Living with NF2-SWN: the Story of Billy Nguyen, MD

Рет қаралды 5,192

3 жыл бұрын

Not only does Billy Nguyen live with NF2-related schwannomatosis (formerly called NF2), he treats patients who live with diseases like his. Billy was diagnosed with neurofibromatosis type 2, or NF2, at just six years old. Despite years of surgeries, chemo, and dealing with hearing loss, he used his journey with NF2 to propel him into a successful career in medicine.
In honor of NF2 Awareness Day on May 22, 2020, the Children’s Tumor Foundation released "Understanding NF2" a short comic book that tells Billy's true story as an NF2 patient. You can freely read the comic and learn more about Billy at:
www.ctf.org/wp-content/upload...
For closed captioning, click the CC button.
What is the Children's Tumor Foundation?
Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
Visit our website at www.ctf.org/
Donate today at www.ctf.org/ways-to-give/
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LinkedIn - / children's-tumor-found...
#endnf #nf1 #nf2 #nf2swn #swn #childrenstumor #neurofibromatosis #schwannomatosis #nervetumor #tumor

Пікірлер: 18

@anneenguyen4791 3 жыл бұрын

That's my big brother! Love you, Billy. It is incredible to see your impact on the world.

@matthewwilliams4065 11 ай бұрын

Wow, as a man with NF2 seeing the MD after your name is very inspiring ❤

@rupamdutta4074 2 жыл бұрын

Me too pursuing medicine in India and suffering from NF2....you inspired me alot

@anuragdubey4217 2 жыл бұрын

Hello i want to talk you

@thuytungngo6854 2 жыл бұрын

Love you a lot my big 👦 boy. Dr. Billy Nguyen I always stand with you, share with you the rest of my life.

@samuzzalpratim7820 2 жыл бұрын

Hey, I am also a medical student and I was diagnosed 2 years back, it's really very inspiring seeing you the way you tackled.

@SaadKhan-le7yp 2 жыл бұрын

How r u feeling now

@griffinettethegriffin1771 Жыл бұрын

That you so much for making this video! I was diagnosed with NF2 as well when I was 4 and seeing your story was truly an inspiration. I related to your journey a lot and wanted to tell you to keep on fighting the good fight that the NF community knows too well.

@yunahu2803 Жыл бұрын

I was encouraged by you. I am also a medical doctor, a radiologist in China.

@gusvasquez2320 3 жыл бұрын

If you are reading this i hope something amazing to you . u deserve it all the best always 🙌🕊

@kanisshksuryavanshi2899 2 жыл бұрын

God bless you

@user-nk3np6es2e 3 ай бұрын

I too suffer from nf2 to be honest I hate living with nf2 I'm covered from head to toe with lumps

@closecaption2 2 жыл бұрын

Bless you! Was yours genetic or spontaneous?

@childrenstumor 2 жыл бұрын

Hi closecaption2 - you can read more about Billy and his story here: www.ctf.org/news/ctf-debuts-new-nf2-comic

@Slipthejab152 2 жыл бұрын

How do u deal w pain.. cause sometimes it just feels like the end for me

@childrenstumor Жыл бұрын

Thanks for your comment Levi. We are sorry to hear that you are struggling. At the link below is a recent webinar regarding pain in NF2: kzfaq.info/get/bejne/brN2dcSTndeqoX0.html