Hi Jennifer. I totally agree with your comment. Irrational fear over something so essential for PWP's well being is difficult to watch without saying something. Together we can make that voice louder. Thank you for your kind words.❤

Hi John, thank you for sharing your experience. A daily workout and lots of water is essential for dealing with PD. The ginger for the gut microbiome was something I was not aware of. I will have to check that out. Thanks!😁😊😀

Hi Trooper, thank you so much for your kind words and encouragement. I do try to leave viewers with something every video. Thank you for pointing that out.😊😁😀

Please let me know how your DBS goes.😊😁😀

Hi mommerang, I had not even heard of the word Dysautonomia until now. No one on my medical team has mentioned it. Yes, protein does interfere with dopamine so I try to space it at least 1-2hrs away from my medication. It seems to work for me. I will have to check out dr Goldstein. Thanks😀😁😊

Thank you, Ken, that is great to know!😀😊😁

No problem, my pleasure. Thank you for letting me know it is helpful.😁😊😀

Thank you, David! Appreciate your kind words and support.😀😁😊

Hi Alec, I love the response from your neurologist. Sounds like he nailed it!😊😁😀

Thanks John, this was a great video to make, lots of fun.😁😊😀

David has been since he started his channel even when he was struggling he always finds a way to help others 🙂

Thank you, Tory.😊😁😀

Thank you Angela.😀😁😊

Hi Angela, thank you for supporting this channel.💓

My pleasure😊😁😀

Thank you Bobby😃😀😄

Good choice, me as well😀😁😊

Thank you so much Ross😃😀😄

Happy to help! Thank you, Don.😊😁😀

I agree😊😁😀

Thank you😊😁😀

Thank you Mike, thanks for the feedback😀😁😊

Hi GoPro! Yes, with out the L-Dopa I'm sure I would be struggling through the days. I could not imagine life without it. Red light therapy has helped greatly with the dyskinesia for me.😊😁😀

My brother is truly 'frozen' without this medication. He can't walk or even get out of bed or out of a car without it taking him forever. And even his speech is slurred. Levodopa allows him to be able to Function!!!

@@gloriamaryhaywood2217 tell him to keep the fighting!! Noquit. When the levadopa kicks in I strongly suggest he exercise. Maybe he already does, it makes a big difference.

Hi Matt, thanks for saying hello and leaving a comment. Yes, dyskinesia can be very uncomfortable, long in duration, and rather annoying, but compared to being off, it is preferable for me. I have found walks and exercise can help to reduce dyskinesia, as well as red light therapy. Any other questions please let me know.😊😁😀 Link to Red light video with dyskinesia. kzfaq.info/get/bejne/epOUZJZ50sidnXk.html

Hi Tory!🦗💗

Hi Brett, I'm glad you found the video helpful. I was given a CL prescription the same day I saw my MDS. Here is the link to my diagnosis video. kzfaq.info/get/bejne/fs6Eks5oysiog2w.html Thanks for your comment and for saying hello. 😀😁😊

Hi Mohsin, I don't really know what a doctor could prescribe in that extreme situation. I know it happens in very rare situations where L-Dopa is just not tolerated, but I don't know what people do, I could only speculate. For the side effects: red light therapy has greatly helped my dyskinesia, and the PD gloves have helped a lot also. If not for those two helps I would be in much worse shape.😀😁😊

I just put up a comment about how I have had Parkinson's disease for 11 years from diagnosis and how I only use 99% Mucuna extract and nothing else, Except for some supplements. Zero dyskinesia, Zero side effects. And I take I gram 8-9 times a day.

Thanks Andrew, appreciate the information.😀😁😊

Thanks Andrew. Glad you found a system that works for you. Thank you for sharing.😊😁😀

coffee and exercise

Thanks for letting me know.😀😁😊

Glad that you are alive and learning. FYI when my Japanese neurologist (I live in Japan) prescribed Levodopa, he told me that some people feel nauseous after taking it. Not a big deal. He also prescribed an anti-nausea medicine. I don’t need it often, but when I do, it works like a charm.

@@JohnMcCreery Thanks for the info John.😀😀

Too old (79 going on 80) to be a KZfaqr. Have, however, been posting on Facebook. Should you be interested, here is the latest. The Parkinson’s Diary 65 (Feb 19, 2024) What’s new? Mostly tweaks to established routines. #Medicine 1. I continue to take Dopacol (Japanese Levodopa) three times a day, one 100mg tablet per dose. Here the tweak is shifting the first two doses from 7:00 and 11:00am to 6:30 and 10:30am. This gives me a full hour+ of UP time before lunch. 2. Added Magtein (magnesium L-Threonate) to my supplements, two capsules in the evening and one with B-complex, Omega-3 fish oil, and Lutein after breakfast. Now seem to be getting a better, 6-hour+ night’s sleep. 3. The homemade fermented ginger (fermented with lemon slices and raw honey) seems as effective as commercial products in easing constipation. #Exercise 4. Daily thirty-minute workouts before breakfast. On nights when we are home, I join Ruth in a second workout, typically some combination of Qigong, Tai Chi, or Strong Woman resistance training and/or playing catch (See below). 5. Walking from home to office and back again typically involves around 2400 steps. When the weather is right and no other commitments interfere we may walk down to the station or around the park above where we live, doubling or tripling that amount. 6. Re tweaking the morning workout. On the advice of PDWarrior coach Jason King, I am now alternating mainly cardio (modified HIIT on an indoor bike) with mainly resistance (wall and floor body weight work and stretching. Between sprints on the bike, I slow down, sit up straight and add arm movements, e.g., the PD Warrior “Crazy” or “Reach for the Sky.” 7. Playing catch. Ruth and I began by tossing a plush ball back and forth. Thanks to Jason’s advice, we have now added a small, bouncy ball. One of us tosses the plush ball and the other bounces the small ball off the floor. Coordination is a work in progress. 8. Another useful bit of PD Warrior advice has been to incorporate exercise movements into daily chores. We sleep on futons and now, besides having to get up and down from the floor to visit the toilet at night, I have made taking down and putting away the futons my chore. Since the bottom futon lives on a shelf located above my shoulder height, this means lifting it up and down, a modified deadlift and press every day. #Diet 9. We continue to violate the conventional wisdom that says those of us with PD should avoid dairy. We continue to consume cheese every day and occasionally ice cream as well. So far, no problems, perhaps because I make sure that Dopacol (Levodopa) doses are separated by at least an hour before and after meals. #Results 10. I am in much better shape than I was when diagnosed, so much so that Ruth and I are looking forward to flying to the States for grandson Keegan’s high school graduation in June, and thinking of spending some more time in Taiwan between now and then. Fingers crossed but feeling hopeful.

@@JohnMcCreery Thanks John, that's a great diary to have

Hi, thanks for letting me know😀😁😊

💓🦜

That's a really good question that I do not know the answer for I have been told it usually depends on how much the patient needs but there must be a maximum dosage out there. 😄😀😃

Hi PJ, I would be lost without my levodopa. I get it.😊😁😀

Yes, I talked about it in the 3rd part of the video. Just not for me. 😊😁😀

Hi Angela, me too.😊😁😀

Together is the best way.😊😁😀

Thanks for the info😄😀😃

I oops take prolopa easier on the stomach@@LifewithParkinsons

Thank you for letting me know 😃😊😀

Hi David, thank you so much for supporting this channel!💓