Most all people are flaky and shallow....I married my husband who was already showing symptoms.....my best friend made fun of me and eventually we grew apart....my husband friends eventually went away....now it's just me and my husband...

What a wonderful, beautiful , strong young woman you are. Best wishes👏

Disability is no reason to stop you from achieving your dreams , have a brilliant future girl and enjoy every moment...

Briana, i understand. Thank you for your videos. i look forward to more!!!

I am sorry you are going through all of this! Thank you for taking the time to share your story. More people need to know about it since it is not a common disease. Myotonic muscular dystrophy runs in my family on my mothers side for many generations. My grandmother had it and my mother has it and her brother had it but passed away from heart problem a few years ago and her other brother passed away from heart problem as well, he also had leukemia and COPD but he was never tested but pretty sure he had it as well . My Aunt was the only one who does not have it but she has plenty of health issues herself. I am pretty darn sure I have it and it sucks and no one understands because it is not a visual disease. I finally decided to get tested because I am having so many issues and would like to know for sure so I can face it head on instead of trying to pretend nothing is wrong but now just trying to climb stairs is a joke I have to use my arms to pull myself up and my arms are weak too. I won't get results until Thanksgiving kind of ironic. I am 40 and first sign of a problem was in high school but didn't think much of it. My mother kept telling me I have it so I kind of just accepted it but this last year fell a few times and my feet aren't lifting off the ground and then weird nerve issues and tremors that I guess can be a part of this joyful disease as well. I guess the point off all this ranting and rambling is just to tell you your not alone and you are very inspirational and brave and maybe someday I will be brave enough to share my story too. Sorry you have had to deal with this since such a young age. I guess I am lucky in that for my family it is myotonic muscular dystrophy type 2 which of all the different kinds is the best one to have but it's no walk in the park. best of luck

You go girl! I love how you are educating people... Keep it up! I also have MD... LGMD2i to be exact. Im 41 and am doing well... Keep up the good work!

Thank you for this video. I just got diagnosed with this and your video helped me.

Thank you, for sharing your story. My fatigue has taken over my life too. People often stop talking to me too when I explain I have MD. Your are beautiful and brave.!

Thanks for the great info. I'm waiting for my diagnosis and I'm really scared. Good luck to you young lady.

You are a strong Girl. Love you Gal!

Thanks for sharing your story I also have MMD and understand how hard it can be keep up the fight

Hi Brianna, good to see more videos on muscular dystrophy. The hardest part for me is that you see normal but it's far from it, sometimes I can't walk more that fifty feet without having to stop from pain , stairs are a nightmare. It's nice to see I'm not alone, thanks! I'm 29 with beckers muscular dystrophy , it's similar to duchenne but less severe and more gradual.

Thank you dearly beautiful soul. You are so brave.

You’re a strong woman wishing you all the best, I think I have it too but haven’t been diagnosed doctors say since I’m in my late 30’s I wouldn’t randomly get it very ignorant but I’m at their mercy take care

Your a brave soul and very pretty! I'm trying to figure out what my bf has he won't tell me yet been going research tho.. Keep going girl!

hey everyone! thank you all so much for continuing to watch this video and even comment on it! thinking about making an updated one since this was a few years ago. if any of you want to talk or have any question, feel free to find me on social media! my IG is brianaparisiiii

i actually have this type of MD its horrible im 29 and sadly just finding out about it and its been a horrible journey finding out why ive been in pain and why ive been how i am my whole life since i was mid teens

You are overcomer stay positive

I'm wondering if my form of stretching and exercise can have any benefit to feeling a little better. Is there a diet? Supplements? Massage? Sauna? I know there's no cure btw

I was searching more information about my problem with muscular dystrophy and I never found someone with same symptoms just like mine , but well I until today. so hey, I'm Justina and I have Muscular dystrophy and lots of over similar health problems just like yours, I know how you feel girl. I really would like to talk with you or get to know you for sure. best wishes!

