LIVING WITH CHRONIC ILLNESS | My Fibromyalgia Story

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LIVING WITH CHRONIC ILLNESS | My Fibromyalgia Story

Рет қаралды 14,185

2 жыл бұрын

Aloha peeps,
I know, I know...FINALLY i created the video ive been saying id do it. So here it is honest and raw my Chronic Illness story. Remember there is hope guys, you dont have to suffer alone. Learn to manage your Fibro and you can have quality of life. I am not a doctor and never claimed to be also this is just my experiences and what has worked for me. In the end if I can help at least one person then ive done my job :0)
Thanks for watching. Dont forget to like & subscribe thats what tells me to make more content.
🤍INSTAGRAM - Kuuipotodd 📷✨️

Пікірлер: 170

@lorenamolina1996 5 ай бұрын

Living with fibromyalgia is so difficult. My flare-up’s can last one / two months where I spend in bed feeling sad and in great pain. My skin even burns and I suffer from insomnia. Fibromyalgia has taken my career as a nurse away and that depresses me even more. Prayers for everyone who has it.

@ToddFam808 5 ай бұрын

Sending you love and light sis💕🙏💕

@pamelasmith2625 Жыл бұрын

Every time I get blood work done, I get told that I am very healthy. It’s hard to believe that when I can’t function due to such terrible pain and constant discomfort 24 hours a day. Hopefully one day the scientists will find a cure for it. Hugs, ❤️❤️

@ToddFam808 Жыл бұрын

Agreed and I hear you loud and clear! My bloodwork is ALWAYS perfect, not complaining but it sucks not knowing why and how to fix it.

@usmantahir2659 Жыл бұрын

Please tell me about your supliment

@cindisims5917 Жыл бұрын

I'm the same. Had good blood work recently low b12 but I get shots and I still hurt and feel so unccomfortable in my body. I hate it. Make me so sad!!

@ToddFam808 Жыл бұрын

@@cindisims5917 ugh! I hear you, im so sorry

@nmsma Жыл бұрын

Me too Pamela, it’s been 4 years so far and not even a proper diagnosis. Best pain relief so far: wim hof method breathing, cold showers and cannabis 😅😅

@RS-ov2st Жыл бұрын

It’s like being stuck in a hole of quick sand. You feel weighted down, exhausted, swollen, swollen feeling bones, achy joints, sore tender burning spots in the skin or deep tissues, hurting all over, or here and there , in a fog, arthritic, tight skin, depression. It’s like you know what you need to be doing or want to do, but your body says, NO...YOUR MINE AND YOU WILL SIT , HURT AND LAY UNTIL IM DONE WITH YOU. YOU HAVE TO LIMIT YOURSELF. AVOID STRESS, HIGH EMOTION, NEGATIVITY. THIS CAN go on and off for days, weeks or even months at a time. I’ve even had long stretches of feeling symptom free, then have it return and set in again.

@ToddFam808 Жыл бұрын

Yep! I hear you loud & clear. Sending you gentle hugs and positive thoughts!

@Truerealism747 Жыл бұрын

Do you get it worst certain spots have you got triggerpouints?

@RS-ov2st Жыл бұрын

@@Truerealism747 it can be widespread, though many people experience it in different ways. Mine is widespread. I have days that it just literally hurts all over. Mine has worsened with age. I have difficulty being Mobil some days, because I ache all over and my feet won’t hold me up right away , or I have great trouble just trying to get up on my feet and be able to walk.

@rakheemajithia1489 Жыл бұрын

I’m in bed, been in pain for two days now. I don’t know how to manage my symptoms I’m so exhausted. There isn’t enough help in the U.K. for this illness. I just want my life back

@ToddFam808 Жыл бұрын

Im so sorry youre going through this! I search the internet all the time for new research or studies that can help us nothing significant yet. I did find info on Diet and the link between our gut and brain. I noticed mines is completely related but it might be different for everyone. I hope you get relief and find better days very soon. Gentle hugs to you from your US fibro fam !

@vandapierre1220 Жыл бұрын

I had FM. I decided to take a purge and worm out. Cut back on diary, meat and flour. Eat lots of fish for natural omegas. And started juicing fruits like strawberries, cherries with cucumbers etc. No more fibromyalgia. Thank God.

@ToddFam808 Жыл бұрын

AMAZING!! That is wonderful news.

