"I would give everything I have to get my life back." - Sam’s life with Post Finasteride Syndrome

Рет қаралды 2,930

26 күн бұрын

Sam, who is 25 years old, shares his experiences taking Finasteride, a popular hair loss drug, and the persistent side effects he suffers during his use and months after discontinuation.
Post-Finasteride Syndrome is the current term for a rare syndrome characterized by devastating physical, neurological, and sexual side effects that persist and progress even after stopping finasteride. This condition occurs primarily in younger men who have taken the drug to treat hair loss, and there is currently no effective treatment available.
PFS has a disastrous impact on patients, their families, and their friends. It often leads to disability, isolation, and even suicide. Every person is valuable, and everyone deserves to make a fully informed choice about their health.
More research into Post-Finasteride Syndrome is desperately needed. Learn more about and support the newest scientific initiative here: www.pfsnetwork.org/science
Donate to PFS Research here: www.pfsnetwork.org/donate
Your Story Matters! If you are a suffering patient experiencing post-androgen deprivation syndrome (PADS), triggered by Finasteride, Accutane (Isotretinoin), Antidepressants, or other anti-androgenic substances, please consider sharing your story with us.
You can email us at moralmedicine2023@gmail.com.

Пікірлер: 77

@maryjenniferpayne103 25 күн бұрын

Sam, we're all standing behind you. You are important.

@LoveLiveBreatheShare 24 күн бұрын

🙌

@alannamarohnic4722 26 күн бұрын

I hope your channel gets one million subscribers. Everyone needs to know about this subject.

@BidchAssnikka-lu5lv 5 күн бұрын

God beware... To spread a unproven message of PFS syndrome and let a lot of young men walk around with a preventable cosmetic defect... Becoming bald and getting depression is a real thing unlike this PFS

@PostFinasterideSyndromeNorway 26 күн бұрын

Stay strong bro this disease sucks my case is severe.

@alternateacc954 26 күн бұрын

Thank you for speaking out Sam. Been suffering with this for almost two years now. I truly hope you recover man

@neilazeez101 26 күн бұрын

Thanks for spreading awareness!

@DT-et8vk 26 күн бұрын

Sam I’m so very sorry! I pray you will be one of the lucky ones who recover. Know that by doing the interview you have helped the community and possibly saved someone from this disease. Thank you!!

@dario4177 24 күн бұрын

Thanks guys for what you're doing... This disease deserves his recognition

@linuskammonen6754 24 күн бұрын

I sincerely appreciate the work you guys on this channel are doing. Spreading awareness is the best you can do and more people coming forward so it doesn’t go under the radar yet again in the healthcare system. I really feel with Sam and I hope you hang in there and find some relief soon.

@dominictorrettoo 26 күн бұрын

Thanks for speaking out Sam. Stay strong we're in this with you❤

@dicemer 26 күн бұрын

Thank you for speaking out on this horrible disease. Because bascially that is what PFS is. And even more worrying, it is a disease caused by a drug that is supposed to help people instead of doing harm. I stopped my nephew from starting Saw Palmetto because of your videos. Thank you so much.

@MrMushkin85 21 күн бұрын

PSSD sufferer here 4 years out, i'm in a trauma rehab recovering from the horrific withdrawal effects that a doctor caused me to this issue. I had a good job, a decent life.

@AC-LING666 26 күн бұрын

Great interview, this 1 was really good to listen to

@Qwertyy535 26 күн бұрын

Thank you for sharing your story, I’m sorry this happened to you. You are only 10 weeks out and I’m sure you’ll recover.

@ccc2784 26 күн бұрын

I feel the same way feeling like I’m just watching life pass me by and existing basically on a different plane than everyone else, yet still walking amongst them. It’s a horrible feeling, I sort of just accepted and kept going and it improved with time (years) to a degree.

@Dyzx1 17 күн бұрын

18:00 if I could feel any emotion I would have cried hearing this, I know exactly what you mean in terms on feeling like a monster. That is enough to make anyone realise how horrific this disease is, the fact he is at hospital visiting his nan holding her hand and he can’t feel anything should really make people think twice that go out their way to say this condition isn’t real. Im also from the uk it’s been about 3 years for me and everything has gotten worse. I was exactly the same as you was placed in an emergency room having extreme panic attacks constantly felt like I was going to die, then spent weeks in a psychiatric hospital they had no idea what was wrong and neither did I at the time I didn’t realise it was from finasteride. Each day is like a nightmare you keep waking up into I’ve had extreme muscle atrophy everywhere. Can’t feel any emotion just completely flat became intolerant to foods and sensitive to chemicals. The part you mentioned about the blood flow and your veins disappearing is one of the scariest things I’ve experienced having this, every vein in my body has either disappeared or changed and became very thin. The muscle twitches are horrible I get them all over my body it’s a sign of a crash in my own experience. There’s a massive issue with blow flow throughout my body. Each day is survival at this point all we can do is hope for a cure. I want to make my own video too, you have gave me courage to do that. Thanks for sharing your story Sam

@esthedon4863 15 күн бұрын

Sorry to hear it my brother, it’s the fucking worst. Would be great if you share your story and raise awareness 👍

@thejoyofcroy 26 күн бұрын

Good interview. Hopefully we can put this all behind us. You are young you may recover naturally but science is finally arriving.

