Are you 25yrsld Sir. Me to i'm 25 since I was 10yrsld and now I'm cured on year 2004 I finish my Elementary, Highschool, and College but when I started to work I'm relapse and and 2015 is cured and still fighting to avoid a relapse and specially the foods that prohibited to us

Samy David hii just wna know that in which country do u live?

Me Sir. Learn Smart Z? I'm From Manila Philippines

TJ Knight Researcher hii buddy.... r u affected by the seasonal changes like in winters there is more protein leakage while in summers the protein leakage in urine is quite less??

not so Sir. in my observation on my health I have no any seasonal changes but their are the things that we consider to avoid relapses Sir. number one is avoid unhealthy and salty, oily foods and highly preservative content products its good to consume healthy less oil, less fats, and less salty foods and second avoid heavy duty works or activies who brings us tiredness and stress. I'll observe it when I got my first job as a grocery store crew and I can't finish my trainings their because I can't resist anymore the pain in my lower back after lifting any bagagge in the store. and I'm so sorry for my grammar if you do not understand it

Take help from yoga we conduct online yoga sessions for patients with their suitable timings its help in curing nephrotic syndrome

Take help from yoga we conduct online yoga sessions for patients with their suitable timings its help in curing nephrotic syndrome

Hi i also have nephrotic syndrome and i want ask what steroids you are taking? My doctor gave me medicine and I checked what medicine it is and it says that it is to prevent rejection and accept the new organ as my own but i haven't had a transplants yet im freaking out please reply...... Also I hope your kidney is improving.

@@M3ssycupcake mine is prednisolone

@@norfarhana6316 same but there is few more other steroids. So what exactly is prednisolone used for? To prevent rejection and accept new organ?

PLC Studios the cure is a vegan lifestyle. Also known as a whole food plant-based lifestyle. Dr. Greger, Dr. Barnard, Dr. Garth in the documentary film “What the Health,” speaks of the correlation between all diseases and diet.

@@jacklee-ky6wm Please don't be so inconsiderate. A vegan lifestyle helps some with kidney issues and also makes others a lot worse. It's not that simple.

@@jacklee-ky6wm as someone living with Nephrotic Syndrome, I can tell you where to stick your vegan lifestyle. Don't think vegans are immune to NS, they are not. Go push your vegan philosophy somewhere else.

Okay I have nephrotic syndrome and I had two medicines that helped me got on the road to recovery I could share that with you

Go to planet Ayurveda they are caring it

Amazing

@Omoafe Ojiefoh me too

My 1 year and 7 months old daughter just got diagnosed. I pray to God that she'll grow out of it too. God bless you!

the same thing happened to me but now i’m fifteen and i’m relapsing

How was your treatment and diet ? And how have you been since then

rob smith use sambong or blumea balsamifera boil the leaves and drink it it is very effective

How is ur daughter now?

It's so hard I feel it Digonesed with mcd in 2019

Second this.

Missy Xo use sambong or blumea balsamifera it is very effective..boil the leaves and drink it

@@sionydeleon2580 Is this really effective ?

@@alcriswia C'mon, don't listen to these crackpots. a Nephrologist is the one that will give you sound advice. and help you treat NS.

Take help from yoga we conduct online yoga sessions for patients with their suitable timings its help in curing nephrotic syndrome

If you do not mind me asking, what stage were you when diagnosed? Also, what meds were you taking?

Ha! The fire alarm comment is so accurate.

Best part of your post is that you know Christ! I am always so happy to hear when people both know and love Jesus Christ. I hope you're doing well!

Good to hear youre doing well, gives those who are discovering this illness a light of hope

I hope I get there soon I have to take 17 a day

I have this too and I’m on the recovery side, but you will win this fight :]

Read this, i think it will really help. www.inspire.com/groups/nephrotic-syndrome-and-fsgs/discussion/copper-deficiency-as-the-cause-of-ns/

1/3 of people with Membranous Glomerulonephritis go into remission within a few years, These people generally are in the lower risk group with less than 4 grams of protein spillage/day. One thing about NS, is it affects different people differently. NS is still one of the leading causes of death in the world.

Random Videos try to use sambong or blumea balsamifera..common here in thw philippines and it is very effective..my son has a negative results of albumib right nw

@@sionydeleon2580 Sir kumusta po anak niyo? Na diagnosed din po kasi anak ko na 1 year and 6 months pa lang.

