10 years since I was diagnosed, I was pregnant, it’s very scary more at this times, I have 4 boys, they keep me going, And my faith, I know that God can do miracles.I’ll be praying for you all .

You are literally speaking my mind! I am following you since my lupus diagnosis, almost 5 years ago. I am 24 now, and yes it did change me alot. I used to have lots of friends, high ambitions and lots of energy. Now I can't even handle simple tasks and it does get to you. I missed almost all social gatherings etc at my work and it affects my relationship with coworkers. Its very hard, and most nights I just can't hold back my tears as I cannot change anything no matter how hard I try. I am constantly feeling depressed and anxious. I even started avoiding crowds and people as they tire me so much. I feel like a prisoner in my own sick and tired body...

I’ve been diagnosed with lupus ever since I was 15 years old now I’m turning 30 in August when I first got diagnosed I couldn’t walk my family had to literally carry me everywhere I had swollen joints I had black bruises on my legs. and the worst of all I started taking prednisone just feeling hungry all the time gaining a lot of weight it was very hard. May God cure us all 😊

We need to educate more people about Lupus,having Lupus and being African is the most terrible thing people around you never believe you are in so much pain they assume you are just lazy and love sleeping but thanks to your videos i keep on pushing every single day❤

I was diagnosed in physician assistant school 4 years ago. I'm so sick right now. I went through a divorce, move, custody. I got really sick from the stress. Thank you for this.

Thank you for sharing your experiences with us. I have been diagnosed with Fibromyalgia and then Lupus and now probably RA. The pain is getting progressively worse. Everyday is a battle. I am now having severe feet and hand pains. Really debilitating. I might have to be on chronic meds and that's scary. My prayer is that they find a cure for us. Soon. I am 60 and currently retired. I have a supportive family but the daily chores tires me out. Journaling and gardening have been my tonic. Keep well all.

I was diagnosed with Lupus 8 months ago. I survived a critical state of it. I was 22 when I got it. I just turned 23. It's difficult living with it but I do my best and live pretty well with this.

I have lupus and Addison's disease but my symptoms come and go. They tend to cause chronic inflammation in my stomach (gastritis) and pains in my kidneys. But they make my ability to fight off colds rough. It took me 3 weeks to kick the flu this year. Fun times. So yeah, I hear you on us all being different but stay strong and keep your head up. Cheers!

Just diagnosed and I have been in pain and exhaustion for years. Totally understand what you are talking about. Thank you for sharing.

Thank you for this a million times. I’m a 23 years old girl I have been diagnosed 6 months ago you latterly speak my mind at this point your videos help me a lot when I’m really tired of explaining to people my struggle. I’m an architecture student my studies isn’t easy and takes all of my energy I’m no longer social all I used to be I felt terrible at the beginning but now after your video i feel much better knowing that someone out there share the same pain. Thank you a lot never stop posting🖤🖤🖤

I just got diagnosed 2 days ago. Am ready to start this journey for more answers. I have been ignored for years by everyone including doctors that would just brush me off cause "look" fine and as for my breaks out tried to say was just dry skin and needed to have better skin routine. And my fatigue just cause my eating/sleeping habits and amd fine just need do better. I've started having seizures which only reason they decided to do blood work [after my 4th one] and only with help my big sister insisting they test me for lupus [we'd done our own research and she also has am autoimmune disease] Just turned 20 and hope to find ways to work around it all.

I am 27 ,I am living with lupus from last 13 years and still . All the best for all who are fighting with same , sometimes it's severe. Sometimes it good but the pain and mental things never goes away .

Thank you for sharing and setting aside some time to tell your story of life with Lupus, stay strong . I was diagnosed with Lupus last year September, been going to doctors for years, I'm 64 yrs now but I finally have a name for my aches and pains, suffering with migraines since a child, any how enough about me, live your life as much as you can, push through every day and remember to smile because you are a beautiful soul, God Bless

You don't "overtalk"! Your authenticity and honesty is so beautiful Thank you for sharing your story!

I got officially diagnosed today. Thank you dear.

