My Experience with Severe C. Difficile Infection| Inflammatory Bowel Disease| Crohn's Disease

  Рет қаралды 12,014

Ira's Crohnie Diaries

Ira's Crohnie Diaries

Жыл бұрын

Sharing my story about a dangerous infection that I battled - C. diff & how I finally overcame it. Check out my Crohn's Disease diagnosis story for more context. Useful resources regarding C. diff are listed below.
www.mayoclinic.org/diseases-c...
www.cdc.gov/cdiff/what-is.htm....
www.ncbi.nlm.nih.gov/pmc/arti...
Contact me: irajewelwellness@gmail.com

Пікірлер: 162
@rnnumi7945
@rnnumi7945 Жыл бұрын
The C-Diff poops are awful. No one understands the urgency until they catch it. Seriously, it is like 10 secs from "the feeling of need" to uncontrollably going. And that's like 20xs a day (if lucky). Great video.
@irascrohniediaries
@irascrohniediaries Жыл бұрын
That’s exactly right! An urgency I’ve never experienced before or after. It is truly awful. Thanks for your comment.
@LISA-iq6xj
@LISA-iq6xj 26 күн бұрын
I JUST found out I have this. My NURSE told me. Not the Doctor. I can't go there right now. The death prayers, pain, humiliation. I'm in a rehab center now. I'm in isolation until 6-14. I feel like my life just flipped and will never be the same.
@JacobAaliyahJordanCasarez
@JacobAaliyahJordanCasarez 4 ай бұрын
I got c diff about a year ago it was recurring,and my stomach has never been the same, i definitely have post infectious ibs now , i changed my diet to whole foods only and it has helped , i ended up having a FMT to clear the recurring c diff infection, but man my body has never been the same , it is a nasty nasty infection that messes you up. I got ulcers in my colon from it and it has been a battle tested year for sure just trying to recover from it still . I was in a bad place mentally also because of it , i am better now , but wouldn't wish this on anyone . Have a great day everyone GOD bless
@thebayareastandout
@thebayareastandout 3 ай бұрын
I have it now and had never heard of it. I did just finish a bottle of prescribed antibiotics recently for something else but I wasn't warned that antibiotics could kill the good bacteria in your gut. I did need those antibiotics though. I had diarrhea where I had to the go to the bathroom about 20 times in a 30 hour period. Now Im just had my first day taking vancomycin. The pain isn't that bad at least yet but too many trips to the bathroom, had a bad headache, and was feeling weak in general and bought a thermometer because I knew something wasn't right and when my temperature was 104 I drove myself to the emergency room and was diagnosed after testing. Those are my symptoms but some way low or high readings of anything associated with iron after having my blood tested
@janycebrown4071
@janycebrown4071 6 ай бұрын
The C Diff spores are almost untreatable! I caught C DIFF in July, 2023. I was in the hospital after blood loss. I haven't taken antibiotics for about 6 years, but I had a compromised system so I caught it! Hand sanitation will alcohol DOSE NOT KILL THE SPORES! You MUST use soap and water! Im am in a 70 day study using Egg Yolk Antibodies! Wish me luck 🙏 ❤
@briardevito1811
@briardevito1811 Күн бұрын
How are you doing now? Did the egg yolk antibiotics work?
@janycebrown4071
@janycebrown4071 Күн бұрын
@@briardevito1811 I am cured from C Diff! Unfortunately it wasn't the the egg yolk antibodies that cured me. Three months ago my doctor put me on antibiotics, and then two weeks later I received an FMT 🌝 And that was what has cured me of C DIFF!
@machelanderson3885
@machelanderson3885 2 ай бұрын
Thank you for your Story. If only more people would share vs. hiding the true fact of something embarrassing as "poop" to talk about. I was diagnosed early this year. I was visiting my mother in a nursing home. Talk about the saying "I brought you in to this world and I can take you out". I'm trying not to be so cold but the pain and hurt is so real. I rather have not known how I contracted the disease. I have just finished on my second round of Vancomycin, and I am 59 years of age. I have two more weeks before I can get into see the Gastroenterology. I'm trying to stay positive but it is becoming difficult. I go into health care and I feel unclean and dirty especially since it came back. One thing that I am trying to do is work on my good gut biome. Probiotics are good and all but focus on more of prebiotics. I have made fermented garlic with honey and Elecampane tea from roots and eat the roots as well. Three times a day, to help promote the good health in the gut. I haven't made the announcement yet of this disease but hope to soon after I see my Doc in gastro. For any updates of my herbal help in healing this horrific disease and other herbals, look me up on FB at Homesteading_for _two also on Instagram. Prayers for continue healing and look forward to following you on your journey as well.
@briardevito1811
@briardevito1811 Күн бұрын
Thank you for the video. I have it now- from antibiotics. I’m so scared. Took Dificid- still feeling pain and in my kidneys too.
@gasconnade9863
@gasconnade9863 6 ай бұрын
thank you for sharing your story. i had c diff for over two years- it must have been off and on, but i had to quit jobs because of it. awful pain.