@alicebrentford7599 26 күн бұрын

So proud of you sam ❤

@ryanclark5193 26 күн бұрын

Great video Sam, than you for speaking out. U explain it very well. Sorry this has happened to you

@sciexdeus8687 26 күн бұрын

courage my friends!!! i'm from greece and i'm two years now in this hell too...

@tired_of_everything0 26 күн бұрын

thank you for speaking up

@deathadone88 21 күн бұрын

are you any better at all?

@tired_of_everything0 21 күн бұрын

@@deathadone88 no

@deathadone88 21 күн бұрын

@@tired_of_everything0 I wish I could help, I have ideas and what cleaned my brainfog etc..

@dkav5427 26 күн бұрын

I have had nearly 3 years best thing is to work through no matter how bad you feel and keep fighting it never give up 👍

@esthedon4863 24 күн бұрын

I’m fighting with everything I have man. Haven’t missed a day of gym or running since this, diet is perfect, cold showers etc. I won’t be beat by this fucking drug

@dkav5427 24 күн бұрын

@@esthedon4863 nice one buddy that’s what I like to we are going through hell with it but you have to keep pushing otherwise it’s game over and I’m not settling for that I will fight till the day I die mate

@dkav5427 24 күн бұрын

@@esthedon4863 how long have you had it

@ethanbaggoo1513 26 күн бұрын

Stay strong Sam

@louierose5739 20 күн бұрын

Brilliant fucking video. Really comforts me hearing this. I’m a PSSD patient, similar age to the guy in the video. Please keep posting this content, god bless you And I’d like to have an interview with you at some point in the future

@Moral_Medicine 20 күн бұрын

Thanks so much for the support, Louie! We'll keep posting as long as people keep stepping up! Great to hear you'd be interested in interviewing at some point. When you're ready, send us an email at moralmedicine2023@gmail.com.

@OscarPerezPousada-sn2do 17 күн бұрын

The insomnia is brutal

@ihavePFS 22 күн бұрын

I loved the introduction guys. PFS IS REAL.

@Jayt9813 26 күн бұрын

Sam I know you are shook right now. You are very early and still processing what has happened. Continue to pass those days man. Make getting to 6 months your goal and then 12 months after that. You should see some improvements man. Focus solely on your health and do whatever you need to distract yourself in the meantime.

@dkav5427 25 күн бұрын

I agree mate it’s the shock in the begging the first 3 months a hell I just worked through don’t know how I did it to be honest but they say time is a healer I’m getting very slowly but what a bloody nightmare please take my hair give me my life back for sure 👍

@sushantkumar3241 21 күн бұрын

Thank you for spreading awarness🙏❣️💯

@maximilian8339 16 күн бұрын

Thank you for raising awereness about this terrible disease 🙏

@millon-mathieusylviane7086 26 күн бұрын

Merci pour ce témoignage Sam.

@ferencstuban5767 24 күн бұрын

Hope we recover!

@joeryan82 26 күн бұрын

I'd recommend trying DHT or a DHT-derivative steroid with a high binding affinity for the AR. DHT gel, Proviron, DHB (1-Boldenone), Anavar are all potential options. Usual not medical advice disclaimer.

@user-rc8zv9em4s 26 күн бұрын

The issue also is neuro steroid suppression snd dysregulation of gene expression. Try DHT and other therapies, gotta go balls to the wall.

@joeryan82 25 күн бұрын

@@user-rc8zv9em4s Yeah, allopregnanolone seems to be part of the problem as well.

@veilmontTV 23 күн бұрын

@@user-rc8zv9em4s then why doesn't this happen to people on dutasteride? the type 1 enzyme is what produces neuro steroids and dutasteride blocks that one while finasteride is a type 2 blocker which isn't located at all in the brain.

@LoveLiveBreatheShare 26 күн бұрын

This is what happens when we take finasteride. If you notice all the guys who are on finasteride they are very disconnected. They have emotional disturbances as well. These side effects do not just go away. Aunt, I'm telling you it takes so many years to recover so plan on another 20 years of feeling less and less affected. But you're going to still be affected. This drug should be illegal

@hannesbolman4710 24 күн бұрын

Not everyone gets Problems with Fin . Only maybe 5 % get serious issues

@LoveLiveBreatheShare 24 күн бұрын

@@hannesbolman4710 New study: "Data obtained after finasteride treatment showed that 186 genes (i.e., 171 up- and 15 downregulated) and 19 (i.e., 17 up- and 2 downregulated) were differentially expressed in the hypothalamus and hippocampus, respectively.""Conclusion: Some of the genes reported to be differentially expressed (i.e., TTR, DIO2, CLDN1, CLDN2, SLC4A5, KCNE2, CROT, HCRT, MARCKSL1, VGF, IRF2BPL) and GSEA, suggest a potential link with specific side effects previously observed in patients and in the animal model, such as depression, anxiety, disturbance in memory and attention, and sleep disturbance. These data may provide an important background for future experiments aimed at confirming the pathological role of these genes." Go back to your dwelling hole and suffer like the feminine non DHT manchild that you are.