I’ve had it for 11 years. I’ve had 10 relapses. It almost killed me

Take help from yoga we conduct online yoga sessions for patients with their suitable timings its help in curing nephrotic syndrome

logan friel Hi Logan, We would love to hear more of your story and talk to you about meeting other kids your age with NS. If your mom or dad will send an email to info@nephcure.org, we can send them information. Have a great day!

+logan friel I got it when i was 7 and im 12 now and i relapsed a few days ago.

logan friel please use sambong or blumea balsamifera it is very effective for the nephrotic syndrome..my son is getting better and better

NaNazLiLNuBz Hello, I was diagnosed with nephrotic syndrome minimal change disease at 2.5 y.o. and was prescribed prednisone, which gave me horrible side-effects. Low sodium and low protein diet, strict schedule of sleep and Shilajit put me in remission from 7 to 21 years old. When I turned 21 I came to Canada and started living on my own forgetting that diet and sleep are important for my health. I also had a huge stress, as additional trigger and I relapsed really badly. Now it has been over 15 years that I live balancing life with this condition. It does not go away, but it is possible to manage it really well, meaning to live without symptoms. Discipline in healthy lifestyle is the key! YOU MUST AVOID SALT! THERE IS NO BUTS ABUT IT! 1 - NO JUNK FOOD, INCLUDING PIZZA! in any amount!!! 2- SLEEP should be regular (going to bed around 11 and not oversleeping), 3 - MODERATE EXERCISE DAILY, 4 - NO PROCESSED FOOD INCLUDING HARD CHEESE AND ANYTHING THAT HAS SODIUM OF MORE THAN 0.5mg per serving! YOU MUST SWITCH TO FRUITS, VEGGIES, GRAINS AND FORGET CREAMY DRESSINGS ON SALADS (USE OIL, VINEGARS, LEMON) 5 - MEAT in small amounts, if possible substitute for fish 6 - ideally NO ALCOHOL, or in very small amounts for special occasions. 7 - GET A JUICER AND DRINK AT LEAST ONE GLASS OF FRESH VEGETABLE JUICE PER DAY (CARROT+APPLE+ADDITIONAL VEGETABLE OF YOUR LIKING). 8 - Add Shilajit to your diet. Just Google it. It may sounds tough for many, but when making a choice of looking and feeling sick, taking steroids with bunch of side effects, OR GOING ON DIALYSIS, I choose all of the above and have not regrets. Good luck!

Guys try to use sambong or blumea balsamifera it is an herb..all you have to do is boil the leaves for 10 mins and drink it do it 3 times a day..believe me it is very effective..my son also has ns and he is getting better and better

NaNazLiLNuBz I just got diagnosed too

@@DivchykRead this, i think it will really help. www.inspire.com/groups/nephrotic-syndrome-and-fsgs/discussion/copper-deficiency-as-the-cause-of-ns/

@@sionydeleon2580 where can I find these herbs ?I live in united states are they known by another name ???

Take help from yoga we conduct online yoga sessions for patients with their suitable timings its help in curing nephrotic syndrome

Take help from yoga we conduct online yoga sessions for patients with their suitable timings its help in curing nephrotic syndrome

How are you now

How r u now?

Hey, I have been going to the transplant clinic since I was three. I've had two transplant and both times they were done by Dr.Burke. He is an amazing surgeon. He is very kind and experienced. I had Dr.Chandar as my peds nephrologist and she is amazing as well but she's peds. I was almost diagnosed with crohns disease but it ended up being side effects of taking Cellcept for so long. She was the only one who was able to diagnose me.I am on Myfortic now.

TC Vlogs I’m a 13 yo male with it this shit sucls

Yes sir take help from yoga we conduct online yoga sessions for patients with their suitable timings its help in curing nephrotic syndrome

yup its hard try gluten free diet and dont eat stuff which you thick harms you ! I am 22 now and on 1 prednisone a day !

@@animatedlife_ Read this, i think it will really help. www.inspire.com/groups/nephrotic-syndrome-and-fsgs/discussion/copper-deficiency-as-the-cause-of-ns/

@@yoyo21926 thanks i have read it i am gonna try the supplement now and see if it works

@@yoyo21926 ok the treatment worked i bought the vitamin (copper, iron, zinc). I was going through replase when you mentioned me in comment, now everything is fine thank you so much!

@@animatedlife_ all the other minerals are important too such as selenium. Check out msm which is a mineral no one knows about and is probably the most important one too that heals the body, fixes food intolerences etc. Get lots of natural vit c too.

