Sir my son have neurofibromatosis patient..plz advised a lab test for diagnose a level plzz help me

Thank You So Much, I was always afraid of this topic and you just made it soo easy to grasp. It would have been great if you added pictures too.

What do you mean by mnemonic? I have Neurofibromatosis type1 and your younger son has some symptoms of Neurofibromatosis type1 had a blood test and it came back negative. He has some café Au lait spots, a few tumors growing on his face and private area and has curvature of the spine. I have had too many medical problems regarding nuerofibromatosis type1. I'm bedridden and immobile. They older I get the worse it gets along with all my other medical disorders that there's no cure for any of them either. I'm disabled senior citizens on a very fixed income. I'm almost 62 and some of my families have passed away from colon cancer and adrenal gland cancer and ovarian cancer. It's easier to spell it those ways. I post these videos almost everyday. Also Jay's biology on nuerofibromatosis type1. It seems like I have ALOT of the medical problems in GARD as well. I appreciate them. They medical industry has no idea what they are doing trying to give me the right medications I need to live a good quality of life left. Neurofibromatosis type1 has effected me from migraines to hammer toe. Its just doesn't stop growing. If the blood test came back negative what other way can they finally give a diagnosis to see if he has it or not? He can't work at all and doesn't receive any income whatsoever either from disability benefits to unemployment benefits whatsoever. He has had curvature of the spine since he was little. I was misdignosed as well as my birth mother stated we had the elephant man's disease until I was pregnant with my 1st born son and the tumors growing everywhere inside and outside of my body. I had 1 tumor removed from my bottom side and we think it grew back and I don't want another surgery unless imperative. I've had 5 botched surgeries. My DNA doesn't respond to majority of most medications EITHER.

I like this!

Kavitha Nagarjunakonda I’m glad this helped you!

Np! Glad it helped.

I am in PURE TORTURE PAIN, PURE TORTURE PAIN, PURE TORTURE PAIN EVERY SINGLE SECOND OF EVERY SINGLE MINUTE OF EVERYDAY LIFE I'M BEING EATING ALIVE RIGHT NOW AND EVERY SINGLE SECOND OF EVERY SINGLE MINUTE OF EVERYDAY LIFE

i would only have added ad age of onset :)

Hola cuántos años tiene tu hermano

How old is he

He was 32, had a facial cheek tumor that got removed ..when he was 10 . We never even thought to check the brain stem . He had leg pain for 2 years. Couldn't work towards the last year . He was in a lot of pain .It was to late to remove the tumor according to drs..in Seattle. So he just suffered alot , my poor little brother .

Sir is it contagious??

Hello sis do your son have nf1 .. because I also have many cafe au lait spots and my one month old son have one spot so will he have nf

Hey, can we talk privately I have type 2.

Mutmainahjiru Laode there is no cure to nf saddly but there are doctors that understand it as well so i would look into finding doctors and there are treatments as well to help

@@Gbeans-rq5st thanks doctor for the information ??? and doctor if I may ask again what things should be avoided so that the lumps cannot spread more??

well they dont spread like crazy and the lumps are not that bad but u can possible talk to doctors about them but u will possible have to deal with them in life

hello please is there any solution to recover from neurofibromatosis?

I have them my Dr . gives me Gabapentin to treat the nerve pain and if need to be removed they do surgery I've had all together 4 surgeries and maybe more to come their is a medication that might shrink their growth of the tumor its called Koselugo I have MRI every 6 months to check the growth of them I hope this helps and prayers for you

If you have NF, you should not have children. I've got two kids & one of them has NF1 which I feel horrible for. I am getting the snip. You must as well. Please do not have any more children if you have NF. Please Do not pass this illness on to anymore children. Please. Don't not make them suffer.

@@MrJamiez So I'm 21 and I have mild NF1. If I decide to have a child in the future and he/she also has NF, is there a chance that it will impact them more severely?

@@itoldyounottotouchit3336 There's a 50/50% chance. One of my kids of has NF. I got a vasectomy to stop having children. Because I don't want to pass NF on to anyone else.

@@pradyutlal first thing I'm sorry that you have both NFs. I'm not a real doctor, it's just a nickname. I could try & help you with info about NF.

Usually they can grow back if you have surgery. Does that answer your question?

Zhaura mojumder hope this message finds you well. Has diet affected your condition, have you felt any change when adjusting your diet ?

@@primitivodominguez4742 Sir, I do not have a diet. But this tumor is growing in my body. I am very worried. Can you help me? I am suffering from depression

@@MedicalMania i have neurofibromatosis.. Does it need to be removed?

Then is it possible to stop fibrosis to form and increase

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