Living with Amyloidosis - January 2019

Living with Amyloidosis - January 2019 - Dan Lier

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Amyloidosis: My Journey to Success - Dan Lier

5 жыл бұрын

1.1.19 - Blessed to be alive. Diagnosed in April of 2017 with Cardiac Amyloidosis... and also the amyloid protein deposits are in my G.I. track, which effects my voice on occasion... and it's in my nervous system as well.
Playing the long game.

Пікірлер: 21

@sibrechtfieggen5025 2 жыл бұрын

well said thank you

@kennetholson4560 Жыл бұрын

I know what you’re going through Dan I have cardiac amyloidosis got real bad the last couple years ago had to have a heart transplant because my heart was so full of Amoyan but doing better now, so I know exactly what you’re going through and I just want to let you know I’m keeping you in my prayers always and just wishing you all the best

@DanLier Жыл бұрын

Thank you Kenneth. I appreciate that!

@steves.8747 5 жыл бұрын

Thank You Dan and Happy New Year!

@billinct860 5 жыл бұрын

Happy New Year and continue to fight this!

@mikemcfadden1927 5 жыл бұрын

Happy New Year Dan thanks for the inspirational words on how to keep on going through this journey with Amyloidosis. Look forward to seeing your posts this year.

@sae9381 5 жыл бұрын

Happy New Year, Dan!!! A new year beginning for all of us! Blessings to you and your family❤️ and keep the faith 🙏🏻

@dorothygraham4579 5 жыл бұрын

Happy New year Dan. It's -1 deg here! That sunshine must feel good. You look well and upbeat long may it continue. Dorothy

@amyloidosismyjourneytosucc4995 5 жыл бұрын

Thank you Dorothy! Yes... cold and windy today though (for us...)

@shandusa 5 жыл бұрын

Happy New Year Dan

@bobchild9051 5 жыл бұрын

Hey Dan, been following you for a while now. Was diagnosed with AL amyloidosis Jan. 2017, understand everything you feel and say. Been on daratumamab as monotherapy, numbers normal range now, at my new normal. didn't do so well on first two treatments. Happy new year, best of health to you. Bob

@Kelly-lo6cz 3 жыл бұрын

What symptoms did you have? What tests did they do to confirm this? Thank you for this video... God Bless

@DanLier 3 жыл бұрын

tests - fat aspirate or bone marrow biopsy.

@kennetholson4560 Жыл бұрын

Was supposed to say amyloidosis

@jipjob1 7 ай бұрын

What have you done lately 12/23/24

@lifeandamyloidosis8551 5 жыл бұрын

My daughter says "Bonne Année". Inspiring video. Have a great 2019! The pool and sky look relaxing. Did you see the just aired untanglingamyloidosis. com series? Best of health to you and your family.

@amyloidosismyjourneytosucc4995 5 жыл бұрын

No I haven't. I'll take a look, thank you!!

@susanneschmitz5719 2 жыл бұрын

Sorry, can you repeat your medication by writing. It would be great cause my college has amyloidose attr and she knows it since yesterday. So, knowing, that amyloidosis is so seldom, we are looking for the best modern theraphy. Best regards Susanne from germany