Life expectancy in pulmonary fibrosis

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Life expectancy in pulmonary fibrosis

Рет қаралды 27,192

Күн бұрын

In this video I talk about life expectancy, survival and prognosis in pulmonary fibrosis (lung scarring). This is a common question that patients and their carers have. In the field of interstitial lung diseases (ILDs), there are many conditions which may lead to progressive pulmonary fibrosis. The prognosis and life expectancy are different depending not only on the type of pulmonary fibrosis, but also on other factors, such as the person's age and other associated conditions (not only lung conditions). The effect of antifibrotic medications (such as nintedanib and pirfenidone) also matters in how quickly the scarring will progress and affect life expectancy.
Unfortunately it is hard to give exact estimates, but several factors play a role:
- the type of pulmonary fibrosis
- how much scarring is present on the lungs at the moment of diagnosis
- the pattern of fibrosis
- other medical conditions (not only lung related)
- tolerance to treatments
- the person's frailty and exercise capacity (ability to cope with the pulmonary fibrosis over time).
#pulmonaryfibrosis #survival
Please leave comments below if you want me to cover other topics in ILD.
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The opinions presented on this channel are my own and do not constitute medical advice in specific cases. If you are watching/listening to this content as a patient, you must seek personalized advice from your own healthcare team (who can provide you with a consultation and appropriate treatment and advice. This information presented here may not apply in your case. If you are a health professional, please use your professional judgement when treating patients.

Пікірлер: 103

@thomasprice1320 4 ай бұрын

I'VE been on this earth for 77 years. I was diagnosed with IPF in 2021. I've heard that life expectancy is 3-5 years. Im not afraid of death because I have a savior who promised a resurrection some day. I believe Him. This life on earth society wise has deteriorated through my life time so much that I'm ready to check out. Things are getting so crazy today. Hatred and strife everywhere one turns. Death is just a step to eternal life in Yeshua Messiah. Again, I have no fear of death. It's a natural process. Blessings to all.

@danst-fernando7405 4 ай бұрын

amen

@steve-fy4pk 4 ай бұрын

I’m in my 10th year, and share your belief. Keep the faith and maybe we’ll meet on the other side with our savior.

@thomasprice1320 4 ай бұрын

@@steve-fy4pk I'm sure we will. God bless you Steve

@al7rs.500 2 ай бұрын

You must be Muslim

@EBLLC 7 күн бұрын

Amen! 😇

@TheHikercrone 10 ай бұрын

My Mom died of PF which was instigated from a bad case of chicken pox, which she was told also landed in her lungs. She was also a smoker (never a good thing). She was diagnosed at about age 33-34 and managed to survive until just past her 50th birthday in 1986. Have really appreciated your videos to help me understand how she suffered & why. It's been healing :)

@orionsbelt3332 15 күн бұрын

Thank you so much for explaining this!!! I was recently diagnosed and im now waiting on my test results which is very stressful. I feel much better now after watching your video. Thank you again. Im sure your video has helped a lot of people understand what they may be facing.

@frankvanbus216 10 ай бұрын

My dad sadly died two weeks ago from ipf he worked in construction and was first diagnosed 2 years ago... I am hoping there will be a cure very soon so nobody has to go through it like my dad.

@garymensurati1631 8 ай бұрын

Blessings to you and your family. Sorry for your loss

@prashantshetty2977 7 ай бұрын

Om shanti

@sheilaburnett3370 6 ай бұрын

Hello my name is Sheila and I would to tell you I am deeply sorry for the loss of your dad! My husband has just recently been diagnosed with IPF. And this has been devastating to us as I'm sure you are completely aware, receiving such news. I am looking into everything possible to get more educated especially from others whom have this diagnoses! Maybe if you wouldn't mind, we can become friends for further info. Thank you for your time.

@rupeshsingh945 6 ай бұрын

@@sheilaburnett3370my father has been diagnosed PF. I would like to know more about this. Plz share what treatment ur taking

@narayan12376 6 ай бұрын

@@sheilaburnett3370how is he now

@magnetsa Ай бұрын

I'm 73 and got IPF from a Covid attack. My CT scans are not good and are not getting better over time. Right after I got IPF I also had a heart attack two days later. I had been going to the gym just about every day and my cardiologist told my family after he inserted SIX stents that he had no idea how I was still alive other than I was in excellent shape other than my heart - which he had now fixed, even upgraded. Now my only hope is research scientists coming up with a cure for Pulmonary Fibrosis. Since they fixed sickle cell I suspect a similar fix with CRISPR and nanoparticles might be the research path. I just wish there were a well-maintained database listing all current research and clinical trial future possibilities. I would be a candidate.

