Living with Fibromyalgia and Ankylosing Spondylitis

Living with Fibromyalgia and Ankylosing Spondylitis - My story

Рет қаралды 36,488

6 жыл бұрын

I've wanted to do a video about Ankylosing Spondylitis and fibromyalgia for quite some time, but after some fairly harrowing news from the Hospital yesterday, I figured I'd finally get something done.
While I know there are crazy helpful people out there wanting to offer suggestions, CBD oils, Low/no carb diets, Swimming and a bunch of more ways of treating these illnesses more 'holistically' are either how I've coped for as long as I have or have had no effect whatsoever (such as CBD).
This is no-where near as short as I'd have liked it to be, neither does it cover every aspect as I'd have liked, but hopefully it's something that helps someone through inspiration, understanding, or simply the feeling of not being alone.
For those of you that watch the channel, this is also why sometimes my upload schedule is a bit up and down.
One of the reasons I choose Patreon and Paypal.me is to help keep me going through the fog and lack of mobility etc. Your support keeps this dodgy old cripple getting up in the morning, and for that I thank you.
Apologies for using the wrong lens and being a bit out of focus at times.
The background music used was:
Title: A.W.A.R.M. Signal Long
Author: P C III
Source: www.pipechoir.com
License: Creative Commons Attribution 4.0
/ awarm-signal-long-1-ho...
+++ SUPPORTING THE CHANNEL+++
If you wish to donate to the channel as a one off, here's a PayPal.Me link - www.paypal.me/VapingBiker
and here's my Patreon page for continued support and special access - / vapingbiker
+++VAPING BIKER PRODUCTS+++
MERCH - www.vapingbiker.co.uk/vb-merch...
VAPE MATS - www.vapemats.com/?product=the-...
Social stuff to follow right here ...
www.vapingbiker.co.uk/
/ vaping_biker
/ the_vaping_biker
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Unless otherwise stated, all music used is Royalty Free and included in Final Cut Pro editing software.
Motorcycles I have currently:
Honda Shadow VT750 Black Spirit (Phantom in the USA), highly customised - • Sunday Vlog on a Monda...
Honda Shadow VT1100 ('93 I think, 4 gears), chopped and goosenecked, still in build stages, I made the tank and tins before illness stopped me progressing.
Equipment I use:
Main Camera: Canon EOS 200D / Samsung S8
Stills capture and thumbnails: Samsung S8
Microphone: Blue Yeti, Boya BY-PVM1000, Rode Video Mic Pro
Audio Capture: Zoom H1 or Camera
Computer: Late 2014 iMac
Editing: Final Cut Pro X
Audio Editing through FCPX
Stills editing through Snapseed or Affinity Photo

Пікірлер: 718

@VapingBiker 6 жыл бұрын

Thank you to everybody that's watched and to all of you for commenting. I'm humbled to think it's helped as many people as have commented below, as well as the barrage of emails and private messages I've received. I'm sorry I've not replied to everyone, but know that I've read all of your comments, and whether you suffer from illness as well (regardless of the condition), or you know someone that has similar challenges, you're all superstars. Don't let it define you, be strong. Love and respect, Dean, the Vaping Biker

@vapelifewithjarret4386 6 жыл бұрын

Vaping Biker your the Man Dean and we all hope to hold you up when your down and maybe i can put out reviews of your quality some day... hang tough Man

@may_beck6224 6 жыл бұрын

Dean Im an occasional viewer of your channel and found this while poking about looking for something to watch while I sit here too knackered to do anything . I too have fibromyalgia and something with my back as yet undiagnosed ( my discs are starting to degrade and herniate ) ) Im guessing that it will have to get worse before anyone takes a blind bit of notice as usuall ! I am lucky in that I can still work and have a sympathetic work place that will let me do admin on days when I need to sit but 5 hours a day especially now in mid winter when Im at my creekiest boy its taking some doing right now. I am though good at hiding it and only a select few know I have anything, so what I wanted to say was well done to you fella I wouldnt of been able to show that side of myself to a thousand people well done to you.

@broken1965 6 жыл бұрын

Vaping Biker the depression is so bad also 20yrs with fibro an low back surgery shoulder surgeries an I still work as a machinist but with alot of missed FMLA days Im in the states

@randyparks8719 5 жыл бұрын

The only medication that works for me is pot , I tried every medication in the Dr's medicine cabinet they worked good at first but in a short time I was in bad shape once again . Trust me brother I know you pain hang in there .

@tensaru 5 жыл бұрын

Hey vaping thank you for you video it helped me alot i and 20 years old and i was diagnosed with ankylosing spondylitis and fibromyalgia when I was 18 been fighting it for 2 years now and seeing your video helped me realize that my pain is not in my head. And it is REAL so i thank you so much and keep up the good work

@LegionsLair 6 жыл бұрын

Dean, I'm not ashamed to admit that watching this brought me to tears. As I type this now I continue to cry...not just for you but for the many people who suffer this and similar conditions and feel lost, hopeless and powerless. You are such a strong, wonderful person and an inspiration. No one deserves to go through what you must every day but thanks you for sharing this with us. I am certain your words, your honesty and your attitude will inspire many people to get through another day...and another day...and on. All my love and best wishes for you. Also....extra love for your wonderful supportive wife!