Just found your channel and so proud of you for pressing on and inspiring others... I’ve been diagnosed with Rheumatoid Arthritis in March this year and I can relate to many of your symptoms... praying for you and that you have more pain free days... we are Warriors and we will overcome... Stay Encouraged 💜💜💜💜🦋🦋🦋🦋🙏🏾🙏🏾🙏🏾🙏🏾

I just found your video and I’ve been living with lupus for bout 4 years come 2020 and everything you said in this video is spot on but I pray for your well being and mines as well and everybody living with lupus we are definitely warriors ‼️ keep fighting lupus warriors 💜

Im 39yo and was just diagnosed with SLE, I have had symptoms from the age of around 8-10yo and was always told I was lazy, I was lying, I was weak, had low pain tolerance, etc. My life has been a literal living hell for many many years, I was even homeless for a time because I was unable to keep a job because I always felt so terrible. I struggled with drinking and things because it was something I could do that would numb all the pain and in many ways give me enough energy to make it through the day. I have struggled with depression and anxiety terribly. The best years of my life were about a 5 year span about 10 years ago where I just randomly out of the blue began feeling better. I had started a successful business and was able to work very little and still afford a good life, I began working out and got into shape and then once my business closed down I became very stressed out and from that point until now I have been in absolute agony, pain is off the charts throughout my entire body, fevers every other day, fatigue to the point where I just want to scream if I have to get up off the couch to let the dogs out, I can barely get out of bed until 10-11am and when I force myself to, because I have no other option, I become so angry, stressed, insomniac and eventually terribly depressed. I have always known that something was majorly wrong with me but nobody believed me or would help. I quite literally was diagnosed two weeks ago and am in the process of figuring this all out. I’m glad to have a diagnosis and to find out what is actually wrong with me; I’m glad that I’m not crazy and making this all up. But I am scared that after nearly 30 years of daily symptoms with no treatment that my body has taken significant damage. I guess I will find out soon… thank you for your story ma’am, it’s the story I relate the most to that I’ve come across so far.

Ten years too with out family but with God

I just celebrated my 7yrs May 22nd. Of being diagnosed w/Sle Lupus. You inspire me in more ways then one. I am thankful for you. & I’m glad I stumbled upon your channel. 🙏🏽❤️🙏🏽😘

You are so very brave ❤❤❤ I have medical PTSD & now terrified of drs . Even GP appts are horrific for me due to medical trauma . Here you are just doing the THING . You are SO BRAVE !!! Sending you so much love & light ❤❤❤❤

Followed you for years. And seen you grow with daily struggles of pain and flares. Can truly relate to that what I go through with lupus. Looking forward to many more years of videos. Keep on fighting.

hi! i’m 17 and i was diagnosed 3 years ago. i feel your struggle and i’m glad i have someone i can release to.

I hope you are o.k. with not feeling o.k. Been awhile my friend. I have gone through a long period of channeling my energy. There are people that I haven’t spoken to in over a year. I don’t even want to try and explain in more detail to them how I feel. Most of the time even when it’s a good friend I just can’t. I get it. It’s a lonely painful place at times. I never know what my day will be like. I wouldn’t say that I’m depressed all of the time but I am sad most of the time. Hang in there. And hey! I’ve been trying to get the courage to start filming again ( use to talk about it all of the time ). I actually took a break from working on something just to surf the net. And your post popped up. I’ve been watching you for years. Keeping it 100. Thanks.

Samantha, you really are an inspiration. I do not have lupus, but I do have Hashimoto's, Microscopic Colitis, some neurological problems due to the Hashimoto's. I can't pretend to know what you are going through, but I can understand a it from the issues I go through and almost always in pain. You are much stronger than you think and listening to others with autoimmune diseases doe help and it let's me know that I and others are not alone. Keep strong and I wish the best for you.

There is something right here on KZfaq that helps with my depression...TinyKittensHQ. Sooo relaxing! Hope you feel better soon. 💞✌🐺

Keep strong, meditation and prayer help too. I find a lot of peace when I pray in the dark and listen to music. My wife and kids know that I’m sick but I feel depressed that I can’t spend time with them because I spent all my energy at work. I think we can all relate to your situation..... i think we all can?? Stay strong there’s always going to be uphill battles but it’s the hill that makes us stronger not the downhill when everything flows easier. Keep fighting the battle sister🙏👍🤕😃

What to say. Thank you for continuing these videos. We may have some idea of what it takes for you to maintain this channel set up these videos and speaks these words. You invest some of your precious precious resources for us. There was weariness in your voice today and I pray for you to be refreshed and uplifted.

Thank you so much for sharing your experiences. For the seven minutes of listening to this, that was seven minutes that I didn't feel like a confused crazy person for once. When I can't do simple things like walk up stairs it's so hard for me to understand why. It's even worse when other people ask me why. Thank you again for putting this out there.

