Oh yeah. I get an excruciating pain all the way down my chest, and down into my lower back. Sometimes the pain is so bad, it stops the sneeze midway.
@vishwastamta18932 жыл бұрын
Damn trueee bro😑😑
@skyflakesq80542 жыл бұрын
Or cough, it feels like you might die
@dodger1x2 жыл бұрын
Or having Bronchitis…. Feeling the cought building up, trying to hold it back and knowing it will hurt as hell when it comes.
@malakbentria62702 жыл бұрын
So relatable
@davidw8357 Жыл бұрын
I have it, worst part is everyone calling you lazy because it’s an invisible disease.
@maskedathiest Жыл бұрын
i hear that. a lot of people around me thought i was just lazy. trying to explain to people (before my diagnosis) that it was like walking on broken feet. my heels, toes and tendons in the back of my foot felt like walk on nails. waking up in the middle of the night, having my wife help me to the bathroom to pee. i was treated much differently from my family and my wife's family after a doctor told me what was wrong with me.
@tuut12413 ай бұрын
Totally relate with you. I got it in my teens and everyone way remotely understanding the everyday struggles. There is stigma around AS that needs to break. I think it directly effects ones nerves and induces stress but compund that with emotional stress of people not understanding AS sufferes daily struggles.
@aishwaryapatil9483 ай бұрын
I am grain free since 1 month and got to feel difference in 8 days,will continue with this diet After 20 days I started eating grains and on 4 day flare up happened stopped it and continued with no grain Also the flare up is happening from.having sweet fruits to have it in moderation
@WNYMM28 күн бұрын
I wake up everyday hoping to die... it's been non-stop pain for going on 5 years and no medical professional believes me even though I've been diagnosed with AS I've completely lost nearly all my function on my left side and I can't be on disability because no doctors help me and all I want to do is stop the pain
@TheOfficialTarynTots25 күн бұрын
I was diagnosed with it 14 yrs ago and my Daddy still doesn't get it. He thinks it's in my head even though he knows I have to take morphine just to he able to get up in the morning. I was looking for a video where he could understand what its like for me. I didn't want one from those newly diagnosed people who still go hiking and say they are taking on the world kind of thing. I was looking for a video that shows others as bad as I am so he might understand. He thinks I'm lazy and gave up college to do nothing all day.
@Rece96917 жыл бұрын
Had to hold my breath to keep from crying. This is me everyday. It is hard to explain to others what I feel mentally and physically.
@divi68102 жыл бұрын
I'm suffering from AS
@daedalusjones42282 жыл бұрын
Me too. Every day. Do not go gentle.
@christian-gd7lj2 жыл бұрын
I feel ur pain I'm in same boat there is no describing the pain
@shoyaj4098 Жыл бұрын
Same people saying and blaming that your so weak and lazy. I don't know hot to explain them.
@Koolzay Жыл бұрын
Is their any surgery that can fix spondylitis?
@salaarawan94733 жыл бұрын
I am patient of AS since 10 years but diagnose 2 years back, My age is 28 now, so i will suggest every patient of AS to be active, take medicines and go to gym everyday, do stretching and do not sit or sleep for a longer time, it will help you a lot and it will increase your mobility by 80% . Do not think you are alone Allah almighty is with you and He did not made any disease which is not cure able, be positive never loose hope ✌🏻
@dc.pentrumesteri48932 жыл бұрын
How can these immortal stories with Allah help you or me?
@singhisking15482 жыл бұрын
Can you bend or not? My posture is hunched right now.
@raguy316 Жыл бұрын
I took a desk job because I had been managing events for a decade and feared the future. That comes with it's own problems, but I have faith that my exercises and meds will stop things getting worse.
@thecouncil672211 ай бұрын
If Allah made this disease, I am kinder than him, as I would not wish this level of pain on him, even though he wishes it on me.
@TravisBickle583 ай бұрын
Why do you lot keep on mentioning this imaginary character called Allah all the time? Its so cringe.
@08bourquem8 жыл бұрын
This is so beautiful. I almost started crying at work. It's a depressing video, but damn it is so true. Shout out to all my other AS people out there. Keep on living!
@momthree7898 жыл бұрын
+08bourquem How??? :(
@08bourquem8 жыл бұрын
momthree789 depressing because there is no cure
@imnaughty95672 жыл бұрын
today I'm crying in office due to heavy pain in waist
@aditya7955 Жыл бұрын
I dont know there’s still no cure.
@KENNETHCARNIE3 жыл бұрын
This... And the hardest part is when the people who love you have moments of understanding, but then soon forget and get mad at you.
