Something about getting older that I wish I'd been warned about is that you won't always get back to 100% after an injury or illness. When I was a kid I'd get sick or break a bone, but after recovery I'd be good as new. Now when I hurt myself I still get better, but sometimes not all the way. There's a kind of cumulative battle damage over the decades - sure my knee still works, but not as well as it did when I was 25 - and that has me hoping that one day I can trade this body in for a newer model.

Dianna's circle are some of the only people I see stepping up to talk about this and do it well. Your video makes it very clear how many people are suffering with these things and so few people are out here showing the world what it actually is and looks like. I really appreciate that. I hope one day we can hear it from Dianna herself, but all of you taking it on yourselves to be her voice and the voice of so many without platforms or energy is really important. Thank you for believing and taking a stand.

I'm 3 years into having long covid. It's devastating the effect it has had on my life.

Thank you. I have been dealing with long covid for 13 months now, with no reduction in symptoms. A member of my care team recommended this video to me during a session today and it explains things better than I have been able to so I am directing everyone I know to watch it to explain what I and millions of others are dealing with. I've been 8 months with no income now because my medical insurance doesn't believe anything is wrong with me, and the stress of trying to deal with it is exhausting, so thank you.

Thanks for this video. I'm in England, I've had M.E. for 40 years now. Doctors are still not taught about it in medical school and patients continue to be abused by doctors, they are disbelieved and told they're not trying hard enough. I wish they could have seen us before we became ill. No one chooses to live like this. Its not living, it's a living death. And so far it's been totally ignored.

From the bottom of my heart: THANK YOU for making this video. It's been so difficult to explain to some people what exactly is going on with me.

5:49 I feel that hardcore. My Mom has fibromyalgia, another disease doctors say "doesn't exist" and is "all in your head". She's practically bed ridden and here in the state of GA we went to court to show that there was a 0% possibility of her working and she had FIVE different doctors sign off and 2 testify and they STILL denied her disability because fibromyalgia is "something the doctors tell you you have when they can't find the real reason".

40 years ago I got Glandular Fever. It came to Australia via the US teachers. I had been extremely fit but when I caught glandular fever things went backwards in weeks. It took ten years to recover. And yes I contemplated suicide many times. Initially the doc couldn't find any functional white blood cells so he told me to take my tent to the river and avoid people at all costs. But that was only the beginning. From being extremely fit I found I couldn't walk even 60 metres without stopping and sitting and puffing for some minutes. On Friday I would get home from work, have a bite to eat, then go to sleep. I wouldn't wake up for more than a day. Typically I would wake up about midday Sunday. After several years I had recovered enough to do some exercise. But I paid a price. Each day after exercise I would sleep a LOT longer than the day before. It was horrible. The doc suggested that it would take five years but it took a lot longer to be back to "normal". 12 years after the infection I walked through Nepal to Everest base camp in mid winter. Which was a demonstration that I had finally come out the other side and could start to regain fitness. Now that I am in my seventies I am back to being fit. I can ride my bike at speed for 50 to 100 km each day. Then come in with sufficient energy to spend a few hours digging weeds on my farm. Then take my dog for a run for a couple of km. But in my thirties as a result of that glandular fever forget it. I was a mess. So I am terribly scared of long covid. I may not live long enough to ever be good again.

I know someone who got ME after a flu infection in the 90s. To this day they are still affected with no support or understanding from Doctors.

Thank you for this! Excellent info as always! My wife has Fibromyalgia and so many doctors simply treated her as if she was crazy. She still is poorly treated. "Believe the patients" is one of the more powerful things you said. Thank you for doing this.

I'm 3 years into CFS. This condition takes everything from you, and the worst part is nobody knows because nobody can see you. Sometimes I wonder if I'm still human or if I'm actually dead. Doctors don't seem to care either way.

My aunt has been struggling with ME/CFS for over 25 years and she's been looking for answers the entire time. It's only in the past few years that it feels like real work is being done on the syndrome.