@briardevito1811
@briardevito1811 Күн бұрын
I’m sorry. What finally cured you. I’ve been off Dificid since Saturday. Today is Tuesday and I already feel like it might be back
@gasconnade9863
@gasconnade9863 13 сағат бұрын
@briardevito1811 I'm sorry that your symptoms aren't subsiding. I don't remember what medication I was on- I can go find the name from the pharmacy if you'd like. I definitely recommend going back to the physician who diagnosed you and seeing if you still have it and their suggested treatment. Treating cdiff sucks and I really wish you luck.
@colleenoaksferrigno
@colleenoaksferrigno 8 ай бұрын
That cdiff pain is like no other. The only way I can describe it is as someone is throwing a 50lb or more medicine ball at your stomach, while your intestines feel like theyre on fire, while a hot knife is searing through said intestines. 1st time I thought was horrid. It wasn't nearly as horrible as the second go-around. I made my peace with God that night in the hospital bed. Unless the docs and nurses could help me, I felt that I might've passed. It took months to get better and as a parting gift I now have IBS and take meds for it. 0 stars. Do not recommend.
@cghrios783
@cghrios783 5 ай бұрын
It sound like a unbeatable experience I’m very sorry. But do you mean that because of this you got ibs? After taking meds for c diff the antibiotics are so harsh on your gut. But most people do not try to populate bacteria. I got it after a salmonella infection.
@colleenoaksferrigno
@colleenoaksferrigno 4 ай бұрын
@cghrios783 I ended up with Post Infectious Irritable Bowel Syndrome. That has calmed down but I still take medicine for it, when needed, a few times a week. I take Bentyl. It works very well for me.
@colleenoaksferrigno
@colleenoaksferrigno 4 ай бұрын
@cghrios783 oh no, salmonella? Do you know how you acquired that? I forgot to add that I was on antibiotics for 20 years without probiotics. My microbiome is compromised at this point but I've made steps to try to improve it.
@kimmiller2156
@kimmiller2156 29 күн бұрын
I 1st got this after a week if ICU for pneumonia from 2 antibodies they gave me horrendous now weeks later I have it again it's one of the worst things ever to have happy healing lovely
@kmaben8985
@kmaben8985 10 күн бұрын
​@@kimmiller2156probiotics. Multi strain probiotics.
@audreystarr6166
@audreystarr6166 4 ай бұрын
Girl not tmi at all. It's a relief to hear u be so open. Thank u. I was just diagnosed 2 days ago. I have ibd, recurring sibo, and autoimmune issues..and have zero care atm besides the urgent care I went to. How do u know when u need to be hospitalized? I'm still running to the toilet at least every hour. 2 days ago it was every 5-10 mins alllllll day and into the next day. I'm on antibiotics for it but it's really really uncomfortable/painful and I'm so swoolen.
@kmaben8985
@kmaben8985 10 күн бұрын
Please get multi strain peobiotics.
@thebigerns
@thebigerns 4 ай бұрын
THANK YOU for making & sharing this video… we all know how hard it is to discuss this stuff and how welcome it is hear an actual human speak from a shared experience instead of just that cold and clinical doctor medical-speak. This disease and its treatment makes me feel so untouchable, so separated from other humans and humanity. It kills my spirit even as its killing my guts. Doctors can't really treat the isolation or shame C.diff produces, or hand out injections of courage when needed… just hearing that I'm not alone is so good right now, when all doctors can offer is medicine… don't get me wrong - love my doctors & care teen BUT they are all on the other side of shared human exprtornce. Thank you, sorry for rambling.
@kristis4147
@kristis4147 4 ай бұрын
My nephew just got diagnosed with this. THA K YOU FOR SHARING YOUR JOURNEY
@anjbum
@anjbum 3 ай бұрын
Ira, thank you so much for sharing this hugely important information!!! I literally got more information watching and listening to you than I did in all my reading. God bless you!
@pinkish6154
@pinkish6154 16 күн бұрын
i’m sick with this rn. on dificid and taking florastor probiotic. i didn’t have any of the tell tale symptoms at all!! for the last 3 months, my docs didn’t even think it was an infection. gastro and primary thought it was IBS or IBD. just constipation, w/ very slimy mucus riddled stools. sometimes i had blood in my stool w/ the infection but wiped a bit of blood before, but w/ this it was more. i couldn’t eat, still can’t or even feel like i want to. and i only ever had a fever once. my doc still wants to do a colonoscopy i think bc the only thing that showed up on a CT scan was inflammation of the lower half of my small bowel. hope i don’t have an underlying IBD but if i do i wanna just go ahead and get treated for that. only thing i’m scared of is reinfection and the recovery seems intimidating 😬 don’t even know how i got it. i’m guessing from food. but no idea still. i took flagyl for BV that was caught from a pap-smear by chance, but i had been having constipation before the antibiotics. which i also never had before, both BV and the antibiotics. but that didn’t cure c diff and now my BV is back. but imma apply flagyl cream now bc the flagyl pill was awful for me, and now i feel like it aggravated the c diff 😭
@jessicakimberly1996
@jessicakimberly1996 5 ай бұрын
Thank you for this. Was just diagnosed with C Diff. Came out of nowhere. We're trying to afford the medication. Wish me luck.