@soowoo8627 6 жыл бұрын

Legion Vapes! Cowboy up. Life moves on.

@soowoo8627 6 жыл бұрын

Franck Lamonica Thats really hurtful. I am now crying. Oh wait no im not.

@soowoo8627 6 жыл бұрын

Sorry that you give people on the internet the power to make you upset. Have a nice day.

@soowoo8627 6 жыл бұрын

You tell me you're not upset, then go on to explain why you are upset. Nice.

@BaddaBigBoom 6 жыл бұрын

Thoughtless, intolerant AND passive aggressive. Not a good combination, maybe you should go off and think about it.

@jasonbuhagiar4714 5 жыл бұрын

I have ankylosing spondylitis and fybromyalgia. It's a real trial through life , it affects your mental state too . The anxiety created from being in pain for long periods of time is incredible

@SuperLawz 3 жыл бұрын

How did you get diagnosed with AS?

@danplantman62 Жыл бұрын

Me also .The pain never goes away .

@Ch1ckenp0pper 6 жыл бұрын

Inspiring words to anybody with chronic illness. You are a good man.

@johnstinson893 6 жыл бұрын

I'd like to say thank you Dean. My uncle was diagnosed with Ankylosing Spondylitis in his early 40's. He is currently 53. He now has multiple spots of spinal fusion, and has walked with a hunch for almost 20 years. As long as i can remember. He has had this disease for a lot of years and recently has just been discovered. Keeping people informed is the MOST important thing. Recently my uncle took a bad fall. Hit his head and managed to have a seizure. Now due to his fall he actually broke his neck, and is paralyzed from the chest down. He is currently in rehab and has just started being able to use his arms and head again. I never knew anything about this disease until this recently happened. And as much as I am sad about the situation, I am glad that you are strong enough to talk about it. You Dean are a fighter. Don't ever stop fighting. You are an inspiration to myself. I wish you well. Thank you for this video

@thewrenchreviews9986 6 жыл бұрын

Thank you Dean. Thank you for your story, which is both heart rending and a soaring inspiration. Your courage and boundless enthusiasm is evident in all the things you do and the countless souls you have touched with not only your knowledge and experience, but also the wisdom you have amassed while fording the difficult waters you must traverse. My thoughts and prayers are with you sir.

@gordonstevenson9909 6 жыл бұрын

Dean you have left me speechless and in tears at what you live with every day. More now than ever I will appreciate your videos knowing the struggle and effort that goes into each and every one. Keep doing what you do with the knowledge were all here to support you

@Kenwaldek 6 жыл бұрын

Thank you Dean, the past two weeks my fibromyalgia is bad. I feel your Words 100%

@stevegeal9882 6 жыл бұрын

Hi Dean, thank you for posting this vid. I have suffered with ME (Chronic Fatigue Syndrome) for 20+ years. Only your partner really understands these types of condition! They are truly awful and life changing. I’m with you all the way bro. Bless you mate. Steve.

@BaronCorrino 6 жыл бұрын

Dear Dean,Thankyou for sharing this with us.The fact that through all this you still have a tender smile and twinkle speaks volumes about you. Keep it up and stay strong.

@deborahconner2006 6 жыл бұрын

omg i have so much respect and admiration for you to live daily with the things you do. i for one am happy that your fighting and trying to continue to do what you do for vaping we all appreciate it very much.

@GRITTSTAR13 6 жыл бұрын

Dean, sorry for your recent news, I’m lost for words really but please know this, you are the best at what you do, and a throughly nice bloke on here. Keep doing what you are doing!

@drummergav 6 жыл бұрын

A very honest and to the point video. Thanks for all the information you gave us all on your ailments. Your ability to be so cheery and positive in your other videos and in real life at the events is amazing considering whats going on. Never feel embarrassed about your condition, we all love you and "get it" so much more now you put this up. Take care dude, Gav

@sick_of_all_the_lies4207 6 жыл бұрын

Wow dean, I knew you had some medical issues but I seriously feel for you. I hope you can keep moving forward with your head up man. I speak for all of your subscribers when I say we love you and we wish you the absolute best. We are all here for you dean.

@Apathymiller 6 жыл бұрын

i completely understand Dean. I like you look fine on the outside with my clothes on, but have been thru 13surgeries and all sorts of rehabs. i was in a car wreck that killed my brother driving and the 2 guys in the car that hit us. i was the only survivor. its been 20 years and my body has just detoriated, ive now got 5 ruptured discs and 3 herniated discs as well as being paralyzed. spinal stenosis, degenerative spine disorder, and osteoarthritis. i completely empathize and sympathize with ya my friend. Very big of you to put this out there. i hate talking about whats wrong with me, but if you dont people just think we're normal and unfortunately we have become far from normal physically. i wish you the best.