I'm finally starting to be able to walk around again unassisted after about 8 months from this last relapse. Been trapped in the house using a walker but have had a worse time where I was basically paralyzed in bed for a whole year unable to even lift a cup of water. I love the outdoors and the desert more than about anything but it won't do any good to dwell on not being able to go out there anymore. After my dad became crippled many decades ago all he did was dwell on what he couldn't do and what he can't have and it ruined his life. It's funny how I never really had much use for the internet and now I'm addicted to my smart phone LOL. I just try to focus on what I still have and what I can still do which can be very hard. This sucks to say but it's comforting to know others are suffering from the same things and I'm not alone.

I hear you. You are such an inspiration and brave human. Thank you for sharing...it means A LOT. Just a girl newly diagnosed after two years of blood issues. Again, THANK YOU ❤

I have been sick since 2001. I was finally diagnosed in 2003. I have been fighting for 18 years. Lupus is such a nasty disease.... I hope things are going better for you now. 💜

I was diagnosed in November last year. It hasn’t been a year yet but I’m managing :3 i was diagnosed at the age of 14 and now 15. I may not have the hair I had before, I may not feel peachy all the time, I may not be able to do some things here and there but Lupus doesn’t stop me from being me :3 I feel like lupus has completed me and I don’t need to hate on something I can’t put away. You peeps struggling out there don’t panic you got this you are strong and you can beat this💕💕👊👊❤️❤️💙💙

Thank you for making videos. My cousin has Lupus with complications in her kidneys. Her kidneys put her in the hospital all through her childhood and then her endometriosis kicked in. They didn't figure out that it was lupus until she was in her 20s, so it was at least twelve years of not knowing why her kidneys didn't work. It's so hard. The appointments, the pain, the procedures, the infusions, your life becomes centralized around your illness. I am thinking about talking to my cousin about making her own KZfaq channel to inspire others like you do.

We just got orders to move to Florida and the sun and heat really affects my lupus I’m so nervous! Thank you for sharing your story!💜

I want to tell you how brave you are. I know about tests girl! Doctors who don't care. I wish u the best. I will be praying for u.

Hey.. we are with you.. u have so much in pain inside still u r smiling ,v need such strong ability with in ourselves to fight , nice to follow you.. .. take good care.. stay happy , inner happiness is must.. I have been diagnosed with SLE last 2 years , have same issues as u r s .. keep smiling nd make otr smill till v live is d only happiness v get.. any way u r gorgeous girl..

Yep keep pushing forward. I just tell ppl we cant let it run our lives WE run our lives. Life Has Options and WE make the choice to move forward every day even when its not easy

You’re an inspiration

You are an inspiration to everyone! Keep going strong girl 💪 🤗x

You are so inspiring. thanks for sharing your journey.

Hey i'm from México and i have lupus too. I am 20 years old right now. But i have lupus since i was 12 years. So don't worry girl, at firts you Just feel a lot of pain but then if you take your medicine you gonna feel much better.

Thank you for inspire me to go on in my life with my LUPUS.

I was just diagnosed today. I'm so scared. I've been sick for so long. I have a lot of stomach issues with mine.

i just took my blood test today to see if i have it. one of my tests showed low kidney function. i’m 15, and i’ve been suffering with pain for a while now. i just got used to it and i could never bring myself to go the ER when my parents would want me to. i’ve experienced so many of the symptoms and i’m really praying i get the answers i need soon. prayers for all of those suffering auto immune diseases.💜

It’s nice to know that someone understands what I go through but I hate that we HAVE to go through this

I was diagnosed with Celiacs in 2017 and recently had a positive ANA test. I don't know what I have. I will see a Rheumatologist in a few weeks. I have watched some of you videos and appreciate them.

Well said! I feel pretty much the same! Thanks for your videos! :)

I was diagnosed with Lupus last summer. I feel I had it longer, but can't change the past. I still need to find a doctor to treat me. Right now, there are very few I can afford. I'm extremely sad. I will be watching your older videos. 💗🌸💗

I have been diagnosed since 2007... And it has its ups and downs.... From all the medicine that they have tried my stomach is so messed up... I have to do injections of ketorolac if I'm having a head ache which cause a tumor at injection site... It has been an emotional rollercoaster.... I gained a bunch of weight and now I'm at 110 feel better but of course they was to "reevaluate" .😵😵😵 Keep your heads up. . And my little secret when I get in my feelings and just feel like crap it turn on the music and dance it out.... 💜💜💜 #💜 Lupusfamily

This made me so sad. I relate to you so genuinely. I can't even put it into words, right now.