My partner had/has long covid, but has made a lot of progress. We think her progress is attributed to the restrictive, anti-inflammatory AIP diet she's stuck to long term (with some carefully chosen re-introductions). 3 years ago, she couldn't walk 50ft without being exhausted. Yesterday she completed nursing school.

Thank you for this, to see people outside of the ME/CFS community using their platform to raise awareness is really great. There's some really exciting work being done by researchers like Bhupesh Prusty and Ron Davis, but they desperately need more funding.

As someone with ME/CFS I appreciate that you are spreading awareness about the illness. For years I’ve had doctors who don’t understand my struggles because the are unfamiliar with ME/CFS. Hopefully the medical community will begin to do more research and find a cure rather than just having medications to treat symptoms.

There's something kind of refreshing about hearing a doctor admit that many doctors have failed their patients, going back 100 years.

The thing that absolutely breaks my heart every time is when I see people commenting, get well soon! Or, I hope you feel better soon! Or worse when the person themselves says hopefully I will be back to my normal self in no time. I don't deal with any chronic illnesses, but I am good friends with several people who do, and it's heartbreaking to watch the General Public be confronted with the reality of chronic illness for the first time. There's no getting better, there's just management. There's the hope that the good days will exceed the bad days, but the bad days are not going to stop. There is no back to normal.

I have the exact same symptoms, from the same strain of Covid. Thank you for bringing up mental fatigue. I can no longer read a paragraph without wanting to fall asleep

Thank you for making this video. I've been dealing with ME/CFS for about 8 years now. I've had to give up so many things I used to love doing, simply because I am so exhausted and in so much pain all the time. It took me a long time to accept that this was my life now. I still mourn the person I was before I developed ME/CFS. I hope that one day there will be more research done on this illness. Thank you again for talking about this.

I really hope that Dianna will get better. i miss her videos. And even if she will not be able to make videos (i hope she will eventually) i wish her well. To all others who have long covid. i wish you well too.

I've had debilitating chronic fatigue and mobility problems ever since getting a series of really bad flu infections back in the 1980s. It's nice that now these things are being researched more intensely and taken more seriously. I've been kicked out of so many doctors offices, being treated like a faker or like I'm just trying to get drugs. I've seen some recent, very preliminary work that hypothesizes that both long covid and chronic fatigue might have symptoms caused by chronic acid-base imbalance, making blood more acidic, which could explain why we're stuck with constant, intense muscle aches like we've been running a marathon. If doctors find effective treatments for long covid, it will help *a lot more people* with chronic fatigue as well, from previous epidemics.

Thanks for making this video, Trace. I've been a fan of Diana for years and it's been heartbreaking watching what has happened to her. I hope science has a solution for long covid soon.

Thank you for explaining the difference between being tired and being fatigued. I'm disabled and often have severe fatigue with no obvious cause. It's hard to explain to people that being fatigued isn't the same as "you're just tired." Fatigue means I can't even get out of bed, but I'm not sick in the traditional sense.

Thank you! As someone who has had long covid since 2020, we need healthy allies to advocate for us. Thank you for this great, informative video, and for helping our cause. 🙏💚🙏

I'm so glad you addressed this. After infection from the original strain, I've had multi-organ affects. I can sleep for hours... and still be tired. I have to really force myself to get up and do something, and more times often than not, take a 4-hour nap.. only to feel disgusted with myself and my body.

Thank you for raising awareness about this. It is maddening watching people totally disregard it.

I was hit with a double whammy of sorts. I had shingles twice last year in the spring and then caught covid in the fall, and it did me in. I spent so long trying to protect myself from it and it still happened. It's hard trying to explain to my family and friends how PEM works and how I can totally do the thing they want me to join in on. But that's because they don't see me in bed needing to be fed by my husband for days afterwards. Nobody wants to see their friends sick, it's traumatic and everybody feels helpless. I get it. If you have a friend with mecfs or long covid, ask what you can do as a friend to be there for them. Offer to fold laundry. (My arm strength is zero now and if I hold them above my chest ill eventually faint) bring a movie and snacks over and explain that you don't have to talk you can just be there for them. Everybody is different. listen to your friends. Ask how you can help. Don't give advice unless they ask for it. Just listen.