@chiarabay9364 4 ай бұрын

Unless you’ve changed your diet and have no sugar, alcohol, dairy or cheap carbs you should stop complaining. As well as chronic fatigue syndrome, and leg bone pain, I lived with crippling bone pain in my chest to the extent I couldn’t lie down or breathe. 3 days after giving up butter decades of pain disappeared. Now I’m vegan, teetotal.

@lydiac.2102 Жыл бұрын

I’m only 33 and I found out that I have fibromyalgia.. 24/7 pain some days is more some is less blood work is great.. but my skin hurt hot is now cold n cold is colder.. I have to use a cane cause I have balance issues.. mri’s are great … fatigue is the worse.. when it rains I’m in even more pain.. and the spams are EVERYWHERE..no pain meds work for me..I can’t even open a bottle of water .. I keep pushing everyday for myself n kids

@larssonmaria8090 Жыл бұрын

Hi I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure

@andysimpson9240 Жыл бұрын

In My own experience, I've learned that most doctors advise patients to do things that they could not do themselves, if they had the disease. They may understand pain, but they aren't experiencing it themselves. They'll say walk, exercise or be active. When you feel like you have a load of bricks on top of you, getting out of bed is not possible. All forms of movement hurts.

@Butterfly-pz3db Жыл бұрын

I started feeling like this in my late teens and early twenties. It took me until I was 58 years old to finally get diagnosed with fibromyalgia. At 72 I still struggle with it. I have been very fortunate to have God provide me with very understanding doctors and family. Without them I don’t think I would have made it this long.

@ToddFam808 Жыл бұрын

Thats super important for sure! Glad you found answers and sending you gentle hugs♥️

@jaeljade3609 Жыл бұрын

There's a blood test for fibromyalgia now. Don't quote me, but I think people with fibro have an elevated white blood cell count. I've dealt with this for 20 yrs and I wish I could say I was thriving. I have other health issues too, though. Everything got so bad a few years ago that I just wanted out and took an overdose. I ended up in a coma for four days and a month in the hospital. Suicide is the number one cause of death with people with fibro. I've changed what I can and cut out sugar and foods that are supposed to be bad for it. The arthritis has gotten so bad in my knees, but I can't do another surgery because the pain was beyond what I could handle, so I'm looking at a wheelchair now. Fibromyalgia won't kill you, but for some it sure does make you feel like you don't want to be here anymore ☹️

@ToddFam808 Жыл бұрын

IM SO SO SO SORRY. Thats has to be so hard sis. Sending you lots of love and light. I hope you find comfort and relief some time soon and I will look into the blood test for sure. Thank you for your words of wisdom. Gentle hugs💙

@lesleysears9808 Жыл бұрын

I feel your pain. I am 61 and have been living with fibromyalgia for 20 years. Gabapentin and marijuana. I just got a heated blanket and it helps some with the pain.

@ToddFam808 Жыл бұрын

@@lesleysears9808 thank you! Sending gentle hugs your way ❤️

@larssonmaria8090 Жыл бұрын

@@lesleysears9808 Hi I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure

@Angel-qf6if Жыл бұрын

I think the mom/wife part is the hardest….. I’m 46, was diagnosed at the end of last year, when I, like a lot of others blood work was perfect multiple times, I was tested for MS, Lupus… nothing came up in my blood work other than inflammation. It has been 2 years of trying to figure out WTH was going on, this diagnosis is defeating…. I have been through a lot physically, biggest being a motorcycle accident I was in at 19, I was t-boned by a drunk driverI, she hit my left leg directly snapping my femur in half and crushing my foot, I flatlined for 18 seconds and woke up a month later missing half of my left leg. I busted my ass to walk again and function like I did prior to the accident.. since then I’ve had 5 kids, ages 25-11. I went from being energetic and kicking any challenges ass , to feeling like everything I fought so hard for physically was slipping away. I’m exhausted all of the time, I wake up some mornings and feel like I have the flu because my body is sore… but then I have good days and I take advantage of those as much as I can, it’s def a rollercoaster…. So thankful for a great hubby and kids💕 be well💕

@jessikaurbanski1362 Жыл бұрын

Fibromyalgia sucks, I’ve had the illness for about 7 years now and finally diagnosed for 1. Im on medication now but I still have bad flare ups, currently going through one now. I was told for years, and by many doctors that it was all in my head because my blood work was coming back normal. On a mission to get healthier and really stick to changing eating habits. I do find that doing some yoga poses really helps to stretch those achy muscles. Thank you so much for this video ❤️

@ToddFam808 Жыл бұрын

Sending love, light and gentle hugs your way. Goodluck 🤎

@henkidzboiz8053 8 күн бұрын

I sympathize with you! This is such a hard disease to deal with! I would love to hear about what you said about driving on a bad fibro day for trying to compare with mine so that I don't think I'm crazy, please! And of course all of the other issues you described that we are dealing with.