@nathanvaughan6070 6 жыл бұрын

DUDE!! i dunno how you do it going through this and still smile like you do! hats off to ya! this made me cry :(

@Smail1024 6 жыл бұрын

Thank you so much for this Dean so many people just don't understand I've dealt with fibromyalgia for 7 years now and it's complete hell

@sideswipe1261 Жыл бұрын

I recently started year 41 of my 44 years on earth. And it is indeed hell. Even if we’ll intended, so many people are far too uneducated and it gets old extremely fast when someone reads a 1/2 page Reader’s Digest article on Fibromyalgia, then speak to you (often DOWN to you), the actual sufferer. No, eating a salad and going for a jog is not going to fix this. ANY relief is welcome relief, and when opioid haters (because they’ve been told to hate them though again have no real idea what they’re talking about or how they work *without* making any responsible patients “high” at all, just functional enough to CARE about being alive is a tough reality for for ignorant people to wrap their brains around. Methadone has been in SAFE USE for chronic pain relief for over 90 years now. Lyrica, Cymbalta and whatever the other 3rd FDA approved “Fibromyalgia Treatments” are nothing but RENAMED ANTIDEPRESSANTS. Same rules apply, like the LEGALLY REQUIRED SUICIDE WARNING LABELS, extreme weight gain, wreck your organs, kill your soul and are neck-n-neck with PLACEBOS which carry NO side effects, and best of all DO NOT EVEN WORK. Then your doc will up your dose 2-3 times. Then change your medication. Each time requiring you to wait 4-8 weeks to see if it has any benefit (it’s placebo effect, folks. No “Diet/Zero Calorie” beverage has ever been proven to help anybody lose any weight whatsoever- but they’re GREAT IF YOU LOVE CANCER!). “Side-Effects” is a weak attempt to just reword “Direct-Effects” so they don’t sound as nasty (unless you listen closely and read the actual horrible, permanent things like brain damage, permanent spasms/twitches, loss of motor control, severe headaches, induce or worsen arthritis, slash your quality of life, make you gain 80lbs in 4 months or less (stressing the rest of your body’s systems out extremely + begging for diabetes), and of course make you kill yourself (the labels aren’t “watches”, they’re “warnings”. Meaning enough people already have done it BECAUSE they took these “medicines” but would not have if they hadn’t. I’m searching for Ketamine therapy. It can knock out severe chronic pain, anxiety, depression, suicidal ideology, PTSD ALL FOR A FULL MONTH with ONE DOSE, and NOT make you loopy or groggy or compelled to buy glow sticks. All without messing with any autonomous functions like heart/vascular, pulmonary, digestive, kidney or liver functions whatsoever. Safely. Why aren’t more doctors leaping on this treatment? Why not kill 2-5 “therapy resistant” birds with 1 stone vs chugging piles of mixed danger/suicidal pills every day for life only to become more miserable? The science is there. The doctors are dragging their feet (fewer Rx’s written and filled monthly = less $ for docs and BigPharma). But it IS FDA APPROVED!

@Walramirez 6 жыл бұрын

Dean, thank you for posting this. I took suffer from both fybro and AS, and your video is the only one I’ve come across that describes what I too have to endure on a daily basis. Thankfully I don’t need the assistance of a cane or chair at this time, but this is an unpredictable disease that no one can truly predict the future. I too have a pharmacy of medications that I must take on a daily basis and infusions every six weeks to simply keep me going and alive. I don’t wish for anyone to have to go through what I feel when I open my eyes in the morning and have learnt to embrace what I have and not let it define me as a person or beat me. Sure there are mornings I rather just lay in bed with the covers over my head, sure it takes me close to two hours after awakening to be able to move and get myself to a situation where I can now step out of the bedroom and begin my day, and sure I dread closing my eyes at night because I know when I awaken, I have to go through it all again. But again I don’t let it define or break me! I have found that mountain biking helps to stretch everything out and keep me limber as much as possible: though not taking wicked jumps because I know the pain I have to endure if I take a fall. I am fortunate to be able to ride my bike and if that’s taken away from me, well then I’m not sure at the moment how to handle that. So I’ll ride as long as I am able to and take the massive pain that comes after I cease my activity, but it is a small price that I pay to still keep my whits about me and my optimism despite the anguish and pain. So thank you again for this and keep strong. Do whatever you can for yourself that will keep you going one more day and simply take life, one day at a time! 🤟

@freilichwurscht 6 жыл бұрын

I would never have expected that a man who suffers from this diseases can be that positive and happy like you. thx for sharing

@andyfairchild2383 6 жыл бұрын

Thanks for sharing that Dean. I've been here a while, so knew you were quite unwell. But I'm saddened to hear the true extent. I'm impressed though, by your spirit in not letting it define you. Stay strong my friend and much love to you and Mrs. Biker x

@BaddaBigBoom 6 жыл бұрын

Don't let it get the better of you Dean, you are a fascinating guy with lots to share, I very much appreciate your presence on YT. All the best.

@KoRRo989 6 жыл бұрын

damn, i'm so sorry to hear that, it really sucks. Thank you so much for sharing your story, it takes a lot of courage to be so open, but spreading awareness is always a good thing. Be strong man!

@80_vee39 6 жыл бұрын

People like you is what gives me the courage and the strength to get through each day good or bad. Such a great idea to put this video out, keep fighting dean life is a wonderful thing and alot of people take that for granted, it goes by quick so you gotta make the best out of it. Thanks again.

