Hi, I just started a Discord for AIS individuals and allies. Here you can connect with others, ask questions or just hang out. discord.gg/MhHUpqj5wn

I’m 64. I’ve only recently learned of this and similar conditions. I don’t understand why we are not taught or even made aware that people are born with an intersex condition. I’ve looked into intersex over the past few months and I am blown away that it as taken 64 years of living to learn about this. This is a natural state in human development. Shameful education system. Beautiful people. God bless all of you who have the courage to speak about your personal experiences. Thank you.

I'm here after the Olympics controversy and I think alot of people are very ignorant on this topic . It's great you Shared your story .

I do not see why anyone would have a problem with an Intersex person? You are unique, beautiful and smart. You video was very enlightening. Thanks!

Knowledge is power. Thanks for adding to our knowledge.

Your video is a compassionate effort for those with AIS and for those who want to be informed and supportive. Thank you.

Happy you've talked about this, I had no idea about any of it but now I do and understand it a bit better. As always you're awesome! Thanks for sharing.

Sara, what a beautiful gesture on your part, Your personal life, many other dont have the courage to be taking the time to inform us of something so important, this what I call utilizing the internet to a great piece of information!!! THANK YOU !! Today I learn something...

So brave Sara

I’m also intersex! I have PAIS but have a typical female phenotype. I’m also tall at 6’0” so I feel you! You’re so pretty btw! Glad to see another intersex female talking about this topic:)

You are lovely Sara... I love your confidence and willingness to share your story to help others with their journey or to understand.

Thank you so much for sharing your story! I am also studying medicine, and when I am studying I like to watch KZfaq videos of individuals sharing their personal story so that I can get an understanding of the condition from the patient's perspective. You did such an amazing job at explaining the condition and sharing your personal experience with it. I love that you are helping spread awareness of androgen insensitivity syndrome so that people can understand that being intersex nothing more than a natural variance on the spectrum of human bodies. Wishing you the best!

Watching your video I had one thought going through my brain, "Oh look! Someone like me!" The big difference is that you are so young and I am so old. And I grew up in a time when these kinds of things were kept very quiet. Very hush hush especially if you were to grow up in a religious family like I was. Many years ago, I founded and ran a transgender support group for eleven years before I retired, even though I knew that doing so would cause people to improperly categorize me into that community. I never minded that because I knew who and what I am. Like you, I have no body hair, no body odor, gonads that were removed because they were supposedly "precancerous"....... Today, I identify as an Asexual, Demisexual, Androgyne. I am the "other" sex/gender. :-)

you are so calm, brave and grounded. All the best for your future!

I'm so glad you are sharing your story online❤️❤️❤️

Well said, Sara! I also hope the unnecessary surgeries are stopped as soon as possible; your body has amazing traits that I am very jealous of. Infertility wouldn't be an issue for me and if anything, it simplifies life considerably. Like you hinted, the future is brining options to infertile people of all kinds... Thank you so much for your story - have a great life!

You have talked about it on stream Sara but this video is really great and help us understand

I am currently undergoing surgery for the removal of my internal underdeveloped testes for AIS. I also have true hermaphrodite which mean I have both female and male part. I was supposed have been born a female, I am genetically female. I have never met another intersex girl other than the PCP I used to have at UCLA who had intersex experience; we would very close before her departure. I am having mixed of emotions of scare, anxiety and it is so not easy but I do have some supportive people. Thank you for sharing the video!

Thank you for sharing Sara! I am in medical school and your story helps me to understand this condition and hopefully will help me if I every encounter a patient with this condition.

Never heard of this syndrome. Thanks for the education.

Thank you for sharing your story and teaching us about Adrogen insensitivity syndrome 😀😃

Thank you for sharing your story with a smile and great confidence! It's a breath of fresh air!. Also, you explain your situation very well!

So educational. Thank you for making this video. I think it may help many others

You are perfect just as you are.

Very informative! You’re a beautiful person, your eyes are amazing! Keep up the good work!

I’ve always wondered about all the things you addressed in this video but you answered a lot of my questions! I learned a lot of new things. :) thanks for sharing your experiences!

Thanks for sharing this story. My daughter has been diagnosed at 13 years old and it's been really scary for us.

Thanks for the sharing and the education 💗 you a champ gurl!