@LoveLiveBreatheShare 24 күн бұрын

@@hannesbolman4710 I can GUARANTEE you that you are disconnected from yourself and others , you lack true deep connection and your mental health cognition will continue to go downward. The studies don't lie and the percentage you mentioned is an absolute fkn joke. Hundreds of thousands of men are coming to the forefront to report their injuries and look at the majority of men who are on finasteride, unwell, gyno breasts, high estrogen, moody, not even close to who they were prior to taking the drug. Go lie to someone who wants to be fed lies because we know the truth.

@LoveLiveBreatheShare 23 күн бұрын

@@hannesbolman4710 oh yes EVERYONE does, it just takes longer for the disconnected ones to recognize the detrimental neurological side effects of the potent 5ar inhibitor. The mechanism is unavoidable. You're not void of the mechanism that it does in the human body.

@Lakata125 11 күн бұрын

@@LoveLiveBreatheShare Slaphead

@rory3627 23 күн бұрын

Try transcendental meditation, just as a starter, it helps different areas of life.

@timpoos4635 26 күн бұрын

I do believe androgens can reverse the effect of the anti androgen finasteride. I’d recommend trt and see if you can get Andractim in the UK, which is topical dht

@robbiel8677 26 күн бұрын

Poor guy

@esthedon4863 24 күн бұрын

Don’t pity me, it’ll only make me stronger

@vinnyB-do7op 25 күн бұрын

😢

@GodMode-xv6sw 23 күн бұрын

ALthough I believe PFS is real, the bro on the left saying he can't work out properly anymore and his body doesn't respond just looks a bit far fetched. He's a pretty big dude and doesn't really present as somebody with a particular problem at all other than bigorexia which he's blaming on PFS. I'm sure it's not his intention, and he probably really did have a bad reaction to finasteride, but I don't think he realises what's he's presenting to people watching this. If was much more slight and feminized you might say ok this crap really got him, but he isn't like that at all. What did finasteride actually do in this case ?

@Moral_Medicine 23 күн бұрын

So, I’m the guy on the left and one of the people that run this channel. I first want to say I really appreciate your acknowledgement of PFS. It is very real and very devastating. It’s not lost on me that I still present as being a fit and muscular guy. I still hit the gym regularly and do my best to maintain a healthy diet, which seems to at least help me maintain what I currently have after reaching a new baseline. However, it doesn’t do much in regards to me getting my original size/definition back, feeling the endorphin rush/sense of accomplishment from working out, getting a pump, etc. It’s more-so just me going through the motions of weight training now without feeling much and seeing any new results. Having said that, I’ve also been naturally bodybuilding for the last 15 years and am VERY in tune with my body, so I knew very quickly that something was wrong when I first developed PFS - my muscles became soft/less dense, my skin stretchy, I lost size and definition (I lost 20 pounds in the first 6 weeks), I couldn’t get a pump, etc. despite all my efforts. People who don’t know me still label me as fit and healthy (understandably so), but those closest to me have seen and acknowledged the changes unfortunately. These, however, are just some of the many symptoms I have. Feel free to checkout my full video where I discuss my story, and my facial changes videos - m.kzfaq.info/get/bejne/e9OYrNNlr8XXg4U.html m.kzfaq.infoUosSggIfVzw m.kzfaq.infom0LsNvkfygs Appreciate your support!

@BidchAssnikka-lu5lv 5 күн бұрын

Where are the bald PFS victims? Seems the guys here in this channel have good hair yet jump on FIN. What is the logic of this?

@dominictorrettoo 5 күн бұрын

You take finasteride when you start noticing the balding to prevent further hair loss. At the moment you notice it you've already lost 50% of follicles....

@Retrosenescent 15 күн бұрын

My biggest regret about finasteride is not starting it sooner

@Kalley_Kavia 15 күн бұрын

Hopefully the poison won't ruin your health. Good luck.

@Retrosenescent 15 күн бұрын

@@Kalley_Kavia it’s been 3 years and I’m so happy with it. Can’t recommend it enough

@borisbeltev7214 12 күн бұрын

@@Kalley_Kavia nice conceited insult bro youre so smart and bald!

@Lionsmaneisdangerous 12 күн бұрын

Stop playing with fire @@Retrosenescent

@Kalley_Kavia 11 күн бұрын

@@borisbeltev7214Lol, you take a potent chemical to save your hair.

@noelgillett346 11 күн бұрын

The panic attacks are devastating. Starting with "fight or flight" the list goes on by way of emphasis on the "F": faint, freeze, flop and fawn. All bad and for many of us, highly unpredictable and the potential cause of grave and terrible destruction in life. As I myself have had to discover.