@HaloClouds 6 жыл бұрын

Dean, I'm inspired by your strength. Congratulations on finding the courage to share this with the world. I too suffer of joint pain and the doctors have not found a reason why. It’s not as bad as it is with you, but I’ve had to stop using a hand for a day because of the pain. Or have to walk slower because of my knee. I thank you for your openness and I truly hope that you can overcome the pain doing what you love the most and with the people that love you the most. Keep the chin up my friend and I will see you on the internet.

@Irnbru4ever 6 жыл бұрын

Hi Dean, thank you for sharing what must have been a difficult video to make.... your courage, honesty and integrity know no bounds. You are an inspiration and one hell of a good reviewer. May you always stay strong and forever have it large 🖒❤😙

@johncarter6446 6 жыл бұрын

Dean you are not only one of the best reviewers on KZfaq you are an inspiration to not only me but so many people that suffer from situations like this everyday I fill each of my days with SIMPLE WINS to drive and push myself a little bit everyday thank you for your strength and the delight of watching your videos

@danielmcgovern4341 6 жыл бұрын

Wow Dean, you did a great thing by sharing this. You will have helped other people for sure. Im sorry to hear about your pain. On the other hand i just wanted to say that you are always a pleasure to watch, and i am absolutely honest in saying that you have one of the best attitudes in a human being i have ever seen. I don't know you personally, but i feel constant positive vibes while watching you, and you are fantastic at sharing that light with the world. Keep truckin'.... every day is worth it. Peace brotha.

@ryancairns2317 6 жыл бұрын

I think it's great and admirable, not only with what you're trying to achieve with this video, to inspire others and make them aware their not alone in trier suffering, but for going to the lengths you have to explain and shed more light on these debilitating ilnesses. Already massively appreciate and enjoyed all the content you put out but knowing more now about your conditions and what you go through....your an absolute trooper Dean and I sincerely hope they can do something for you sooner rather than later!

@wilmergreen9480 6 жыл бұрын

Huge admiration for you mate, I love your channel and look forward to each and every episode , to remain such an outwardly chirpy chap in the face of all that is a credit to ya

@clare_eliz 6 жыл бұрын

I want to thank you so much for opening up and making this video. I personally really needed to see this at this exact moment in time. I have ankylosing spondylitis and fibromyalgia (with some other fun more diseases thrown in). I'm twenty. I was diagnosed with AS officially at about 14 and was officially diagnosed with fibro four months ago. I've just started treatment for my AS again after 4 years of just trying to grin and bear it. I had my first Humira injection today and at first was extremely excited to be in treatment and to get to feeling better until it set in that the medication will take months to begin to work and I've been struggling with that concept. I needed this video to remind me that I've just got to keep working and not let my disabilities overcome me, no matter how much I want to give up. You've helped me so much in this moment. Thank you from the bottom of my heart and I wish you luck with your continued journey.

@tROCKxBitE 6 жыл бұрын

brother, I wish that I can empathize and help you but I can't.......but I love your vids and you seem to have one of the most outgoing, loving, happy personalities out there! stay strong. as someone with ptsd I know what its like to have social disconnect and I hope, I pray, that that others can find, through any illness, a way to continue life and you my friend are an inspiration to me that tells me I can still be a happy and friendly person in life!

@purplesmurf8913 6 жыл бұрын

I’ve been waiting for this video dean , very we’ll explained. I suffer from AS and have done since my mid teens (started very young) it started as stiffness and progressed to not been able to move at times. Some days I look normal fit and healthy but the pain is always there and mine is not as bad as yours I feel for you dean I know how much mine hurts so I can only imagine the pain your in , and your right dwelling on it doesn’t do you any favours but sometimes it’s hard to find the energy or the motivation to do simple tasks but nobody seems to understand they just think ur lazy and can’t be arsed and then there’s the sleep to top it off can’t sleep at night but can sleep all day ........ Thank you for everything you do your awesome , chin up and stay strong

@jamesingy2973 6 жыл бұрын

Incredibly brave to share and in such a well articulated way. You really are quite an inspiration.

@JaredTG. 6 жыл бұрын

Holy hell man how do you do it. I couldn't imagine even thinking about life while trying to deal with such things. Thank you for making this video because not only will it help people who also suffer the same things but people like me, who have problems yes but after watching this my problems feel like nothing in comparison. Call it a wake up call or swift kick in the ass if you will, it puts things into perspective for me. You've got to be one of the toughest people I've seen. Always know us subs are here for ya brother we're all one big screwed up family of sorts. Stay strong Dean.

@catmanfanvapes4581 6 жыл бұрын

Thanks for sharing, mate. You’re an inspiration (and a bugger for making me cry, too lol). Keep doing whatever it takes and like most of your subscribers, we’ll be here supporting you. I know it’s not much but for me, it comes from the heart. Truly! 👍🏻👍🏻

@-F.x.M- 6 жыл бұрын

Dean, you are a trooper. I have nothing but respect for you and Ms, Biker for being there by your side. My hat is off to you my good sir. And if I could I would come by with some tea and biscuits to try and bright at least one day for you. Stay strong because you are a winner!