Doctors should be sending these patients for more testing instead of dismissing patients and protecting the spending accounts of governments.

Let's throw Fibromyalgia in there too. I developed it after I had extensive back surgery in 2008, by 2016 I could no longer work. I'm only now starting to be able to minimally manage pain symptoms, but the fatigue is truly debilitating and traumatic for not only me, but the people who care for me. I've lost so many relationships simply because I can't maintain them.

I had mild covid the third time I had covid. I have long covid and it’s a struggle, no where near as bad as Diana. I have lung pain, brain fog, headaches, insomnia, shortness of breath and constantly feeling nauseous and my doctor says there’s nothing wrong with me.

As someone who has suffered from long Covid fatigue for almost two years the only solution I found was to build up slowly. Do enough each day to tax the system but don't ever do it. I have really had to push myself to get through this. Thankfully I am almost in the clear. This is my experience and I understand each experience seems to be different but this might help someone.

I was sent this by a family member, I've had chronic pain for an extremely long time I'm going to be a freshman in high school and if I have this I'm now confused on how I'm going to get through but I do appreciate how dedicated you are to getting answers. Thank you for just caring in the first place 😊

Thanks Trace, that was a pretty good overview of the issue. Tens of thousands of us with prior ME/CFS warned about this from the start, there is no question that we would be further ahead if we had been listened to, far more so if it had happened decades ago. All the same old mistakes are being repeated exactly the same way, with very little institutional support or interest. All of this was a choice, psychosomatic medicine is a weird obsession in the profession, a tradition that can't be left in the dustbin as it should. It's belief in psychosomatics that blocked everything and still does. Those beliefs are very powerful, and have decades of tradition behind them. We badly need people to denounce how wrong this is. If only we had been listened to. Peptic ulcers should have been the end of this, but no lesson was learned and this trolley just keep crashing into millions of lives.

I wish I had something better to say about this but all I can think of is how sad I am for people who have had the person they were taken away and left with a broken shell of a body.

As a long-term follower of Dianna, and someone living with ME/CFS... thank you for sharing this video.

Thank you so much for making this. I saw some of the first videos about Dianna and my heart sank. I feel so much sympathy for her and Kyle. I was bedridden for 3 months as a child with ME/CFS and talking it over years later with my parents they were terrified, my Doctor had no idea what was wrong, no-one had any answers. I think I pulled through it pretty fast because I was young and my body overcame the worst of it but it never really left me. I am very lucky that, in spite of a serious relapse in 2011, I have been able to work and live around my condition, but I definitely suffer from PEM and brain fog, constant pain (mostly low level to moderate but occasionally acute), exhaustion, bouts of depression... I have been patiently waiting for 30+ years for medical science to do more research on this and open up this box of mysteries. Hopefully Long COVID focuses more attention on this and starts to shed more light on chronic illnesses as a whole. There are millions world wide who need better treatment.

I developed a type of dysautonomia called POTs (postural orthostatic tachycardia syndrome) after a mono infection some years ago. Watching more and more people get long COVID, the only hopeful thing to think was that maybe there will finally be more research on this issue. Thank you for this video.

I really REALLY appreciate this video. It’s well done, and as someone with long COVID…yeah this means a lot. Thank you.

“Trust the science.”

My long covid seemed to have a very large inflammatory problem with it. After seeing a rheumatologist she started treating me for inflammation and auto immune disease it has completely helped me. I also had PEM. I recovered enough to return to work and normal life and I continue to recover. I hope every one out there gets better.

This is so frustrating because it took decades for doctors to even start believing patients (it was pointed out that this is unclear, I’m referring to ME/CFS). Then you see someone you care about go through something like this and all you can do is think, WTF took the doctors so long? If they started researching ME/CFS decades ago, maybe we could have a treatment by now. I hope Dianna gets better soon.

