Living with Turners Syndrome

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Novo Nordisk

Novo Nordisk

2 жыл бұрын

Diagnosed with Turner syndrome from an early age, Charlotte has always been aware of her condition and is managing it well, thanks to her supportive family. See what life is like for them as a family, when one member is living with a growth disorder. Despite being a young age, Charlotte knows exactly what she wants to be when she grows up and there’s nothing that can stop her. You can watch her inspiring story here and visit www.morethanheight.com to learn more about growth disorders.

Пікірлер: 58
@anacarol1997ach
@anacarol1997ach 5 ай бұрын
Hey Charlotte! I am 26 and I was also diagnosed with Mosaic Turner Syndrome when I was 9 years old. Wish you all the best :)
@hannahsomes389
@hannahsomes389 2 ай бұрын
Thanks for sharing your story, Charlotte! I'm 28 and have mosaic Turners. I'm American, but living and teaching English in France, so I'm very independent and loved what you said about not letting anything stop you from living your life.
@kaylasmusic
@kaylasmusic Ай бұрын
I also have turners syndrome too and would love to share my story with yo all!,.. So I also had a lot of growing problems, ear infection, etc,.. but when I was about 6, I had stopped growing completely and thats how my parents knew something was wrong,. so they had a karyotype done on me (my parents are both physicians), and thats how I found out I had it,. I then got growth hormones to help,.. I also have had a moderate hearing loss since age 7,8,., learning disabilities, etc,.. But now I am 22, almost 23 in month, and I just finished my 3rd year of university with almost a 4.0 GPA! (last semester got 3.9, but still waiting to see how I did this semester but I think it all went ver well) getting a BA in music, since I sing and play piano, and then plan to be an audiologist,. exactly what I ever wanted,..
@ohboy111
@ohboy111 13 күн бұрын
oh good for you
@happyasalways6967
@happyasalways6967 5 ай бұрын
Good luck Charlotte from a 15yr old girl with TS❤❤❤
@gingerscholl3248
@gingerscholl3248 2 жыл бұрын
Charlotte I wish you the best reaching your dream of being a teacher! I’m a 48 year old TS sister who is also a science teacher!
@mrsNetty34
@mrsNetty34 10 ай бұрын
I’ll be 48 in august
@user-cv8ui5ir2d
@user-cv8ui5ir2d 4 ай бұрын
I'm happy you made to 48. I don't think I will... Turner sucks, big time. I'm 24, and I have been depressed ever since the age of 10 (I was diagnosed at 5, but at that age I didn't have the mental capacity to understand what's going on). Hate myself everyday. Hate the shortness. Hate being neither male, nor really properly female. Hate the thyroid condition. Hate the psoriasis. Hate the swollen legs. Hate having to fucking estrogen...
@sarahudson108
@sarahudson108 4 ай бұрын
​@@user-cv8ui5ir2d Don't give up , talk to someone , I know it's hard I have TS too , Went through two bad bouts of depression as a teenager , Get support from family , friends and your medical team, You are a woman, Just one who happens to have a medical condition, Keep going and be as healthy and happy as possible.Good luck for your future x.
@Nwladylaura369
@Nwladylaura369 29 күн бұрын
@@user-cv8ui5ir2d❤
@kaylasmusic
@kaylasmusic 11 күн бұрын
@@user-cv8ui5ir2d I have Turner’s syndrome too,.. I always have to take birth control to regulate hormones and stuff,.. However,… Turner’s syndrome is genetically female,.. you’re still biologically and genetically a female you’re just missing the X chromosome but you are still a female or you wouldn’t have it because only a female can have it,. I have not particularly had thyroid problems that i knew of, but other than taking growth hormones and birth control, having learning disabilities, etc,.. I am now turning 23 and thriving perfectly fine and perusing my college degree and career as an audiologist,.. You got this and you can do anythingyou set your mind too!! Please take care of yourself!! I would say the only thing that i even face now is the fact that i can’t have kids.., i promise you will be able to do anything you ever want, if you ever need to talk im always hear for you
@pearlrodrigues372
@pearlrodrigues372 Жыл бұрын
That’s actually a great way to look at life, an opportunity doesn’t define who you are and what you can accomplish. ❤️
@marli21099
@marli21099 Жыл бұрын
Thank you for sharing your story, Charlotte! I’m 23 also with classic TS and am a 6th grade teacher :)
@Priyanka-rawat.154
@Priyanka-rawat.154 Жыл бұрын
Can yo do s**xx
@ldee4127
@ldee4127 5 ай бұрын
Is it true that classic turner syndrome has many more features and complications than mosaic? Got a dx of our little one having classic
@user-cv8ui5ir2d
@user-cv8ui5ir2d 4 ай бұрын
I would say, yes. Because, with the mosaic variation, only certain cells in the body are missing the second sex chromosome. With the classic one, all cell have only one chromosome in them. @@ldee4127