You have found positive awareness. And that is so wonderful. Truly lovely person.

Sara, good for you.you are strong and brave ! Your message will be a flicker of hope for someone else Out in KZfaq land. I learned a lot and I thank you for your courage.

Great that you can share your story. I hope you go from strength to strength.

Thank you for bravely sharing your story! This was very educational and I'm thankful I had the opportunity to watch. 👍

Knowledge is definitely power. Thank you for sharing your story.

I just came across your video. I am an older woman, and I am also intersex, like you, I have no body hair, but still have all my hair on my head, and I also have no body oder, my sweat does have no smell, and I never had a pimple in my face ever. But I am not AIS. I don't know exactly what I have, the closest is the De la Chapelle Syndrom with no SRY gene (which made my body develop more towards female), and I have hypogonadism, which means, my body makes no testosterone and no estrogen either, and that caused me to grow to 6' 1" (I have a girlfriend, she has CAIS, and is 6' 5" tall). And my height is my problem, De la Chapelle Persons are relatively short, and I am way to tall for this. But living in the US as an older person, nobody will pay for any more detailed testing if the condition will not cause health problems. Oh, by the way, I am also a medical person (PhD Biomedical sciences), and I am my own biggest research project, I am still discovering more genetic mutations, with my body. You are lucky to be living in a country that takes care of citizens who do not fall into a general scheme. and adoption is a wonderful thing, I adopted my daughter, who is now adult, but she is still the sunshine of my life! Good luck for your life and future!

Thank you for sharing this! Very interesting to learn something about AIS. I am curious about your next videos :)

I would have thought the no body hair by 11 or 12 would have been a clue that something wasn't quite right. Glad you finally got diagnosed. Glad to hear you became a doctor yourself. You will become well known in this field.

Thank you very much for this informative message. Don't worry you are fine just the way you are. Don't ever change what makes you, you !. Take care.....all the best 👍

Thanks for sharing. You have great courage and great you are helping others as well. Wish you all the best.

Thank you. for sharing your life story. I too have another intersex type body development. Mine is related to early fetal gestation during the first few weeks if development. Years ago it was also suggested that I may have a mild form of AIS but that is minor compared to other Intersex issues. I had surgery as a ten year old child. Im not sure what was doe during those first surgeries. As an adult I did develop cancer that was also related to the intersex.

Great video on the subject. I learnt some new things! Looking forward to seeing more from you 😁

paleLove oh sheeeets, wrong platform paleLUL proud of ya Sara, always got your back

Hi! Thanks for making this video, it’s been so interesting and informative! :)

I learned something new, that people AIS did not have body hair. I had assumed that body hair resembled that of people with XY genes. Thank you for your good explanation.

Thank you for sharing your personal life. It is very educational and open doors for understanding that historically were closed because of antiquated social norms.

Thank goodness, we can now talk about these topics. I grew up in a world where no one existed between neck and knees. Women could not tell daughters about periods. I was told I would have a visitor every month and that I would have to put on a pad. This was the day the first day of my first period. Speaking openly like this would have had my mother thinking you should be shut in an institution because you are too sex aware and being hysterically silly. There are still people around who can not come to terms with anything between neck and knees. Even the way I have put this shows how outside normal my attitude to the body has been drastically biased. Fortunately now young people are able to see normal is very different from my young days.

Thanks for sharing! I hope this helps a confused person, who stumbles on this!

Wooow I have now seen this for the 3th time ! its soI nteresting sarah! :D

Thanks for sharing your story. You tube really allows for us to learn so much. You are a beautiful woman.

Congratulations on your video. I love Sweden and Swedish people and have been there many times, starting in 1967!

Thank you for sharing your story. I’m mom to a beautiful 18 month old baby, her name is Helena and she has xy chromosomes as well. We found out a few months ago and yes, it is a learning process, but we’re doing very well. She is a happy and a healthy baby 🤍

Hi Sarah thank you for sharing your story; I’m also have complete AIS. I just found out on 2020 like if COVID wasn’t enough las year 😅. Anyway, I hope you’re doing well !

good things more than bad things, good for you!

Thank You for sharing / educating me ...

Thank you for sharing your story.