@tobyvaught4451 8 ай бұрын

I'm was recently diagnosed with u.i.p and this was the first video I heard you say anything about it and I'm just having a hard time learning anything about it from my doctor or online.I was really hoping maybe for to your video you could do one about u.i.p because the way you explain things just makes it easier for me to learn.Thanks for your time and I look forward to seeing more videos

@rushdashaikh3607 7 ай бұрын

Hello sir my mom too has u.i.p plz give advice

@user-ht4hk3rp2i 7 ай бұрын

I have had asthma for and GERD for decades and now have scarring in my lungs and COPD from the inflammation over a long time period. So as far as I know, my diagnosis is pulmonary fibrosis from reactive airway disease (asthma) and severe GERD. I also have an extremely rare genetic metabolic disease called Variegate Porphyria, that can also have a pulmonary component. I have appointments with specialists soon, so now it's just hurry up and wait (lol). So right now I'm just taking things one day at a time and doing what I can to stay as healthy as I can. I'm 64 and have no family history of PF or asthma but both of my parents and both of my siblings have all had GERD. One brother has it worse than I and now has Barrett's Esophagus (a pre-cancerous condition). Once I see the specialists at my upcoming appointments, I will regroup and make a plan for lifestyle, diet, and medication changes - whatever can have a positive effect on my health.

@user-oh1jn1ex4i 7 ай бұрын

The absolutely longest non-answer I have ever encountered. Wanting to know what is ahead is not “looking in dark places” Pulmonologist will proffer answers without having a clue. I am near the end of my journey with IPF and never received a straight answer.

@createone100 4 ай бұрын

💕🙏🏻💖🌟

@LouAlvis 3 ай бұрын

yeah. so little hard info.'i hope you are still alive., i have no idea what timeline to plan for

@juliagriego7693 24 күн бұрын

There are no hard answers. This doctor is clear & accurate. It is a highly subjective disease. Variables are many. I’ve had it 4yrs now. I’m on OFEV. I am on 24/7 supplemental oxygen. Two of my paternal uncles died short of three years. However, they weren’t healthy and strong at diagnosis. I was and still am. Huge unknown as to how long we actually live🤷🏻‍♀️ Sending well wishes ❤

@sadie4me2 24 күн бұрын

Non-answer? This doctor gives about as clear an answer that I have read so far.

@2003iamkhushi 10 ай бұрын

This is really informative as I was also diagnosed ILD NSIP familial this July, I had review on 16th Oct and doc checked my condition said it is stable as of now, I keep listening to information shared by Dr Stefan and this really helps to understand what I am going through.

@nada-io1dd 3 ай бұрын

How are you now ?❤

@2003iamkhushi 3 ай бұрын

@@nada-io1dd hi I am stable, have issues like my heart rate goes high when I walk or do normal activities oxygen level also goes down , but the moment I sit and relax just for couple of minutes It fix , definitely have a restricted life.

@steve-fy4pk 4 ай бұрын

I was diagnosed (by biopsy) in 2014 (sure I had it before then that’s what sent me to Cleveland clinic) it’s 2024 and I’m still here. I’ve cough uncontrollably all along, and have been in 4 clinical trials for it (no help). I just had a bad lung infection (probably from not being good at cleaning my cpap machine). Give lots of steroids (which makes me feel like a million bucks) and am weaned off now. Having difficulty now with catching my breath even with 3-4 liters of oxygen. Despite the pulse ox says I’m at 94-95 (really misleading). Tried quite a few natural things with no avail.

@EBLLC 7 күн бұрын

Thank you for this information!

@whendis.roberts9903 3 ай бұрын

My Dad has Severe Progressive Lung Fibrosis caused from when he was in the Military and he worked Around Nuclear Bombs that he had to move on and off his B-52's he was working on. He was an Aviation Mechanic In. The Military. Then when when he got out of the Military he became an Auto Mechanic and he did alot of Aspestos Brake Jobs....For 25 years.

@Lizbeth36961 2 ай бұрын

How old was he when he passed ?

@ellieantar809 9 ай бұрын

Thank you for sharing this important information

@nikhilmaheshwari9245 7 күн бұрын

My brother has been diagnosed with ILD with Autoimmune Disease in Jan 2024. He is 24 years old. Why medical researchers are not able to find the complete cure or reverse the scarring of lungs tissues yet?

@wt283 6 ай бұрын

Thank you for the very helpful and detailed videos !

@teresavale2517 Ай бұрын

My dad died last month from this SILENT killer. No symptoms til it was too LATE!!! I will Not allow it to SNEAK up on me!!!