Hi, buy food grade diatomaceous earth. mix a (non metal) 1 tea spoon a day in a cold drink. do this for a few weeks. Also add it to your bath, about a half a cup full. There is a high chance this will fix your condition. Also other things to do is buy some msm(sulfur) to make diatomaceous earth even more effective. You should also get a good multivitamin with copper

@@vondsjulie1803 stores.purecolloidal(dot) com/ get the colloidal silver to get rid of pathogens. There are alot on the market. this is the only good one.

Me 2 since 1 year

not much i can say, but..what has helped me : Diet, strict diet, no fat, no salt, lots of veggies, a complete shift on your diet will help..try to never miss a prednisone dose..and try to keep calm , try a safe hobby , stress affects you a lot too and can cause a flare..dont lose hope..

Yunita Achmad use sambong or blumea balsamifera it is very effective..my son is getting better and better until now..

Yunita Achmad use sambong or blumea balsamifera..boil the leaves and drink it..it is very effective

Yunita Achmad the cure is a whole food plant-based lifestyle.

Yunita Achmad I was also diagnosed with NS (2003 at 25 years old) I battled for 3 years. My nephrologist gave me the prednisone and I was cured. Now I'm 39 with 2 kids. hope you get better.😊

I’ve had it for 11 years. It almost killed me. I’ve had 10 relapses. I’m 13

@@HistoryShell1786 and now what the medicine you have to take? I have had nephrotic syndrome for 18 years.

Tiến Trần Đình Prednisone Lasic Retuximab. Lots of other to, but those are the only ones I can remember of

I didnt know that foamy protein is a deal but i noticed edema on my ankles and face so i went to the hospital. Thankyou Gid Bless you too!

How is your son doing?

And also how some of you got cured

None of them actually gets completely cured, they just got there nephrotic syndrome under care, I also have FSGS since around 3 years at 22 years of age but a secondary type and I got my proteinuria under control with ACE inhibtors and astragalus! If u want to know anymore let me know

​@@tobi2841 hi my husband was diagnosed with it. I'm sad. his protein in urine is soo high .

hi, just want to ask what is tempeh , means.

You never relapsed again? Please let me know, my daughter has nephrotic syndrome at 4 yrs and she relapsed at 6

What is tempeh

What is tempeh

okay.. thnx buddie.. :-)

Rushikesh Tribhuwan bro try to use sambong or blumea balsamifera boil it and drink..very effective..my son is getting better and better

As long as your kidney are not totally totally damage you cant have the operation i think cos the person next to me also has nephro like us and she ask if she could just have transplant but the doctor said no bcos her kidney is not that totally damage but idk ask doctors

Rama Malla please us blumea balsamifera it us a type of herb..it is common here in the philippines..my son also has a neprotic syndrome..and im using that type of herb..it is very effective..we called it sambong here in the philippines

Read this, i think it will really help. www.inspire.com/groups/nephrotic-syndrome-and-fsgs/discussion/copper-deficiency-as-the-cause-of-ns/

@@sionydeleon2580 no sambong is only for people who had troubling on peeing my doctor said that

Effective poba Ang sambong sa may neprotic syndrome

@@leandrocapili6047 kung hindi nakakaihi pwede ung sambong pero kung nakakaihi nmn depende na un sainyo kung papainumin nyo o hindi ksi pampaihi lng ung sambong

Take help from yoga we conduct online yoga sessions for patients with their suitable timings its help in curing nephrotic syndrome

Hi, buy food grade diatomaceous earth. mix a (non metal) 1 tea spoon a day in a cold drink. do this for a few weeks. Also add it to your bath, about a half a cup full. There is a high chance this will fix your condition. Also other things to do is buy some msm(sulfur) to make diatomaceous earth even more effective. You should also get a good multivitamin with copper

Kate Lawson hey my son is 13 he has it, what can you tell him to help him on his journey?

Kathy Baas hey!....it is a hard battle but I think it's good to look at the good things instead of the bad thing....and make sure your son always has someone to talk to and that he knows he can talk to them and make sure to be with him as much as you can....I hope he gets better soon....make sure to smile every day!

What are some things I can do for him? To help this situation. He gets a very low appetite, and I feel that it's a downward spiral.