@ToddFam808 7 күн бұрын

@@henkidzboiz8053 firstly sending you love light and gentle hugs! I will get one of those videos done sooner or later.

@lanadingley7587 Жыл бұрын

Thank you for sharing your story. This silent illness can make us feel invalid with our constant physical struggles.

@ToddFam808 Жыл бұрын

Yes! I completely agree. Keep your head up Lana🤎 sending gentle hugs!

@Lighthouse69bb Жыл бұрын

Your giving people some comfort in sharing what you go through , everyone's journey is different with this horrible illness but we manage with what support we have , we need more awareness we need as much information as we can get sharing our own story's is a fantastic help 😘 stay strong thank you for sharing ❤️

@ToddFam808 Жыл бұрын

Exactly! Awareness is so important. Thank you for watching💛

@pamelasmith2625 Жыл бұрын

Fibro is so debilitating. Yes exercise is essential. I “drag” myself to the,pool as often as possible and swim about 20 lengths of the pool slowly. The water is just so gentle on my body and for a short time I don’t feel any pain. It is hard to exercise as if you overdo it it just exacerbates your pain. I usually swim for about 35 minutes a day, but if I go over 45 minutes, it’s just too much and I pay for it. It is a balancing act. I try to go out of the house every day, even if it just to the grocery store. I use the grocery cart to help me walk and I walk up and down the aisles for exercise. Right now I am dealing with the terrible fatigue. It’s almost as bad as the pain as I just can’t function and don’t have any energy to do the most menial tasks. Hope everyone out there has a “good” day. Sending big hugs and positive thoughts your way. Thank you so much for your video. I love to hear everyone story. ❤️🇨🇦❤️🇨🇦❤️🇨🇦

@ToddFam808 Жыл бұрын

Yes! Its all about balance, youre so right. Agreed the water is the best way for fibro peepz to get movement and exercise in. The fatigue sucks!! Sending you love and light❤️

@lydiac.2102 Жыл бұрын

Yes whenever I am in water I feel nothing but as soon as I get out I feel extreme fatigue and heavy pain all over

@danisegonzales-simon5636 Жыл бұрын

I totally agree.. l...with you with the dragging ourselves to do some kind of movement..

@ToddFam808 Жыл бұрын

@@danisegonzales-simon5636 its the worse!! Its like I wanna rest cause im feel exhausted but doctors orders are to move! 😵‍💫

@bonniehare2372 Жыл бұрын

I think swimming is the primo exercise for FM, as long as the water temp isn't cold. A hot tub afterwards is excellent to warm through. ( I no longer have pool access.) Walking at the store is a great idea to share. For me, the store has been excess stimulation for my senses. I "shop and go" as quick as I can. 😊 I walk the dogs, but it's been cold. Funny how we are all different, yet the same, and find our own ways of coping. Thanks for sharing yours. May God bless you. 🌷🌻🌞

@sideswipe1261 Жыл бұрын

I’m only 2 minutes in, but how you talk about wondering “Maybe it’s *normal* from working. Hard some days, pushing through it…” I just want you to know you have miles of people backing you up; and not just those who care and help, but so many that have lived every word you’ve spoken (me since 3), God is with you.

@ToddFam808 Жыл бұрын

Thank you i really appreciate it! Sending gentle hugs🤎🤎🤎

@cindyluna8486 Жыл бұрын

I was just diagnosed with fibromyalgia and Sjögrens in September 2022. When you said you wake up sore feeling like a bus hit you, I left that!! The aches and pains are so bad. Such a horrible illness. I’m completely against medication as well but the pain is so bad that I was just prescribed cymbalta ☹️ I completely changed my diet as well, no dairy or sugar and clean diet.