@Azfar82Production3 жыл бұрын
So true Brother.. I just got diagnosed and still struggling on how to manage this Pain which is Painful & Depressing.. However what U said about our loved ones doing that to us are the Unbearable truth.. Would feel stronger and more motivated to Survive if they understood what we are going trough..
@kaylove87062 ай бұрын
This is my entire family! I try my best to explain… they act like they understand … but in all actuality have no clue of how I feel! It’s such a lonely disease.
@Rose_ohio2 ай бұрын
Yes hundred percent I’m 25 years old and I’ve been dealing with this for years and finally got a diagnosis two years ago. Nothing has helped the pain is unbearable. My husband thinks that I’m being a drama queen….. no one seems to understand the pain that we go through and calls it dismissive because they think they could handle the pain
@hannahayers32393 жыл бұрын
My boyfriend/love of my life has AS... He's 23 and has had both of his hips replaced, and now it's his shoulders that are starting to deteriorate. His spine is already fusing too. It is truly heartbreaking watching him go through all of this. Every moment of every day he's in pain, sometimes less and sometimes he tells me its unbearable. The worst part for me is that I cant do anything to help him, nobody can. I do my best by picking things up off the ground for him, doing all the heavy lifting, clipping his toenails for him, and other things. Sometimes we just stay in bed all day. If I had just one wish, it would be to take his disease away. I'm sending well wishes to anyone out there with AS reading this, I hope you all find something that lessens your pain.
@paramdeolparam40543 жыл бұрын
Thnx sister
@osvaldogomez6874 Жыл бұрын
Your soul is beautiful
@brandonhunt1414 Жыл бұрын
You help more than you’ll even know. Keep it up.
@paulrajanthony6655 Жыл бұрын
GOD BLESS YOU BOTH 🙏❤️🙏
@MrMorc74 Жыл бұрын
Your a great woman.
@theonereborn66574 жыл бұрын
My husband has AS. It's heartbreaking to see him in so much pain. Especially as there is no cure. It's hard knowing he will have a life time of taking medication, all of which comes with a list of side effects longer than your arm. For everyone out there who has AS I'm sending you a big hug because it's so tough and there is very little support or understanding of the condition out there.
@r.sharmahimanshi92024 жыл бұрын
Same
@MrSambooooka3 жыл бұрын
It made me emotional to read these comments. I've been living with AS pain a long time but I'm only now seeing that I'm not alone. It's hard to live when it hurts to breathe. But people think you look fine.
@MrSambooooka3 жыл бұрын
@Wonderful world Amen
@subhadeepmukherjee44123 жыл бұрын
Same here
@Quinny-lm8gg3 жыл бұрын
Thank you for that. My husband has AS as well and he fights every day! He is the strongest person I know❤
@johnrichards47956 жыл бұрын
Just recently diagnosed this year. I'm a very athletic person and its turned my whole life upside down. Always thought it was a pulled muscle
@zaidhasankhan37422 жыл бұрын
How are u now
@hamzajameel68872 жыл бұрын
Same
@vinitshah44882 жыл бұрын
Same brother 🥲..stay strong
@liveandletlive4972 жыл бұрын
Think I have the same thing too. My thoughts are with you!
@christian-gd7lj2 жыл бұрын
34 just found out this year as well my an avid hunter and fisher it's really slowed me down
@bat-girl65432 жыл бұрын
🙁SPONDYLITIS S- strong P- people O- overcoming N- never-ending D- disease. Y- Your L- life I-is T-therefore I-inspirational... S- stand tall! Nothing's is unbeatable🙂
@imightsmile20118 жыл бұрын
I have this - alternating pain in either side of my buttocks, pain so bad it stops me from breathing - I've been limping on and off for 5 years now. The hardest thing is how unknown it is. At work I simply say I have a football injury because the truth is much to sad and too long to say. I don't even bother saying the truth to anyone these days. You know when you get a really bad cold and you just want to go to bed because when your sick you feel alone and no one can help... Well when you have this every day, every day you feel alone. Nothing really has a point anymore. Pain when I wake and pain when I sleep. What a wonderful thing we have called life. I hope others who see this video can help them with their goal, lots of silent sufferers like me in the world.Good luck to all of you
@jaredmaule97248 жыл бұрын
I have been where you describe. An AS patient myself I was unable to walk most of the time. For a 30 something BARBER this is not good. 3 kids and a great wife. Anyway wanted to say there is hope. I was lucky enough to have a great doctor at the VA and he found the AS had caused bilateral a vascular necrosis the deterioration. Two hip replacements, learning to walk again and nearly three years later. Med free and feeling great. There's always hope.
