"Losing" an autism diagnosis

  Рет қаралды 9,610

Center for Autism Research (CAR) Children's Hospital of Philadelphia (CHOP)

Center for Autism Research (CAR) Children's Hospital of Philadelphia (CHOP)

12 жыл бұрын

A study out of the Netherlands found that 26% of a sample of 170 children who were diagnosed with high functioning autism as children no longer met diagnostic criteria in adolescence.

Пікірлер: 67
@alpheusmadsen8485
@alpheusmadsen8485 2 күн бұрын
These past couple of weeks, I have been thinking about the diagnostic criteria of autism that basically says "Does it interfere with the individual's life?" -- with the answer "no" being "then there's no autism". As I have reflected on this, I have concluded that I wouldn't have "had" autism so long as I was in a school (I have a PhD in math), but trying to make my way through employment (as a software engineer) has been a cycle of burnouts, and layoffs, and lengthy unemployments where I *sometimes* did well, but not really -- and up until a few months ago, I wouldn't have had any reason to connect my burnouts and social anxiety with autism, although it's now plain to me what the condition entails. Thus, when I think about this particular study, I cannot help but wonder: (1) How many of these kids who "no longer" had autism, will have it again in the future, when they encounter new stresses? Wouldn't it make sense to keep an eye on them throughout their lives, so that they can be prepared to navigate the adverse effects when they come back? (2) How many of these kids merely learned how to "mask" so that they can fit in? In looking back on my life, I have come to realize that my "burnouts" were most likely "autistic burnouts" -- and I suspect that if I could have learned how to manage my life so I could avoid these burnouts, they wouldn't have happened. (3) How many of these kids were merely "slow developers" rather than autistic, because our school systems are set up to treat every individual as a cog that's supposed to hit every milestone of their lives at the exact same time as every other child, supposing that any child that has delays has some sort of "disorder", rather than promote each child's intellectual growth when they are ready for it?
@trevorlane8123
@trevorlane8123 Жыл бұрын
I’ve never been diagnosed with ASD but i was diagnosed with ADHD and Depression/Anxiety in my 20s. I’ve always wondered what was wrong with me and why my life has been so difficult. Recently I’ve came to realize I may have other neurodiverse attributes that have existed under the radar because of masking behaviors. Everything is beginning to make sense for the first time in my life I feel like I can (at least to myself) explain why I have acted the way I have and made the choices I’ve made. I’ve also v struggled with substance abuse since I was 16 and have used drugs to feel ‘normal’ I believe what society needs is more experts on ASD and the links to ADHD and substance abuse. I wouldn’t be surprised if a majority of addicts were actually neurodiverse and only use drugs to suppress their minds and emotions.
@Ephemeral08
@Ephemeral08 Жыл бұрын
I feel this. Down to the substance abuse. Still drink heavily and smoke a lot of weed just to let me be me and socialize. Been diagnosed three times with ADHD now. Going back on meds for the first time in a decade soon.
@nathandrakeftw381
@nathandrakeftw381 Жыл бұрын
If someone is truly autistic and cant read facial cues and emotions nor can they be able to socialize properly they are not able to hide that. Sounds to me like a different condtion entirely statements like this hurt truly autistic people.
@annealbert9490
@annealbert9490 10 ай бұрын
My son is now addicted to Cannibis and has just been diagnosed ASD …There is a huge connection with addiction
@kugelweg
@kugelweg 4 ай бұрын
There is also a huge connection between emotional problems and mental illness and alcohol and drug issues. Your point is?@@annealbert9490
@RatsPicklesandMusic
@RatsPicklesandMusic 2 жыл бұрын
You can't become non-autistic... You can learn to compensate and avoid issues in so many ways (I'm assuming especially is the IQ is higher to begin with). I'm 29 and still Autistic, even if most people who know me wouldn't know without me telling them. I'm sure if masked well enough and stretched the truth I could easily "fail" an autism assessment today.
@FaeTae2014
@FaeTae2014 Жыл бұрын
Doesn't mean that just because someone gets diagnosed with this illness that the diagnosis is correct. People wrongly believe I have it when the truth is I don't.
@alishbahissan9692
@alishbahissan9692 Жыл бұрын
At what age you starts speech and socialization is normal like everyone
@nathandrakeftw381
@nathandrakeftw381 Жыл бұрын
Goes against what autism is entirely.
@RatsPicklesandMusic
@RatsPicklesandMusic Жыл бұрын
@@nathandrakeftw381 Huh?
@gamer546lg5
@gamer546lg5 Жыл бұрын
The diagnosis is currently ruining my life
@gmlpc7132
@gmlpc7132 Жыл бұрын
What we may be seeing in those cases where someone supposedly "grows out" of autism are problems with the reliability of diagnosis. As autism is a lifelong condition this is impossible so those individuals were either wrongly diagnosed as autistic in the past or wrongly non-diagnosed in the present. It is true that symptoms and difficulties may ease or intensify given life conditions. Some autistic people will become more settled and accepted at school and seem to cope better but then struggle badly in employment. Some may cope better in certain jobs or if they have supportive others around them. However in all these cases of "improvement" the autism is still there, the context has changed.