I'm waiting on the blood test that will determine if i have it .but i do have the same simtom s.

How do you feel now?

I think your video was great. If someone thinks a girl cant have it needs to learn to read..I am 38 i found out i had it 1 year ago. I am doing pretty good just wish i would have known before having my kids. I an happily married with 4 kid and a great husband and a huge family that supports me.

But lets all get better !!! Right it's all about that

I want you to proof to docs that women have it to!! Like u what im tryna say! I have pain in my legs and arms im 21 now it started at age 16 maybe younger but i dont remember

Hey Briana, thank you for posting this. My little sister just got diagnosed with muscular dystrophy and I would love to talk to you about how you are doing and if you have any advice. Let me know if there is a way I can contact you.

i very happy

Hello I am Emi. I am 21 years old and I live in Albania. Curb by DMD

so i'm going to make a new video so if anyone has any questions, please comment below so i can answer them in the video:)

you said muscular dystrophy on your video now there is only 9 types i live from it how u gonna tell me search if i live with it???

I'd like to be your friend I have have MD as well and it's a hard road I'm praying for you honey

hi, I just came across your video. my boyfriend has DM. I would love to speak with you sometime. please email me if that's ok.

Hello young lady, I wanted to sort of come in defense of your relatives whom you say don't understand your situation well. When I was around my early twenties my younger sister of 17 years old got a stroke and became paralyzed half side of her body (she was married with two kids already). All I remember was in ONE OCCASION, many days into her illness, she was prostrated in bed unable to get up, crying hysterically (now I understand her with so many regrets and sadness) my older sister yelling at her to shut up. Other than that, this time many years after her illness, she recovered almost all her independence but she was left with a damaged left sight and numbed arm that until this day, cannot use it properly; she managed to have one more kid though. My point is, why I personally, was so indifferent to my sister's situation? Why I personally, did not care about my sister's situation? I really don't know! But I do remember I was busy with my friends, trying to make a living, dating a girl, you know, the things one should be doing at 20 years. My two parents were gone already and we, six siblings, were on our own. Perhaps some of us don't understand our own sick relatives is because when we are aware of our normal health, many of us are "in a hurry" trying to enjoy this short time we have on this earth (instinctively?). Have you ever seen in the animal kingdom when one of them is sick, they just "sniff" at it, wait few minutes, try to get it up but if they don't then go away? I guess we have some of that sort of behavior. You know what is the irony of it all? I'm a nurse, and within the next few days, I will start taking care of a boy with muscular dystrophy. Well, I've been a nurse for the past 15 years, taking care of people which I should had been doing when my sister became ill. I'm hoping for the day when my Lord Yeshua HaMashiach comes back then all diseases will be conquered; He promised. Lord bless.

Hi Briana. Thanks for making your video. My 23 year old daughter was just diagnosed with Myotonic Dystrophy a couple months ago. She has probably been symptomatic since she was 12-13 years old, but we just never knew anything was wrong. Anyhow, you seem so much like my daughter, especially your "fight". You both have strong spirits. She too has few friends, but she is truly a lovely person. I want her to make a video too, because I think when you all tell your stories, it helps increase understanding, especially about this disease that so few people understand...especially when it is juvenile onset. Are you able to work or go to school? I'd love to be able to talk to you about this. I have so many questions, and you're the first person that I know of that seems more like my daughter's case. My website is trinafeliciano dot com. You can contact me through there if you'd like. Thanks so much.

Im no tryna uk make you feel some type of way but im just fucked up bc of the docs say and proof they dont have! Thats all hun

I don't want to be a bitch but I have seen much wrose types of Muscular dystrophy. The video is good well done 👍

Call a neurologist and ask them can a female have any type of muscular dystrophy i have dmd the worse ! Iv been like this for 5 years!! Ur just a lier !!fr fr

No women on earth has any type of muscular dystrophy wow this is for views !!!

All for views huh!?

Heeellllooooooooo you make no sence my g!!