@bobtaylor9959
@bobtaylor9959 Жыл бұрын
Thank you for sharing
@abigailmetcalf7606
@abigailmetcalf7606 Жыл бұрын
Hi Charlotte, My name is Abby and I am 25 year old who lives with Mosaic Turner syndrome (diagnosed at 10). I am a speech language pathologist at a middle school. Remember you can do anything you put your mind too- your dreams are achievable.
@drlisa3
@drlisa3 Жыл бұрын
Thank you Charlotte! Remembering your story helped me to understand Turner Syndrome for a test that I am taking. See how you teach? You can do it!
@maherunnesha4300
@maherunnesha4300 Жыл бұрын
Menschen mit Übergewicht oder Adipositas* haben im Vergleich zu Menschen mit gesundem Gewicht ein erhöhtes Risiko für viele schwere Krankheiten und Gesundheitsprobleme. Diese beinhalten 1. Alle Todesursachen (Mortalität). 2. Bluthochdruck (Hypertonie). 3. Hohes LDL-Cholesterin, niedriges HDL-Cholesterin oder hohe Werte von 4 Triglyceriden (Dyslipidämie). 4. Typ-2-Diabetes. 5. Koronare Herzkrankheit. 6. Schlaganfall. 7. Erkrankung der Gallenblase. 8. Osteoarthritis (ein Abbau von Knorpel und Knochen in einem Gelenk). 9. Schlafapnoe und Atemprobleme. 10. Viele Arten von Krebs. 11. Niedrige Lebensqualität. 12. Psychische Erkrankungen wie klinische Depressionen, Angstzustände und andere psychische Störungen4,5. 13. Körperschmerzen und Schwierigkeiten mit körperlichen Funktionen6. *Übergewicht ist definiert als ein Body-Mass-Index (BMI) von 25 oder höher. Adipositas ist definiert als ein BMI von 30 oder höher. Besuch: sites.google.com/view/germany-tea4/home
@karinnamorgan9539
@karinnamorgan9539 11 ай бұрын
You are amazing 😃
@mrsNetty34
@mrsNetty34 10 ай бұрын
I have this neat to see others with it
@svitlanasalo1179
@svitlanasalo1179 7 ай бұрын
I have a classic form of Turners,too. I am 43 years old, born and raised in Ukraine. In Ukraine I worked as a nurse for 13 years, than 5 years ago I moved to Austria. I've been happily married for 17 years. I would be happy to get to know somebody who has Turner Syndrome,I've never met someone like me :)
@ldee4127
@ldee4127 5 ай бұрын
Hi! So happy to read your success story. I am having a baby with Classic TS. So it’s nice to hear good outcomes
@HazelOct
@HazelOct Жыл бұрын
I also live with Turner Syndrome! You go girl!!
@jesuschristismylordforever
@jesuschristismylordforever Жыл бұрын
i love u guys, I lost my baby girl and she was diagnosed but sadly passed away, i wish i could hug her
@Kenzeditsss
@Kenzeditsss Жыл бұрын
@@jesuschristismylordforever Im so so so so sorry. I have Turners and i almost passed.
@The_Great_Human
@The_Great_Human Жыл бұрын
​@Just _ sophia what is truner syndrome??can human died with this disease😢
@theepics3665
@theepics3665 Жыл бұрын
​@@The_Great_Humanit's not a disease. I suppose you know that human females have XX chromosomes while the males have XY. If the chromosomes don't separate properly during segregation (during cell division) it leads to gain/loss of a set of chromosomes. In the case of Turner's syndrome,one X chromosome is lost from the cell. Therefore,it is usually said that the females with this syndrome are not 'feminine'. They are also sterile (can't reproduce)
@ShadowBerry-gp7vw
@ShadowBerry-gp7vw 3 ай бұрын
​@@The_Great_HumanIt is a chromosomal disorder in which the female has X0 chromosome instead of XX which makes them sterile.They also lack some of the female secondary sexual characters.
@RahzAlGhul
@RahzAlGhul Ай бұрын
God bless you
@pankajsharma-xb4cr
@pankajsharma-xb4cr Жыл бұрын
God bless all
@mariquilla8891
@mariquilla8891 Жыл бұрын
I've got a friend with TS who is a doctor.
@lucyvlogandart5166
@lucyvlogandart5166 Жыл бұрын
i have turner sydrome too.
@mytoysworld366
@mytoysworld366 Жыл бұрын
My doughter with ts has always been a very angry person. She screams when she is angry and it takes many many hours up to over nine hours before she quiets herself. Nothing you do changes her. She is a stubborn personality and wants things her own way. Is angry issues usual to turnéer syndrome people? Because my doughter is very much as a child with dawn syndrome. She loves to eat and she is as I said very stubborn. She wants to decide everything herself. She does not like rules. Is this something you recognizes in the turner syndrome personality? A big problem is that she screams so loud and for such long time and she even says that she does not care about the neighburs. Not okey.
@novonordisk
@novonordisk Жыл бұрын
Hi, thank you for sharing your experience. I understand it must be challenging to manage your daughter's emotions. Please note that due to global privacy and legal regulations, we are not allowed to give medical advice on social media. I recommend you contact your healthcare professional for guidance and help. Sending my best wishes to you and your daughter. 💙 Take care & all the best, Asif Novo Nordisk
@fabianifigueira
@fabianifigueira 4 ай бұрын
