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Jessica's story - Hypoplastic Left heart Syndrome (HLHS)

  Рет қаралды 10,241

Action Medical Research

Action Medical Research

Күн бұрын

Tragically, the rare heart condition Hypoplastic Left Heart Syndrome (HLHS) claimed little Jessica’s life. Parents Michael and Louise describe their family’s heartbreak and hope for the future as Dr Pablo Lamata develops 3D computer modelling to help babies and their surgeons.
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Пікірлер: 18
@sylvanafow1340
@sylvanafow1340 2 жыл бұрын
I'm so very sorry for your loss. Glad you got to spend some beautiful years with her.
@angelikabertrand4045
@angelikabertrand4045 Жыл бұрын
So sorry. When did this little Angel pass? Children should not get such diseases.
@HereWeGoAgain661
@HereWeGoAgain661 3 жыл бұрын
I have a grandchild born with this condition on June 3rd 2021. This is a very difficult situation for and family to have to endure. It appears that medicine has advanced greatly for these kiddos. I am truly sorry for your pain and loss of your beautiful daughter. I send my best wishes to your family from the USA.
@Ary-er3sj
@Ary-er3sj 2 жыл бұрын
I am born with it too. I wanted to comment because i was born on june 3rd 2004.
@angelikabertrand4045
@angelikabertrand4045 Жыл бұрын
I feel for these families. I was born with Tetralogy of Fallot, Interrupted Aortic Arch [Tof], plus 2 holes in my heart chambers. I m now 58 and had a total of 7 surgeries. I hope this little girl has the strength and power to succeed. Just like I have.
@franny5295
@franny5295 Жыл бұрын
She died...
@SanctifiedLady
@SanctifiedLady Жыл бұрын
Wow! That’s amazing! Bless your heart ♥️ 🫀
@mweembahamalowa5676
@mweembahamalowa5676 9 ай бұрын
May God bless bless you for the encouraging words.
@thebrightman6456
@thebrightman6456 5 ай бұрын
May God Bless You, for 100yrs❤
@jayep9424
@jayep9424 3 жыл бұрын
Sorry for your loss my niece died at 2 months from this 😔 right before her second surgery
@rachel_a_whisman17
@rachel_a_whisman17 Жыл бұрын
I have this heart condition and I’m the only baby that survived
@jayep9424
@jayep9424 Жыл бұрын
@@rachel_a_whisman17 may god bless you and you continue on healthy and full of life ❤️
@rachel_a_whisman17
@rachel_a_whisman17 Жыл бұрын
@@jayep9424 aw thanks, I have a scar and everything
@TheKyramSingleton
@TheKyramSingleton Жыл бұрын
@@rachel_a_whisman17 I wish I could meet you and give you a big hug. My Mirabelle died after her Glenn. She had the most severe case. I'm in school now. Big love to you and your beautiful heart
@jerrylockhart3069
@jerrylockhart3069 3 жыл бұрын
Hope you are doing good and sorry she didn’t make it. Sorry for your loss
@AS-yz2iz
@AS-yz2iz Жыл бұрын
I'm so sorry for your loss. I hope you can take comfort in the fact that this happened in your room with both of you present. This could very well have happened while she was asleep. God gave you that little blessing.
@nicovanmu8659
@nicovanmu8659 20 күн бұрын
I am sorry to hear this, this little angel is in heaven now, with a perfegt body. May your family finds peace and God gives your comfort... I am waiting my wofe to give birth for my little one whi has a single ventricule ...
@Salome445
@Salome445 3 жыл бұрын
I am so sorry for you
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