@kindermaus
@kindermaus 4 ай бұрын
@jessicakimberly1996 may you recover completely and quickly return to your normal life
@kayb50
@kayb50 18 күн бұрын
Good RX
@kmaben8985
@kmaben8985 10 күн бұрын
Multi strain, 18 strains at least, of probiotics, restore good bacteria. Oil of oregano helps keep bad bacteria at bay.
@michellemaganamendoza6009
@michellemaganamendoza6009 8 күн бұрын
Thank you for making this video, I am actively in a C diff infection on Vancomycin- thank you for making this video as it gives me hope
@briardevito1811
@briardevito1811 11 сағат бұрын
@@michellemaganamendoza6009 how are doing?
@tarahoude5135
@tarahoude5135 5 ай бұрын
I had c.diff for over 4 years before it was diagnosed. It wasn't for lack of complaining about my symptoms...I was put right on antibiotics. My doctor now has me on 10 weeks of prednisone, in hopes to reduce swelling in my colon from the colitis. I'm still in so much pain. This is a horrible disease!
@erical7131
@erical7131 2 ай бұрын
Prednisone can also make C diff come back. I know out of experience. Have you tried other alternatives like a Turmeric or ginger?
@tarahoude5135
@tarahoude5135 2 ай бұрын
@@erical7131 It did come back, tenfold! It was terrible. I'm positive it's back again. It's wearing me out! I have been drinking turmeric and ginger teas. That's it. I won't see my specialist until September, that's so far out!
@feefee3036
@feefee3036 Ай бұрын
@@erical7131can u explain
@ndidinwanaforo
@ndidinwanaforo 25 күн бұрын
I don’t believe prednisone treats c-diff
@erical7131
@erical7131 11 күн бұрын
Same here, I went a little over 10years undiagnosed. I was sent to psychiatrists, psychologists and told I was a hypochondriac. I was given so many corticosteroids, antibiotics and antihistamines but yet they never tested my stool. I felt horrible for years!
@laniengonzalez3951
@laniengonzalez3951 5 ай бұрын
Thank you for sharing your story. I would first like to say that Im sorry you're going through so much at such a young age. I know your personal experience is going to help so many who are dealing with C.diff. My brother has been in the hospital for a heart attack, caught pneumonia, and now C.diff. I know this video will help him to understand what he will be facing for the years to come. Thank you again for sharing your story. I will keep in you in my prayers
@irascrohniediaries
@irascrohniediaries 5 ай бұрын
I really appreciate that and happy that this can help your brother. I'm sorry to hear that he's going through all of this right now. I'm sending all the love and positivity to you all and hope he feels better soon.
@Pieisyummy999
@Pieisyummy999 6 ай бұрын
The way I wish I could forget my time with cdiff. I ended up having cdiff around 7 different times over 2 years when I was first diagnosed. I kept going in and out of the hospital every month and eventually we learned I have a genetic predisposition to get cdiff 😭 I also did so many treatments, flagyl, vanco, and multiple stool transplants
@pinkpanty10x
@pinkpanty10x 6 ай бұрын
Hi, I have c diff for the 3 time right now. I’m waiting to see a specialist in early January. I read the a fecal transplant costs approximately $9,000 ! Was this your experience??
@Pieisyummy999
@Pieisyummy999 6 ай бұрын
@@pinkpanty10x hey there! I’m so sorry you are dealing with that friend it’s truly the worst. At the time I was lucky enough to be young enough to be covered under my parents insurance and since they both worked for the state I didn’t have to deal with the out of pocket cost. That being said though I think there are some payment options out there (similar to if you have co pay assistance with an infusion medication)
@valeriasamario
@valeriasamario 5 ай бұрын
Thank you so much for making this video! I unfortunately am currently going through my c diff recovery and was starting to get bummed out that I'm still having some pain and discomfort and awful BMs when I'm almost done with my medications. But hearing a human talk about this has really helped me feel more comfortable, that it may last longer than expected. So now I will know what my best next steps are. I hope you're doing great and feeling healthy ❤😊
@irascrohniediaries
@irascrohniediaries 5 ай бұрын
I'm so happy I could help you in some way. It is not easy but I really hope you feel better sooner than later. Yes, I did not know it could come back or last a while either so better to be prepared.
@diegojaviersj
@diegojaviersj 5 ай бұрын
what does BM mean?
@valeriasamario
@valeriasamario 5 ай бұрын
@@diegojaviersj bowel movement
@Mrsbribradley
@Mrsbribradley 5 ай бұрын
I am currently dealing with this right now too after being prescribed with an antibiotic. I just finished vancomycin I thought I was feeling better . But now I don’t have an appetite again 4 days after medication & feeling really tired . Loose stools In thr morning only use the bathroom 1 time a day . I’ve been dealing with this a month lost 10 pounds . It’s so hard
@lucindacarrasco6107
@lucindacarrasco6107 4 ай бұрын
​@Mrsbribradley same thing is happening to me now.Its been 2 weeks since I went back to work .Feeling sick again........
