Last year, the Novel Coronavirus has been reported as possibly linked to a paediatric hyper-inflammatory syndrome. A small number of children have developed a more serious inflammatory condition in temporal association with COVID-19 in the community, often leading to hospitalization, and occasionally requiring intensive care.
In order to better characterize this new clinical phenotype a joined PReS, ESID, ISSAID, ERN-RITA and PRINTO network’s effort has been started; an international survey has been launched asking the number of patients seen with this clinical phenotype, resulting in the creation of HyperPED-COVID Registry, a retrospective observational study.
The goal of this webinar was to give an updated status about the registry (number of patients and centres involved), along with an overview of the data collection system.
Speakers:
Marco Gattorno, President of the International Society of Systemic Autoinflammatory Diseases (ISSAID), Head of the Center for Autoinflammatory Diseases and Immunodeficiencies and Elisa Patrone, G. Gaslini Institute for Children, Genoa, Italy.
Moderators:
Marielle van Gijn (Chair of Molecular Testing WG, University Medical Center Groningen) and Anne-Sophie Korganow (Chair of Research WG, Les Hôpitaux Universitaires de Strasbourg)
For information about future webinars, please check: ern-rita.org/webinars/​