I am 52 and have had Crohn's since I was 7. I have been tired for so long that I do not remember not being tired. Occasionally, I will go to my father's lake house and sleep. Get up and go back to sleep as soon as I feel tired. After a weekend of that I feel better for a few days. Crohn's patients suffer in silence because we look normal, but inside we are fighting to function.

I know I am fatigued due to crohns and my doctors know too but I always fear that people around me just see me as lazy... I hope that this test will help me even if it just a little :)

Very true Crohn's make you fatigue, Crohn's make week, Crohn's make you go to the bathroom alot, Crohn's hurt and can change the way you live. I have chronic Crohn's and it really SUCKS. All my doctors are trying to help me but don't seem to really have the right answer for me to get rid of this. So now I'm taking it on my self by eating healthier, exercising and lots of sleep and yea my daly vitamins. And can say now I'm pain free gaining my weight back looking better than I ever looked stronger than I ever was and yes I know if you are a Crohny like me I know it's hard to exercise when you never have energy but in this time you have to push your self to the maximum limit if you want to really live again trust me I was there and it's working for me and mabe it can work for you what do you really got to lose. ..

For me, explaining fatigue to someone who hasn’t experienced it is really difficult. The nearest comparison is of course asking them to imagine being really tired after staying up late, and now imagine having that feeling all day without sleep making it better. But I also feel fatigue is fundamentally different to normal tiredness, like it’s not coming from the same place in the brain. For example, I can wake up in the morning sometimes feeling well rested but after 10 minutes that wears off, and for the rest of my day I will feel fatigued, but sometimes I can choose to ‘push through’ and be productive despite the fatigue. Sometimes choosing to ‘push through’ the fatigue, rather than sleep, can improve the fatigue, but other times it worsens it. There is definitely a psychological component as well as a physical component, imo. These are just my thoughts and the way I experience it and I am sure others experience it differently.

Im still waiting for this scale to be more publicised to health professionals as it is now 2018 and it is the first ive heard of it after suffering crippling fatigue and weakness for many years...even doctors missing a severe B12 deficiency once upon a time ago! (It took the phlebotomist to tick B12 on the form as she suspected it! And she was majorly right!!). Heres waiting...waiting...waiting.....

I’ve just been diagnosed

I was diagnosed with Crohns last January 2022 and finally got my first prescription for my Azathioprine which starts tommorow. I get so tired it's unreal. I feel for my wife and kids because I can go to bed on Friday night and not get out of bed until Sunday evening. I feel such a let down to them.

I recently got diagnosed with ulcerative colitis and the fatigue is the reason I went to my GP. I am lucky to have few issues with my colon other than pain and some minor relapses, but the fatigue has been around for 10 years and got significantly worse last year. I am about to lose my job because of it and I don't know what to do anymore. Has anyone seen any improvement over time after starting treatment? I am on Pentasa daily and the last colonoscopy was fine, however the fatigue doesn't improve. I don't know what to do anymore.