Thanks for sharing. The onset of symptoms for you was very different than mine. There were a couple of misdiagnoses in the beginning. It was very painful right from the start, beginning only on one foot. A biopsy was taken and sent to some prestigious clinics for diagnosis. I took a variety of immune system suppressants, azathioprine, mycophenolate, etc. Then rituximab and now IVIG. This was concurrent with taking prednisone (12mg now) and a painkiller. These treatments had no effect at all. The only relief is from the prednisone and tramadol. IVIG and rituximab are extremely expensive, both are given as infusions. I'll be asking my rheumatologist about LDN.

I really hope that you are feeling better it is a very debilitating disease, and out there I think a lot of people are misdiagnosed