@imightsmile20118 жыл бұрын
Did you see my rely mate?
@againstgravity62805 ай бұрын
It took me a while to notice that It's been 7 years since you commented this, how are you now??
@jayachandranathuppara39445 жыл бұрын
Early diagnosis and stretching is the best way to fight with AS. Don't take rest when AS is active. Continue with your daily activities and be active don't give up 💪 we are the Worrier's.
@fatherleo46032 жыл бұрын
Warriors*
@nataliegist20142 ай бұрын
I have done all of that and still have flare ups so bad that my tailbone fells bruised.
@hellasducatisti86967 жыл бұрын
i want to scream not like a human but like an animal....23 years of pains...
@splashingoreos33657 жыл бұрын
I also am a AS patient and I'm 21 years old. sometimes i can't even bend over and put my shoes on. I would never wish this daily pain to anybody :(... yeah this does make you depressed.. you don't feel young anymore :(
@peaceee843Ай бұрын
Hi bro How are you? Its 2024 and now am 21 yeard old and its 4 years of mine with this pain😢😢😢😢. How are you feeling now??
@redstevens57716 жыл бұрын
I was diagnosed when I was 17. It’s been two years now, and even with treatment, I’m just...tired. I’m tired of pain and I’m tired of limitation. I miss the old me...
@manoahjohnson70032 ай бұрын
Many hugs to you! Stay strong.
@karthikpuvvula4 жыл бұрын
Diagnosed at 16. I'm 32 now. I feel grateful that I'm able to walk most of the time without painkillers.. I do light running and workout to keep myself fit.. life is not easy but we need to keep pushing forward..
@himanshurai16743 жыл бұрын
Hey brother please tell wher e u hav diagnosed and how does it help you..
@maheshtawade30278 ай бұрын
@@himanshurai1674brother I recently diagnosed AS but i don't have sever symptom..I can run ,walk comfortable with little pain ...I live AS like without AS but I have always little pain in my joineds but not sever....for diagnose u should test your blood like hlb27,ra factor,CCP,crp
@aryanverma8475 ай бұрын
Hey man,I am also from India from where you have been diagnosed.because since last 10 years I am at high dosage of painkiller daily 2 times.but it often didn't work sometimes . So please help me to get out of this.
@justacup86763 жыл бұрын
"I've had the same tomorrow for eight years, now." That sums it up.
@lisachronicpaingroup41263 жыл бұрын
I was diagnosed with AS in my early 20s. I still remember to this day, my friend that came with me to the hospital said, "oh, at least it's not cancer". Little did she know. Or that anyone who doesn't have AS know. It's sometimes like being sent to prison. I try hard to rise above but damn man, it's hard. This video shows precisely why
@shubhamverma35842 жыл бұрын
You are right.,this pain is not less than having cancer at 3/4th stage.it may not kill you but destroys your mental stage for sure, I've been through this
@mariageisler34318 жыл бұрын
Just recently diagnosed ..And I don't wish this on my worst enemy! Keep your head up everyone !
@rahulpatel-vs3ks8 жыл бұрын
how u recovered???
@tylerisnot5108 жыл бұрын
there's no cure dude
@nathanwalsh30285 жыл бұрын
I've been dealing with the same condition for over 25 years. I've had 2 spinal surgeries as a result of this condition. I've had over a 12 spinal epidural injections because of this condition. I've lost several friends and several opportunities in life because of this situation. I don't understand how something can take away so many things and leave you with nothing. I've learned the you have to have a strong will and drive in order to get through even a single day much less a week or a month or even a year. I wish they told me in the doctors office that your mental fortitude is going to be your only strength because your body will be in a state of shambles most of the time. For all that have this disease remember we are not alone and we must find a way to work together even if it's just watching these videos to know we're not alone....😢
@moonstars4305 жыл бұрын
At what age were you diagnosed Nathan?
@nathanwalsh30285 жыл бұрын
Moon Stars I was diagnosed at 25 and I'm now 46.
@bhanutripathi40553 жыл бұрын
don't worry you will be ok soon...❤️❤️
@Dre1Way2 жыл бұрын
I was just diagnosed and im 25...used to be an MMA fighter. After reading this its like whats the hope it literally gets worse over time with no cure. I see no hope anymore
@raguy316 Жыл бұрын
@@Dre1Way Don't give up, man. I trained MMA too, weights, cardio etc. I live for tai chi and whatever calisthenics I can manage these days. It's a tough mental battle, but I hope you can find your balance 🙂
@carolinefairhurst24488 жыл бұрын
my dad had this from his late teens, some of his joints were fused had no movement in his neck and his spine was badly bent. was still the most optomistic man, always whistling and smiling even though his pain was constant. it's a terrible condition.
