS
@IzzyMS 6 жыл бұрын
haha yep! thank you :)
@m3hpr118
@m3hpr118 6 жыл бұрын
Hi Izzy , looking at your videos , your looking so so much better each one , glad the lemtrada is working for you , mine started in July 2017 , and its feb 2018 and still waiting for treatment and meds . !!! where in the country are you that you managed to get treatment so quickly ?? glad its working out for you .
@amydoolan1
@amydoolan1 6 жыл бұрын
Hey Izzy! Thankyou so much for sharing your experiences with us. I just had lemtrada last week, as like you I got the rash and tiredness but wasnt half as bad as I thought. How did you feel after the week? I've been wondering around a bit dazed/drunk/ not quite with it I guess due to the drugs. How long did you still have your rash for? X
@larryhofer8853
@larryhofer8853 4 жыл бұрын
Lawrence here from Dinsmore Colony in Saskatchewan Canada I've received Lemtrada to it helped me big time
@aSChubbz
@aSChubbz 4 жыл бұрын
My year 2 is a bit late but can’t wait
@Kathrinegirly
@Kathrinegirly 6 жыл бұрын
Very informative! Thank you for sharing your story. I got diagnosed a month ago not too long after my 22nd birthday, and I recently started on tysabri. Best of luck!
@IzzyMS
@IzzyMS 6 жыл бұрын
best of luck to you too!
@troymessick
@troymessick 6 жыл бұрын
Did you ever have infectious mononucleosis (also called glandular fever or mono) before you were diagnosed with MS?
@TinaHolden
@TinaHolden 6 жыл бұрын
Hi Izzy I also did Lemtrada and got 2 admit no change and only did the 1 treatment but have continued with blood and urine!
@IzzyMS
@IzzyMS 6 жыл бұрын
yeah I'm getting my blood and urine checked every month for another 4 years
@Metal00m
@Metal00m 6 жыл бұрын
Did they use your stem cells too after nuking your immune system? I am looking for better treatment than tecfidera, and any advice would be amazing
@taniaputtick4447
@taniaputtick4447 6 жыл бұрын
I've been diagnosed 12 months and already been in a wheelchair my Ms is aggressive to I'm now waiting for my lemtrada which should be this month sometime really hoping it makes a difference x x
@ldjt6184
@ldjt6184 6 жыл бұрын
Tania Puttick Has it made a big difference ?
@larsgreen4292
@larsgreen4292 13 күн бұрын
it's been 6 years since you uploaded this video. let us know if you okay please.
@07broly
@07broly 3 жыл бұрын
I seem to have VERY aggressive MS.. disabled at 27 with severe difficulty speaking and am not able to walk without a walker. I'm on Ocrevus now and it doesn't seem to be helping honestly
@50enk
@50enk 5 жыл бұрын
Hi is the treatment available in Uk where did you get the treatment Hugs
@aSChubbz
@aSChubbz 6 жыл бұрын
I heard that it’s the weeks after was pretty bad how was it for you
@icetv1
@icetv1 6 жыл бұрын
My doctor started talking about that yesterday day
@ldjt6184
@ldjt6184 6 жыл бұрын
Why exactly does it cause heavy legs?
@shivaniwadhwa986
@shivaniwadhwa986 6 жыл бұрын
Did injection is good to control ms or no?
@wendyshort5357
@wendyshort5357 6 жыл бұрын
Hi, did it affect your hair?
@IzzyMS
@IzzyMS 6 жыл бұрын
Hi, my hair did fall out a bit but that was more due to steroids I think
@e.f.c.2341
@e.f.c.2341 4 жыл бұрын
Hi Izzy. I just wanted to share my story... *I HATED MY M.S. AND MY LIFE* My classmates in college started bullying me coz they don't believe I do chemo or even have MS, all because "I look okay" I don't "look sick". Like, they expect me to waltz in class in a wheelchair with an IV strapped to me or something. I get taunted for having PWD perks since again, I appear okay. I have a high body pain tolerance and I'm pretty expressionless to begin with, so it didnt help. I was branded a Sociopath by my friends, and school became more difficult while recovering. I almost felt an inclination to EXAGGERATE my pain and sickness just to end the badgering. But, I'm a terrible actress so I kinda added more to the Sociopath assumptions. I love makeup and dressing nice, I like it since it makes me feel like I was never ill and a PWD, but they took this as a proof I lied saying "NO SICK PERSON WOULD CARE ABOUT LOOKING PRETTY OR HAVE THE ENERGY TO". I've had my seat poured with juice, my wallet emptied in my bag, getting shoved "accidentally", teased, punched or kicked "accidentally", etc. And it all started when I got diagnosed and I couldn't attend school as much since my body is weak but I still pass my subjects. I hated how I have something I couldn't CONTROL or even STOP. I lost friends and got enemies. I can't swim or do sports anymore (but I stubbornly tried but really cant). I just hated my life, I got more and more depressed and it made matters worse. My mother never had much to brag about me to her friends, but now when she finally mentions me it's that I do chemo, like it's a girl's night topic. My Dad had lower standards for me ever since I failed a subject once in college, now he just expects nothing of me because he says my illness is so spontaneous he doesn't want to get his hopes up. The only "good" thing I kept getting since M.S. was PITY like my sister does, but I never wanted it. I wanted people to think I'm strong instead, but I feel like I'm getting weaker each day. My symptoms are just getting worse each year, and the chemo is working less and less. Honestly, I'd settle with just being completely invisible. I thought of ending it all, but I remember how much loans my parents got for my treatments and chemo and felt like they've invested for nothing if I go. Healthcare here sucks, I went to an org that aids patients for discounts, and saw a Stage 2 Cancer patient get yelled at and intimidated by the interviewer all because she had messy paperwork. I realized I dont hate living, or my M.S. Its simply the unique bad circumstances that are consistently happening to me. And I cant control that. And it's okay to have things we can't control, it's not a punishment it's a challenge for willpower. I wanna believe that is true. That's all that's left that's keeping my sanity. Thank you as well for sharing. You look so healthy and well too. And I feel like I'm less alone in this.
@IzzyMS
@IzzyMS 4 жыл бұрын
Oh wow... this comment was heavy! The people you go to school with are absolutely vile. Have you brought up what they are doing to you to your teachers? Please keep your head up. I promise you you WILL go on and achieve great things! You are one tough cookie and will be such a boss one day! Trying to find your way in life is hard but one day you will look back at this time and laugh! I really hope you start to feel better and never think it would be easier if you weren't here xx
@sarahevans6954
@sarahevans6954 4 жыл бұрын
People can be so disappointing and disgusting. Going through MS is difficult enough to not have to worry about grade school bullying. I read here that you are strong. Your parents should be proud.
@nandoperez8824
@nandoperez8824 6 жыл бұрын
Fasting ... for MS..Serrapeptase also .. research it✌️
@alexrugamas9415
@alexrugamas9415 6 жыл бұрын
Lemtrada doesn't work my girlfriend did it and she gained 25lbs in two days and she hasn't been the same since.
@lovesailing1738
@lovesailing1738 6 жыл бұрын
Idylchatter thank you for wonderful info, do u drink the half drop? Sry am new to learning all about cbd
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