@larssonmaria8090 Жыл бұрын

Hi I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure

@marychapman4397 Жыл бұрын

Cymbalta long term is horrible. Please review trying to discontinue it.

@anissapicard8682 Жыл бұрын

It's good to hear what you have to say! Thank you so much for making this vid. My sis has fibro and I have osteoarthritis. living with pain on the daily definitely sucks!!! I feel empathy for you too :) Thanks for your compassion :)

@meercat4c Жыл бұрын

Thank you!!!

@ToddFam808 Жыл бұрын

Best wishes and Goodluck on your journey for answers. It wont beat us and we have to keep that attitude always. I dont mean we should be perfect but waking daily and reminding yourself what youre thankfully for goes really far. Practice makes better 🩷 sending you gentle hugs !

@Truerealism747 Жыл бұрын

Who had CFS pre fybromyalgia

@croatiananaconda9455 Жыл бұрын

I'm suffering from fibromyalgia. I can related to you. Thank you for sharing your story and possitive energy

@ToddFam808 Жыл бұрын

Sending light and good vibes only friend!

@Mfield111 Жыл бұрын

Thanks for your gentleness God bless you

@ToddFam808 Жыл бұрын

Thank you for watching, god bless.

@avig8334 Жыл бұрын

I cut out sugar and gluten it made worlds difference. OMT , aqua therapy and trigger point injections literally all over have helped .

@ToddFam808 Жыл бұрын

Thank you so much for sharing!

@aukaipieper5541 2 жыл бұрын

Mahalo for sharing your story, i admire your courage and honesty. It Truly inspiring, and I’m so grateful that you have survived and thrived to tell your story. Aloha au iā ʻoe ❤️ kou Māmā 🌺 Holo mua!🤙🏽

@ToddFam808 2 жыл бұрын

Thank you mommy🤎

@moduqueRN Жыл бұрын

Have fibromyalgia for over 10 years. I know some people are against taking medications, but if you’re bad enough I think you’d at least try what the doctor is offering. The medication might actually work for you. I also don’t feel like people should feel bad about taking a medication. We are already going through enough, why should we feel bad for trying to get better? Sometimes dietary changes and exercise aren’t enough and there’s only so many bad days/years you can take before looking for other options.

@ToddFam808 Жыл бұрын

I completely agree. In then end i dont live my life for nobody but me & thats how everyone should live. What we choose and how we live with fibro (or without fibro) is all up to us. If you need meds then do meds, if you dont thats cool too. We have to do whats best for us, not whats best for the very critical society we live PEE-REE-ED !! I could honestly give a *@!! what people think or say. Lol

@maryrhino9952 Жыл бұрын

Hi I’ve been living with Fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure

@KristenNirvana Жыл бұрын

That's me girl, 15 years of searching (I'm 33) and NO ANSWERS. Especially in my new state FL, there isn't healthcare to actually help

@ToddFam808 Жыл бұрын

Ugh im so so sorry! I hope you find answer and some relief❤️

@larssonmaria8090 Жыл бұрын

Hi I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure

@ToddFam808 Жыл бұрын

@@larssonmaria8090 thats awesome!

@janetrobles8999 Жыл бұрын

Same thing I took exams up to wazoo and nothing my doctor can’t even diagnose me with it. I had to get back on Estrogen which alleviated my symptoms probably has to do with serotonin production hence working as an anti- inflammatory. Not giving into meds either and I’m losing my job. My mistake was thinking I could be super woman but my body at 53 says not anymore. Just have to fight through the nightmare

@ToddFam808 Жыл бұрын

Im so sorry sis... i hate that we dont get answers or clear answers anyways. Its super frustrating and soul crushing. I pray that you find relief and get answers. Sending gentle hugs always❤️‍🩹

@pamkagamida5495 Жыл бұрын

I’m for you! I take no meds! But fibro sucks! Been doing everything I can.

@ToddFam808 Жыл бұрын

👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏 keep doing it!!

@rhysnybo3420 Жыл бұрын

I have the same story line that I didn't know what happened to me til my dr diagnosed me with Fibro I hard time with it I have been taking vitamins, massage and acupuncture

@ToddFam808 Жыл бұрын

Im sorry to hear. Keep trying new things and researching, dont give up cause it definitely a process.Took me years to figure what works and doesnt work for my body. You got this!