@ryanllewellyn34723 жыл бұрын
It's a little bit more comforting knowing there are others out there in the same amount of pain as I am in daily...
@bhanutripathi40553 жыл бұрын
yes man you are right...😟
@hello755595 жыл бұрын
I'm an AS patient since twenty years, watching this video now because I can't sleep because of pain .it is eating me alive
@dionrelka74047 жыл бұрын
i have AS as well and i am so depressed from the pain . I am 43 and i feel as though i am 93.
@moakley5 жыл бұрын
I have AS, My job can be very physical / labour intensive so people think I am a hard worker but in reality the only time im not in pain is when im constantly moving.
@shoyaj4098 Жыл бұрын
I'm in pain every day and at first I'm telling my parents and family they listen and now it's like part of me haunting me and i can't tell everyone everyday same shit again and again so i stop complaining but end of most the i cry in dark room at night sleeping there wishing that next day will come without pain or with painless death. I have big dreams but my dreams will be never true. I imagine my past life without AS enjoying with friends playing football, cricket do all the things that i couldn't do express my feelings to school crush and see in people's eyes respect instead of pitiness for me.
@JimmyNeedsCoffee4 жыл бұрын
One of the nightmares is when you’re planning to bed, you know you will never be able to get off form it. Every breath and small movements are killing you. Thank you for making this animation. It is so real I have to say. I hope there will have some affordable “Elixir” can free our life.
@azorithdeathica93487 жыл бұрын
I started to cry. I'm not diagnosed with anything, but I'm 19 and the pain started when I turned 17. This is accurate to what it's like.
@AAsameer4 жыл бұрын
This video describes my whole life, I have been suffering from AS since 15 years and still fighting the hard thing about it nobody could imaging the level of pain that we living with even with medication with no hope for a cure. My support to everyone whos diagnosed recently with this disease don't give up keep fighting!
@khalidshaikh47272 жыл бұрын
Brother i have diagnosed with ankylosing spondylitis and have inflammation in left sacroiliac joints
@shubhamverma35842 жыл бұрын
Yes only. AS affected people can feel how much pain we have get through
@vishnureddys48016 ай бұрын
@@khalidshaikh4727 I am also suffering from right SI joint pain. I couldn't even getup and walk today.
@kaddie1408 жыл бұрын
keep on stretching n strengthening your core . working out is the best thing an AS patient can do
@pritamghosh26304 жыл бұрын
Those people having as are more determined and hard-working capacity than others
@rohinimitra35595 жыл бұрын
When tears came in my eyes while watching this video I didn't notice. Very true description of AS
@TheSmithsHustle4 жыл бұрын
Hello, I’m a Nurse, I honestly have never heard of this medical condition but I plan to research it. God bless you & thanks for sharing.
@dstubbs56054 жыл бұрын
Thanks for taking an intrest in a disease you don't even suffer from. It's nurse's like you who are (called) into your field. My wife is a nurse like you. Very caring and nurturing. God Bless you!
@shym9262 жыл бұрын
I was diagnosed with AS last year. And I know how painful it is. But regular walk and exercise have made life easier. I'll continue working out and also I am planning to start yoga. I am very positive, I know I will defeat it.
@raguy316 Жыл бұрын
Did you start the yoga? I do what I can, tai chi too and I feel like I'm doing myself harm, but my consultant reassured me that I'm doing the right thing persisting.
@GrimThe214 жыл бұрын
This is such a true fact... BUT so depressing to hear out loud cause it's like being trapped in an existence of relentless pain and no one understands IT IS LONELY and it can mentally deplete you from any happiness if you think about how your trapped in this vessel of aching pain with no way out.
@Calisi7 жыл бұрын
I am a young patient and victim of AS. I was diagnosed at 15 and at 16 I'm currently in remission. This disease is so painful and kills your soul. People don't take notice and it hurts. I was on crutches for two months straight last year. I couldn't function. Can't wait for a cure, it'd make my life so much easier.
@zaidhasankhan37422 жыл бұрын
Hiw are u now?
@khalidshaikh47272 жыл бұрын
On time medication, being active, healthy diet with low starch, do yoga , stretching and strengthening is the key, make core muscle strong, loose weight and daily walk or swim, you'll become the horse of long run.
