Hello and welcome back to another video (or a big welcome if you're new here!) Today's video is my second for EDS Awareness Month 2021 and I've managed to get some brilliant people on board to talk about their experiences of Ehlers-Danlos Syndrome. So thank you so much to everyone who has taken part in this video, and also thank you to the people who were interested in taking part but unfortunately weren't well enough this time round. In this video, we are focussing on medical professionals who have shown a lack of understanding and/or compassion, and the impact this can have on diagnosis, treatment and support.
I hope hearing all these different stories of the lack of understanding people have faced will be helpful to those who have been through (or are currently going through) something similar. And I hope it will help people who don't have EDS to understand how difficult it can be when medical professionals don't understand or believe in your condition.
Please do let me know if there are any other videos you would like to see me film - whether they're about EDS, another condition or something completely different. There are more videos coming in my EDS Awareness Month 2021 series, so keep your eyes peeled for those. And there will also be a series of Reels on my Instagram about EDS as well.
In this video:
Navy Rainbow Zebra Sweater - Sugarhill Brighton (No longer available)
Where to find support for EDS:
EDS UK - www.ehlers-danlos.org
The Ehlers-Danlos Society - www.ehlers-danlos.com
Hypermobility Syndromes Association - www.hypermobility.org
Where you can find the contributors:
Alexis Instagram - therarewand...
Alexis Blog - therarewanderer.travel.blog
Alyssa - healwithaly...
Andi - / azebrareads
Damita Duplantis - Alaskinsgurl on IG (Couldn't find a link)
Hayley - ze.clay?hl... and / hayleyk.lowery
Jack - / mr.jackcat1
Julia - julia_k_per...
Steph - stephkall?...
Katya - / ekaterinaizlesakoroleva
Maria - / marifermarin20
Marisol - solprni?hl=en
Nandini - nini.ribeir...
Nicolle - nicollewagn...
Paige - / paigeefithian
Onikage - autishblog...
Rachael - / therapissedtm
Previous videos about EDS:
EDS Awareness Month - Making the invisible visible - • EDS Awareness Month - ...
Daily Life with EDS - • Daily life with Ehlers...
What is EDS like on MY body - • What is EDS like on MY...
Diagnosis with Ehlers-Danlos Syndrome - • Diagnosis with Ehlers-...
Letters from someone with EDS - • Letters From Someone W...
EDS Myths and Facts - • Ehlers-Danlos Syndrome...
EDS Awareness Month - Diagnosis and Symptoms - • EDS Awareness Month 20...
EDS Awareness Month - Daily Life, Positives and Negatives - • EDS Awareness Month 20...
Where you can find me:
Blog - www.jaffacat.co.uk
Facebook - Ramblingsofa...
Twitter - @Jennycole04
Instagram - @Jennycole1988
Pinterest - Jennycole44
Google+ - plus.google.com/+JennyColeJaf...
Snapchat - Jennycole44
Anything marked with a * has been sent to me for review purposes, but all opinions are my own and I will only talk about products that I feel fit in with my channel/blog.
Music by Epidemic Sound (www.epidemicsound.com)
I'd love to hear your comments and will reply to as many as I can :)