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IVig Infusion Time - CIDP

  Рет қаралды 743

Surviving & Thriving

Surviving & Thriving

Күн бұрын

This is my journey having my 1st IVig (immunoglobulin) treatment. Feel free to ask me questions!
IVIG Therapy:
• IVIG Therapy
Axonal damage determines clinical disability in chronic inflammatory demyelinating polyradiculoneuropathy (CIDP): A prospective cohort study of different CIDP subtypes and disease stages:
• IVIG Therapy

Пікірлер: 12
@bellajoy411
@bellajoy411 Ай бұрын
Thank you for sharing. This is exactly the type of info I was looking for when I had my first CIDP relapse this Jan. I also have to admit I was terrified of IVIG. But it has literally changed my life. I feel so grateful for it. Also, a fellow equestrian. Miss it so much!
@jackiebraun5479
@jackiebraun5479 7 ай бұрын
Thank you for this video, Stacey! So happy for you that you were able to get this infusion and that you are responding favorably to the treatment. 😊
@survivingthriving3131
@survivingthriving3131 7 ай бұрын
Thanks! It's been an experience for sure . . .
@survivingthriving3131
@survivingthriving3131 7 ай бұрын
Please like the video!
@paulamirkin5347
@paulamirkin5347 4 ай бұрын
My husband was diagnosed with CIDP 3 years ago and he gets IVIG every 3 weeks and he does great. The only side effect he has had is maybe nausea after his infusion week but he has done great on it. We are just so happy he is doing good. He does every 3 weeks 5 days a week. Sometimes it can go in remission but not always.
@dkasper3267
@dkasper3267 Ай бұрын
I wish doctors didn't take so long to diagnose things like this. It's like the pcp can't diagnose neurological issues, but they take so long to send you to a neurologist.
@survivingthriving3131
@survivingthriving3131 Ай бұрын
@@dkasper3267 it took me over 6 years and 3 neurologists to finally figure out my issue 😥
@dkasper3267
@dkasper3267 Ай бұрын
@@survivingthriving3131 I'm sorry 😞 I'm glad you are getting treatment. So many doctors don't even think about CIDP.
@survivingthriving3131
@survivingthriving3131 Ай бұрын
@@dkasper3267 What helped me more is eating microgreens.
@dkasper3267
@dkasper3267 Ай бұрын
@@survivingthriving3131 it's truly amazing how many people with autoimmune conditions are helped through diet.
@Lockz5789
@Lockz5789 2 ай бұрын
May I ask you why you are taking these treatments but they want me to do this but I have Levy Body Dementia so I’ve read all about this I don’t see where this will help me because I’ve research this deeply
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