@bmade78 15 күн бұрын

Thank you ❤ I've had this cough for about 6-7yrs it progressed from just a running nose being sick every other month to every month to every week I'm guessing bronchitis and the cough verys sometimes it's an hour or two or a day or a day and a half of straight clearing my airways it's quit embarrassing and not to mention the noise I feel bad for neighbors and I can't find a way to deal with stress better and still smoking cigarettes. I'm too scared to go see the Dr

@anamariakeenan5902 3 ай бұрын

If your coughing what I did I bought lung cough tonic n health shop. I also bought mullen it's good for respiratory . I was diagnosed 2017 n I'm doing good than 2018. I'm doing exercise in d morning under d sun 15 minutes. Lung exercise.

@bonnieparrett696 9 ай бұрын

My husband was dx with IPF about 3 yrs ago..fast progression. O2 24/7 past year...8 lts now. Recently dx with bladder ca. I question all the vaccines in the past 2 years? Is there a connection?.

@Lizbeth36961 2 ай бұрын

Was he diagnosed mild?

@RituArora-nb6lo 8 ай бұрын

Please give me information regarding Chemotherapy (Paclitaxel) and radiotherapy induced Lung fibrosis

@SueRoss-bv5kp 4 ай бұрын

I had COVID left me with fibrosis in lungs what can you tell me to expect

@andrearuiz-sills3156 10 ай бұрын

Question - can the scaring ever heal themselves? Reason being is will a person ever be able to stop being dependent on portable oxygen?

@Teenagegoogoomuk 10 ай бұрын

Unfortunetly not. I have IPF and talking with my Doctor the damage is done and cannot be repaired just slowed down. I run 3L and can see the difference when im not on the oxy. and pretty much know that this is my life from now on.

@garymensurati1631 8 ай бұрын

@@Teenagegoogoomukhang in there, this ipd sucks

@Lizbeth36961 2 ай бұрын

@@Teenagegoogoomukwhat if it’s mild ??

@Teenagegoogoomuk 2 ай бұрын

@@Lizbeth36961 From what I have learned it can not be healed or cured. OFEV prolongs the deterioration but not a cure. Unfortunately a lung transplant is the only way now. I quit everything and have gotten a little better from when it started but again it's the meds helping me feel better.

@garymensurati1631 8 ай бұрын

Thank you 👍

@daisies4444 7 ай бұрын

Thank you.

@cherry02031978 9 ай бұрын

My mom was diagnosed with early stage fibrosis caused from severe GERD.. do you think if she gets the GERD surgery to eliminate the acid that the progression will be slowed down?

@prasenjit2020rickydebbarma 9 ай бұрын

Me to having gerd n o have suffer plurel effusion

@al7rs.500 2 ай бұрын

I have been diagnosed with mild fibrosis in the lower lobe of the lung. I do not know what that means. Does this mean that it is ocular fibrosis? I have not received any treatment from doctors. I do not know why I am afraid, but the doctor does not pay any attention to that?

@cfatal3290 10 ай бұрын

In your experience, whats the longest you have seen anyone living with IPF ?

@amitorlogistics 10 ай бұрын

20+ years with regular walk and basic work outs with light weight.

@2003iamkhushi 10 ай бұрын

@@amitorlogisticsyour known?

@PoongothaiD-om4sy 7 ай бұрын

@@amitorlogisticsit's good to hear

@963ag 4 ай бұрын

What if the CT scan includes atelectasis, subpleural reticulation and multiple irregular streaky linear densities, in addition to fibrosis? What does all of this mean? I was just diagnosed and am waiting for the follow up appointment.

@quantumphotoelectric8957 7 ай бұрын

does having residual fibrosis in upper lobes mean i have pulmonary fibrosis?

@InterstitialLungDisease 7 ай бұрын

i uploaded a video now that hopefully clarifies the terminology

@vilearninglife4723 7 ай бұрын

My mother has been diagnosed with early onset of IPF with UIP pattern of scarring. She is 55 year old and has diabetes too. She has been suffering for over 5-6 years now but the diagnosis happened only this year. What should I preparing myself for?

@narayan12376 6 ай бұрын

How is she now

@vilearninglife4723 6 ай бұрын

@@narayan12376 She is fine. The doctors don't seem too concerned. She does get bouts of severe cough but otherwise she is able to manage basic household chores along with taking care of herself and my father.

@narayan12376 6 ай бұрын

@@vilearninglife4723 good to hear.god bless

@TJ-Dives 5 ай бұрын

I was diagnosed in Jan 2024. Dr. wants to start me on Esbriet very soon. Scary stuff. I am 65 athletic non smoker. Had pneumonia last March. They found scarring in same place as pneumonia. Could end up lung transplant.

