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Life with Tardive Dyskinesia

  Рет қаралды 3,298

National Organization for Tardive Dyskinesia

National Organization for Tardive Dyskinesia

Күн бұрын

In this gripping video, people share their stories of what it's like to live with tardive dyskinesia and how this disorder affects their day-to-day life.

Пікірлер: 10
@russellbaker6745
@russellbaker6745 3 жыл бұрын
What an excellent video for awareness and thank you for considering akathisia and dystonia too. I wish people would realise that psychiatric drugs include SSRIs and that causes all 3 as well. Look forward to working with you with the Akathisia alliance. Just been personally quiet due to a relapse
@nationalorganizationfortar2313
@nationalorganizationfortar2313 3 жыл бұрын
We look forward to working with you and the Akathisia Alliance for Education and Research!
@austincostin
@austincostin 3 жыл бұрын
So sorry for you. Thank you for making this. I have shared.
@nationalorganizationfortar2313
@nationalorganizationfortar2313 3 жыл бұрын
Thank you for sharing, Mel!
@jonathanrodriguez8219
@jonathanrodriguez8219 3 жыл бұрын
Nice video!! Keep the awareness for this debillitating disease!!!
@nationalorganizationfortar2313
@nationalorganizationfortar2313 3 жыл бұрын
Thank you for your support. We appreciate it very much!
@kevinmaddalena3911
@kevinmaddalena3911 2 жыл бұрын
Where can I find a support group? I feel like I don't have anyone left in my life. Everywhere I go people make fun of me, or call me names, some stores tell me to leave as soon as I walk in. If I'm waiting for an uber to take me longer than 10-15 mins there is a very good chance someone will call the police, who usually treat me very badly. Recently my home was vandalized and I called the police they didnt do anything or even look at the vandalism instead they kept asking me about the movements, calling me a liar when I t;old them and flashing their flashlight at my eyes. I get called a monster so often im starting to believe I must be one. lately every night when I go lay down to go to bed I lay there crying uncontrollably hoping I never wake up again. I hate myself, I hate my life, I hate God for making me so fucked up. I need help, I dont know how much longer I can take getting treated so badly by so many people. I try to be a nice and kind person, What did I do to have this happen?
@duaneanderson4724
@duaneanderson4724 2 жыл бұрын
I have been on SSRIs my pretty much whole life, but my neurologist, without any research, says it was definitely caused by Abilify. Is he full of it? How does he know? It could have been any of a host of medicines. I wish doctor's would just admit they don't know everything. In fact, they know very little because the real goal is just to push more medicine that only treats the symptoms, not the cause. We need some spokesperson to be an advocate for us, someone famous like Fox so we can get any treatment. My symptoms on Ingrezza and Austedo and DCed my meds and all that, and I am way worse than any of these folks. It just keeps getting worse and worse.
@angr3819
@angr3819 2 жыл бұрын
There is a medication which causes the tardive dyskensia. I can't remember its name but look into meds, especially ones not prescribed before. The tardive dyskensia might not stop when the med is stopped, so best avoid it if possible.
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