@rhysnybo3420 Жыл бұрын

@@ToddFam808 Well thank you so much yes I'll keep researching and finding ways to help with it

@sideswipe1261 Жыл бұрын

I’d love to hear you found something! I hope it’s still true. I was finishing most of your sentences as 44 dude with it. Because I felt the exact pains and frustrations. You know the “it’s a chicks’s syndrome” Is a lie: Men are too proud. I’d be that way except I was 3y/o when begging mama to PLEASE cut my legs off. I don’t have the chance to know why most men with #fibromyalgia keep it a secret. I’d say it’s 50/50. Thankfully not guaranteed, but if it really does run in families I’m going to deny my self all the joys of a family to be sure I END IT WITH ME. God’ll give the possible kids to better!

@ToddFam808 Жыл бұрын

Im so sorry you experienced that especially at such a young age. Keep your head up, I pray you find relief and painless days. Sending gentle hugs always !

@jimmypainhealing8247 Жыл бұрын

your story tell the facts about how you got the pain and some factors affect the feelings, but we should understand the message body give us rather than just the name of Fibromyalgia, Overusing your body is the key damage your digesting power which reduce your supply to muscles , organs ect. I believe you will heal you by the right path,

@ToddFam808 Жыл бұрын

YAAAAAAS! EXACTLY!

@barlowpenny Жыл бұрын

That's how mine started. Really slow. Fast forward 12 -15 years I now have pots. With pass outs.

@ToddFam808 Жыл бұрын

Im so sorry. Sending you gentle hugs, i caught mine really early and made life changes asap. Now let me tell you it aint cheap!! Its mostly diet changes but also knowing when to move around, stretching, vitamins, yoga, massage gun, cupping, chiropractor, not over working, staying out of the sun.....the list goes on. Im A bit obsessive but I refuse to let this horrible ailment win. My pain is mostly gone which is amazing. Ill have pain a few times a month and only like a 2 to about a five out of ten in pain ratings. So its manageable for me. Its a LOT of work but worth quality of life not living on pain pills. Goodluck to you i hope you find relief and lots of pain free days. Hugs !

@sarahcoleman7807 Жыл бұрын

I am new and just getting this diagnosis. Thank you for this video. I am self employed and bust my ass daily as a residential and commercial cleaning. Working 6 days a week and then on the 7th day working my 20 acres. I have been always self sufficient but I am exhausted at this point with trying to push through the hard day.

@ToddFam808 Жыл бұрын

First and foremost you are a bad ass!! Secondly sending you gentle hugs and positive vibes. Im sorry that you are going through this. I do know from what youre telling me that you are moving a lot more than most of us which is just BRAVO but on that same token i know what you mean when you saw youre exhausted. I do notice that now im moving more now a days im hurting a lot less but I also know its different for everybody. Take some time to do some stretching everyday and also soaking in an epsom salt bath should help. I also see a chiropractor and that seems to help too. Sending you love and light always babe.

@Truerealism747 Жыл бұрын

Do you gets cracks and pops in the fascia upper body for me

@Truerealism747 Жыл бұрын

It's the cleaning products doing it in your case

@ToddFam808 Жыл бұрын

@@Truerealism747 yes my ribs !

@ToddFam808 Жыл бұрын

@@Truerealism747 i only use all natural cleaning products. Safe for people pets and the environment, so I honestly hope not.

@molindawotring4449 Жыл бұрын

Sweetie I’m so sorry!! Have you ever heard about ketamine infusion therapy??? I really improved in most issues from my fibromyalgia and my narcolepsy. I can’t afford to get them as often as I need, but let me know if you are interested in getting some real information on the ketamine infusion therapy,how the infusion works and some different perspectives for different peoples personal experiences. So I have good info on the medical part, scientific fact part and benefits from having the infusion. At least check it out dear, because I have been working through trying to live my life and still feel like I am actually living for about 20 years now and I know just how deeply fibromyalgia can damage our simple everyday lives. Spiritually, mentally and physically. Many prayers for all 🙏🏽🙏🏽🙏🏽

@ToddFam808 Жыл бұрын

Thank you so much. I will look into it🙏❤️

@henkidzboiz8053 8 күн бұрын

Also I would like to hear about the doctor's saying they wanted to prescribe you pain medications.

