Linda Gray Leithe, MD, Neuroradiology | Spontaneous Intracranial Hypotension: Avoiding Misdiagnosis

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The ILC Ehlers Danlos & Chronic Pain Foundation

3 жыл бұрын

Presented at the Pain: Shedding Light on Inequities of Health - Ehlers Danlos Syndromes and related disorders, as well as Spontaneous Intracranial Hypotension Caused by a Spinal CSF Leak Conference on Saturday, November 7, 2020.
Our mission at The ILC Foundation is to help individuals overcome the challenges of living with Ehlers-Danlos Syndromes and other chronic pain diseases through knowledge sharing resources, awareness, education, peer support, and research to find cures.

Пікірлер: 10

@vintagealicia1357 3 жыл бұрын

Who is watching this phenomenally informative video? Where is everybody? No wonder they can't get it right!

@denisesynder2799 Жыл бұрын

It feels like so many unable to find help will die from the pain and hopelessness. Prayers for everyone who suffers healing .

@containedhurricane Жыл бұрын

I think many poor people with hypermobility suffer from spinal fluid leak, including me. Do you know how much does the treatment cost in Texas?

@vintagealicia1357 3 жыл бұрын

Dr. Linda Gray Leithe is a true professional in her field of neuroradiology who goes beyond textbook knowledge. I am so thankful to have run into this video. My son Jesse has been suffering with chronic pain for years. I am scared for him. He believes now that a CSF leak is the problem. He has lost everything he worked for but would have given it all up for a cure... and now must go from one Medicaid doctor to another in search of a miracle diagnosis. It is my prayer that someone like Dr. Leithe can come to his aide. His educational search for a cure knows no bounds. His hold-back is the expense.

@dana102083 Жыл бұрын

How is your son doing? Im a nurse and have EDS and had a baseball to head and spontaneous leaks are common with EDS. It took 1r yrs plus one month to get my.first blood patch. A video by dr Ian Carroll made me have hope again..called the mystery headache. I know this isn't the end of my journey and have lost most of everything but I keep pushing. Its exhausting but we must keep going. Xx

@containedhurricane Жыл бұрын

I have joint hypermobility syndrome and I suspect my positional headache is caused by a spinal fluid leak, because my back spine hurts sometimes. How much does the treatment cost at Duke University Health Center?

@pawelkuczera 3 жыл бұрын

At 21: I see white staining on vertebrae that I think is related to long term CSF sespage. Possibly still would be visible without nerve rooth contrast trace at that time. I've heard all sorts known explanations for those, which is fine and dandy, but maybe CSF fluid does leave simmiliar traces, stains or tracks to look for in the absence of more classic proof of a leak during imaging but possibly next to knive like protrusions that corelate with symptoms.

@deevine1529 Жыл бұрын

Hello. What can I expect on Tue. I was diagnosed with cranial CSF leak out left nostril. I have NORD empty sella and apparently has caused damage. My drip is more of a stream of clear fluid anytime i move or get up or lean forward. I report to A Research School of Medicine Hospital on Tue. Will I be admitted? What steps will they take. Im very scared. Can anyone help answer?

@theseventh5204 9 ай бұрын

16:50 doesn't look normal. I see crowding of the foramen magnum, rounding of the sinus, reduced mamillopontine distance. I bet there's calvarial hyperostosis too as you can see it. 18:11 You can see the tonsillar descent. If you look hard enough you will see things. None of those mris look normal.