Updates on the HEAL Trial and the LE&RN Global Registry for Lymphatic Diseases

  Рет қаралды 3,663

Lymphatic Education & Research Network (LE&RN)

Lymphatic Education & Research Network (LE&RN)

8 ай бұрын

Please take LE&RN's 5 minute survey here:
form.jotform.com/233155796129060
Updates on the HEAL trial and the LE&RN Global Registry for Lymphatic Diseases
Dr. Stanley G. Rockson is the Allan and Tina Neill Professor of Lymphatic Research and Medicine at Stanford University School of Medicine, a LE&RN Comprehensive Center of Excellence. He completed his internship, residency, and fellowship training at Harvard Medical School. Dr. Rockson has been involved in numerous clinical trials researching various aspects of lymphatic disease and is the Editor-in-Chief of Lymphatic Research and Biology, the official journal of LE&RN. Dr. Rockson is a co-founder of LE&RN, works closely with the National Institutes of Health (NIH) to advance the agenda for lymphatic research, and has authored more than 250 publications devoted to various aspects of lymphatic biology and disease, vascular biology, and cardiovascular medicine.
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About Lymphatic Education & Research Network (LE&RN):
LE&RN's mission is to fight lymphatic diseases through education, research, and advocacy. We seek to accelerate the prevention, treatments and cures for lymphedema, lipedema, lymphatic anomalies, and the continuum of lymphatic diseases.
About LE&RN
The Lymphatic Education & Research Network (LE&RN) is an internationally recognized non-profit organization founded in 1998 to fight lymphatic disease (LD) through education, research, and advocacy. Lymphatic diseases include lymphedema (LE), lipedema, and lymphatic anomalies. LE&RN is equally committed to investigating preventive and therapeutic benefits for a broad array of diseases that are impacted by lymphatic function, such as heart disease, obesity, AIDS, Rheumatoid arthritis, diabetes, and cancer metastasis.
To accomplish these goals, LE&RN sponsors research fellowship grants, an international patient registry and biorepository, live-stream symposiums, the peer-reviewed journal Lymphatic Research & Biology, weekly e-newsletters, scholarship grants to lymphedema therapists, conference travel awards to young researchers, and a vibrant website with features such as Ask the Experts, connecting patients with the field’s more renowned practitioners. LE&RN has Chapters and Centers of Excellence globally. In 2016, LE&RN created World Lymphedema Day on March 6th, which was established by unanimous vote of the United States Senate.
Our Values
• Empathetic
• Care-oriented
• Research focused
• Evidenced based
• Community connected
• Restless knowledge seekers
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Пікірлер: 14
@mk4091
@mk4091 8 ай бұрын
Thank you very much!
@poophoemom
@poophoemom 5 ай бұрын
I have leg lymphedema as a result of an ankle injury and medical drug therapy for Pulmonary Hypertension. No treatment or therapy is available in my area. No clinics or specialists in my region will see me as my Lymphedema is NOT a result of cancer. I am beyond frustrated and becoming rather depressed about my future
@paulmcwilliams1709
@paulmcwilliams1709 5 ай бұрын
Believe me I know what you mean. The Doctors who I ask about this disease look at me like, "Don't ask me, I don't know a thing about it"! You would think that if there are 5 Million + in this country with Lymphedema, that there would be more Doctors who would know about this disease. And yes it is frustrating, and depressing.
@kristenmerritt4786
@kristenmerritt4786 4 ай бұрын
I know how incredibly discouraging it can be - I have lower limb lymphedema in my left leg (primary/secondary) and its been a journey, but don't give up hope on yourself and the work these amazing scientists are doing! So many people care to help and heal us, even if so many others don't know about lymphedema. I hope you make some progress in finding treatment - but in the meantime keep wearing those compression socks and I find nightly massage helpful!
@cathyshuback3858
@cathyshuback3858 3 ай бұрын
I am in same therapy. I have a pt person but I think we all need to get one of those scans to see where our blockage is so that we can get better treatment.
@maryeason6908
@maryeason6908 8 ай бұрын
Yes
@lollajvp97
@lollajvp97 7 ай бұрын
How to apply for clinical trial? When the drug will be available ?
@bduncan3827
@bduncan3827 8 ай бұрын
What is the email address Dr. Rockson provided for the expanded trial?
@kristinquangvan9888
@kristinquangvan9888 2 ай бұрын
Did you ever get the answer to this?
@susanblevins127
@susanblevins127 8 ай бұрын
Link to survey?
@LymphaticnetworkOrg
@LymphaticnetworkOrg 8 ай бұрын
form.jotform.com/233155796129060
@grdo2467
@grdo2467 8 ай бұрын
👍
@jozette-pierce
@jozette-pierce 8 ай бұрын
Dr. Is not very loud on youtube. Pls turn up volume.
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