Thank you for doing this video. I've lost family and friends to Covid-19 during the past few years, and I caretake for several family members who are medically vulnerable (I am too). I hope the more people understand, the better things will get out there. ❤

I only had fatigue 2-3 weeks after Covid. Can't imagine how it must be for Diana and all the other people around the world with the same problem. I hope there will be some relieve soon.

I've been having issues after having Covid nearly two years ago. I still have issues with being very fatigued. Some days are better than others, but it can hit me out of nowhere and all of a sudden I'm struggling just to function throughout the day. Thank you so much for covering this. Sometimes just doing BASIC things makes me so freaking tired. I could sleep for days and still feel like I didn't get enough rest. I also developed an issue with my heart that I didn't have before Covid. It's frustrating to get people to understand how it feels and I get so frustrated when I get called lazy. I would love to be able to do the things I used to be able to do.

Thank you so much for this video, Trace. Would you consider a long term commitment to mecfs/LC advocacy? I've had ME for 17 years (if not longer). This community desperately needs able-bodied (and charismatic ☺) advocates. 🤗

Trace, while I am fortunate to not have long COVID, I am now the proud owner of two immune system disorders - both relatively rare - Neuro Myelitis Optica Spectrum Disorder (NMOSD) and Sjögrens Syndrome. I am very lucky that there is Satralizumab, an extremely expensive immunosuppressant, that prevents my immune system from dissolving my optic nerves, but I’ll have to take this medication every month for the rest of my life. I cannot travel, I cannot go out to public places, I have to double mask whenever I leave my apartment and live in a constant state of extreme stress. Seeing folks suffering even worse than myself, I can only hope that all of the attention being brought will help fund the necessary research for a treatment, if not a cure, sooner than later. Thank you for helping bring attention to this for both those like Diana, and especially those suffering without a voice.

Excellent video explanation! 🙂👍 (As someone with ME/CFS for over a decade.)

I had a mild case of COVID in April 2020, felt out of breath for a few weeks and a bit of gastrointestinal issues that didn't go away. Over the next few months my GI issues got worse, I felt exhausted all the time and things have got worse since. 3 years later, I am still suffering from severe GI issues (including blood) with no known reason (after multiple tests), exhaustion (a couple of hours exersion, even just mental and not physical, will leave me wiped out for days), severe pins and needles and numbness in my arms and legs, confusion (including not being able to think of simple words), autoimmune hepatitis, kidney issues, pancreas has given up producing digestive enzymes, almost zero vit D, folic acid and B12 levels in my blood tests, sleep issues, anxiety, panic attacks and generalised pain. As the last 3 years have gone on, I have been told multiple times that my symptoms were unrelated to C19, until more was known about it's effects and they're then recognised as symptoms of long COVID. I have finally been diagnosed with post-covid syndrome, and, as strange as it sounds, just having a diagnosis is a relief. Just as every positive test result was a relief as it gave me something to prove that there was something wrong with me. I am unable to work, I have given up my company, my life is so limited now, but mentally I feel fortunate, I might only have one 'good' day a week, but it feels so good and I make the most of it and try to appreciate everything life has to give for that day. I feel devastated for Dianna and everyone else that has it even worse than me. I am so glad that people are talking about this, it makes me feel slightly less alone.

Thank you for this, long time ME/CFS sufferer here.

Thank you so much for this video! Will have suffered Long COVID for three years in a few days-I was infected early on-which is just a drop in the bucket for many of my ME/CFS brethren who have suffered lifetimes. While I hate that expanded suffering is what it took to put of focus on these conditions, I am grateful for the love, support, and strength of the community.

Really been missing your friend’s face lately. Glad you took the time to do this video about her. Hope she gets better soon cause the world needs physics girl!!! ❤❤❤

I'm glad you're calling out the medical profession about hearing them out patients and validating them. The profession can only gain trust where the sense of pride and arrogance is set aside.