@ToddFam808 7 күн бұрын

@@henkidzboiz8053 my doctors personally have never suggested pain meds. My Rheumatologist told me straight up it doesnt work and causes more issues because of side effects. He is right, today i stand pain free. That video is coming soon too !

@ToddFam808 7 күн бұрын

@@henkidzboiz8053 video coming soon friend!! Uploaded and editing today

@Spiritualflower702 8 ай бұрын

Doctors really have no clue. I'm 52 and have learned to do the research and listen to what other people do. Sugar.... Omg... Cases a huge painful flair up . In bed for a week .. I hate living like this.

@ToddFam808 8 ай бұрын

Sending you love and good vibes only. I have been super blessed to find a few things that work me. It seems like its different for everybody on what works with a few in common. I havent had a flare up in months so I think its safe to say i found what has worked for me. I pray that you find relief and things that help you❤️

@jkschmidt8205 Жыл бұрын

I love your video! Thank you. So helpful

@ToddFam808 Жыл бұрын

Awesome! Thank you for stopping by and watching.

@cynicallemonade1792 Жыл бұрын

It took me years to get my diagnoses. I ended up with fibromyalgia, POTs, migrains, IBS, Endometreosis diagnosis and thinking to myself... surely not.... it feels like they are all just putting it down to these things that can't be measured well. I don't think they know much yet.

@ToddFam808 Жыл бұрын

Youre 100% correct. There hasnt been enough studies and it really honestly SUCKS! Ive seen so much current research including research of my own on it being linked to our gut. My pain and symptoms are manageable because of my diet changes so i know for me its living proof. Heres how I see it...food can heal you or kill you. Either way we need more studies and research done!

@Truerealism747 Жыл бұрын

I still hope it TMS by j sarno.mune triggered CFS now CFS ok but fybromyalgia myofacial pain everyday 6 years pelvic pain 25 years I had pots now ok it's mhtfr gene related to Asperger's ADHD started ldn and ime sure mines thyroid as father's CFS was but doctor s don't care just TSH.dr t is good

@Mfield111 Жыл бұрын

Moving around more does not improve fibro!!! I've had it for 30 yrs... no amount of exercise will help it only causes more pain and fatigue you keep trying all the different things but, 30 years of experience with this disease the only way to live sane with it is to pace yourself and learn the word no I'm just not able today god bless you sweetie

@ToddFam808 Жыл бұрын

@amy layfield I know what you mean. I guess its different for everyone also that was recommend by my Rheumatologist. It rings true for me and I notice when I'm idle i get more achy. The number one thing that helped me was changing my diet. Organic foods, 100% grass fed meats, pasture raised pork, chicken and eggs, no fast food (i do periodically, like very rarely), stay away from preservatives, chemical msg, additives, dyes, etc etc etc. Pretty much all the fake stuff i stay away from. I drink mushroom coffee, take vitamins, pre and probiotics, lots of water, no sodas/juices, if I do juice its fresh squeezed or juiced/blended. I try to eat as natural and whole as possible. I stay away from processed sugar (this is a huge one!!). Im pretty much pain free on the daily with minimal aches and tightness which i notice more when I Consume things on my "dont Consume list." This was a work in progress especially cause its expensive and practice makes better. Ive learned to substitute things like sugar for honey/agave/Maple syrup/eyrithrol etc and just being super concious about what I eat. Dont get me wrong ill endulge from time to time but my diet is mostly the good stuff. Sorry for the rant..lol I just know that from speaking to a lot of fibro peeps its different for each of us and the goal is to try different things to see what works. Sending you gentle hugs and aloha, blessings❤️‍🩹

@Mfield111 Жыл бұрын

U R probably right about being able to eat better and that is good advice for sure! I just know most people don't have access to organic and the money for it if available! But, yes if anyone can organic & diet I believe can help! And yes this disease...is only like other disease's in ONE Way!!! We all respond to it differently...thank U sweetie and God bless what U R doing for others♥️

@ToddFam808 Жыл бұрын

@@Mfield111 😘😘😘

@nika-pt2pl Жыл бұрын

I was avoiding walking thinking it will make the pain worse but I desperately needed money so I got a job as a dog walker and I cannot even say how my condition has improved. It took about a year but I went from not being able to cross the street to walking for at least an hour without having a break.

