Lived Experience of FTD: Gina's Story

Рет қаралды 28,839

Жыл бұрын

FRONTIER is a highly collaborative, interdisciplinary research clinic that investigates Frontotemporal dementia (FTD) in collaboration with ForeFront Ageing and Neurodegeneration. FTD is Australia’s second most common degenerative disease that causes dementia in younger adults. As the first ever research group to concentrate on FTD in Australia, Frontier is dedicated to identifying better ways to diagnose FTD, finding the cause and developing effective treatments for the condition.
FRONTIER social media:
frontierftd.org/
/ frontierbrainandmind
/ frontier_usyd
Learn more about FTD:
www.theaftd.org/
www.raredementiasupport.org/f...
www.dementia.org.au/informati...
www.worldftdunited.net/
Donate to the FRONTIER Research Group: secureau.imodules.com/s/965/1...

Пікірлер: 38

@jadesea562 Жыл бұрын

It is stardust from whence we came; it is stardust we eternally remain. What a special journey you two had together this time. Find each other again. We do that.

@BenVanCamp Жыл бұрын

“By the sweat of your brow you will eat your food until you return to the ground, since from it you were taken; for dust you are and to dust you will return.”” ‭‭Genesis‬ ‭3‬:‭19‬ ‭NIV‬‬

@Mariabarlow3 Жыл бұрын

Thank you for sharing your story. So many people don’t understand this debilitating disease.

@Begging-xm6iz Жыл бұрын

I do respite care for adults with disabilities, it's so important that caregivers take care of themselves, it can be exhausting physically and emotionally when there's only one person to do all the care. I only have 2 clients at the moment because I am older but it's rewarding to help others. My clients are self sufficient and can do everything but needs help with shopping and taking them to appointments, to the park. I'm so glad that you took time for yourself. I'm sorry for your loss, thank you for sharing your story. 🙏❤️

@sfguy2024 Жыл бұрын

Thank you for posting this. My wife died from an unidentified brain disease in her early 40s while we had an infant child. I’m realizing through seeing other people’s experiences, that terminal disease is terminal disease. It’s a difficult road for both patient and caregiver and loved ones. In some ways the road is unique but in many ways it’s not, since it’s about decline, loss of function, and ultimately death. The end of dreams and aspirations for both the patient and their spouse. It’s difficult to accept but we have to accept it. Thank you

@hannahhughes4801 Жыл бұрын

Sorry for your loss ❤❤

@giakamar 10 ай бұрын

My name is Gina, and i lost my father recently from FTD, he was hospitalized for the last two months, in and out, due to breathing complications and then hospital infections and so on. I cared for him the best way i could, since i was the only one that i could, my mother has mobility issues and my sister lives far away. I am still trying to come to terms with his loss. My whole life was caring for him, and now my world feels so empty. I also keep thinking if i have done everything right or if i could have done something better, guilt is hitting me hard sometimes...I also told him that i loved him all the time and i also told him that i know he loves me too, like you did. It is a very cruel disease. My father was 73.

@ShopStylebyme 4 ай бұрын

@giakamar you did everything right. You loved him. Please do not blame yourself because that would hurt your father. You loved him and you were there for him and that’s all you could do. I know he is watching over you. I hope you see him in your dreams.

@brendaeaster8874 Жыл бұрын

This lady is an angel!!

@iashakezula 16 сағат бұрын

Just found this video. My mother in law has dementia but she is very resistant to any help. She lives with us and my world of peace is upside down ..If I don’t prep her food, all she will eat is potatoes,bread and cheese.I tried to reorient her that the person in the den is her son..

@ceciliabeasley3465 Жыл бұрын

Thank you for this video I know it’s hard we have Alzheimer’s runs in our family. It’s my turn now I’m at the start. My poor kids.

@donnabonn1892 Жыл бұрын

Have you notice changes in you? How do you know it started?

@michelleberryhill8635 Жыл бұрын

Thank you so much for sharing your story .... absolutely beautiful and heartwrenching. ❤

@lorrainevalet6025 Жыл бұрын

You are an amazing. You showed your care for shows what love is all about, for better or worse.

@tammyschwarz6388 3 ай бұрын

Thank you…

@staceywolfe 4 ай бұрын

You are an amazing lady, Gina ❤ thank you for sharing your story.

@donnabonn1892 Жыл бұрын

Thanks for sharing your story.

@rawmilkmike Жыл бұрын

Thank you for the story. I'm 68. It made me think.

@hannahhughes4801 Жыл бұрын

God bless you Gina ❤❤

@dennytree9225 Жыл бұрын

May God bless you🙏🏼

@ivansmith654 Күн бұрын

RIP George!

@RCSTILE Жыл бұрын

As tragic as it is to watch someone succumb to dementia, be grateful you were not burdened with the tremendous financial difficulties that can accompany this horrible disease. Unfortunately my mother wasn't so fortunate when dealing with my fathers six year battle with Alzheimer's.

@KristiLEvans1 Жыл бұрын

Yes. I was thinking that as well. Moderate wealth would change everything.

@kristinrichmond8185 Жыл бұрын

I’m sure she is grateful.

@Amybtru 9 ай бұрын

This was a beautiful video🌹🌹🌹

@user-ej3rt9iw6q Жыл бұрын

Amazing couple, you're an amazing lady Gina x

@annmakris9361 Жыл бұрын

Yeah, hospice care was very disappointing to me when I was caring for my mom. They keep sending me surveys and I throw them in the trash. I needed them when she was dying and they certainly were not there.

@kvdme Жыл бұрын

Sorry for your loss😢. You did well my dear. The Lord is pleased.

@marioncannon9924 15 күн бұрын

The Lord is pleased!! What absolute drivel

@marykay8587 Жыл бұрын

This was wonderfully put together. I'm in school to become a nurses aide and my research paper is on FTD...how were his activities of daily living handled by himself in the early stages?

@georginallanes407 Жыл бұрын

Hi Mary was just sent your question today. In the early stages I was able to leave him at home but needed to prepare food and leave things out. I could only leave him for short periods, however. He did need assistance with showering and toileting but in retrospect I think helping in the early stages got him accustomed to being helped which I believe made it easier when more help was required.

@brendaeaster8874 Жыл бұрын

Laughter is the best RX!

@ishouldbesleeping1354 Жыл бұрын

Wow

@donnabonn1892 Жыл бұрын

You fought for him...

@RobertalWilliams Жыл бұрын

What is FTD? KZfaq reaches people around the world who may not know what those letters stand for. Very sorry for your sad story.

@georginallanes407 Жыл бұрын

Correct not many people know what FTD is and the moment they hear the word Dementia that think Alzheimers which it is not. Luckily there is a lot of info on Google when you search FTD but we need to get the word out. Thank you

@user-wb2yv7ll9d Жыл бұрын

Frontotemporal dementia (FTD)