@patriciagulizia3780
@patriciagulizia3780 2 ай бұрын
Thank you so much! Over 65 and on my second round of c-diff. Have been prescribed Dificid so I am hoping for success. Your video has been very informative!!
@joshborja8012
@joshborja8012 Ай бұрын
Did it work. I am on dificid right now. Third day taking it
@patriciagulizia9736
@patriciagulizia9736 Ай бұрын
@@joshborja8012 So far so good!!
@briardevito1811
@briardevito1811 11 сағат бұрын
@@patriciagulizia3780 Did it make it go away for you. I feel like 10 days wasn’t enough
@roxanapal6364
@roxanapal6364 9 ай бұрын
My son still take vanco in descaladation but also jaradiphilus probiotic so i saw great effects ceck that term all will be very happy find new heal.
@charlottehayward5943
@charlottehayward5943 9 ай бұрын
My husband had this. His Dr. Finally put him on Flagyl long term. After 3 months he got over it. It is a probiotic.
@Dwightinho56
@Dwightinho56 7 ай бұрын
Flagyl is not probiotic but an antibiotic.
@nancyp4337
@nancyp4337 11 ай бұрын
Thank you so much for sharing your story. I went undiagnosed with CDiff for almost 10 months!! My final trip to the ER I was almost delirious, dehydrated, swollen and sore. A wonderful doctor finally figured out what was wrong with me. I just finished a 2 week course of Vancomycin and am waiting to see how I get along. I also got a related arthritis that CDiff triggers. Did you experience that as well?
@jenniferlloyd9574
@jenniferlloyd9574 7 ай бұрын
Undiagnosed for 10 months?! I'm so sorry... Were you having chronic diarrhea the entire time??
@nancyp4337
@nancyp4337 7 ай бұрын
@@jenniferlloyd9574 pretty much the whole time. At the end i was losing 6-7 pounds a week. I just found out I have colitis, maybe from the cdiff.
@Dwightinho56
@Dwightinho56 7 ай бұрын
Me too!! I am still not 100% over it but much better after I did an FMT (fekal microb. transplant) in June, and I’m slowly but surely getting there🤗. The arthritis connection you mention is very interesting🤔. After the C diff I have had a sudden problem with all joints. At once🤣. It is very weird. Do you know any more about this?
@MrDerekRobinson
@MrDerekRobinson 5 ай бұрын
It's a really great possibility that you could have caught c diff from the daycare. Its very common in children overwhelmingly. How can it be determined that you definitely didn't get it from daycare? My daughter had it alot in daycare and it's contagious amongst children but it's typically mild cases
@nathanharper3896
@nathanharper3896 3 ай бұрын
I have it now, was diagnosed a week ago, waiting for the robotic surgery.
@sonestia777
@sonestia777 10 ай бұрын
I’m going on 6 months, I’ve had Vanco 4x and Dificid once. It’s the dehydration that I’m struggling with now I’m trying to handle myself because I’m a hard stick and it’s hard to get IVs in me so I don’t want to be a pin cushion in the ER for iv fluids.
@aliarose2090
@aliarose2090 19 күн бұрын
I have health anxiety (hence why i am watching this video...because I think I have everything lol)...but I admire your courage. How are you strong through all this pain?
@jcdanforth
@jcdanforth 5 ай бұрын
I have this now. I super frustrated. I’m 52. Took no antibiotic to get it. But I was in a hospital for weeks with my mom and my dad lives in assisted living. I don’t know how this happened. I am on 3rd round of medication vancomycin. The dificid is 4000$. They want me to see GI on Feb 14th. I guess next would be stool sample. But I went to hospital twice when I thought it was gone due to heart rate and headache. My wbc is fine. Everything fine. But I have slight inflammation. This started last October. 😢
@everichards8480
@everichards8480 11 ай бұрын
So I currently am dealing With a recurrent C Diff, they have me on vancomycin again and like you said it’s strong! & I feel the side effects. I’m currently trying to find a probiotic to take to help or just some type of natural remedies if they exist… Crazy thing is I have no idea how I caught it either…I’m only 33 but I did recently have a baby and a c section but I caught The c diff months after giving birth I’m glad I found this video though because now I know I’m not the only “young” person who caught this. 😅
@irascrohniediaries
@irascrohniediaries 11 ай бұрын
Thank you for sharing! Wow that is so strange as to how you contracted it. My dr at the time recommended Florastor which is what I took. I really hope you can get rid of it once and for all. I know how draining it can be especially with a new baby.
@doeidaho2101
@doeidaho2101 11 ай бұрын
Eat Greek yogurt daily. Fage plain since it is full of good bacteria . Do not eat sugar unless it is in fruit. Try to eat Keto until you get your strength back. Add fruit & whole grain toast to that so you don’t drop too much weight. I lost weight with C-diff. So sick I didn’t want to eat.
