our 13 yr old son was just diagnosed with MALS today after vomiting all this life. Recently he started losing weight and the vomiting has gotten so bad. He also has Eosinophilic Esophagitis. I am beyond worried. I am grateful for your video. Thanks for sharing.

I have EDS, Fibromyalgia, and POTS. I feel like I had to research them on my own. Dr.s barely know they exist.

I keep reading how rare MALS is but my daughter has it too. I'm glad you got a diagnosis. Thank you for giving your doctors name. Wishing you the best in health!

Can't wait to see your postop video! You'll do great!!

Thank you for documenting this Angie. We are going to be following your story. Wishing you the very best!

Thanks for posting. Prayers for you and your family!

Aaaargh! I have been on this roundabout forever! I was finally diagnosed with hEDS at 40. I'm still trying to figure out the flank pain I have had for 8 years! If everything the doctors have said is in my head really is in my head, then I could float in a Macy's parade. But as you surely assume, it's not.

So well spoken! Exactly what I learned as a patient model at a vascular conference where we focused on NCS and MTS - the practitioner is everything! An inexperienced ultrasound tech will not get the images needed or interpret them well.

Hi Angie...thank you for sharing. Really hoping this is the remedy that will make you feel normal. So sorry to hear you've been plagued for so long. I'm in the Le Meow Endmyopia community and just sent you a message if you have a chance to read. Best wishes and prayers for your recovery ☺️

All the Best Angie...God bless you and your family... Keep up your positive attitude... U ll surely sail through the surgery....

Omg the meditation and the breathing thing - so true!! Drives me nuts

I hope you surgery went extremely well. I also have MALS and it good my doctors and numerous ER visit ( vomiting blood, couldn’t eat) for them to finally find out what it was. My Celiac artery was so damaged because of the compression that I have to have surgery every year just to keep the artery in check

Dr. Martinez did my MALS surgery last year before he retired. I’m all better now 😊

Thanks for the informative video. I found out I might have this and will be getting an appointment soon. I’m lucky that docs who know about this reached out to me. I’m 32 and only got diagnosed a year ago with the same things. I know how you feel.

Hi. What are your symptoms if you don’t mind me asking. Thanks.

My son has MALS. Surgery June 4th with Dr Shouhed in LA. Thank you for your video. Hope you had a successful surgery and a relatively easy recovery. ❤

You got this!

What doctor for tests that were correct did you go to?

Wait is this why I had a vascular necrosis and had to get my hips replaced?

Hope you notified the other Doc about your diagnosis. Maybe it will help another patient and get him additional much needed training!

Infinite Blessings to you on your journey. ☆♡☆

My daughter is getting SMAS and MALS surgery on Thursday. This video helped me figure out what could be wrong and start on the path to diagnosis. Thanks

@angiehepp In regards to MALS...as a child did you suffer with stomach issues? Ive heard you mention the stitch in your side that you experienced during vigorous play or exercise as a child, did your surgeon sat whether that was related to MALS?

I have lost a bunch of weight. Literally looking skeletal and anorexic. Its scary. I have been struggling for several years after a gallbladder surgery. I have been checked for so much to no avail. I just recently learned of mals after someone said my symptoms sounded like it. The more i hear about it, the more i relate to it. Unfortunatly i cant get anyone to listen. Even losing so much weight. I decided yesterday its time to change doctors and drive to another town for better care. My symptoms got alot worse this year after a sudden rib pain. Still struggling with the ribs as one keeps subluxing. And they just keep telling me its anxiety. Its not. But something definitely isnt right and i have pain after eating. Can barely eat much food at once. Nausia but no vomitting. Even have pots type symtoms. Its like everything changed the day after my gallbladder surgery and i have said this from day one. Something changed with that surgery. Idc what they tell me.

omg this is crazy. the gi dr would tell me and my parents im fine and then i went to the er and ct scan was positive for mals. i need a dr that will tell me i have it and they believe its not in my head

@Angie Hepp, very best wishes for you and your family.

I’m in the process of getting diagnosed with SMAS after having every symptom in the book of that as well as MALS. I also suffer from hypokalemic periodic paralysis though it did not come up on DNA test. Could you tell me what surgeries specifically you had and by whom? -Rachel

I have my surgery on Aug 18th 2021 (Chicago) I’m hoping it will work. Dr. Said 70% success rate. Never even heard of MALS till tests. Most awful pain I’ve ever felt in my life.

You are naming my situation exactly

How are you doing now? No surgeon in Australia will touch this surgery and needs to be done by an expert and open surgery so can deal with the scar tissue and fibrosis to reduce further issues still. However i am finding it impossible to get help and meanwhile now can hardly eat and the nerve bundle irritation means stuck in flight or fight and compressed tightness now is 24/7 from chest to radiate down abdomen and into back. Feels like im stuck internally right aide body and nothing helps ease the pain. Spreading and more deep and visceral issues longer its left. My autonomic dysfunction is worse and blpod pooling in legs wtc etc. Vicious cycle. Ild love to hear how you are doing now years later and then you for sharing your story. Hope all is now going well.

What test shows Mals ? I am at my wits ends.... NCS left flank pain fullness ect

Have you tried Isha practices ?

I am boy who is 17 but The doctor doesn't want me to have surgery

It’s so weird how they say it’s rare but so many have it!

Do you still recommend that surgeon?

Do this mess with your breathing?

This is me

God bless you and your family in jesus name

9:32

Who was your MALS doctor?

You're a wealth of knowledge! I love you hot wifey!!

Pretty face 😉

I have to ask...are you a true believer in Jesus christ and have you tried christian healing...?❤❤