So I just found you I have lupus arthritis I’ve had it for two years... How it started I was at work it started out my feet started to hurt then all over my body I'm 24...i got really depressed because in 2014 I got really sick they told me I might have leukemia so I ended up having a bone marrow biopsy good news I didn't have leukemia but I had ITP I had to get a type of chemotherapy done it's called Rituxan now In 2014 I was in my senior year of high school. Back to when I got diagnose with lupus arthritis, it was terrible I was in pain my parents had to help me get up and actually get dressed... I was so depressed and alone because of no-one in my family, has that issue so after finally getting the correct medication I think I'm ok but I feel like every time I get sick I'm scared to lose my job.I'm not who I once was... I know the difference idk I just want someone who has lupus and that understands how it feels... I'm happy that I found your channel I hope I can get the chance to make friends with the time autoimmune disease or just to talk when we are down... Oh my name is Mariah...

Stay strong young lady you are definitely a fighter so don't give in to this ugly monster that we all know and hate. Thank you for sharing God bless

My mom has systemic lupus, fibromyalgia, rheumatoid arthritis cranial hypertension, diabetes, and high blood pressure. She was diagnosed when she was pregnant with me.

I’m listening and sorry to hear what an uphill battle it’s been for you.

Just take day by day don’t over think 💭 to much that’s what help me

You are so beautiful and awesome....your boyfriend is a very lucky man.....God bless you both through all of this.

The pains omg I hate it dealing wit Lupus while your kids needs u it's a challenge I double up on my meds but during the summer no matter how much I double up I end up having to go to the ER it gets to the point where I can't even get up rashes pops up joints are swollen everything hurts it has gotten to the point where I can't even go to the park wit my kids I have to wait until the sun goes down sun blisters my skin my kids don't understand one day they will know why mommy couldn't do much wit them in the summer I feel ur pain it's hard but u still gotta push through. Some people who don't know abt Lupus be asking why u have on jeans n long sleeves it's 90 out blah blah I get tht a lot but I don't pay them no attention. But yeah it can be a pain in the ass

I was diagnosed with lupus last December 2018 just a month before my college graduation. I'm currently 21. I'm still looking for a job and I'm scared if the stress from my future job would flare up the symptoms. :(( My family is also a mess right now. There's always fights everyday and it's very toxic at home. I'm always stressed out and I feel like I'm the only battling this sickness. I hope it gets better for the both of us and for the other people living with lupus.

I understand what your going through, even though I was diagnosed 2 yrs ago but this pain we go through is horrible. Lupus is taking over my body I try to fight every day but I feel like I’m loosing. Today was a bad day my joints were inflamed I was in terrible pain.

When you say I should call 911 for the pain I wish we didn’t have to understand this . I wish we couldn’t even relate . It feels like being traumatized over and over and over all day everyday in this type of pain .😢

I think lupus protected me from corona, I had it for like 3 days only, fever and diarrhea. My immune was pretty much active before getting the virus so it reacted fast. Other people, who are "healthy", have dormant immunity. Autoimmune disorders might be an evolution, we're living on a pretty dangerous planet, alertness is important.

Wish you are healthy and long life..

Awesome voice you have

Systemic Lupus Erythematosus: Pathogenesis at the functional limit of redox homeostasis

What medications are you currently taking?

God bless you dear♥

You are a lovely, bright, articulate young lady? Stay stron g and I will pray for you.

I was diagnosed when I was... 13 or 15 (I'm 20 now) And it's just.. you have some good days and some bad days. It's really hard sometimes though. I went to a convention with my friends recently and walked around all day long, 4 days in a row, and my pain was at a constant 8. My friends were so nice though, if I needed to sit for a bit we would all go find somewhere to chill for a moment. But it's difficult cause when you can't stand or walk or even at times sit for long periods of time, you kinda just go well what am I supposed to do for work, you know?

I am suffering from lupus right now and i have diagonosis 5 months ago And i am only 14+

Do you work how do you cope.. I don’t know if I have lupus but I’ve read a lot of the symptoms sounds a lot like me.. I go to sleep in bed and so tired but you wake up the same.. :/ I want to work but I’m afraid I don’t thinks jobwoykd be flexible with me coping.. ):

So glad I didn't get a job in construction now or I'd be proper fucked! Lupus sucks but I've only been diagnosed a few months so I'm hoping I can just be on a few meds a day and be normal eventually getting hit hard with meds right now been off work a month 👎👎

I live in the hottest state of the country... And the summer time is The time when I'm always always always sick... I totally relate when it comes to the sun

I have lupus too i was diagnosed at age 9

Does anyone with lupus experience anisocoria? uneven pupils? one fairly larger than the other?