@Dwightinho56
@Dwightinho56 7 ай бұрын
A strong probiotic on prescription (in my country anyway🇳🇴) is something called Precosa 250 mg. Also goes under it’s real name Saccharomyces Boulardii. It has helped me a lot, especially if I have had to be on antibiotics again and presumably would be an easy target for a recurrence episode with C. diff. I used to have no faith in stuff like this, but for me they have worked wonders. Here they are a bit expensive though.
@DRSRPrime
@DRSRPrime 6 ай бұрын
I’m 33 as well and idk how in the world I got this! lol. Not on any antibiotics. I do work at a hospital but I work with ppl who want to donate blood , not with patients…so maybe somebody had it and I got it from whatever surface. It’s been 2 weeks now! I’m taking vancomycin hydrochloride right now
@renaew7181
@renaew7181 2 ай бұрын
I caught c-diff after having a c-section last year. My symptoms started 1 week after the c-section.
@christyboyd1432
@christyboyd1432 6 ай бұрын
Just found out today that I have c-diff. Only found out today after messaging my dr to look at my test results that I had to have done last week. Of course I have some questions? Messaged the dr and waiting on a reply! Maybe you can help til I hear back from her. I have no clue how I got it! No clue if it’s contagious! I really need to know whether or not it’s contagious..if I need to stay away from my grandkids til it’s took care of? Would you happen to know?!? Thank you so much
@Goku_MuiThaGoat1
@Goku_MuiThaGoat1 7 ай бұрын
I am currently with c.diff entering month 7 😢 after IV antibiotic for appendicitis for 5 days. Failed vanco x1 , dificid x2 now on vanco taper but i can feel that i failed..... struggling with cleaming too much
@bonchauvin5744
@bonchauvin5744 Ай бұрын
I am 73. I keep getting c diff from antibiotics. I’ve been sick again and suspect I have it again. So so sick, it’s horrible. Chills, body aches, stomach cramp, diarreah, I feel like I’m going downhill. Did you get really sick in general from c diff. Extreme body aches, very sick digestive stuff, chills, headache, etc? I’m scared I’ll never get better..bon
@erickiabartee6898
@erickiabartee6898 9 ай бұрын
I also had C_difff in 2016 I had it for 3 weeks before I went to the hospital I could not eat or drink anything. And to make matters worse I have cerebral palsy and if you think having having diarrhea is a cakewalk compared to c-diff with cerebral palsy
@user-gw6vg7gw4t
@user-gw6vg7gw4t 8 ай бұрын
My daughter just was released from the Hospital from having Sea Diff. She was very sick. Thank you for your video it was very helpful to fully understand this awful infection she was battling. It has been two weeks since she was released. My question is how long will you be contagious?
@jenniferlloyd9574
@jenniferlloyd9574 7 ай бұрын
You shouldn't be contagious after completing treatment provided the final tests are negative. Spores can live five months to years! I read that a 9:1 water/bleach solution is the only thing that kills the spores. You have to throw out blankets, clothes, underwear, etc.
@Dwightinho56
@Dwightinho56 7 ай бұрын
If she has been on antibiotics and they have released her, she is not contageous anymore. If there will be a recurrence she will be contageous again. It is a hard bacteria and infection to get rid of.
@TheBiancalov
@TheBiancalov Жыл бұрын
Oh yea..I did 10 days of vancomycin, doctor wants me to retest in a week..but my stool is still mucus like and green..yuck sorry guys 😔. I have diarrhea every other day. Constipated others..I've shed so many tears over this crap girl 😭
@irascrohniediaries
@irascrohniediaries Жыл бұрын
I know exactly what you're going through. Vancomycin is rough. I'm so sorry this is happening to you ☹ Hoping you find relief soon.
@doeidaho2101
@doeidaho2101 Жыл бұрын
I had c-diff 5 yrs ago after surgery. My doctor put me on a strong dose of vancomycin which didn’t help. She doubled the dose & then tapered me off gradually. In the meantime I washed everything in my home with a solution of bleach water. For the many bowel movements my doctor said to take Peptole Bismol, tablets, six at a time so I could leave my home to keep appointment’s & buy groceries. It worked. After almost a year of tryouts get rid of it, I am free. Spores stick around so really important to wash everything with bleach that you touch so it doesn’t come back. Terrible infection to say the least. Wish anyone who has it a safe recovery because it can be fatal.
@irascrohniediaries
@irascrohniediaries 11 ай бұрын
@@doeidaho2101 Thank you for sharing your story! Wow I am so happy you were able to overcome c-diff. It is an uphill battle for sure & thanks for the tips!
@AntiOTRS
@AntiOTRS 6 ай бұрын
@thebiancalov did you get rid of it?
@TheBiancalov
@TheBiancalov 6 ай бұрын
@@AntiOTRS yes I did. Vancomycin helped and cleaning with bleach solution in bathroom
@diegojaviersj
@diegojaviersj 5 ай бұрын
For anyone with immune system compromised, how can you take antibiotics and be sure not to catch (activate this)? what can be done to prevent this when you are sure you need to take a course of antibiotics? And why would have been the reason why you got it (I know you said Antibiotics, but were you prone to other diseases)?