@magillapole
@magillapole 12 жыл бұрын
This was a nicely delivered summary of a (probably) arcanely-worded scientific study. Thanks for boiling it down for us regular folks.
@luv_bubbles
@luv_bubbles 2 жыл бұрын
NOBODY IS REGULAR NEVER SAY THAT AGAIN and also I have 153 iq so pls don't mess with me also autism diagnosis aren't accurate
@Slipstarroffical
@Slipstarroffical Жыл бұрын
after seeing these goofy ass comments im convinced im not autistic
@Slipstarroffical
@Slipstarroffical Жыл бұрын
i might have been autistic when i was younger but now im just psychotic
@LowlyEidolon
@LowlyEidolon Жыл бұрын
10 years ago. Still somewhat relevant to the modern world
@toreym.6608
@toreym.6608 2 жыл бұрын
Or they were just masking
@nathandrakeftw381
@nathandrakeftw381 Жыл бұрын
Autistic people have a hard time socializing or reading faces. No one that is truely autistic is gonna mask. If you have trouble reading social cues you won't be able to mask. This condition is blatantly overdiagnosed.
@brendansstorytime7552
@brendansstorytime7552 3 жыл бұрын
Thanks for sharing this. Can you please also share the link of this paper/study? I am really interested in this. My three years old was diagnosed with mild Autism last week!
@luv_bubbles
@luv_bubbles 2 жыл бұрын
It might not be accurate and he doesn't deserve to be treated like a monster also he's only 3 so u might wanna hold that thought and he might grow out of it so don't read any stereotypical papers because everyone is different and autism is just a combination of different personality traits
@SmurfQueen279
@SmurfQueen279 Жыл бұрын
How about instead you just love your child instead of taking this as a reason to abuse him. Btw ABA therapy IS abuse and there's no such thing as "mild" autism".
@Slipstarroffical
@Slipstarroffical Жыл бұрын
the autism label probably does more harm to a child than actual autism
@gamer546lg5
@gamer546lg5 10 ай бұрын
Time for you to ruin his childhood, clown 🤡
@zumaone3692
@zumaone3692 Жыл бұрын
I'm 57 and still autistic
@enaharrigan3814
@enaharrigan3814 6 ай бұрын
Is there cure let me know
@Eryniell
@Eryniell 4 ай бұрын
it's interesting this video is from 11 years ago and we are actually seeing alot of what happens after: burnout, extreme burnout from trying hard to fit in and adapt to their surroundings. Their surroundings usually not being aware of it until it's too late, because they have learned to hide their difficulties to not stand out too much in society and to be able to be independent, treated fairly(as much as possible) and to be able to get a job, friends etc. Not saying that every autistic person would go into burnout(i can not know that)...and it's not necessarily connected to it if they have a diagnosis or not. what baffles me, is that we haven't adapted the diagnosis process yet similarly to how we treat some other conditions to match reality more. Yes, behaviour wise autistic people change, they are human, they grow up like everyone else does, everyone changes, everyone matures. Even internally, BUT current diagnostics don't usually take into account autistics internally...it's often based on how they are perceived, which leads to heavy biases in diagnostics, because most autistic behaviours are for one human behaviours, just with some more exxaggerated, but also the environment can perceive autistic behaviour differently. As an extreme example: an abusive parent is probably not going to give the same accounts of a childs behaviour as a healthy parent....but even somewhat healthy parents could be biased towards seeing no faults in their child....or another example the parent might be autistic themselves and not seeing anything wrong with their child (this happens surprisingly often). (of course one would hope a good psychatrist would know how to ask questions the right way, but they might not even be aware of the bias the parent has or any other person they might interview) Then there is also the pathology of autism...autism is diagnosed based on difficulties, even though we know that some of the difficulties can be helped with accommodations (or masked) which would then suddenly influence diagnosis even though the brain wiring is still different? does not really make sense.
@shockthetoast
@shockthetoast Жыл бұрын
And did the study discuss how the qualities associated with those who "outgrew" autism sound a lot like qualities of people who might be quite good at masking...?
@chillingwithchills2769
@chillingwithchills2769 3 жыл бұрын
Legend👍🍻
@blakegarritson1056
@blakegarritson1056 9 ай бұрын
No it means they dont show symptoms... thats a good thing... doesn't mean its gone..
@nathandrakeftw381
@nathandrakeftw381 Жыл бұрын
Well said. One of the things I see on the internet is people on the spectrum can "mask" their autistic traits. This goes against the definition of autism entirely because autistic people have problems recognizing facial expressions, body language, and in some instances have a bizarre way of speaking. Autistic people cannot read other peoples facial expressions or "act" normal because they are autistic! I'm so glad someone is speaking out on the blatant over diagnosis of autism.
@janellejohnson3125
@janellejohnson3125 Жыл бұрын