I might have Lupus as well. I'm going to see a rheumatologist in 2 weeks. But for now the only symptom I've been experiencing the past 3 years is swollen joints. I'm not sensitive to the sun, my kidneys and other organs are immaculate according to the blood work, I'm not getting any rashes. So it could just be arthritis or something else. Hopefully it's not Lupus

I’m 12 and just found out and I couldn’t walk at all

Do you ever feel like you have weights on your legs or arms and our of breath?

Same thing for me ❤

I found out I had lupus last was year in september. I understand what its like.🙂🙂

Warrior 👏

I got lupus at 41 years old I am suspicious I’ve had it since I was 37. I am a male It started with a diagnosis of small fiber neuropathy which branched into fibromyalgia which ultimately ended up becoming lupus diagnosis. Now I’m being treated for lupus as of the last two months. Any advice besides hang in there which I’m barely doing. I’m giving myself weekly injections of Benlysta. Thank You 😊

27 years with lupus.

You are so pretty

i am suffering with lupus

Did you try CARNIVORE diet ,I try it work for few months ,few weejs back I start eat the old way and everything come back ,now I am secound week on carnivore

🖤

I went to the Dr because I couldn't move my arms... I thought it was from old injury or car wreck... They wanted to check for autoimmune and I thought it was silly. She said high levels of ra and sent me to ra dr... She took a xray of fingers and called chubby. Result in mail didn't show anything but she said super high levels so I shrugged off. Happened to go to Dr this week for physical and a new Dr took over and casually asked about what ra said... Said I haven't gone back cuz was on vaca and she casually mentioned my lupi s Ana text were positive... And that I need to see ra dr again.... I'm confused.. I didn't hear that right maybe? I have been sick a long time with stomach issues, migraines, seizures, skin stuff, getting hot and branching as my mom says etc etc... She's a nurse and suspected lupi s and other random stuff... And thyroid disease and cancer runs in family... My mom has a few lumps s he has to get checked every year.. Aunt and cousin with graves... Aunt with thyroid cancer.. Grandma with Padgett etc... Father with ra... Just didn't think lupis... Basically kind of getting scared because it's the one illness i didn't think of.. Well that and ra itself... You look so sad and I'm so scared.. I'm 32 and I have a daughter that stays with my mom.. Before I heard anything my mom mentioned my daughter's fingers being bloated and she was documenting it... Is this genetic? Good luck and be strong!

I was 14 when diagnosed too xd

❤❤❤

Look for Dr. Brook Goldner, she has a healing protocol and works perfect if you follow it!! I have lupus too and I’m doing her diet and I’m starting to feel great!!!

❤❤❤❤❤❤

stay srong

I got the 600 👍🏼

I love you honey.

Hi Samantha, Have you given any thought to becoming a spokes woman for one of the foundations in the U.S? Perhaps, go to the media (ie: Good Morning American, etc)? I would imagine a few phones is all you would need to do to be put in contact with the right person. If you can get sponsorship from whatever and whoever so you can turn your platform into a viable living. I also just wanted to say, I'll be 50 in February and on Dec 16th 2019 I was diagnosed with late on-set lupus. I'm still in yet another waiting game to hear from a rheumatologist so as it stands right now, I'm on absolutely no meds and nsaids do not help. Every day is a struggle and, I can tell after being awake for 10 minutes if my day is going to be a "not today" day. Which usually it is! As a result, I can no longer work but I'm on medical leave and, I'm quit worried I wont be able to return to the job I love because it's extremely physically demanding. Keep fighting dear girl, for as long as you keep fighting, the rest of us will also! Warmest regards to you and all the best! BTW, you're the same age as my eldest daughter so my mother instinct wishes she could reach through and give you a hug!!!

Get over it Samantha ..i have lupus too but i prefer not to talk about it ..sometimes i forget my sickness u know why??because i smile no matter how i decided to live without disappointments n To spread love n hope.. happiness everywhere 😄😄samantha i realy appreciate wht ur doin but ur health comes first if it's harmful for u to share ur experiences n keep rememberin the whole thing it's better to close this channel n have a rest ❤

Thanks you so much for this, I was trying to figure out what was going on for so long. My pain is horrible, I still push myself to play drums like I used to. I’ve passed out multiple times just playing drums, I play death metal so it’s extremely taxing on the body but I’m gonna get through this.