@NickGelo
@NickGelo 9 ай бұрын
currently battling recurrent cdiff... went about 6 months undiagnosed and then finally got a stool test from my GI doctor. (Not her fault that I didn't get one. This was the first time I had ever saw her and I didn't have watery stools luckily so it wasn't really thought to be c diff. Nor had I had a history of Antibiotics) I failed Vanco, then Dificid, and am currently on a 25 day Dificid taper right now. Hoping for the best but this SUCKS. FMT is the next step if this fails. My symptoms before treatment were light stomach pains, EXTREME fatigue, night sweats, elevated heart rate and Anxiety. I never really under stood the gut brain connection until I had this infection, My mental health has never been worse....
@jenniferlloyd9574
@jenniferlloyd9574 7 ай бұрын
How is your C Diff??
@Dwightinho56
@Dwightinho56 7 ай бұрын
I did FMT in June this year and it’s the best thing I could have done for the damage C. Diff did to my intestines. It sounds gross but actually isn’t. It’s just like another coloscopy and you don’t see or smell a thing. It is done very proffessionally. The donors are thorougly screened for every possible thing and the Transplants are delivered by a company dealing only with this kind of treatment. Officially registered for safety. The whole procedure takes less than 15 min. It’s the prepping the day and night before that takes time and pain😬🫣.
@NickGelo
@NickGelo 7 ай бұрын
@@jenniferlloyd9574 seems to be better a month out from the taper! Only time will tell now…
@NickGelo
@NickGelo 7 ай бұрын
@@jenniferlloyd9574 I was honestly hoping for it… if the taper I was on failed that was the next step but I seem to be doing okay after the taper!
@irascrohniediaries
@irascrohniediaries 5 ай бұрын
I'm so sorry you're going through this. The fatigue makes it impossible to carry on but if you get a chance please update me on how you're doing.
@JoshuaHampton-yt4sz
@JoshuaHampton-yt4sz 6 ай бұрын
I have ulcerative coltis and pancreatitis and chrons and cdiff and it sucks
@Roshe73
@Roshe73 11 ай бұрын
I have had c diff for over 3 months since the previous doctor put me on Pylera which was too strong for my body. I had vancomycin for 10 days after 2 weeks the diarrhoea started again. I am going back to the doctor tomorrow. I am getting fed up of the toilet and used over 6 packs of 10 of toilet paper 🙈 I had so many tests it’s so frustrating and exhausting. I’m tired so hopefully tomorrow I get some solution. I lost over 5 kgs and had zero appetite. Yes water diarrhea over 10 times a day lost count, no sleep fever and they did not tell me that recurrence can happen🥹 yes weak immune system. I had to pay for vancomycin as it’s not covered by insurance. The doctor might want me to get a colonoscopy. He might put me back on vancomycin again not sure 🤔 thanks for this video 🥰 it’s is a miserable experience as it affects your life and well being.
@irascrohniediaries
@irascrohniediaries 11 ай бұрын
I'm so sorry you are going through this! It takes so much out of you, I understand your pain 😟Yes all of the testing is exhausting on it's own. I really hope you get some relief soon. Thank you for sharing.
@jenniferlloyd9574
@jenniferlloyd9574 7 ай бұрын
Google the protocol for cleaning with bleach. One guy threw out all his bedding, blankets, clothes, towels, etc... Those spores can survive for months to years and bleach in water I'd the only thing that works.
@AntiOTRS
@AntiOTRS 6 ай бұрын
How are you now?
@mattmatthew2440
@mattmatthew2440 6 ай бұрын
C diff is awful,i have crohns and had to get a colectomy,i caught it after i went in for a colonoscopy and it keeps coming back every three weeks after taking vanomycin,ive tried dificid,as well but its expensive,im getting sick of this awful bacteria,has anyone had success with florastor?
@sheneathahollowell2750
@sheneathahollowell2750 8 ай бұрын
Man it’s so rough .
@tashieslots4379
@tashieslots4379 Жыл бұрын
Thank you for this informative video and your soothing manner of speaking. I was wondering if C-Diff is ever spread by workers in restaurants? I'm familiar with the antibiotic factor, but wondering how else you can get ill from it. TFS
@TheBiancalov
@TheBiancalov Жыл бұрын
My gastroenterologist told me I could have gotten it from meat. Chicken possibly. Alot of meat have antibiotics in it. I now only buy organic antibiotic free chicken with no hormones...vegan life sound real good right now. 😭. Pa I didn't get it from any meds I don't know how j got this
@irascrohniediaries
@irascrohniediaries 11 ай бұрын
Thank you for your comment! In theory, it could certainly spread that way if someone hasn't properly washed their hands who is infected. It can also live on the skin and be spread that way. That's from my basic research.
