Welcome to our Spotlight Sessions, a series dedicated to conversations with change-makers and people that have made an impact on the community of people with disabilities.
In this episode, we had the opportunity to speak with Lara Bloom, President and CEO of The Ehlers-Danlos Society, and prior Lara was the CEO of EDS UK.
Lara shared thoughts on the following topics:
1. Defining Ehlers Danlos syndromes (EDS) and Hypermobility spectrum disorders (HSD).
2. The diagnostic challenges of EDS and HSD and debunking myths around disability.
3. How Ehlers-Danlos society is working to improve care, access, resources, and education.
4. Why brands should involve people with disabilities in their business plans.
Keen to learn more? Visit their website: www.ehlers-danlos.com/
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