My MALS diagnosis story (Median Arcuate Ligament Syndrome)

Рет қаралды 684

Жыл бұрын

Sharing my long journey to diagnosis with MALS in the hopes that it will help or encourage others :) (Median Arcuate Ligament Syndrome)
My Symptoms of MALS: • MY MALS SYMPTOMS (Medi...
Did EDS and MALS affect me from childhood?: • Q&A: Did EDS & MALS af...
Getting a HIDA scan: • Getting a HIDA scan! ...
Liver Elastography: • Getting a Liver Elasto...
Gastric Emptying Study: • My Gastric Emptying St...
Endoscopy, Celiac Plexus Nerve Block and Placing a Feeding Tube: • Hospital Vlog: Getting...
Testings, CT scans, Doppler etc: • A lot of Specific Test...
Formula Changed and Sustained my Life: • Formula Changed and SU...
Health Update - I'm getting admitted for testing (this is where I talk about upcoming endoscopy and celiac plexus nerve block): • Health Update! I'm Get...
So, I'm getting a surgical feeding Tube (This is where I talk about my decision-making process on treating MALS): • So, I'm Getting a Surg...
"I just got off the phone with the vascular surgeon in the U.S. (this video is where I got diagnosed: • I just got off the pho...
New GI and Answers! • New GI, New HOPE, New ...
Discouragement turned to encouragement (talking to my team after a misdiagnosis): • Discouragement turned ...
My First two gastroenterology appointments • My First Two Gastroent...
I'm Fighting to Avoid a Feeding Tube: • I'm Fighting to Avoid ...
Seeing ENT first apt: • A Really Encouraging A...
Seeing ENT 2nd apt, getting testing and diagnosed with inner ear issues::
• Could an Inner Ear iss...
Playlists
Journey to Diagnosis with MALS:
MALS :
***
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* To visit Mightywell, click my unique link here:
mighty-well.com/discount/PURPO...
Use the code 'PURPOSE10' in the checkout to receive 10% off. (I will receive a small commission from this with no extra cost to you).
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*=affilate links
***
Here are links to my series of hospital vlogs sharing my experience getting my surgical feeding tube
Part 1:
• GETTING A SURGICAL FEE...
Part 2:
• FEEDING TUBE SURGERY V...
Part 3:
• FEEDING TUBE SURGERY V...
Part 4:
• FEEDING TUBE SURGERY V...
Part 5:
• Feeding Tube Surgery V...
Recovering:
Week1:
• Feeding Tube Surgery V...
Week2:
• A Week in the Life Rec...
Week 3:
• Days in the Life Recov...
Week 4:
• 4th Week Recovering Po...
Week 5 (infection):
• Serious Feeding Tube I...
Week 6 (Admission):
• Admitted for Serious F...
Week 8 (Follow up after admission):
• What's Causing my Feed...
Feeding Tube Playlist:
• Feeding Tube Videos
Hospital Vlog Playlist:
• Hospital Vlogs
My surgical feeding tube experience playlist:
• Surgical Feeding Tube ...
Why I got a feeding tube:
• So, I'm Getting a Surg...
My Naso Feeding Tube Placement (Surgical Placement):
• Hospital Vlog: Getting...
My Naso Feeding Tube replacement (NG Tube non-surgical):
• Getting a smaller feed...
My Link Tree:
linktr.ee/purpose_in_this_jou...
My Channel:
/ @iammellbell
Instagram:
/ purpose_in_this_journey
Facebook:
/ purposeinthisjourney

Пікірлер: 15

@miserablelife8728 9 ай бұрын

You are still blessed cause you've got a country with advance tech unlike ours i am just waiting for some miracle cause we dont even have the money to be diagnosed or treated

@davidjardine4968 Жыл бұрын

I really appreciate your humility, perseverance and courage. You're an inspiration for anyone on any kind of health journey because of the way that, through everything, you have kept going and made real progress. The insights you share about dealing with doctors are really helpful as well.

@iammellbell Жыл бұрын

Thank you so much, I really appreciate that a lot, hope you're doing okay

@animatorFan74 Жыл бұрын

Wow, you covered so so much in this one video.... what a full-on journey. I can't even begin to imagine what a journey like this would have been like. It's so so full-on. And you're still going with this journey! Really crazy, but so glad you're surrounded by your parents, Ben and your husband to cheer you along the way. Wish you all the luck with future appointments with specialists ....... hope you get better and better treatment as time goes on. Thanks for sharing. :)

@iammellbell Жыл бұрын

Thank you so much, I really appreciate that! I appreciate you watching as well. Yes, I am so greatful for family :)

@animatorFan74 Жыл бұрын

@@iammellbell oh nice ..... love it :)

@AJGVids Жыл бұрын

This is very inspiring, thank you for sharing your journey. I've no doubt your videos will give hope and inspire perseverance in those feeling at a low point with their illnesses. I'm very glad you were diagnosed and are doing better.

@iammellbell Жыл бұрын

Thank you so much, I really appreciate it! I hope you're hanging in there wherever you may be in life

@energeticwell6290 Жыл бұрын

Love how you involved Amaya. Thanks for sharing your journey

@iammellbell Жыл бұрын

Thank you so much

@mbbeautea6986 6 ай бұрын

I wonder if an inversion table would help that. Taking the pressure off. I’ve had about few abdominal surgeries. Not fun but I healed well. I have a wonderful doctor but before I found her, I had some MAJOR trust issues. My hippa rights were violated by 2 doctors back to back and doct# 2 had a major conflict of interest dealing with me as a patient. Absolutely horrible. I will never forget how that woman tore me down in her office. Gross. Anyway we all have our struggles but some of us just have more or less time or money to invest in those struggles. I’m in the less category 😅. So happy I have such a great doctor now.