@Dwightinho56
@Dwightinho56 7 ай бұрын
I got my infection from my hospital stay. It is a verrrry well known bacteria in hospitals, senior citizen homes etc. but anyone can get it anywhere as it is extremely contageous and survive on surfaces for at least a month. Regular cleaning procedures do not work on this bacteria. Pure Chlorine was the advice given to me. Patients infected with C. Diff should always be isolated in hospital environments. C. Diff can kill you depending on the Toxin you are contaminated with. But you can also be a carrier of this bacteria, and when your immune defense is lowered due to other causes you will get an infection out of nowhere. Most common cause is antibiotic cures that not only cures a bad bacteria but wipe out all of them. That’s when the evil/bad bacteria like C. Diff takes over extremely fast.
@cghrios783
@cghrios783 7 ай бұрын
Thank you so much for your story. I wanted to ask I if I may a coupling questions. Is it true that the smell is very different? After you took flagyl and it did not cure you, was it as bad as when you first got c diff? How were your symptoms or chrons after this c diff infection? Do you know of any cure of chrons with the 💩 transplant? Thanks so much.
@irascrohniediaries
@irascrohniediaries 5 ай бұрын
Hi! Yes, the smell is distinct to say the least, it is very different. I will say the initial onset of c-diff was the worst and when it came back later no it did not send me to hospital like the first time but was still bad. Once I got on medication (remicade) at the time my crohn's symptoms were relieved for a while. As of right now, no there is no cure for Crohn's. I hope you are well!
@cghrios783
@cghrios783 5 ай бұрын
@@irascrohniediaries thank you fir replying. You got chrons before the infection then? Do you know how your diagnosis of chrons came about?
@amg4897
@amg4897 2 ай бұрын
I have Ulcerative colitis, and now I have cdiff, I have been on meds for 11days now, I’m afraid it’s not working but I have 4 days left
@brendand8794
@brendand8794 2 ай бұрын
I've done Vanco and Dificid, both didn't work, im very worried at what to do next. The doctor wants to try Vanco taper but Im afraid it wont work. I just rather go straight to FMT
@kimthompson6029
@kimthompson6029 2 ай бұрын
My husband got c diff after his kidney transplant 😢 it was horrible!
@DRSRPrime
@DRSRPrime 6 ай бұрын
Question: how does this work with going back into work?? Did you have to stay out or could you go back?
@DRSRPrime
@DRSRPrime 6 ай бұрын
Only symptoms I have are a little stomach ache when I need the bathroom but after I go it goes away. No fatigue or fever or chills…
@flowerflower3398
@flowerflower3398 9 ай бұрын
Did you consider fmt !!
@aboutsummermsw
@aboutsummermsw 7 ай бұрын
What was the medicine you said worked best? Difficit? I couldn't understand.
@Mr5thWave
@Mr5thWave 2 ай бұрын
Dificid.
@alanzapotocky4607
@alanzapotocky4607 3 ай бұрын
Sorry about Ibd and cdiff diagnosis I’ve been in some boat since 2019 chrohns disease sucks, constant fatigue, diarrhea, fistula four of them, iron deficient and recently the current naturalopath im seeing determined that I have an infection raging in my intestines and butthole long sorry story short the herbal cocktail and charcoal protocol doesn’t seem too be working yet so in 2 months time it might be back too the drawing board.
@brandileigh_thepoet
@brandileigh_thepoet 6 ай бұрын
Dificid is over $4000 without insurance. I just finished mine yesterday. I'm unsure if I'm well or not. I'm passing a lot of old blood.
@joshborja8012
@joshborja8012 Ай бұрын
How are you doing. I am on dificid right now
@brandileigh_thepoet
@brandileigh_thepoet Ай бұрын
@@joshborja8012 I’m doing much better now but it was about 6 months of hell. I hope you feel better soon!
@allisonerickson3598
@allisonerickson3598 9 ай бұрын
I’ve been defeated for two years I still cannot get my doctors to help me 😢
@jenniferlloyd9574
@jenniferlloyd9574 7 ай бұрын
What's going on with your two year C Diff journey??? Doctors won't help???
@angelaprice3435
@angelaprice3435 4 ай бұрын
Mine was the worst got it in the hospital. I have IBS I stayed on probiotics for the longest time up until a year ago. I recently went to the er for a uti and kidneys. The minute they mentioned antibiotics my mind went back to probiotics. I'm taking these along with the antibiotics. Get to a gastrologist.
@debramartin9396
@debramartin9396 6 ай бұрын
I have cdiff and sepsis. The stool tests are not accurate at all.
@BigDro1323
@BigDro1323 4 ай бұрын
I was just diagnosed today after dealing with what seems to be mild symptoms since December. Bubble guts, the diarrhea 2 to 3 times a day. I’m actually going to pick up my prescription of vancomycin. Any advice? My diagnosis came after taking clindamycin or however ya spell it as well.
@tarieC7
@tarieC7 4 ай бұрын
This is exactly what happened to me. I took clindamycin and now I have this just started vancomycin. How are you feeling now
@user-zx8zf7bn6x
@user-zx8zf7bn6x 3 ай бұрын
Same happened to me, how are you feeling now?
@user-zx8zf7bn6x
@user-zx8zf7bn6x 3 ай бұрын
​@tarieC7 how are u feeling now?