@steve-fy4pk 4 ай бұрын

Esbriet has really prolonged my condition. I’m in my 10 th year with it, but feel like it’s catching up with me. Good luck

@mop714 4 ай бұрын

Dr Stephan ... I have noticed you have not answered the questions that Utubers are putting to you. My sister died of this condition, and my friend has been diagnosed with it. Please answer the comments placed as people ae awaiting your answers. I know you are busy.

@Lizbeth36961 2 ай бұрын

Was your sister diagnosed with mild ILD?

@richardc.8214 7 ай бұрын

Dr. I hope you are familiar with the tipy of the fibrosis I have. Is cwll Hermansky-Pudlak syndrome. A very rear kind of it.

@Laila-dw8yf 7 ай бұрын

I have just diagnosed with minimal subpleural fibrosis both lung apices. I wanna understand more about this. What does the findings means? I only hear the word IPF, what’s the difference between the two? Is the findings for me is more risky? I hope i can get an answer pls. Thank you

@donnaowen3111 Ай бұрын

My Dad has just been diagnosed 😢

@kirstymain9741 21 күн бұрын

My dad too just 2 weeks ago 😢

@amitrathod1232 10 ай бұрын

Hi sir, On oct 7, 2023 My wife (age-26yrs) has undergone a bronchoscopy test (biopsy)and is diagnosed with ILD - PPFE. What is the treatment for this ? Is it curable? Note: Her younger brother died with the ILD NSIP disease at the age of 19. (Consagenous marriage to her parents). Can you please respond as soon as possible?

@dorothajordan 10 ай бұрын

Are you based in UK

@amitrathod1232 10 ай бұрын

@@dorothajordan No , I am from India living in Bangalore.

@amitrathod1232 10 ай бұрын

If possible plz share the communication id email or WhatsApp number so I can share all the diagnosis details. Doctors prescribed 3 weeks medicines -capsule Omnacrotil 40mg morning dose, nebulizer 3 time, and in case of cough Benz perl , syrup Lupituss. Can we plan for an online consultation? We have lost hope for treatment but With god's grace in case treatment options are there then I am trying to get possible treatment for her.

@amitrathod1232 9 ай бұрын

Hello Doctor, I didn't hear anything from you. Can you please respond as quickly as possible?

@ArunSingh-mb1de 5 ай бұрын

@@dorothajordan i am based in uk and my mum has same issues

@karanverma4119 4 ай бұрын

My mother was suffering from ILD since 2020 We try our best But nothing work She Died on 31st March 2024 Infection in lungs is increasing During the treatment. She didn't smoke or do anything but still they have ild....

@Lizbeth36961 2 ай бұрын

I never smoked a day in my life, I was diagnosed MILD ILD. What stage was your mom at? Thank you

@karanverma4119 2 ай бұрын

@@Lizbeth36961 She was At the age of 64yr old. Lungs are infection rise and start honey combing... Anyways Dnt Ask any one in this Channel or Google go to doctor and consult your self... You will be ok soon dear... Make you life style better this will help you a lot.

@karanverma4119 2 ай бұрын

@@Lizbeth36961 Btw Do you have any pet or bird cat at home ??

@karanverma4119 2 ай бұрын

@@Lizbeth36961 Some time ILD caused by Pet/bird/cat.. There is no specific reason And my mom was on honey comb stage in October 2023 For you dnt ask about ild consult your doctor b cz every person have different life style. Google and YT only suggested not correct

@karanverma4119 2 ай бұрын

@@Lizbeth36961 Some time ILD WITH Birds and Dust particles We never know what the main cause .. You must diagnosed and do proper diet and young. Is the best option I guess

@user-xm5ol4uk8p 4 ай бұрын

How about minimal scar right lobe fibrosis doc is it harm?

@al7rs.500 2 ай бұрын

She told me that I have mild fibrosis in the left lobe of the lung, but no one talks about it

@S_a_s_h_a_7 10 ай бұрын

Hello sir, my mom had scleroderma with ild she is taking nintedanib for that but she is coughing so much a day is there any prevent for dry cough

@Teenagegoogoomuk 10 ай бұрын

I have IPF and take OFEV for the past three months. I too have dry cough and mucus build up. I found that eating hard candy helps alot, Life savers, jolly ranchers, werthers, etc. hope this helps

@robertstellato5172 7 ай бұрын

YUP -candy for lung disease - medicine has come a long way!

@polaris7122 4 ай бұрын

@@robertstellato5172 it was in regards to the cough, not lung disease!!