I am stubborn too, and want to do things in my own way? Hahaha, of course. But, I really recommend you get professional help, because you can have something more than Turner, is possible, like autism, I don't know, but if the correct treatment she can get better. I always was different, but my mom refused to treat me like someone with down and didn't let anyone treat me like that, when she discovered the Turner syndrome she had a shock, but even then she always believed in my potential.
@fabianifigueira
@fabianifigueira 4 ай бұрын
Best wishes for her.
@user-cv8ui5ir2d
@user-cv8ui5ir2d 4 ай бұрын
I am angry. But angry at NOT being fucking normal. I look at myself in the mirror and all I see is a monster. I look feminine, but I know all well that I'm neither male, nor properly female. Suffer from a major case of Napoleonic complex. I feel emotions easily, but feel ashamed for it. I feel like I got screwed over by those deleted chromosomes. Wish I had never been born. My mom doesn't understand either. But then again - she didn't have to go through growth hormone shorts every day for years, she's not super short, she produces estrogen, she has fucking boobs, she wasn't bullied because of her shortness, she didn't grow up hating herself and the world around her...
@Twilight_980
@Twilight_980 3 ай бұрын
I have mosaic TS
@romanista9776
@romanista9776 Жыл бұрын
❤️
@mytoysworld366
@mytoysworld366 Жыл бұрын
If anyone recognizes the temper i describe of my doughter send an answer it is so important. The syndrome seem to be so much look a like dawn syndrome. So write If the anger has been a big thing for you who has turner syndrome.
@alex_is_not_outside
@alex_is_not_outside Жыл бұрын
I'm 19 have ts I have multiple mental illnesses- (major depressive disorder, anxiety disorders , and adhd) anger and short temper does comes with this,I don't know y'all personally but if she has any other symptoms of that kinda stuff I'd look into it for help 💕💕💕 peace and love fr
@tatianajadid262
@tatianajadid262 Жыл бұрын
I am 17 years old .. I had my period when I was almost 12 years old and completely regular , but I am short my height is 153 cm , and my weight is 37 kg . My intelligence is very normal , and I look much younger than my age also my body showed no signs of puberty .. I do not have the rest of the symptoms. Can anyone help me to know if I have Turner syndrome ?
@novonordisk
@novonordisk Жыл бұрын
Hi Tatiana, thank you for reaching out. Please be aware that we are not able to give any medical advice on social media due to global privacy and legal regulations. Please see your doctor and discuss your observations there. Your doctor will be able to guide you better and make further examinations if needed. Wishing you all the best and take care 💙 Asif, Novo Nordisk
@tatianajadid262
@tatianajadid262 Жыл бұрын
@@novonordisk okay I will .. Thank you very much for the respond 💛
@fabianifigueira
@fabianifigueira 4 ай бұрын
​@@tatianajadid262well, the Turner diagnosis is with endocrinologist, they will avaliate you and ask for exams.
@ShadowBerry-gp7vw
@ShadowBerry-gp7vw 3 ай бұрын
People with Turner's syndrome are sterile.They won't get periods.
@kaylasmusic
@kaylasmusic 11 күн бұрын
I have Turner’s syndrome but all I could say is you need a karyotype to know,. Some people also have no symptoms and don’t know until later, although I’ll say, you are extremely underweight and that might have effected your growth
@imcnagpc2
@imcnagpc2 5 ай бұрын
I don’t know what Turner syndrome is, you didn’t explain it.
@fabianifigueira
@fabianifigueira 4 ай бұрын
Basically, we have 45 chromosomes, not 46 like the other people. The other people have XX for girl and XY for boys, but, in Turner's syndrome we have just one X, so, we are all girls, the classic Turner lost completely the last X. Sorry if my English get weird, Brazilian here. And yes, I have Turner syndrome too. The classic one as the girl in the video.
@user-cv8ui5ir2d
@user-cv8ui5ir2d 4 ай бұрын
The only case (syndrome) in humans where a baby can actually survive being born with only one sex chromosome. Most Turner's fetuses get aborted or are miscarried.
@fabianifigueira
@fabianifigueira 4 ай бұрын
@@user-cv8ui5ir2d get aborted? I wonder why, because we Don't have any deficiency that would make us "parents dependents all life." But miscarriage happen a lot in these cases.
@user-cv8ui5ir2d
@user-cv8ui5ir2d 4 ай бұрын
Yeah, that's what happens. Abortion is common. I have this Turner shit. And trust, I'd rather be dead.@@fabianifigueira
@user-cv8ui5ir2d
@user-cv8ui5ir2d 2 ай бұрын
@@fabianifigueira I also have classical TS. I think TS, Down Syndrome, Rett Syndrome, Cri du chat Syndrome get aborted often. I do think TS is a very serious condition. C'mon, like take our medications away - and no puberty, only brittle bones, old skin, scoliosis, and early menopause. I wish I never had TS.
@ohboy111
@ohboy111 13 күн бұрын
any south asian who have same problem?
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