@tarieC7
@tarieC7 3 ай бұрын
@@user-zx8zf7bn6xI feel better now, I took vancomycin and florastor probiotic, drank kombucha and ate kimchi, just did all I could to get some bacteria in my gut. You will get through it
@smarstudyclasses
@smarstudyclasses 12 сағат бұрын
Aap ne kon si medicine use Kari thi medicine name please
@lindaschuknecht2063
@lindaschuknecht2063 11 ай бұрын
My son is going through this right now...Flagyl, Vanco taper, then a long Vanco taper and now just starting Dificid. How long was your treatment with Dificid?
@irascrohniediaries
@irascrohniediaries 9 ай бұрын
Thanks for sharing, I hope your son begins to feel better. I was only on dificid for a short time I don’t remember exactly. But nothing compared to how long I took Vanco
@id6673
@id6673 2 ай бұрын
If one family member has it does that mean health family members living with them can also get it or do they have to be immuno compromised to get infected?
@jah0524
@jah0524 Ай бұрын
Thank you for this video. It was very informative. Just one bit of criticism... It's hard for me to hear your soft voice over the music. The music is competing with you, and I don't think it's necessary.
@TheBiancalov
@TheBiancalov Жыл бұрын
Currently on month two of dealing with c difficile. I have no idea how I caught this. I haven't taken any antibiotics in years..my 4 year old niece came home with a stomach flu.. diarrhea vomiting the whole family.. everyone recovered but me. Did you experience any pain under your ribs. What was your diet like. Could you eat cereal etc.. also do you recall the probiotics you used..I'm taking saccharomyces boulardi. And floraster
@irascrohniediaries
@irascrohniediaries Жыл бұрын
I was advised to take florastor also. I had no appetite for months, I was put on a soft diet and ate bland foods that were easy to digest like white rice, baked chicken. I could not tolerate cereal at the time. Keep me posted on how you are doing in the future. Hopefully you can get rid of this sooner than I did. ❤
@everichards8480
@everichards8480 11 ай бұрын
So I currently am dealing With a recurrent C Diff, they have me on vancomycin again and like you said it’s strong! & I feel the side effects. I’m currently trying to find a probiotic to take to help or just some type of natural remedies if they exist… Crazy thing is I have no idea how I caught it either…I’m only 33 but I did recently have a baby and a c section but I caught The c diff months after pregnancy. I’m glad I found this video though because now I know I’m not the only “young” person who caught this. 😅
@TheBiancalov
@TheBiancalov 11 ай бұрын
@@everichards8480 🤗 I believe it is the food smh. I take saccharomyces boulardi or floraster.. dairy free yogurt. And manuka honey from the health food store. I sprinkle tumeric on everything I eat
@everichards8480
@everichards8480 11 ай бұрын
@@TheBiancalovI definitely can believe that! So crazy…& I love turmeric I put it on everything as well hehe I haven’t tried the Manuka honey I’ll have to pick up some! Thank you for the response
@charlottehayward5943
@charlottehayward5943 9 ай бұрын
It is highly contagious.
@unstarsam5163
@unstarsam5163 6 ай бұрын
A lot of people get better with meat only diet
@lovelysosweet8386
@lovelysosweet8386 10 ай бұрын
Omg i hope I don’t get it again!
@auntieanna
@auntieanna 3 ай бұрын
High dose Saccromyces Boulardi!!!
@westonhuffman7908
@westonhuffman7908 5 ай бұрын
Well, I wanna get a fecal transplant.
@tommysherman7155
@tommysherman7155 3 ай бұрын
You was losing weight looks like you could do with another bout of c.diff
@user-zx8zf7bn6x
@user-zx8zf7bn6x 3 ай бұрын
If u have nothing nice to say keep your horrible mouth shut
C. difficile Infection in the Older Adult
43:50
Gerontological Society of America
Рет қаралды 21 М.
터키아이스크림🇹🇷🍦Turkish ice cream #funny #shorts
00:26
Byungari 병아리언니
Рет қаралды 28 МЛН
Understanding Clostridium Difficile Infection (C. Diff)
6:18
Zero To Finals
Рет қаралды 20 М.
My Diagnosis Story: Crohn's Disease
14:01
Ira's Crohnie Diaries
Рет қаралды 31 М.
MY GUT HEALTH STORY | Post-Infectious IBS & C. difficile
13:46
Meghan Livingstone
Рет қаралды 76 М.
Clostridium difficile: Infection, Impact and Intervention by Michael Miller, PhD
38:33
American Society for Microbiology
Рет қаралды 65 М.
Living With Crohns Disease | My Experience After 4 Years
12:17
I have Crohn's Disease
10:30
Jeff Geerling
Рет қаралды 62 М.
New Clostridioides difficile (C. diff) treatment guidelines made easy!
15:16
Esmeralda's Crohn's Disease and Ulcerative Colitis Story
5:08
SaintAlsHealth
Рет қаралды 2,6 М.
터키아이스크림🇹🇷🍦Turkish ice cream #funny #shorts
00:26
Byungari 병아리언니
Рет қаралды 28 МЛН