Thank you for sharing your story

Thanks for making this video and explaining the characteristics at the 3:15 mark. I assume this might be described as the phenotype but am not sure. I assume there are a variety of androgen insensitivity and therefor variety of characteristics that might be presented. What else might we learn? It was memorable in high schools biology class when we learned that developmentally we all start female and that male is described as the "derived" sex.

You are such a pretty woman. Be proud of yourself.

Sorry, AIS is not dominant. is recessive x-linked

Thank you for posting. I do hope you make more videos. My one suggestion would be to not have background music. It distracts from your important message.

I have also this...why It causes overweight & what can I do!? Can you explain? Even after dieting I again gain weight!

Thank you for sharing! You are amazing!

you sure weren't short changed in the looks dept...you are gorgeous

Thanks Sara..for sharing your story..as i have my baby girl of 5 years & she is also diagnosed with CAIS..pls Tell me all the things regarding this i m from India

Good job darling i am so proud of you ❤️

Thank you for sharing.

I too was born with a intersex condition. It has caused me a lifetime of pain. In addition I had many surgeries and even stage three cancer because of it.

I can’t believe by 2012 doctors were still recommending removal of the gonads. It’s so frustrating. If your gonads were intact you wouldn’t need HRT, right? Cause your gonads we’re making androgens but then your body was converting them to estrogens?

Thank you very much for this video.

Welcome to family! 💜💛

i love this girl

vegetarians body odors are nice, i think they are pheromone level. not as strong as perfumes but you can detect them if you put your mind to find the silent odors. and they are really good.

Nice video Paleolite 🙂🙂🙂

You never know people looking at feet because some guys will look at your feet because feet are pretty to them .

This is really interesting, thank you for sharing ❤ If it’s not too much to ask or to invasive, do you have the complete form of the androgen insensitivity syndrome or the partial form? If I understand correctly, it can be a spectrum right?

There’s is a whole episode on AIS in House MD.

Hi sara, i also have the same condition, now iam struggling with that, can you please help me...

Do you mind if I ask what estrogen pill you're taking? I have CAIS and take 2 mg of estradiol per day but I'm worried I have the wrong prescription. Thank you for making this video, please make more :)

I thought androgen insensitivity syndrome meant that the Male foetus did not have the receptors to respond to Male hormone. I didn't think the foetus responded to oestrogen as the person in the video stated.. .The foetus has no female sexual characteristics so cannot develop as female but lack of response to Male hormone means their body parts look female or ambiguous.

I have a question that I can’t seem to find online but - even though you hadn’t started you period by age 15, did you at least have normal breast development or was that also delayed? And - were you always tall for your age or did that height only happen once puberty kicked in and breasts began developing? *Asking because I have a 14 year old daughter who also hasn’t started her period, doesn’t have body odor, has no body hair, doesn’t have any signs of breast development, and isn’t tall for her age (she’s slightly shorter than average). I’m wondering if it could be CAIS but also don’t know if she is mentally/emotionally ready to hear that from a doctor.

Nice to know from you about Inter sex individual from a real person like you.

Thanks!

Im sorry to say this, but I find this so interesting I have to ask: do you know other people with this condition? If so, do they all identify as women or consider themselves female?

I hope to see more videos from you !

no pressure to answer if you don't want to... do you have health problems like depression, fatigue, low muscle tone, etc due to not having the testosterone?

What is with your libido, if you are resistant for testosteron.

Nice video

Interesting, informative video! Just curious: what is the difference between Androgen Insensitivity Syndrome and Complete Androgen Insensitivity Syndrome?

You're beautiful, you should be a model. However you said you were a doctor, thats a much better career.

this is so cool

This is why u don't do gender assignment surgeries on intersex babies; how u know if they're gonna have a period or not?!

Tell Matt Walesh , your story is inspiring .

I am a medical student learning about this topic and hearing your story helped me understand it better! Thankyou 🤍🤍

Thank you ♥️🇨🇦🌎

Why doesn't Jamie Lee Curtis tell her story? I feel betrayed by her.

AIS is a hereditary X-linked RECESSIVE trait, not dominant.

I have Partitial AIS with low sex drive but I get testosterone I also have autism

Can you repost this with louder audio?

You're such a pretty woman!!

How do males test for xxy condition?

The pros sound highly desirable, as is tall height. The worse thing I think is when parents forcibly drag you to a doctor and make arrangements in secret.