@ToddFam808 Жыл бұрын

@@nika-pt2pl omg! Yaaaay, I'm so happy you found something that works for you. I always say what works for one will not necessarily work for the next but it always good try and see if it does. ❤️‍🩹🙏🙏

@jamesmcconnell2473 2 ай бұрын

A smart monster that's used to winning on every little issue.

@jamesmcconnell2473 2 ай бұрын

Why thank you sweetie. No easy way to say the following. Women with fibromyalgia have a prevalence of a perineural cyst 42% according to the NIH. Not you though because you've never seen it before on imaging. This'll sound nuts but. Doctors don't know or aren't allowed to know the MRI technique to detect it. Tarlov cyst disease. What it means is your fibromyalgia is now treatable. Tarlov cyst channels are about a surgical procedure. Way risky too. What nobody knows is injections are superior. Takes flexible bilateral epidural steroid injections. Zero pain as almost three years.

@jamesmcconnell2473 2 ай бұрын

If doing the dishes is next to impossible and you're not sure why ? Tarlov cyst is tweaked doing the dishes.

@lydian1197 3 ай бұрын

I am 22 and just got diagnosed 3 weeks ago. After a long time struggeling with depression and finally hadding it back, it feels like im once again losing my life. I finally had a good paying job with feels to hard to handle right now and im slowly falling back into my depression. I am mostly extremely tired which i find worse than the pain flare ups. I have no idea what i can do about it. My doctor's basically said goodluck with it. Anybody has any tips? i want my life back

@ToddFam808 3 ай бұрын

Change your diet, eat whole foods and stay far away from processed foods that's where I started. I'm now in the best shape and the strongest I've ever been. I lift weights 5x a week and do cardio I eat high protein and clean. Haven't had a single flare up in almost a year.

@kendregab7328 Жыл бұрын

My symptoms are early am pain in arm and legs muscles with twitching making it difficult to sleep took tylenol pm it no help, fatigue, extreame stiffness in joints and joint pain in the morning, skin sensitivity to touch, sweating randomly, weakness when walking up the stairs and lifing things just to name some. I think this is fibromyalgia. I have an appointment on July 10 with a Rheumatologist. Living and trying to work is really hard 😢

@ToddFam808 Жыл бұрын

I hear you loud and clear Kendre ! Keep your head up, i hope and pray you get answers and relief. This is life long but there is hope. Sending gentle hugs🤎

@jodiemorgan8063 Жыл бұрын

Omg the fatigue is the worst. It like running out of fuel. Even breathing is hard. I absolutely hate it. And the pain is terrible. How can the body cause such horrendous pain? I absolutely hate it. 😢

@ToddFam808 Жыл бұрын

Meeeee too! It's crazy how one day I feel fine then BOOM I weight 5tons. Today is one of those days. I never oversleep but today I slept 13 hours, woke up dizzy, weak, bad headache, sore all over...ugh! But I woke up today and I'm alive. Stay positive my friend, I know it's hard but us fibro peeps gotta help remind each other there are better days. Sending gentle hugs your way always.

@shelleywright7387 4 ай бұрын

You script it to a tea this is me for the past 20 years

@sandybohannon4403 Жыл бұрын

Me Too, thanks for sharing

@arbinmatin7241 Жыл бұрын

hi sister. I am from India. . I am 25 yrs old.. same situation I am also facing 😣... it's very difficult to handle whole house and kids, with fibromyalgia pain all over the body...

@ToddFam808 Жыл бұрын

First of all sending you gentle hugs !! I have a few videos on Fibro im my chronic illness playlist, are you looking for anything in particular?

@arbinmatin7241 Жыл бұрын

@@ToddFam808 s

@debbiescott6018 Жыл бұрын

A don't no what wrong with me but flare up in agony in knees left foot gets it toes legs going into spasim tail bone bottom of back pelvic bone sometimes hands sore fingers sore tingling migraine but a don't no what wrong with me hard to phone doc only certain time when your getting kids to school that when you phone so a don't even no what wrong

@ToddFam808 Жыл бұрын

Im so sorry. I hope you get answers soon. Take it easy on yourself and keep stress as low as possible, yes I know kids make that hard.lol find time and space for you. Time to pause, rest and relax. Sending you gentle hugs.