@davidw8357 Жыл бұрын
Interested on how you are doing now, I was diagnosed at 16 had it for 3 years
@rebecalopes5668 Жыл бұрын
What medication are you taking? 🙏🏼
@adityakondke6815 Жыл бұрын
Hello Can You Reply me now after 5 years
@tonyday71285 жыл бұрын
I have AS. I've been fighting it every day for 53 years and at times faced the deepest despair. It has defined my life. But I'm still working, still swimming and still giving of myself until I drop.
@crossbow88892 жыл бұрын
I got diagnosed with AS about 3 years ago. I was 19. I remember trying to explain to doctors what the pain I was feeling in my right hip and lower back felt like. The best description I could come up with was "imagine being stabbed by a red hot knife and then having that pain shoot down your leg". Soon after I was diagnosed I started feeling the same pain in my left hip. I got an MRI thinking "maybe it won't be so bad". Turns out I have the most severe case my rrheumatologist has ever seen in someone my age. I've had to accept at the age of 22 that in the future I will most likley need 1 or both hips replaced with artifficial ones. It hasn't been an easy 3 years and knowing that it will most likely only get worse is....hard. To everyone else who has AS, as much as it may feel like it you're not alone. Having this condition is a constant battle but it is one that we must fight to the very end. There are days when you just want to give up but in those moments remember that you are strong. Let's kick some AS butt.
@sourabhnandwana Жыл бұрын
Our condition is similar. Had hit my hip and back both. Now I am 32. One hip is fuse. What’s your age now?
@hussainali1868 жыл бұрын
please get a medicine to cure it we are dying for it
@chrissieallan218 жыл бұрын
Just turned 17 and this is what's been thrown at me😅 this video breaks my heart, I also think it's sad that hardly anyone knows about this disease. I know that before I was diagnosed with it I had no idea what it was! At least I'm not alone with it I suppose!
@tenzin95693 жыл бұрын
I was diagnosed with it when I was thirteen. Other kids in school used to tease me saying I had butt ache 😂. There was a time when I got bedridden for two weeks straight. Not being able to move my body because every little movement would hurt like as if I was being electrocuted. I had to stop dancing and playing football because of it. Anyhow, it’s been 9 years now. I’ve been doing physiotherapy exercises and hoping that the pain won’t come visiting again anytime soon. Btw I do some light sports at times just to make sure I stay active and healthy. You’re definitely not alone. :) We’re all in this together. I just wonder how I’ll deal with this as I grow old.
@divakarluffy377310 күн бұрын
How are you bro
@39skitfinland596 жыл бұрын
With my pain, I don't go to work for weeks at a time. I sleep during the morning due to anxiety all night of hoping to take care of things in the morning. I mess my days and nights up. I feel shameful and anxious to find out what I can do about my problem.
@vicespiritu5 жыл бұрын
I also have AS.. for the longest time I was in so much pain and felt like... if this is my life... if I have to suffer like this forever.. well I don’t want it.. I wanted to end it.. but I found a way to make the pain go away. It’s not easy at first. Your joints at first will feel like they are on fire and you will want to quit before you even start. But believe me when I say I have never felt better now.. in fact I’m running again, smiling again and sneezing.. a non issue. Exercise.. stretch.. cut down on sugar, fatty food.. I know it seems like it’s not related but think about it.. what we do when we are in pain and depressed.. we eat bad, we stay inactive, we eat fatty and sugary foods.. all this causes more joint inflation, muscle atrophy.. keep active my friends.. I know it’s not a cure.. but it’s made a world of difference for me.. and it’s a cheap and easy way to help yourself in so may ways!
@vasanthkumar-hf2nk Жыл бұрын
This is giving me hope!
@joshuacoquelle97656 жыл бұрын
I have AS as well, this video gets the man tears going every time.
@bryanbarfoot41314 жыл бұрын
Got it and no one understands what I go through every day. Thanks for the video.
@santhukoki17 жыл бұрын
please get a simple medicine to cure it we are dying for it .
@Manotheginger2 жыл бұрын
This made me cry! 😢 I have same diagnosis .. it's so hard and painful 😔💔 what makes it harder is that it becomes worse day after day! There's no going back! I am a 33 old young lady in a 85 year old body!
@yurinathoo18102 жыл бұрын
Don’t give up on yourself.
@anishjoshi19993 жыл бұрын
I am also diagnosed with AS and I am committed to living my life with peace, joy, and harmony.
@zaidhasankhan37422 жыл бұрын
How are u now? N how is the pain
@singhisking15482 жыл бұрын
Are there not good doctors related to this problem where you live?