As a person with brain damage from a stroke i know PEM, and it took me years to learn how to pace myself. It is very hard for your brain to re-learn what you can and can't do. Like i know what my energy levels are and how much i can cope with, but still sometimes my brain will say 'you used to be able to do this much, so just do it now' and i will Pay the price the following days. So big hug to those affected, you will someday learn to cope ❤️

Thanks Trace that was very informative. 11:08 It's also comforting to hear that one of my favorite content creator for years has ADHD, since I just discovered as an adult (41 years old) that I do as well, and only realize the extensive impact it had on my life so far. I'd like to request an episode on ADHD! Including if that's not too personal, how you manage the uncertainty and stress of your job, emotional dysregulation / RSD in relationships and being a dad. I would make use of all that info and it would mean a lot too ❤

One of my friends who has long-covid had an MRI done of her brain. It showed holes in her frontal lobe from covid. She was literally bedridden like Dianna. If you are still suffering from long covid make sure your doctors order an MRI for you. It might help identify if you had brain damage.

I'm glad more information on this is becoming known. There are a lot of people silently suffering with this, and have had a difficult time getting ANY help from medical professionals... and as someone with other medical issues, has made it an absolute nightmare to deal with. Like.... it's been soul crushing to go through, and even more soul crushing to see so many others go through it without support.

Thanks for a clear, reasoned response to Dianna's condition in particular and long-Covid in general. Yes, so may (including health care professionals) still think of it as psychosomatic or "something else" - but I think Dianna's condition has brought it home to many of us! This was good... very good.

My Dad is a doctor who has/had his own practice on chronic fatigue and fibromyalgia, so some of this was familiar to me. Thank you so much for sharing this with us, you truly did your part in helping Dianna (not to mention others)

Thanks so much for the update : Diana and family are in my prayers for a speedy recovery

Thank you for making this. I'm one of those who caught COVID in early 2020 and still have horrible long COVID- not quite bedridden but disabled by it. I'm actually in the RECOVER study you mentioned in the video and am excited to see what comes from it.

I never got fever as a child, and when I became an adult then a mom, I started getting sick but only sometimes. Since I got COVID last Sept 2022, I am sick almost always. I’m like super tired all the time, no matter how much sleep or rest I get. :( Tests are always inconclusive.

Nearly exaxlty 3 years on from catching covid and 2 1/2 of suffering through long covid. The worst isn't whatever is happening inside, it's the opposition you face from people

thank you for making the video (from an MECFS patient who's been sick for 29 years). one thing i want to clarify about PEM. it's not just exhaustion. it's the worsening of disease- so a patient experiences reduction of function (physical and or mental), worse fatigue (and sometimes feel new fatigue sensation), worsening of other symptoms, and maybe onset of new symptoms (pain, orthostatic intolerance, sensitivity to light, sound, etc), sore throat, sinus pain, headache, muscle weakness, etc. the triggers for PEM could be anything that uses energy , or anything that's a stress. physical activity, mental activity (depends on how much concentration is needed), untreated or under-treated pain, sleep deprivation, severe emotions (even positive) in some people could also trigger PEM. the severity and duration of PEM depends on the patient's threshold for PEM and how much they exerted themselves, and for how long. it could take days to weeks to recover, or even years. and it the worsening could also be permanent. notice also the PEM could be delayed (when i push myself I first feel more energy, but later get a crash. if I keep pushing on myself, or if I don't allow myself to rest and don't get enough sleep, then this higher energy continues for a while - maybe weeks or a few months, but then I hit a big crash. I've had a few of these kind of delayed big crashes, and everyone one of them made me permanently worse, like putting me in another worse level of disability). (please don't ever pressure or force any patient into doing too much. you could be causing them permanent disability. even if you see the patient responding to your pressure and becoming more active. this will hit them later). another thing re MECFS, there has been many studies (despite the tiny funding, and some were funded by private donations), but there is also so much prejudice that doctors not only are unaware of it but also don't even want to look or read.