@jeffreytrespeces4708 6 жыл бұрын

Dean sir, I didn’t think it would ever be possible, but I have even more respect for you. I’ve always enjoyed the informative reviews because they are always so thorough. My prayers and positive energy go out to you. Stay strong and take care.

@makis206 6 жыл бұрын

I hope that our love that we send from Crete makes you feel a little better Dean. We love the real way you smile, we love the way you just "talk" to all of us, really hope that this message will make you feel a little bit STRONGER my friend. Stay strong, keep just to "be" the guy we are happy to watch in every new video of him! You are a wonderful person, just keep "being" near us. It's very nice to "have" you in our lives, do your best to continue to do that my friend! :)

@Lets_Go_Carlitos 6 жыл бұрын

Dean, I'm so sorry you have to deal with this, it's alot more serious than I thought. You are a very brave man and an inspiration not only to fellow sufferers, but to anyone going through difficulties in their everyday lives. Keep having it large!

@carlitosvapes71 6 жыл бұрын

Dean to get to see what you're going thru and still you do such amazing job on your videos and have that will to live its really inspirational. I belive this video is going to help a lot of people with similar issues. Keep up the good work man and keep smiling! You're a role model and great motivation for me brother! Much love!

@tammy-lynnstewart5677 6 жыл бұрын

Brought me to tears. Not only your story but knowing so many people suffer. I have my own share of health issues but no one deserves what you & others like you are going through. Stay strong. Love your vids. Such an awesome attitude towards life in general!

@mrvispillo6282 6 жыл бұрын

This is one of the most encouraging, powerfull, honest and touching videos I saw in the last years. I will not give you sympathy, because I think you do not want it, but I give you all my respect and strength to stand what ever you will face. Even if I am just one of those subscribers, I feel proud to know you at least a little.

@wilbearworks 8 ай бұрын

Thank you for taking the time to explain these terrible diseases. I have suffered for 25 years now and you are the first one to get close to how I feel. Thanks again for putting this out there.

@danebeee1 6 жыл бұрын

This was touching to say the least. I hope u can find some sort of relief and some sort of activity or whatever it may be to give u happiness and satisfaction on a day to day basis. Seems like u have a wonderful woman beside u and I am sure that helps. Dean u are truly one of my favorite reviewers I watch almost every one of your videos and I am sure I speak for many when I say I don’t know what I would do without your videos. Thank u for being u and I wish u all the best!!

@terjibeder6871 6 жыл бұрын

This really is the most relatable video I have stumbled upon so far. Thank you for sharing your story. I wish you all the best.

@redevelop 5 жыл бұрын

Long time viewer first time poster... Big props to you Dean, one of the most humble reviewers in the scene. I fucking love you man and the strength I realise now is incredible. It’s giving me inspiration and I thank you for sharing your story ❤️

@SingerOfTruth76 6 жыл бұрын

Man, this is hard to hear. Especially from such a good dude as you yourself are. Thanks for sharing your story with us, Dean. You’re in our thoughts and prayers 100%! Keep pushing, brother.

@eddietazmaninc6447 6 жыл бұрын

Hi mate it's Eddie from Eastbourne thank you for doing the video I'm a big strong person I'm a security dog handler with 3 crushed vertebra in my back and in pain most of the time but watching you getting up hit me and I admit I had a tear in my eye mate stay strong keep up the good work we all love your vlogs and all the work you do

@mrkillp0p¹³ 6 жыл бұрын

Much respect for sharing Dean. Education and awareness plays a massive role for invisible illness', so hats off to you Sir for taking the time to make this video.

@benryanphillips6840 6 жыл бұрын

Your such an inspiration, possibly the most inspirational video I've watched! Your an amazing reviewer, definitely my favourite! You keep battling through and one day it will all be worth it, mad respect for you brother!

@joshiles 6 жыл бұрын

Dean just know that you are loved and supported through all of this by your friends and family out there in the community, I consider you as both. Your smile and laughter always brightens my day. I can't say anything that hasn't already been said, I will just say that you have made an impact on my life and how I tend to view things now. To know that underneath that big happy exterior is someone who deals with something that strong just makes me realize how insignificant all my bull shit is. Love you brother.

@EsoxLVCIVS6776 6 жыл бұрын

Love and respect to you bro for coming out on this one. I have fibromyalgia and osteoarthritis and you do feel alone a lot of the time. Mine came on following a very bad bike accident which nearly killed me. Unfortunately I can't ride any more since. I get amazing support from the people on Instagram and not a lot from my family which is staggering. Feeling for you and all the other people that carry this damned illness

@lej53 6 жыл бұрын

Never give up Dean, you're attitude is an inspiration. My heart Truly goes out to you. Keep doing what you do and never forget that what you do everyday is amazing!

@peterhunter1990 6 жыл бұрын

This must have been very hard for you to share but from the bottom of my heart, I thank you. Not just for the insight into these ailment (I don’t want to massacre the spellings) but mostly thank you for your inspiration, this was amazing, you are amazing. Thank you Dean. Thank you.

@tost1968 6 жыл бұрын

Wow Dean, thank you for sharing this with us. Strong stuff to deal with. The only thing I can say is stay strong and not give up. Best wishes from Norway.