Thank-you so much for that reply, it is hard to stay positive, but you are right, we must make the best of it, dailey. He's one of 5 children and I never dreamed of this. They were all so healthy. Again Thank you

Kathy Baas your welcome.....and I have a very low appetite too.....but i think of he wants something to give it to him and maybe he will eat....is he on syclosporine?.....i am and I also have type 1 diabetes....and again u are very welcome....and who is his newphraligest

Hi. Dear my sister also having the same. Can you explain your experience pls

@@samee123ud sure

@@samee123ud it's miserable experience

@@samee123ud I hv recovered after 9 yrs of suffering

@@samee123ud When I was 1 year old I had it this but no one in my family could find out what was going on as I was becoming weak and weak but then someone told my father about the best pedestrian and the best nephrologist in Asia, Dr.RN Shrivastava he helped alot in those days and even recommend other doctors

Sir kya aab Aapki sister ki aayurvic medicine band hai ja continues hai pls reply.....maine vi nephrotic syndrome ki medicine planet se start ki hai pls suggest...........pls......

@@artclass4282 yes she is almost 80% cured and still following the diet chart and few ayurvedic medicines

Planet aayurveda ki medicine lene ke baad mera creatinine 1.26 se 1.48 ho gaya hai (increase) body mein etching ho rahi hai . Kya aapki sister ko bhi koi problem hui thi medicine ke baad? Pls tell...

Sir mere ko medicine suit nahi kar rahi hai main bahut tension mein hun ..pls guide me...pls..

@@Moneysinghbrarsaab ap please ache se diet chart ko follow kariye and kuch mahine mein bilkul thik ho jaoage

A kidney transplantation is not how to solve it :( it will come back.

alejandro lopez hello did you do the video?

alejandro lopez try to use sambong or blumea balsamifera very effective..boil the leaves and drink it

Hi. Can you please post your story. My son was diagnosed with NS. When he was 18 months. He's 3 now. I need help.🙏🏽🙏🏽🙏🏽

Me too, i have it from 22 , now i m 36 years old, still ok , have a family and 2 cute child.

@@trungjc can you explain me .my son have this

Now?

Sir aapne kya treatment liya tha pls tell..

@@Moneysinghbrarsaab After discharge they let me take steroid (omnacortil) to control my lost of protein along with pantocid...(i hope the spellings are right).

Ok thank you

Take help from yoga we conduct online yoga sessions for patients with their suitable timings its help in curing nephrotic syndrome

@@shahhayderzaidi4445 im the same guy, still have it, but No protein is Ib my urine for now, im taking something for high blood pressure to help it? No idea ahhaha

@@SimplisticVR yoga will help you to strengthen your kidney function

amine moussaoui Hello, I was diagnosed with nephrotic syndrome minimal change disease at 2.5 y.o. and was prescribed prednisone, which gave me horrible side-effects. Low sodium and low protein diet, strict schedule of sleep and Shilajit put me in remission from 7 to 21 years old. When I turned 21 I came to Canada and started living on my own forgetting that diet and sleep are important for my health. I also had a huge stress, as additional trigger and I relapsed really badly. Now it has been over 15 years that I live balancing life with this condition. It does not go away, but it is possible to manage it really well, meaning to live without symptoms. Discipline in healthy lifestyle is the key! YOU MUST AVOID SALT! THERE IS NO BUTS ABUT IT! 1 - NO JUNK FOOD, INCLUDING PIZZA! in any amount!!! 2- SLEEP should be regular (going to bed around 11 and not oversleeping), 3 - MODERATE EXERCISE DAILY, 4 - NO PROCESSED FOOD INCLUDING HARD CHEESE AND ANYTHING THAT HAS SODIUM OF MORE THAN 0.5mg per serving! YOU MUST SWITCH TO FRUITS, VEGGIES, GRAINS AND FORGET CREAMY DRESSINGS ON SALADS (USE OIL, VINEGARS, LEMON) 5 - MEAT in small amounts, if possible substitute for fish 6 - ideally NO ALCOHOL, or in very small amounts for special occasions. 7 - GET A JUICER AND DRINK AT LEAST ONE GLASS OF FRESH VEGETABLE JUICE PER DAY (CARROT+APPLE+ADDITIONAL VEGETABLE OF YOUR LIKING). 8 - Add Shilajit to your diet. Just Google it. It may sounds tough for many, but when making a choice of looking and feeling sick, taking steroids with bunch of side effects, OR GOING ON DIALYSIS, I choose all of the above and have not regrets. Good luck!

sad but true, theres no cure for now

In my childhood my doctor used to say, this disease goes away automatically when you grow up, but this is all myths, and going to hospital is never nice, my parents are only my strength 😊

@@Divchyk r u cure without any type of medicine... im also NS patient last three year.. no doubt u r right its all about to change completely ypur life style

@@CubSATPH thats all lies i hot it at 15 and thats so uncommon for this disease its been pure hell gor the last 9 1/2 years

Take help from yoga we conduct online yoga sessions for patients with their suitable timings its help in curing nephrotic syndrome