It is so refreshing to see videos like this where you can see people coming together to help others in need. Who knows when something could happen to us and we would want to be helped as well or at least know that others care. Great work with this video👏👏

Thank you so much for giving those of us with long Covid a voice, and educating/ advocating.

I ended up getting covid in January of 2020, I went from rock climbing 5+ days a week(20 hours or more) To not being able to go up more than a half a dozen stair steps without being winded enough to have to sit down. I genuinely don't even remember the following 6 months or so after. I know I wasn't working, But my routine apparently was to sleep 16+ hours a day, get up eat a thing or two. stare at a screen for a while and then go back to sleep. To this day, my lung capacity is probably a little more than half that it was originally. It's shitty but it is what it is, At least I don't need to explain to people any more that I actually do have long-term effects an it wasn't all made up. Hopefully in a few years we will have a pretty solid grasp on what exactly is going on. I hope Dianna get's better soon, she's been a monumental inspiration to more people than she could imagine.

As a Long Covid sufferer, I would like to thank you for this video. Getting awareness out there is a major part of finding potential treatments. One thing that is rarely touched on is the financial strain LC can cause. There is simply very little (if any) help available financially. I filed for social security (remember this is money that I have paid into the system, not a hand out) but was denied because, according to them, Long Covid only limits a persons ability to work in dusty environments....Let that sink in. I am currently back to work, making less than half of what I used to make. I have to call off weeks at a time because I overworked myself a few days before. Before all this, I was preparing to buy a house. That is no longer an option. This is my reality and I don't even have LC as bad as some, such as Dianna, do. I just cannot even imagine the hell they are in, knowing how awful my own little slice is. I just hope, somehow, we can ALL get the help we need. Tell Dianna that she has many people that respect the hell out of her and just pray that she can defeat this!!

I'm afraid "long Covid" has existed for longer than many people think. I got terribly sick with a viral infection of some kind a decade ago. These symptoms that are being described by the generation approximately 10 to 15 years younger than me who are going through this are exactly, and I mean EXACTLY what I experienced for years after becoming ill, obviously not with COVID back then. I did not want to move. I did not want to get out of bed. My head felt like it was in a vise all the time, and could not think, be productive as an electrical engineer at my job, or help to raise my children. I decided that I just wasn't going to let it get the best of me, and I powered through it. I continue to power through it every day, because that is in reality the only thing left I can do. Some days are good, some are just awful. But there was definitely damage done from that viral infection, in much the same way that COVID has impacted many others I'd imagine. My father told me he went through a similar thing in his 40's. Sometimes getting older is just that. You'll never be the same, but you can get through it. Best of luck to her, however I suggest that at some point she make attempts to start doing the same, otherwise depression and other highly degenerative diseases will likely set in for which recovery seems less and less likely. The world is sometimes a cruel place, I know. But I'm not holding out any hope that doctors will ever find a cure for this. Actual damage was done. Repairing that damage takes an enormous amount of physical strength, stamina and determination. But it can be done. I'm proof of that.

Thank you for making this. I've had fibromyalgia for over a decade, so I know just how frustrating doctors can be about nebulous chronic pain and fatigue. The US's medical system is just... so not ready for the wave of chronic illness COVID has created. TBH, I worry a little about whether society will become more accepting and compassionate towards people with chronic conditions like Long COVID or whether it will turn angry and resentful towards all the people who will need care. So it gives me hope to see folks outside chronic illness circles promoting awareness and research.

Im a year into my Long Covid diagnoses and it has DESTROYED the life I used to know! I empathize entirely with anyone else struggling with it, words truly can’t do justice to describe how it feels.

I have been diagnosed as having ME/CFS (prior to COVID) and you have done an excellent job explaning the condition. Thank you!