@cuzsteve 6 жыл бұрын

You only touch briefly on your channel on the subject of your ailments and tend to make light of it - the explanation helps us understand the compounded issues you face. The fact that you rise to the challenge and win, even if not every time, shows a strength of character you should be very proud of. The content you create really helps others in many ways (you helped me drop the cigs in a big way from your work by explaining the workings of vaping better in your own style) THANK YOU Dean, and I wish you all the strength you need for the future.

@AzraelJericho 6 жыл бұрын

Brave video sir. I hope that somehow someway they can find a way to help your condition. Always enjoy your content and look forward to your reviews. I'm sure if sometimes you don't upload none of use would go anywhere and still support this channel. Keep up the good work and fighting the fight.

@BrokenString18 6 жыл бұрын

Your efforts are not in vain, Dean! Keep the struggle! We're behind you 100%. Smiles from a grown man who you made cry.

@yus8084 6 жыл бұрын

Awsom video Dean, my heart goes out to you mate, you are a credit to humanity...I've een watching your videos for a couple of years now ad have been aware of your condition, keep AVIN IT LARGE

@howardlenow 6 жыл бұрын

Thank you for this eloquent and painful story. I am a trade union lawyer in the United States and have represented a number of union members with your issues. It was very hard to convince the employers that these problems were real and debilitating, especially in the years prior to effective identification and diagnosis. Your video should go viral because of the power of your personal description of the challenge of performing common daily functions. Hurrah for you. I am sure you have touched those of us who do not suffer from your conditions. More importantly, you have provided validation for so many who suffer without recognition or identification. Amazing work. Just truly amazing and inspiring.

@pillpopper2000 6 жыл бұрын

Thank you for making a video on this after being a sub of yours for so long i couldn't believe i was so unaware of your situation. You are a very strong man for showing us this and whilst unlike most other commenters in this discussion I am a healthy 24 year old male. I just wanted to say that i aspire to one day be as strong as you. Also as far as nothing else the hospital can do just remember there are over 19,217 other hospitals that can and will.

@moose3968 6 жыл бұрын

I'm truly at a loss for words... I've been sitting here staring at my first sentence for nearly 20 minutes in tears. After a long time watching your videos I am only just now aware of your illness and I am dumbfounded. Your cheerful and upbeat nature has brightened my day over and over and now I truly can not wrap my head around how you do it. It makes me a bit ashamed of myself for ever complaining about my day. I will no longer watch your videos simply for vaping advice but now will be watching for inspiration to make the best of every day. Thank you for all that you do and I pray that a treatment or a cure is found for these horrific conditions.

@karrea4128 6 жыл бұрын

This video was very emotional for me to watch. You are such a wonderful and amazing person Dean. Keep your head held high, I am so sorry for the pain and suffering that you go through. Keep on keeping on!

@ShiteLines 6 жыл бұрын

Actually in tears. I really shouldn't have watched this in work. I knew things were difficult. I didn't realise how difficult. I know your health has failed in the time I've known you as I've saw the things you post, the scooter then the wheel chair, the change in personality when you're sore. This is a fantastic thing you've done. I had no idea what these were and this has explained them perfectly. This will be a massive help to anyone suffering from these diseases. In fact not just these diseases. I love you mate.

@MrBigdave111 6 жыл бұрын

Dean I feel for you buddy. You’re not getting it easy at all, I’m sure your frustrated. I can relate to you as I’m recovering from a bad road traffic accident and there’s days I feel like giving up. You’re a real inspiration and I always look forward to your vids and vlogs. Heath to keep going buddy, big love.💨💨

@antonyhorrocks1611 6 жыл бұрын

Massive respect for sharing this dean I know it couldn't be easy for you to do. I have no doubt that this video will help others in your situation. Be proud dean. Really have made me feel how lucky I am and the little things we take for granted. Again mahoosive respect sir 👏👏👏

@mommatrin2012 6 жыл бұрын

Dean my heart goes out to u from across the pond.. This video was amazing. I watch u with my boyfriend, and I absolutely adore u. Keep ur head up and don't let anyone bring u down!

@ericrobinson5250 6 жыл бұрын

Dean, what a powerful video you have made here. You had me near to tears, although I am not the sort of person to show my emotions. You are a star for sharing this with the world and I have total respect for you. Probably the best video I have seen on You Tube. Never say never. You are a brilliant person. Thank you for this inspiring story

@10165joe 6 жыл бұрын

I have only been subscribed to your channel for a few months and I would have never known you had any medical or health issues whatsoever..... well done you!!!! You are so right your disease (s) don't define you.... at least not to me..... I realise that will be of very little comfort to you but I want you to know you are the kind of person that makes this world worthwhile to live in! Keep up the good work Good thoughts and wishes Joe.

@mikewilliams9517 6 жыл бұрын

Wow Dean, I knew you had medical issues but had no idea they were this bad. I find it amazing and inspiring that you can carry on as you do. It will make me look at my "bad" days with work or pretty much anything a lot differently now. We love you man and stay strong!

@georgelovesnopain 2 жыл бұрын

Thanks on behalf of our AS-Fibro warrior community. So glad that you shared your story. I have been fighting this for the last 25 years. The fatigue really gets you. The pain I could still fight.