@abdelhalimbouzourine71457 жыл бұрын
this is what we are facing, but the thing that motivate me to live with this AS is that many people have their disease, some are more danger than AS. but what i m worry about, i m 29 and not marry yet, how can my future wife will accept and understand my situation
@matahimdef8 жыл бұрын
Thanks for this video, it helped me explaining my friends and family a little bit of what it is to live with AS.
@deysanimations19495 жыл бұрын
My dad has this I always see pain in him I can’t help him! This video was helpful it gave me hope . 🤒🥰
@frostbittenhosehead7153 Жыл бұрын
I have had symptoms of AS starting at 19, Im am now 40. But didnt get diagnosed until i was 35. multiple Specialist mri's, x-rays, pain clinics, physio, and a myriad of other thing since i was 19, never got me a diagnoses until i finally was sent to a Rheumatologist at age 35. Ive been through almost all the different biologic's with minimal success. Ive had to come to terms with fact that i can never get better, only worse. This video is an accurate description of life with AS.
@MyDuckSaysFucc Жыл бұрын
I feel I have AS or something equally awful, but like you I’ve been through the medical system and I will never go back. Ten years of apathetic and sometimes cruel, unkind treatment is enough. What would be the point of a diagnosis anyway? Might as well pickup drugs and Alcohol and try to do some physical therapy on my own and screw the doctors.
@irw43506 ай бұрын
I have AS, on biologics & morphine and TBH - I agree with you @@MyDuckSaysFucc
@universeboss1 Жыл бұрын
this video described my life...I am in pain for four years and counting😢
@imatinibali37275 жыл бұрын
AS is like living in pain most of the time & it is frustrating to think about resting ur body cause u definitely know that would double what ur going through
@MaybeEnvious6 жыл бұрын
It's hard when you come to realize the most important things you own are the canes, crutches, and wheelchair. I'm 17 and walking into the high school with a cane is very embarrassing. I constantly get questions or comments about if it's a style choice. People don't realize how much it impacts our lives.
@viarraudun77875 жыл бұрын
This touched my heart. I also struggle with AS, and in a way it is refreshing to know I am not the only one, but at the same time I feel for this man and wish the pain of AS on nobody. Keep on fighting, to all of the people who combat this horrible disease.
@chrisranz27144 жыл бұрын
I was diagnosed with ankylosing spondylitis in 1978 today I am 64 years old the first time I had ankylosing spondylitis it feel like a safe fell on my back it was so terribly painful expecially in the lower back I will tell you what I did for myself before you do anything check with your doctor find out a good plan for you the worst thing you can do is remain stagnant best bet is gentle stretching walking swimming so there are activities you can do what's the most important don't give up on yourself you can do it but make sure you see your doctor and he or she will suggest a good plan and proper medication I'm sorry I talk so much I wish you well have a good evening
@satyamrai2577 Жыл бұрын
sulphasalazine on a daily basis seems to lower the pain for me. Also, retoz helps with the pain on immidiate basis. Experiment with sleeping positions. Personally, i feel much better lying on stomach. And DO NOT EXERCISE while there is inflammation. Wait for it to completely go away. Hope you get well. No matter how many precautions you take, you WILL have pain episodes. Ive found that its much easier now that ive accepted these pain episodes as a part of my life. Do not think too much about the disease. We will all pass away someday and this pain is not permanent. Might as well have some fun in between the pain episodes. Also, very important to Maintain proper posture while sitting.Thats all the things i personally do. Wish you all the very best ❤️ 🕊️🕊️
@SnehaDestiny4 жыл бұрын
Been there. I am in legit tears right now. Thank you! And to all my fellow spoonies, you're not alone. Be positive.
@youssefsamy32164 жыл бұрын
What did you do to get back to life ?
@paramdeolparam40544 жыл бұрын
Yes
@AmanSharma-kc6fc4 жыл бұрын
I hope i can live without NSAID's
@truuskorthaar81347 жыл бұрын
this touch my heart and make me cry
@aaronchambers5434 жыл бұрын
That's right Peter, tell it like it really is. Spot on.
@aswarrior63652 жыл бұрын
As an AS patient. This is spot on.
@mmnn694 жыл бұрын
I never post to videos. Made me cry as I have had AS for 50 yrs and thought I was alone. Keep moving and keep the faith!
@nitishlokhande59166 жыл бұрын
Thanks Novartis for raising awareness on AS !! I got diagnosed few weeks back,as per my experience AS affects your body physically as well as psychologically.