How does masking go against the definition of autism? Masking is a key factor of the autistic experience and why so many women get misdiagnosed with other disorders and not autism because they learned from such a young age to mimic other people in their facial expressions and body movements and speech patterns. Usually women who get diagnosed later in life are only able to finally get the diagnosis they should have had from childhood when something happens where they can't sustain masking anymore. For me working at home for two years during the pandemic made it extremely stressful to have to mask every day in the office again. I didn't even know how much I was masking before. I don't want to go back to pretending every day. Masking can be very exhausting.
@nathandrakeftw381
@nathandrakeftw381 Жыл бұрын
@@janellejohnson3125 Autism is defined by a inability or trouble with reading social cues and facial expressions. You are clearly not informed on autism at all. Autism cannot be hidden at all there are some people with mild asd traits that are able to somewhat function normally but they still have an small inability or noticeable trouble reading facial expressions. You clearly do not understand asd at all which is what this video is explaining. Maybe read my comment next time before commenting.
@nathandrakeftw381
@nathandrakeftw381 Жыл бұрын
@@janellejohnson3125 Another thing I forgot to mention is how masking goes against autism. Well as I previously said and will go into further depth now is autistic people have trouble with social interactions. For example they will take things very literal and not understand context. Now if someone has trouble with understanding context they wont be able to mimic others. Seems to me you do indeed have a mental health issue but not autism. You can't mimic speech patterns if you have a lot of trouble recognizing facial expressions and have trouble staying on topic. I could explain the cognitive issues that autistic people face on a daily basis but I rather not.
@nathanchisupa3960
@nathanchisupa3960 9 ай бұрын
But isn’t masking in the dsm-5. It’s under autism spectrum disorder. It says some autistic folk mask or camouflage they’re symptoms
@nananana-ph6rj
@nananana-ph6rj 7 ай бұрын
People forget that autism is a DISORDER, if one is no longer DISORDERED, they no longer have autism. Certain neurotypes may increase ones RISK of autism, but autism is not a neurotype, it's a disorder. Autistic people refusing to accept that is probably a side effect of their cognitive rigidity symptom
@amybruscato4619
@amybruscato4619 7 ай бұрын
So it was a misdiagnosis. There are many diagnoses that have similar symptoms as autism.
@amandaweiss9664
@amandaweiss9664 8 ай бұрын
I'm trying to move off the spectrum too
@enaharrigan3814
@enaharrigan3814 11 ай бұрын
Can you outgrow this for life is there a cure
@amberjohnson1082
@amberjohnson1082 2 жыл бұрын
I regret watching this video......this was horrible!
@FaeTae2014
@FaeTae2014 Жыл бұрын
I guess I was wrongly diagnosed with Autism when I was younger. I was too young to understand what was going on as I was told I was only 9 at that time but truth be told I was a very shy girl when I was younger and that was likely why I was wrongly diagnosed and now I'm wrongly labeled as "autistic" which is a straight up insult .. it's an insult to me to be put into that category and it's not true.
@SmurfQueen279
@SmurfQueen279 Жыл бұрын
Autism isn't an insult. Educate yourself about it and GET HELP
@FaeTae2014
@FaeTae2014 Жыл бұрын
@@SmurfQueen279 Yes technically it is an insult because it's a mental illness secondly I don't need help I don't have it .. just annoys me that I'm known as having something I don't have.
@FaeTae2014
@FaeTae2014 Жыл бұрын
@@SmurfQueen279 You are wrong. It's an insult to be known as retarded, also I've done plenty of research about Autism and wasted a lot of time actually and the symptoms don't relate to me.
@Slipstarroffical
@Slipstarroffical Жыл бұрын
i had the exact same experience i was abused for years as a child and i would act out so i was wrongly labeled as autistic. this label is an insult and it keeps me from reaching my goals in life and because of that i abuse substances heavily and have psychotic episodes
@FaeTae2014
@FaeTae2014 Жыл бұрын
@@Slipstarroffical Well I wasn't abused, I just wrongly got diagnosed with it. The problem is I was 9 according to my mom so I can't remember much but she obviously believes the so called medical professional instead of me, I was too young to question why I was there and understand why I was there at a clinic.
@autie_kniggit
@autie_kniggit Жыл бұрын
Wow! This is ridiculous and very insulting to me as an autistic person.
@VivekaAlaya
@VivekaAlaya Жыл бұрын
yeah it denies our strugles just because we don't seem to be suffering enough from the outside
@nathandrakeftw381
@nathandrakeftw381 Жыл бұрын
you clearly take urself too seriously m8 she isnt denying ur struggles maybe watch the video and then comment properly
@kalesmonroe2556
@kalesmonroe2556 11 ай бұрын
Those kids were just brats who finally got into the real world and adapted. You cannot outgrow autism. They just needed to have influence from someone other than their parents.
@alpheusmadsen8485
@alpheusmadsen8485 2 күн бұрын
If they were adolescents, then they would still be under the influence of their parents. When someone blames the kids' behavior on the parents, I always wonder: are *all* the children like that, or only one or two? Because if it's the latter, then it's highly unlikely the behavior is caused or enabled by the parents.
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