@englishmaninsweden 6 жыл бұрын

Dean, I’m sure that was hard to make. I know you have mentioned your health challenges in your videos, but I had no idea it was that bad; you put on such a brave and cheery face. You know that all of us here in YT land will keep watching and supporting you. You are an inspiration.

@laich71 6 жыл бұрын

Wow I'm speechless. To be able to smile and be upbeat, as you always are on your regular videos, despite the pain you have to deal with, you are truly an amazing guy and very inspirational. Puts into perspective the minor trivial things that affect me. I am really grateful that you shared this with us and I hope you feel better soon and get cured of everything despite what the hospital say.

@kreeate1933 6 жыл бұрын

Wow Dean that was one gutsy video and one that needed to be done and you did it so well as I am used to seeing you do so. I never realised when you made reference to health issues yours were so severe. I can only imagine the help to other fellow suffers that your vid has made and I know that it would have been your primary reason for sharing your situation as knowledge and recognition of these debilitating conditions is so poor. Of all the reviewers of vape gear that I watch I always know that not alone will I get good information from you but always a good laugh and you always seem to be in such humour and long may that continue . I recently had my own health problems which had the potential to be terminal but so far so good and during that time you cannot imagine how many times your vids have cheered me up and all the while you were going though your pain. What can I say other than to wish you all the best, keep on doing what you do so well and never forget that just around the bend there maybe something or someone about to find a solution to your ailments and I soo wish that for you and all.

@xcal1bre998 6 жыл бұрын

Dean your an absolute legend I have so much respect for you and I'm sure that's a shared feeling with everyone who watches you videos! keep smiling don't give up we love you!

@andrewhenderson6032 6 жыл бұрын

Dean you have been thought the wars your still here and your still fighting it and we will always be here for you bro 😀😀

@airsofter2247 6 жыл бұрын

You're an inspiration man; Ive watched many of your videos and have watched a few of your live shows and I had no idea you were suffering with such illnesses! You always seem such am upbeat person and happy. I wish you all the best and hope things start getting better with your whole situation! Much love Dean

@jeremybell4233 6 жыл бұрын

Dean, that took a lot of courage,thank you for sharing. I knew you had health issues, but I had no idea that it was that severe. It makes me appreciate what you do so much more. You will always be in our thoughts and prayers. Stay strong and Have It Large! Thank You

@swarm69 6 жыл бұрын

holy shit dean... i knew it wasnt great but this is mad. keep your chin up mate your a hell of a person for getting up in the morning. when you first asked if you should do this video i was one of the people who told you to do it! im glad you did. i think its important. i wish you all the best mate plesase keep fighting your stronger than most of us will ever be

@blindj 6 жыл бұрын

Thank you so very much. I'm quickly losing my vision due to diabetes and macular degeneration however i was able to watch this vodeo and now it will remain with me in memory forever. This took guts to share, the kind of guts I feel I need to aquire. My respect and appreciation level for you and the content you provide has gone up X10. Keep it up, stay strong man. Thanks again.

@vikramchanna5571 6 жыл бұрын

Man, I really appreciate you doing this vid, because it takes a lot courage to speak out on a subject like this in a public space like youtube. I think a lot of people can relate to this, in one way or another. Many people suffer from some illness that deeply affects their lives, whether it's fibro and AS like you, or something else. Much of the time it may seem like we're like everyone else, just doing well. And other people doubt there's anything wrong, perhaps even say we shouldn't complain. But what they rarely see are the times that whatever we suffer from acts up. The times when that illness really gets to us, puts us down, hurts us, and makes normal life impossible. That's what living with a handicap is like. It's taking medication, living with the pain, and embarrasment. That's the side of us that people can't see, what we sometimes try to hide or downplay, but is very real to us. But you're right. It's not what makes us who we are, we are not our illness. It's how we deal with it that defines us. I really wish your condition will improve, and I hope you keep doing what you do, because what you're doing doesn't just mean something for you. It means something to us as well. Thank you so much for this vid.

@guybrushthreepwood2998 6 жыл бұрын

This is something special. Thank you for sharing your story. You deserve every supporter you have.

@mothox 6 жыл бұрын

You are a Strong and super strong hearted individual. Thanks for sharing. You have helped me over the years and I never knew what you are going through. I owe you a lot Dean. I wish for you to feel like a million dollars tomorrow. Cheers mate 🍻

@georgewolf6508 6 жыл бұрын

My heart goes out to you Dean. You are an inspiration. You are making a difference and producing excellent content here. Thank you for everything you do.

@The_Spectre. 6 жыл бұрын

Dean, after watching this, I respect you a great deal more. I never knew the constant pain you have to endure. Thank you for sharing your reviews and your knowledge with us. Most of all, thank you for sharing your story. My best friend has crippling rheumatoid arthritis, so this hits very close to my heart. My thoughts and prayers are with you.

@artbeach1958 6 жыл бұрын

What a wonderful tear jerker this was! I wish you all the best! My wife has Fibromyalgia as well, ( not to your extent) but she is getting worse as time goes on. Much respect to you for sharing your story! You are such an inspiration to me, my wife and many other people. I wish other people could really understand how Fibromyalgia effects a person and just how unpredictable this illness is! As I watched you describe your Fibromyalgia, it was as you was painting a picture of my wife.