@Albrennan2 жыл бұрын
I was diagnosed earlier this year with AS. My rheumatologist said she wishes I was her patient 10 years ago because I could have gotten a head start on treatment. Obviously there’s no cure but managing life everyday has changed my outlook.
@jupitersdragon50583 жыл бұрын
This last year I was diagnosed with juvenile AS (18 now) and this video is the first thing that’s ever captured every second of what it feels like. While the medication has helped and brought me back to about 80% mobility I’m still tired of it. Tired of never knowing if that day I’ll have a flare, have to cancel my plans in place of trying desperately to stretch and loosen anything I can. No one understand unless they’ve been through it. They can’t see it so the pain becomes less real to them. I can’t wait for a day when I don’t have to worry so much about whether I’ll be able to move
@shubhamverma35842 жыл бұрын
Ye, no one can understand what situation we have through only and only AS affected patien can feel/ understands this🤞
@erlynfancyoilannie09202 жыл бұрын
Sending virtual hugs to all of my AS Warrior 💕 stay strong and stay positive 🌼🦋
@garfieldspacetrailsgames55774 жыл бұрын
I'm crying while I'm watching this because my husband is suffering from this.He is 28 years old now.I don't know what I can do for him to decrease his pain.
@cordislucian21953 жыл бұрын
That's exactly my life since I was diagnosed at 19 years old and I'm 30 by now. Keep it up everyone sure there will be hope for us even if it's coming at the end of our journey, just don't give up.
@NoProxies6 жыл бұрын
Makes me want to cry but I can’t bcz I just might lose myself some more..
@Gabitzu11007 жыл бұрын
I ve been diagnosed with ankylosing spondylitis at 18 years old male and it came like a shock for me . The gene HLA-B27 was positive Since i was a child, i was a spontanious person and i ve been practising a lot of sports. I was enjoying life and i loved my body. When i turned 15 years old, pains appeared in different spots of my body including: back, ankles, and especially knees, I thought its a normal thing wich occurs to normal people, but the pains didnt stop. There were getting worse and worse. Every morning i couldnt get out of my bed, i felt like my joints were fusing togheter. Im trying to have a healthy life based on fruits and vegetables and exercising. I cant stop this autoimune disease but im trying my best
@gauravbhatt5541 Жыл бұрын
What is your condition now please tell me , I am also as patient and diagnosed recently. I am just 18 years old
@sadiesins13652 жыл бұрын
Thank you ❤️ i feel bad that watching this brought happy tears to my eyes, knowing that i am not alone ❤️ Im better managed these days, but i dont forget those days at All. They still loom over me, coming back to haunt me now and again
@lizmaines69636 жыл бұрын
This is what a major flare feels like! What a great video to show loved ones what we deal with.
@aseedofwheat9928 Жыл бұрын
Crying as it is so relatable. But at the same time, what if this is a blessing in disguise
@sirleech53043 жыл бұрын
I got diagnosed yesterday and it was heartbreaking. But the video describes exactly how i feel
@tegg026 жыл бұрын
Some things though make it a little more bearable, but yeah the amount of videos on youtube of AS suffers saying they switched to diet X or biologic Y, and are cured are giving their advice to soon. Their symptoms will inevitably reappear. I've been there done that also, thinking i've found the magic bullet. The long long progressing of AS never seems to cease and never fails to reappear.
@MrMikkyn2 жыл бұрын
I’m dying from the pain. This was a really good animation. I have spondylosis, but I need to get some scans to see if it is ankylosing spondylitis
@murtuzabhabhrawala97124 жыл бұрын
I have been suffering from AD for few years now. I wouldn't even wish this to happen to my worst enemy
@montys7628 жыл бұрын
I am a one of the person who suffered with ankylosing spondylitis
@mumer11345 жыл бұрын
Fighting with this deadly disease from the past 19 years I am 29 years old and i have replaced my right hip joint . I try each and everything but theres just no cure 😭😭😭😢😢😢😭😭😭 I was the fittest person till grade 7..... Best sprinter of the college. AS ruined my childhood and now killing my maturity. Still fighting with this deadly disease..... Lets see hiw far can i go 😭😭😭😭😢
@sourabhnandwana Жыл бұрын
Where are you from?
@Blaaggarding4 жыл бұрын
It's the sense of hopelessnes that has the worst effect it is so hard to stay positive when you hurt all the time
@Trailrunner19782 жыл бұрын
AS warrior here. Keep on fighting, keep on moving!
@rochontaylor97273 жыл бұрын
I blamed this on my football career ... from being very athletic to having AS will flip your world upside down. Keep fighting
@user-tp1ui4zt9p Жыл бұрын
Was diagnose with this today.