@arunimabiswas4958 Жыл бұрын

Really i am also thriving..it's very difficult to deal with daily wrks with this fibro

@ToddFam808 Жыл бұрын

Agreed. Sometimes I feel defeated like on those really bad pain days but we must remain strong. WE CAN GET THROUGH THIS!! sending gentle hugs your way ❤️‍🩹

@mahendrakarnarayana9682 Жыл бұрын

Never give up💪

@ToddFam808 Жыл бұрын

NEVER!

@arbinmatin7241 Жыл бұрын

hi sister plz make another vedio of fibromyalgia. .. now how ur feeling. really want to know ,after 8 months how u feel now. really want to know. ..plz make a vedio. .

@ToddFam808 Жыл бұрын

Great idea...Sounds good!!

@Namerof-4-9 Жыл бұрын

Aloha! Thanks

@ToddFam808 Жыл бұрын

Aloha! Hope i helped somehow🩷

@cattails4422 Жыл бұрын

Thank you for this video

@ToddFam808 Жыл бұрын

Sending love your way. Hope you got some helpful info❤️❤️❤️

@gul139 2 ай бұрын

15 years with fibro and in much worse condition than yours hug 🤗

@ToddFam808 2 ай бұрын

Sending you gentle hugs 🧡 friend

@chiarabay9364 4 ай бұрын

Why can’t fibro sufferers tell us how they changed their diet to to relieve their symptoms? I had chest pain so bad I was always on a heart monitor, but my intuition told me it was my sternum and ribs - bone pain, not heart muscle. 3 days after giving up butter my crippling pain disappeared for ever. Now I’m vegan, teetotal. No dumb doctor would have told me that. You need to detox your liver, perhaps too many micro plastics.

@ToddFam808 5 күн бұрын

THIS!!THIS THIS!!

@Nik-dc4ti Жыл бұрын

I'm 23 years old, unable to work much and sleeping 14 hours a day because of this damn illness. I feel like I'm stuck in an 80 year olds body and it sucks.

@ToddFam808 Жыл бұрын

Im so sorry Nik🙏🤎 I hope you find relief and something that can help you get better quality of life. Sending you love and gentle hugs sis💕💕💕💕

@Truerealism747 Жыл бұрын

It's related to ADHD hypomobility.ocd.aspergers most 70.plus.percent have these fhtmr gene.nightmare

@robbertdekok8987 Жыл бұрын

I have fibromilargy and cvs afther sleep apneu

@ToddFam808 Жыл бұрын

Ugh! I'm so sorry...no fun! No fun at all. Sending love and light your way.

@cindisims5917 Жыл бұрын

My blood pressure is really low too.

@ToddFam808 Жыл бұрын

Ugh! Hypotension..annoying!!

@cindisims5917 Жыл бұрын

@@ToddFam808 Do you ever get dizzy from your low blood pressure!

@ToddFam808 Жыл бұрын

@@cindisims5917 yes small moments of dizziness and fatigue.

@eli.time92 Жыл бұрын

I was wondering about something and i apolegise if this is a stupid questrion. But with Fibromyalgia do you expireance its hard to breath if the body gets to warm?

@ToddFam808 Жыл бұрын

YES! OMG YES! When we went to Disneyworld in May it was super hot and humid and I kept telling my husband we need to slow down because I was having a hard time breathing.

@eli.time92 Жыл бұрын

@@ToddFam808 thank you for answering. I just randomly ended up watching this video and i can see a lot of things i been struggling with the last 3 years. And i cant take hot showers anymore becouse i cant breath in the heat of it and cant have a heater in the bedroom without waking up gasping for air. And i thougth it was something really odd going on but the doctor said its nothing wrong with me. Now i can at least not worry about it. So thank you again :)

@ToddFam808 Жыл бұрын

@@eli.time92 youre welcome. I hope you get answers and find relief, blessings.

@Mimi0505 Жыл бұрын

❤

@michellebrown8729 Жыл бұрын

My dear i can so relate to this...cause i was diagnose more than 10 years ago and in the last 2 years things has changed drastically for me Meaning my meds are not working like they should and i am on the top of the range meds. My Dr told me last week he don't know what to do for me anymore. Right now i am booked off work for 3 weeks of work which is very depressing for me cause i am a work alcoholic the medication sucks with all the side effects ....so ya my live is very difficult cause all i want to do is lay down