Please, share this video with anyone who has a child with AMC (or a similar disability) or who is disabled themselves. I really hope that my experiences could help people become more independent 🤗 thank you for watching!

I've been learning about AMC through AMC Princess Ana's channel, Team AMC Ana. It's good to hear stories like yours and Ana's.

You're incredible. Thank you

Thank you for making this video!

I'm so glad you are sharing your story, you will make a big difference in many lifes. Wishing you and your parents the best blessings :) all the dedication you all had for all those years have paid out :)

Hi Ola! So nice to see you. I'm so impressed with your bravery. Your legs look great. My last surgery was 21 years ago, so things have changed a lot, but I was lucky to have great doctors. Walking is the best exercise, it keeps your muscles and your bones strong and it's never too late to start. Keep up the good work.

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no problem you beautiful and strong girl

My baby also has the same problem of AMC in her lower limbs. Now she is 4 months old. When she was born we didn't know how to deal with the situation. First of all it was very difficult to accept the fact that my baby is born not normal. We live in a small town n doctors out there said it is complicated n it can't be treated here. She has to be taken in a big hospital. But then she had a lot of pain in her lower limbs. It was very difficult to feed her. She used to cry so much even at the time of changing diapers. When we went to hospital for different test people used to ask me whether she wl b able to walk. Or didn't I knew when I was pregnant with her. I think those two questions used to kill me again n again. She was born on 18th of may during tat time there was much fear of covid 19. There was no flights, no trains to take her to a big hospital. Somehow I could manage to have video consultation with a good doctor n he told me to do the baby's exercise. It was only after two months we could meet the doctor. But I don't think he has handled such cases before bt yes he is trying has best n has knowledge of it. When I knew about her after five days of delivery I was shocked coz I never thought the case could b such severe. I didn't talk much or eat properly or even smile n waered thoughts came to me.. Bt as it is said time is the best healer now her treatment has started I m little relaxed. After seeing your video I feel so encouraged n thank you so much for sharing. If there is any suggestions for me please let me know. Coz till now I haven't met the right doctor who has experience in such cases. As looking at your photos my baby also has same pattern as yours bt only her lower limbs are affected. Once again thank you so much for sharing. God bless u.

Hiii

Thank you for sharing your video. My baby also has the same disability as your bt only at her lower limbs. Because of the pandemic her treatment was started when she was two months until we met a doctor after we came to a big hospital. We live in a small town there r no big or good hospitals. Bt my concern is tat the doctor treating my baby don't have much experience in this field. Though he has knowledge it seems it is his first case. I want to go to a specialist bt don't have any idea. I am from India. Your video has given me a new ray of hope n encouraged me so much. If u could guide me further? Where i can take my baby for appropriate treatment?Once again thank you so much for sharing it gives emmence hope to parents like me. God bless you

How do they straighten the arms and legs without cast ?

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Hey! I have AMC! I LOVE to find your Channel! However my AMC affects my arms and hands more than my legs. I can't take my arms Up.

Hi, did you have knee flexion contractures too?