@luliettaash40396 жыл бұрын
My sister has this i cry for her every day .. i dont know wt to do
@sandycool8872 жыл бұрын
The worst part is when your friends don't understand what you are going through
@adityakondke6815 Жыл бұрын
😓💯
@susmijasusmi268411 ай бұрын
Exactly 😢
@armanijoseph80083 ай бұрын
Factssss
@TheMapeDistrict2 жыл бұрын
I've been struggling with this for years. In the middle of a really bad flare up. Its really getting me down right now. I've met the most amazing guy person that helps me through it. My diet and exercise routine has now changed dramatically. The pain is so bad sometimes that I can barely breathe at times. If anyone knows of some good support groups, website, remedies etc, then send them on. Take care x
@kurooh40164 жыл бұрын
I am 21 years old and for the past 4 years i am suffering from AS they just 1 year ago dignosis what my problem is and all family members is always telling me that i am lazy and always resting don't do any exceecise to make my condition better and always tell me that you sleep too much i always say that i don't feel any comfortness and i can't get any comfortable sleep and they always say you are just exaggerating but honestly in these 4 years there isn't a day were i was able to sleep comfortably and the pain it just like became a daily thing😩
@justindamato1740 Жыл бұрын
Wow this exactly explains how I feel ! 😢
@Not_Trolling2 жыл бұрын
I am 17 yr old and suffering from ankylosing spondilitis.. I was in the same condition but Now I take an expensive injection every month which helps me live a normal life. Edit: I wanted to also say that i want to become a football player and i am working hard everyday
@adityakondke6815 Жыл бұрын
How are you now
@sourabhkhera7 жыл бұрын
I can feel this pain as I am suffering this pain from last 10 years..
@zaidhasankhan37422 жыл бұрын
How are u now?
@1234shohel6 жыл бұрын
Happens to me as well, but I crawl
@ryanlebear2 жыл бұрын
Big love for sharing this, from a fellow AS warrior x
@alliikhan36446 жыл бұрын
Aaaah same here 11 years with AS I can completely understand his situation once I got up with this pain wanted to go to washroom the hell of pain made me to walk on my four to back to the bed coz I couldn’t walk further towards washroom
@troydude198 жыл бұрын
Perfect explanation 😩
@SandeepYadav-jg3gx Жыл бұрын
Diagnosed at the age of 16 now im 21 my dream is to join NDA for pursuing my country at the time but I can't do anything I lost many thing during 4,5 years it hurt when I see any civil uniform service man such as police,army now living in pain sometime I takes painkiller or sometimes not I joined gym n I do daily workouts with painkillers when I have pain A.S is worst but keep pushing yourself.. #jaishriramradheradhe 🙏
@bornwarrior078 ай бұрын
What you have to say about Khanzadi??
@yashkhorate70802 жыл бұрын
Everyday is a struggle especially first few steps when you wake up.
@doradorita77628 жыл бұрын
Sometimes it's so difficult to get up from bed..So hard to carry your body on your feet...When the pain comes,you feel desperate...Physiotherapy helps me a lot!!!
@mary-anneh14468 жыл бұрын
I completely understand the desperation. I can't wait to start treatment. Bring it on so I can feel useful by not being in agony every day. Good luck and I'm glad your physio can help you ☺️
@hemantpatil85262 жыл бұрын
Sometimes I want to cry a lot because I am AS patient. I don't know why this happened to me. How cruel God is to me. I cannot express my pain in words. This disease does not allow me to breathe properly and if I sneeze I die. But I am living in the hope that one day everything will be fine.
@olimalaga22548 күн бұрын
You are not alone. Stay strong 💪 ❤
@marijaperkovic43844 жыл бұрын
I was athlete, I played volleyball, I enjoyed running, dancing. I was 15 when it all changed. Its been a year since I started curing and I think that I am feeling somewhat better. I have Seronegative Spondiloarthritis and my pain is not just in back. It is in my knee joint, arms and back. My doc says that I will be cured in hopefully 2 years. So I am halfways through and I hope her predictions are right. I have some tips how to forget a bit about pain. I suggest da you read some intersting books that have tense plot, it really makes your mid occupated.
@singhisking15482 жыл бұрын
How is it going for you right now?
@SethuRaman-qw7ct Жыл бұрын
Any update ?
@johnpaway76286 жыл бұрын
Are there any beds/mattresses that can alleviate some of the pain and let you sleep at least 6 hours straight without waking up several times in between? It seems like I’ve tried everything including exercises, stretches, and different mattresses but nothing comes close to being pain free just for one day in this life.