Oh, I felt the same way until one day I decided to try Twitter and I started noticing Peeples usernames sounded like descriptions of my life. And so I checked their profiles and they were ME/CFS and/or fibromyalgia patients or both. I had been so frightened because nobody understood how bad things were for me physically. It was just me and my little girl. The people that see us at doctor appointments don't see us later when the aftermath from going to that appointment hits Us in the form of p e m. I don't know if there a many people have seen me unable to lift a washcloth to fold it. Or watch me try to figure out a way to brush my hair when my arms keep fatiguing and I have to let them drop. Are they insane falling asleep without even knowing you're tired. And it happens anywhere and everywhere not necessarily in your bed or on the couch. I used to fall asleep when I was taking a sip of coffee, or a bite of food. I'd wake right back up when I felt that hot coffee pouring in my lap and I was choking on the coffee in my mouth from having taken a sip then fallen asleep (I liken it more to "losing consciousness") . But I was terrified because nobody knew how sick I was and I needed help. I needed somebody to know that I've gone missing and needed help if I wasn't heard from. And I just started crying so hard when I saw all of those people on Twitter! It was such a relief to find out that there were other people like me and that they truly understood because they were living with it too. I remember one lady kept telling me that she saw me and everything was okay. that people new about me now and I didn't have to be scared. I was no longer missing. It's hard to talk about and it's making me feel like crying for the blessing of having found those people, even if I can't talk to them more than once every few months because I get too tired. I wasn't scared of dying from getting a pillow stuck on my face that I was too weak to move so I could breathe! Now we see you. You aren't invisible and everybody that reads this in the future will see you too! Hang in there because it looks more more like maybe they'll be a medication that can help with all the new scientific data they're finding from the research! I keep falling asleep typing so I think I'm going to say good night. Hang in there I know I nust repeated that earlier sentence

30+ years progressive degeneration and degenerative disk disease also. Topped with Polycystic kidney disease both...sickle cell trait carrier...multiple food allergies and sensitivities...increased migraine triggers. Took 4 yrs to get disability and sold everything before i lost it. 2000.00 physical testing put me in severe category. Eating better and mostly organic stalled deterioration. Now disability benefits too low to eat well. I don't even have stamina for knitting and crochet as before. Following written patterns impossible now. Living with son until public housing available. Hopefully doc will approve in home health care for chores. I am a #mecfswarrior. Tired of explaining why i can't do this or that... at least i can turn in bed barely get to bathroom room on time. Pace myself and saying no more and more and more. Trying not to hate my life because emotional expressions positive or negative can be exhausting.

I have the same illnesses and I used to wish i had cancer too then at least I would have the chance of being cured. I don’t feel like that now but we defo need more research on this horrendous disease.

seauf I know! It's a documentary. 😞 no "acting" was going on by Omar or Jenn. Just the truth and only the truth. I wanted to chuckle when I saw that! Oh well, Now Omar can put that title behind his name on documents! 😀