@barryalderton6517 6 жыл бұрын

Thanks for sharing your story Dean, it's one of the first video's of seen from you come up in my recommended list and im glad I spent the 22 mins watching it. Fibromyalgia is something that is close to myself my mum has been dealing with this since early 2000's. fairly hard to remember when she actually got the diagnosis and even more so when my wife got diagonised with it as well around 8 weeks ago. Although her symptoms are very mild at the moment she has very bad days and i know what the future holds and the difficult path ahead. It can't of been an easy video to make but one I'm glad you did. thank you.

@joncooke2450 6 жыл бұрын

Dean, this was a very touching and inspirational video. I commend you on your bravery and courage to share your story. I know nothing of what you are living with on a daily basis, however, I can empathise with you as I care for my partner who has some mental health issues, and your right, people look at you and and don't / can't understand. All that said, I have been inspired myself, as I too can wake up and question what's the point, so good on you and I WILL get up and have a goal. Please keep up the great work and contribution you are making to the vaping community and others as well. Respect 👍

@jsinz666 6 жыл бұрын

You sir are a strong man. I have so much respect for you and the Mrs. Thanks for sharing your story and educating all of us. Positive energy sent your way today and always. Just so you know you're not alone either. Keep on trucking and staying positive. Good things will come your way. Be strong be safe and thank you for all that you do.

@sevencheesepizza3660 6 жыл бұрын

Thank you so much for sharing Dean, you're an inspiration. Not only to the people suffering from similar disabilities but also to "healthy" people to not take their mobility for granted and to squeeze every last bit out of their lives as long as they possibly can. Dean doesn''t need you to feel sorry for him, he needs you to appreciate what you have and get sh1t done. To overcome whatever obstacles lay between you and what you want to do. Think of that the next time you find yourself f4rting around wasting your time.

@karenpetriecreighton8692 6 жыл бұрын

Dean I want to thank you for opening up and sharing your story. I admire your courage and strength. I my self deal with pain everyday. I have simular issues I have been diagnosed with fibro .... but I do not accept that, have had a neck fusion due to herniated disc as well arthritis and I do have crohns disease. I fight everyday to deal with pain issues and fight very hard with battle. My husband James has simular issues as well. Pain is a huge struggle. I do maintain a full time job and there plenty of days I want stay in bed and hide from the world. I enjoyed watching your video not for pleasure ....but for the subject matter. I thank you again for opening up and sharing to the world!

@dtbroad5862 6 жыл бұрын

Always remember Dean you are loved for your works and efforts around the world, which not many of us can actually make a claim to. If anything brother you can be sure of that. Be proud and let that carry you through the hard times. Thank you for sharing this and all of your videos. From across the pond, my hope and prayers are with you.

@racheldean6943 6 жыл бұрын

I'm so sorry to hear this dean you have just inspired me so much(more than you'll ever know) just watching you made me cry I'm sorry you suffer like this we do such a good job of suffering in quite I know this only to well, it's sink or swim is how I keep telling myself everyday not to sink & to preserve on but you've really bin brave to share your story with us this way ,it must of bin hard sharing this with us dean ,your a good bloke you really are a pillar of the community..again I'm sorry dean

@JaysElectronicTinkerShack 6 жыл бұрын

dude i class u as a great friend, we have met several times and have the upmost respect for you as i always have but this video has increased my respect and admiration so much u wouldnt believe , the video was beautifully done sir u are a gent and a legend , big thanks for doin this video for yourself and others that suffer with this , i know people that have the same condition and see those struggle and i just hope in fact scrap i know this will help others greatly thank you dude we love ya fella rock on and keep smiling !

@dadoochee6243 6 жыл бұрын

Dean, I have watched your videos for quite a while now, and I have heard you speak of these issues, I had no idea how bad it truly is. My heart hurts to know the pain you have to deal with. You have brought so much joy to me and so many others with your content despite all that you have to cope with. I pray for you and your wife. You are an amazing person whom I wish I could live nearby so that I could help you out. Much love, brother!

@PropCollector71 6 жыл бұрын

Dean I had no idea! You have my upmost respect for tackling this in the way you do.

@thehatemeister3062 6 жыл бұрын

We love you Dean! Stay strong man.

@thomaswilbourn4105 6 жыл бұрын

Gosh I freaking love you Dean, you are such an inspiration. I am personally so grateful for everything you do and you are simply just a damn good human being.

@folkseycelt 6 жыл бұрын

Kudos to you Dean. That could not have been an easy thing to do. I just hope fellow sufferers can take something away with them from the vid to help them cope. While I do love your vape vids & blogs that was the most moving and thought provoking vid I have seen for a long time. I know you have, in the past, made light of your condition and I had no idea the pain & other issues that you suffer from daily. Hang in there Deano and know your thousands of subscribers are with you all the way. Good luck Buddy.

@paulwilkins1756 6 жыл бұрын

Dean your a legend mate you have my up most respect and admiration thank you for this video more people need to understand Ankylosing Spondylitis and fibromyalgia