Long Covid is so scary, I just watched my next door neighbor go from being a middle aged, newlywed, active and healthy looking dude, with a good job making good money, always gardening after work with his Pug “Rocky”…… to never really seeing him outside anymore, he started looking so pale, and his wife took their dog out now. Then one day, my mom came out and the wife went to her, crying, telling her about how he had gotten sick and just never got better, then he felt like he couldn’t breathe and she took him to the ER where he passed…. It was so sad. Now she’s moved out and the house is for sale. 😢 god I hope Dianne gets better soon 🥹

Thank you for this important work, Trace. This is the heart of what it means to be a science communicator.

As someone with CFS, thank you for this vid. I still don't get taken seriously often and it's seriously frustrating, i'm constantly tired and the slighest effort leaves me not only exhausted but in pain as well. I feel like long covid is taken more seriously, and i hope that from long covid research there will come something along for CFS as well. I got CFS after getting mononucleosis in 2015, and i'm still suffering from it.

great video, thanks for the concise summary of what long covid is. I went through LC from spring 2020 to fall 2022, and it was a miserable period of my life. medical gaslighting was a big issue in 2020/21, and LC support groups saved my life

Thank you so much for making a video and spreading awareness about Long Covid. I'm 24 and now on beta blockers twice a day bc my heart rate was racing even laying down. So many times doctors told me it was anxiety, even to the point of admitting me to a psych ward and being frustrated when it didn't work-all because the wouldn't believe the symptoms I was experiencing

Great job Trace! Very enlightening. I feel some of my friends may be suffering from long COVID.

I was sick for yrs w Fibromyalgia before I was diagnosed (by a sharp Reumatoligis). Most doctors, including my own husband, thought it was psychosematic ('All in your head').Your advise was great! I would add, keep seeing different MD's until u find one like mine.😅

It's weird that we develop feelings for someone we only see in KZfaq, but we do. I'm sad she has long covid and I think we really wish her to recover and get well as soon as possible. Please get better!

We just passed the 4 year mark of my son collapsing and then having every symptom Dianna has. His co-morbidity that allowed the virus to run crazy was Hodgkins Lymphoma. He beat that but was in a wheel chair for 6 months. 4 years on, there's still a lot of pain and heat intolerance, but at least he started college. I truly hope Dianna gets better. I loved her videos.

I belong to another group that are severely underdiagnosed in this way. People with autism often deal with chronic exhaustion, and healthcare is *so* bad that our average life expectancy is *12 years* lower than average! And this is in the "developed world". I regularly need doctors and nurses that have no clue what they are doing and I can't tell them they are wrong because I am never believed due to my Autism diagnosis. It is hell when you can't live up to expectations and at the same time get no help.

As someone with ME/CFS, PEM is the worst. I can do something today, won't feel the crash for 2 days, then might have symptoms of that crash for up to or over 3 weeks.

Thank you for such an educational video!!! I've been sick 3 years and my life has been turned upside-down.

I love Dianna and cry when I see her videos. I’m so thankful because she validated me in a very visible way. I fully support donating to her. One of the troubles is that most of us don’t have a Patreon. We’ve lost our bodies, minds, jobs, careers, friends, partners, and homes. It has taken me months to get the social security process started because I can’t move until late in the day. And, it will be years before that gets approved - if I’m lucky.

Even if it is all in your head, it’s not like you can just pray it away. People need to get treatment for mental issues as well. Treatment to get people back to doing what they want to do is critical.

Thank you for doing this video. I have had long Covid for 8 months and I have never been so sick in my life. I have been able to enroll at the UCLA long Covid clinic. They are so over the country.

Thank you for the update. Though not happy news I know all her fans would like to hear SOMETHING once in a while. Please send her our love and support and a big "Get Well Soon" and keep us updated. We appreciate it.

Been dealing with it since 2020, the only relief I get in a flare up, Benadryl and melatonin combo, once a day. It feels like I’m having an allergic reaction until I take the meds, it works too

Love for Diana and for everybody out there suffering. I pray for you all.

This is important information! Thanks for helping to bring awareness to this. I can’t believe so many still believe it’s a conspiracy …

Thank you so much for this video. I have Long COVID from my initial infection in March 2020. You are bringing awareness and attention to this terrible syndrome which may be affecting more than 30% of people infected with the SARS-COV-2 virus. I feel for Dianna. Seeing her suffer the early stages of Long COVID brought back the memories of going through it before they even knew it existed. For 2 years I never knew what the day would allow me to handle. Dianna is still in the very early stages where almost nothing is easy and some things are down right impossible. But it does get better for most people. Some very gradually. Some find a magic bullet that clears up most of the worst symptoms. Unfortunately, what works for one person doesn't always work for another person. The best thing we can all do to help is exactly what you have done, raise awareness! Again thanks!

I have had symptoms of CFS since I was in college but only got diagnosed after I lost my job from burnout and became almost catatonic for 4 months. That was 5 years ago and while I am no longer catatonic, I am still severely fatigued and struggle to be active (as in out of bed, not resting) for more than 3 hours at a time. Research into Long COVID has helped hugely but there is such a big gap between it and other conditions that affect similar numbers of people. The craziest thing is that no one knows what caused my fatigue. Long COVID has a clear trigger event but I never had that. I just slowly became less and less able to do things and pushing through made it worse. I appreciate every video and article that spreads awareness for people like myself and Diana. The more it is talked about, the more funding it is given, the more help people can get.

1. I just was going thru Diana's feed yesterday. 2. I pulled you up, Trace, and wondered when you'd make another video because I miss your content. (3. I also pulled up Lacy Green. So maybe this will be a revival trend of new posts from my old favorites.🤞) I let my phone autoplay some old vids of Diana's and thumbed up all the ones that hadnt already. Best I can do with my budget, a few tenths of a cent and a minute push in the algorithm. You're a wonderful person btw, Trace. Always so deeply caring. Keep that part alive forever, brother. ✌️

Thank you so much for this video, which is an accurate description of long covid and its challenges. My partner has long covid and is on disability, it is devastating.

Really good video. I know people similarly affected by Long COVID and I can't understand how so many people are now so blasé about COVID. A collective, selfish wilful forgetfulness... As you say, just because someone might have had no lasting symptoms the first one, two, even three times they caught COVID, does not mean that they won't possibly be wiped out by the virus given a future mutation. Or that even if they don't have it so bad, and aren't immediately symptomatic, they can still pass it on to someone who becomes significantly ill and gets Long COVID, as happened to my partner at work. I also remember a couple of friends at school, one of whom who had ME so severe she had to be carried between lessons for several weeks before she finally was allowed to stay home sick. ME/CFS and Long COVID research seems similar to research into endometriosis - as it doesn't affect the majority of people with the power to investigate, raise funds and conduct research, or in some cases doesn't affect doctors who then don't take their patients seriously, so it remains underfunded and underscrutinised. This is one of a few important videos on this topic which I hope makes people think again about this condition. Thanks for making it. Like others I'm continuing to keep everything crossed for Dianna and everyone who has ME/CFS and Long COVID. Hopefully we can lay the smackdown on these debilitating illnesses reasonably soon. P.S. - subtitles towards the end should say "fire on all cylinders", not "fight on all cylinders". 🙂

Thank you for speaking up for Dianna and all who are sick with this.

Ableism is a huge issue too. Both external from other people and internal (beaten into your brain by society.)

I hope and pray everyone suffering with long COVID can find a cure that works for them. Ive come across plenty of people who have recovered from it.

I've never watched your videos before today, but I am so glad the algorithm recommended this video. I have suspected ME/CFS, and have for the past 6 years. It has singlehandedly affected every area of my life. I want to thank you from the bottom of my heart for speaking out about this. This was a phenomenal video, incredibly well done. Thank you for using your platform to advocate for those of us living with #longcovid or #mecfs, or both.

I love Dianna and her YT stuff, so when I found out she had long COVID I didn't end my support because she wouldn't be making videos, I added to it to help them get through this... I hope most did...